ever felt that your ASD has gotten worse in adulthood?

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rowan_nichol
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14 Sep 2017, 6:56 am

No, not worse, but at times more noticeable.
Adult life made certain areas more obvious - it puts up many more situations where social and organisational skills are needed, and it showed the parts of my own profile where these were weak, and also showed where I did not have the Intuitive abilities to think in others shoes - explicitly doing that stuff is OK, but it is very much a case of remembering to do so not it being something done automatically. Adult life throws situations where changeability of real situations grates on a intuitive desire for sameness. It also throws up situations where communication is an important part, and thus a selection of awkward areas when a complete understanding has not been reached.

It has also become less noticeable as I have learned ways of dealing with these sides of life. Examples include keeping a private journal and using it as an aid to thinking through awkward situations, preparing for future situations, recording gains and successes. Other examples include keeping the brass face to avoid situations which press on sensitive issues with no actual payoff involved and concentrating on doing theings which suit my own profile, alone if necessary.



IstominFan
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14 Sep 2017, 8:57 am

I think my general functioning has greatly improved in recent years, as have my social opportunities and general responsibilities at work and at home, all of which are very positive things. However, I notice that I am much more anxious at times. I feel a sense of sadness because I am still far behind where I need to be at my age. I won't have everything a "normal" person has, but I can have a lot.



kitesandtrainsandcats
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14 Sep 2017, 9:29 am

Q: ever felt that your ASD has gotten worse in adulthood?
A: Yes. It is suspected by both myself and paid professionals to be primarily from burnout from trying to pass for NT for multiple decades.


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Roo95
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15 Sep 2017, 1:26 am

C2V wrote:
It definitely seems like it to me, too, and I've narrowed it down to a few possible factors -
1. I am developmentally delayed, so I didn't even catch on to anything different between me and others until much older than I should have. I had no awareness of norms, no awareness of other people, etc. Like a dog. Not much self-referential consciousness. So, I wasn't really capable of understanding that autism was a thing and that that thing was making life more or less difficult for me until later. Mature adult self-reflective consciousness can really point this stuff out to you rather starkly
2. Life is much, much simpler as a child. If you can play in the dirt with proximity to other children then you skate. As we age, life becomes more demanding, more complex, etc. That can appear to make autism seem worse just due to the contrast in expectancy. Suddenly you're meant to take care of yourself, live independently, work, have relationships with functional adults, etc. None of this was required as a child, ergo it seems autism is worse in adulthood
3. I was just having a rant about how autistics are conditioned from infancy to hide anything autistic abut them, and praised for anything neurotypical they can fake. If you end up having to throw out that idea because you're too autistic to make it work, aka you're becoming more accepting of the fact you're not neurotypical and acting like one is just a thin lie, then that embracing of yourself can, I think, bring out more of your autistic nature that you'd been suppressing, sometimes for years, trying to be as "normal" as you can and had always been conditioned to think was superior. That can make it seem as though it's getting worse when it's been there all the time - you were just working too hard to pretend to be something you're not.
4. I believe successive burnouts, or breakdown as happened with me (and not the colloquial meaning of "breakdown," here. I don't mean you feel a bit down for a while or develop a bit of depression. I mean severe autistic breakdown that had me bedbound, nonverbal and almost catatonic for almost a year) can break something that never fixes, and that can exacerbate the autism.

Probably a lot more I can't think of off the proverbial top of my head.


Excellent comment. And sorry to hear about the burnout you had, I have a lot of bad meltdowns but never experienced that myself but it doesn't sound nice at all. This may sound strange but due to so many years of acting / faking, I actually forgot who I was. My adoptive parents were always loving and caring but they were never accepting or supportive of my aspergers since being diagnosed age 5. They treated me like crap and punished me whenever I displayed any autistic behavior so I had to learn to act exactly like my nt brother and sister. Wasn't until I moved out when I stopped acting. this made life easier and I became a more autistic but completely different person. I can also relate to number 1. I didn't realise how different I was until I started studying myself compared to others to realize that I act and react completely different to anyone else in certain situations



renaeden
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15 Sep 2017, 6:31 am

Definitely. I had a breakdown at age 26 and ended up in hospital. After discharge, my community psychologist recommended me to her colleague who specialised in autism. I was dxed with HFA.

Since then I've had more breakdowns and more hospital stays. Last one was in 2013, though, a long time ago. My meds must be working.

At the moment, I'm not working. I'm studying programming at Tafe (Australian college). I can only go part-time, I just can't deal with full-time, it's too stressful. So yeah, that might be down to being autistic. People have asked me why and I just say that I can't afford it. There is an element of truth in that. But mostly it's because of stress.



ScottF
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15 Sep 2017, 7:54 am

Yes, I believe in my case it has. I was diagnosed 9 years ago at 30...These days, an exciting weekend is not partying and getting drunk like it used to boe in my 20's. Now I would much rather sit at home and work on a model kit and watch youtube conspiracy videos LOL... Or work on my comic inking portfolio.


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15 Sep 2017, 5:34 pm

I don't know if my autism has gotten worse as I've gotten older, or if the added stress of adult responsibilities has made dormant traits surface. My meltdowns have gotten way worse since I moved into my own apartment in March, I get anxious and stressed even more frequently than I used to, and it was already pretty bad back then. My need for routine has strengthened, and I get way more upset over little things changing any more. To be honest it's kind of driving me crazy.


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