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kraftiekortie
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14 Nov 2018, 10:17 am

^^You won't always succeed.....but your situation is like a "losing battles, but winning the war" type of thing.



blooiejagwa
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14 Nov 2018, 10:18 am

kraftiekortie wrote:
Imagine if Asperger's was the only thing one had to think about (healthwise) throughout life?

It's sometimes painted as something of tragic proportions. I don't agree that it's tragic.

It's eminently "treatable" (It's debatable whether it's something that must be "treated" at all).

I feel like Asperger's is something one adjusts to.


It can be. I do think frm what i read of the research tht while a group of symptoms we can all have (thus the diagnosis) there are other factors impacted due to varying levels of skills and development
So my son who is severe ASD cd not even grasp the idea of eating till now just a bit every few days he can (he just turned 6) which is why he is on G tube
Or does not realize how to communicate to me abt anything (not just talking inability but also just tge concept of coming up n tapping me fr help he did not have till the last few nonths tganjs tobintense therapy)
so instead i keep an eye on him liks crazy to make sure i can figure out moment to momeny what he wants

Similarly it rarely occured to me to seek help if i had any trouble in any area of life And when it did i was so troubled by HOW to go about asking/tje whole social breakdown step by step i cd not grasp
So i usually tried to read or other things to figuee it out or just kept the problem as is n lived with it

Now i know i can and HOW to ask fr help etc
I did not knos this till i got married and my Ex Husband explained in detail n a lot of bad situations happened till he told me to ASK

Object permanence is still a major problem but thankfully way vetter than it was just a fwq yrs ago . Other ASpies may have a great memory fr that or far superior to me in social skills (eg they have real friebds n know how to meet them n talk to them casually) and likewise
I am better in an area compared to another person who mayve cannot have the ability to articulate as much in
writing

Like i mean it’s such a broad range n timeline of development is so varying


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kraftiekortie
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14 Nov 2018, 10:22 am

I definitely know what you mean, Blooie.

I knew a kid with Classic Autism growing up----nonverbal, nonresponsive, etc. I was actually diagnosed with Classic Autism. Technically, I am a person with Classic Autism to this day.

I can't even conceive how hard it is for you at times. Yet you seem to be doing a fine job.



blooiejagwa
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14 Nov 2018, 10:29 am

IstominFan wrote:
Very true, kraftiekortie. I am very much afraid of failure and doing the wrong thing. Only success can help me move forward. Failure will only put my goals further on hold, or may demolish my chances altogether. That seems sad, but really, it keeps me on track.


I hope that you have supportive people around you to help, and be sure to delegate tasks to them or request help / moral support. Eg my brother has to be by my side just to encourage me so I can complete forms and that is the best way

KraftieKortie
It’s jusr as difficult as anyone else here I’m sure.

I dont mean to diminish anyone else’s struggles if it comes off that way but my idea of ASd totally changed when I read this information (that ASD brains develop differently at different times) so I had to share.

Likewise you are a gentleman and a class act and I cannot imagine what type of unique struggles you have had to overcome

Thanks fr always maintaining an upbeat tone on threads as it stops things from getting gloomy


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14 Nov 2018, 10:30 am

katiees45 wrote:
If somebody gets diagnosed as a kid, will they inevitably deal with it for the rest of their lives or can you truly "grow out of it"? I was diagnosed when I was in 4th grade which is apparently rare for a girl? Anyways I was really embarrassed about it for the longest time and whenever I fill out forums I never put that I have anything even though I really probably should have. I really convinced myself that I didn't have it and it was just a misdiagnosis. Now I am almost 19, didn't finish high school (I just had so much difficulty) and lately, I've realized yeah, I show textbook signs of Aspergers. I can't talk to people, It physically hurts to look people in the eye, I'm extremely socially awkward and I've never even had a job because I think they can tell in the interview stage. I couldn't even get a job at McDonald's, for real. I just don't want to accept that I probably have Aspergers, it wasn't a misdiagnosis. I'm just so embarrassed about it and I don't even know why. So I guess I'm gonna have to deal with this forever? Is that how it is? You can't "grow out of it" (even though I'm an adult already...?)
Really depends what you mean. you can get to a point where you learn to deal with it and it no longer affects you. But you can't be truely rid of it.


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14 Nov 2018, 10:34 am

Pieplup wrote:
Really depends what you mean. you can get to a point where you learn to deal with it and it no longer affects you. But you can't be truely rid of it.
^THIS^

I still can't tell the difference between a "Drop dead and go to Hell" look and a "Please leave me alone, I'm tired" look.



UncannyDanny
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14 Nov 2018, 10:37 am

"Growing out of" something that can affect your mind is nothing more than a mere illusion.

Plus, being autistic is not always a bad thing.



Pieplup
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14 Nov 2018, 12:48 pm

Fnord wrote:
Pieplup wrote:
Really depends what you mean. you can get to a point where you learn to deal with it and it no longer affects you. But you can't be truely rid of it.
^THIS^

I still can't tell the difference between a "Drop dead and go to Hell" look and a "Please leave me alone, I'm tired" look.

