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Raleigh
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18 Dec 2018, 1:35 am

^ that wasn't far off my opinion once.
2+ years on meds with devastating side effects has changed that opinion.
They were pretty short term effects too, give me the possible long term ones any day.
If I can find a safer more natural equivalent, I'm taking it.
It was ridiculous being on schizophrenia meds for nausea when I could take ginger for instance.


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Arganger
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18 Dec 2018, 1:37 am

Raleigh wrote:
^ that wasn't far off my opinion once.
2+ years on meds with devastating side effects has changed that opinion.
They were pretty short term effects too, give me the possible long term ones any day.
If I can find a safer more natural equivalent, I'm taking it.
It was ridiculous being on schizophrenia meds for nausea when I could take ginger for instance.


Yes, but the problem with that wasn't the meds, it was an idiot doctor that didn't know how prescribing medication works.


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


Raleigh
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18 Dec 2018, 1:55 am

Arganger wrote:
Raleigh wrote:
^ that wasn't far off my opinion once.
2+ years on meds with devastating side effects has changed that opinion.
They were pretty short term effects too, give me the possible long term ones any day.
If I can find a safer more natural equivalent, I'm taking it.
It was ridiculous being on schizophrenia meds for nausea when I could take ginger for instance.


Yes, but the problem with that wasn't the meds, it was an idiot doctor that didn't know how prescribing medication works.

What do you mean?


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nick007
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18 Dec 2018, 5:34 am

When I was going through a bad depression I just went along with what my psych recommended. I didn't feel truly better till I quit all the meds 5 years later but I'm sure the meds helped hold me together in the begging while I made changes & dealt with things. I started having problems years later & I researched meds to treat different mental disorders. I also factored in my prior experience on meds & tried to get an idea of what would be best for me based on how I reacted to other meds. I got my GP to prescribe them for me & I've had good luck. I've added & changed some meds since then but I did my research before talking to my GP & I'm having much better luck than when I was just mentioning my problems to my psych & going along with what she suggested.


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brightonpete
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18 Dec 2018, 8:05 am

There are genetic tests available now to see which drug therapy works for you. I have tried various drugs for sinus problem. None work. Maybe there is one that will. I don't know. Those tests aren't available locally, AFAIK.

Perhaps seeking out these tests will be the answer to many problems...



BeaArthur
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18 Dec 2018, 10:39 am

nick007 wrote:
When I was going through a bad depression I just went along with what my psych recommended. I didn't feel truly better till I quit all the meds 5 years later but I'm sure the meds helped hold me together in the begging while I made changes & dealt with things. I started having problems years later & I researched meds to treat different mental disorders. I also factored in my prior experience on meds & tried to get an idea of what would be best for me based on how I reacted to other meds. I got my GP to prescribe them for me & I've had good luck. I've added & changed some meds since then but I did my research before talking to my GP & I'm having much better luck than when I was just mentioning my problems to my psych & going along with what she suggested.

This is key (bolded section) - if you want to be respected by your doctor as an equal partner in your decision-making, you need to know the relevant vocabulary, be able to mention a study or two, as well as factor in what has helped or harmed you in the past.


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Arganger
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18 Dec 2018, 11:27 am

Raleigh wrote:
Arganger wrote:
Raleigh wrote:
^ that wasn't far off my opinion once.
2+ years on meds with devastating side effects has changed that opinion.
They were pretty short term effects too, give me the possible long term ones any day.
If I can find a safer more natural equivalent, I'm taking it.
It was ridiculous being on schizophrenia meds for nausea when I could take ginger for instance.


Yes, but the problem with that wasn't the meds, it was an idiot doctor that didn't know how prescribing medication works.

What do you mean?


I mean that antibiotics shouldn't be prescribed for nausea, it sounds like your doctor was just reading lists of possible effects and just gave you the first one he came across without assessing risk.


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Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


Raleigh
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18 Dec 2018, 4:16 pm

Arganger wrote:
Raleigh wrote:
Arganger wrote:
Raleigh wrote:
^ that wasn't far off my opinion once.
2+ years on meds with devastating side effects has changed that opinion.
They were pretty short term effects too, give me the possible long term ones any day.
If I can find a safer more natural equivalent, I'm taking it.
It was ridiculous being on schizophrenia meds for nausea when I could take ginger for instance.


Yes, but the problem with that wasn't the meds, it was an idiot doctor that didn't know how prescribing medication works.

What do you mean?


I mean that antibiotics shouldn't be prescribed for nausea, it sounds like your doctor was just reading lists of possible effects and just gave you the first one he came across without assessing risk.

They were antipsychotics (haloperidol), and they are routinely prescribed for intractable nausea.
What annoys me is the doctor's prescription happy attitude without even suggesting other avenues, but that is how they're trained.


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20 Dec 2018, 1:36 pm

I have been on over 60 different prescription meds since 2005. I have a complex collection of chronic illnesses that I struggle with in addition to autism. I research treatment options for whatever conditions I am suffering from, usually by reading facebook groups or health forums like WP and others. I look for pubmed articles showing that particular meds can help treat particular conditions that I have and talk to my doctor. Most of the meds I am on are because I have asked for them. My doctor can either agree or disagree. I will ditch doctors who do not want to listen to what I have to say or treat me as if I am only a passenger along for the ride.

I certainly wouldn't take any med that I do not want to take, no can force me to take anything. I also find doctors are negligent when it comes to medication safety and interactions, so I find drugs.com drug interaction checker useful, it is the same database a pharmacist would use. I raise any interactions with my doctors as they often can't be bothered to look them up themselves.

I don't have an approach of relying on just pharmaceuticals or just natural treatments, I use both. I would prefer not to take any medications but that isn't an option for me. Life would be intolerable without meds for me.