I'm glad you agree with it it means alot coming from you :)


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I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup


blooiejagwa
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14 Nov 2018, 12:56 pm

Fnord wrote:
Pieplup wrote:
Really depends what you mean. you can get to a point where you learn to deal with it and it no longer affects you. But you can't be truely rid of it.
^THIS^

I still can't tell the difference between a "Drop dead and go to Hell" look and a "Please leave me alone, I'm tired" look.


I still wonder about these! However it helps to have someone next to me when possible eg a family member , to ask ‘was i misreading or was that man really glaring at me?’ N then they usually givecme feedback
Based on their feedback i now know that i am usually inaccurate in my assessment.
Although if someone is really angry i can feel a physical sensation of heat coming at me, in their presence , which 1 person on wrongplanet told me they experience too


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14 Nov 2018, 10:31 pm

katiees45 wrote:
If somebody gets diagnosed as a kid, will they inevitably deal with it for the rest of their lives or can you truly "grow out of it"? I was diagnosed when I was in 4th grade which is apparently rare for a girl? Anyways I was really embarrassed about it for the longest time and whenever I fill out forums I never put that I have anything even though I really probably should have. I really convinced myself that I didn't have it and it was just a misdiagnosis. Now I am almost 19, didn't finish high school (I just had so much difficulty) and lately, I've realized yeah, I show textbook signs of Aspergers. I can't talk to people, It physically hurts to look people in the eye, I'm extremely socially awkward and I've never even had a job because I think they can tell in the interview stage. I couldn't even get a job at McDonald's, for real. I just don't want to accept that I probably have Aspergers, it wasn't a misdiagnosis. I'm just so embarrassed about it and I don't even know why. So I guess I'm gonna have to deal with this forever? Is that how it is? You can't "grow out of it" (even though I'm an adult already...?)


As others have said, it is lifelong. That doesn't mean you'll always be as you are now.

You will learn how to deal with it. You will find a way to approach some of life's obstacles differently than others may.

It's not always going to be easy, but you'll adapt. Don't panic, everything will be fine.

It took me a while to get through school, I went on the extended plan. You'll need to give yourself some a break and take some time to get through school, but if you give yourself a break and are patient, you can do it.

McDonald's probably wasn't the right job for you anyway, you may look for a job which doesn't entail you working with the public. I worked jobs which I dealt with the public but I couldn't do it. So it was a matter of finding jobs which I fit the best. There are lots of different jobs out there in which those with Aspergers can do well, so the chances of finding a job are pretty good. You may need coaching on how to do a job interview.

I can understand it being embarrassing. It causes you to feel "different". And we are different, but we're a good difference. We're quirky, fun and intelligent.


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14 Nov 2018, 11:32 pm

you can't grow out of autism anymore than you can grow out of your skin color, but that doesn't mean you can't learn to cope and adjust in life to do better.


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Arganger
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14 Nov 2018, 11:35 pm

Pieplup wrote:
Fnord wrote:
Pieplup wrote:
Really depends what you mean. you can get to a point where you learn to deal with it and it no longer affects you. But you can't be truely rid of it.
^THIS^

I still can't tell the difference between a "Drop dead and go to Hell" look and a "Please leave me alone, I'm tired" look.

I'm glad you agree with it it means alot coming from you :)


Unrelated, but SINNOH.
POKEMON.
Though I wish you were turtwig.


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


jamthis12
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15 Nov 2018, 12:08 am

Arganger wrote:
Pieplup wrote:
Fnord wrote:
Pieplup wrote:
Really depends what you mean. you can get to a point where you learn to deal with it and it no longer affects you. But you can't be truely rid of it.
^THIS^

I still can't tell the difference between a "Drop dead and go to Hell" look and a "Please leave me alone, I'm tired" look.

I'm glad you agree with it it means alot coming from you :)


Unrelated, but SINNOH.
POKEMON.
Though I wish you were turtwig.


Dude Sinnoh Pokemon are the best. And my favorite Pokemon games are either the Sinnoh ones or the Johto remakes.


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Rdos: Your neurodiverse (Aspie) score: 133 of 200
Your neurotypical (non-autistic) score: 79 of 200
You are very likely neurodiverse (Aspie)


Arganger
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15 Nov 2018, 3:39 am

jamthis12 wrote:
Arganger wrote:
Pieplup wrote:
Fnord wrote:
Pieplup wrote:
Really depends what you mean. you can get to a point where you learn to deal with it and it no longer affects you. But you can't be truely rid of it.
^THIS^

I still can't tell the difference between a "Drop dead and go to Hell" look and a "Please leave me alone, I'm tired" look.

I'm glad you agree with it it means alot coming from you :)


Unrelated, but SINNOH.
POKEMON.
Though I wish you were turtwig.


Dude Sinnoh Pokemon are the best. And my favorite Pokemon games are either the Sinnoh ones or the Johto remakes.


Agreed, though pikachu addition is a laugh


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


jamthis12
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15 Nov 2018, 7:22 am

Yeah that's pretty funny.


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Your neurotypical (non-autistic) score: 79 of 200
You are very likely neurodiverse (Aspie)


IstominFan
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15 Nov 2018, 9:50 am

Blooiejagwa,

Keeping you and your son in my thoughts. Please keep us updated.

Kraftie,

I hope you are right about winning the war. I hope that someday all my efforts will be worth it. I would hate to think that all the improvements I have made are for nothing, that I am only a more active version of my old self, or that one more regression or loss will be the end. I am trying to stay positive.