Anybody here embarrassed to tell people you have ASD?

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plokijuh
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28 Jun 2019, 4:31 am

Joe90 wrote:
I'm OK talking about it on WP because it's anonymous (which is why I don't post pictures of myself here), but I just cannot bring myself to face a friend and say "I have ASD". Maybe the stigma attached to autism that gets thrown about in the media puts me off telling people too, like when murderers claim they have autism in court, or sites like the "heartlessaspergers" s**t written by angry NTs in such a convincing way.


I can certainly understand how you feel. I appreciate your candor in talking about this. We're trying to work out whether to get my daughter diagnosed. I flip flop because I feel like it's such a big call for us to make on her behalf, especially when she already gets the support she needs at school without a diagnosis. The diagnosis impacts so deeply on identity, and you're right that there is some absolutely horrible rubbish on the internet.

It sounds as though you don't want to feel this way about your diagnosis though. Do you have a psychologist/therapist you could work through these feelings with?

I personally couldn't hide my diagnosis from my partner. Apart from the fact that he has to cover for my deficits on a daily basis in significant ways, and the fact that I cannot work (barely part time, let alone full time), I lack the ability to hide things about myself. I just don't compartmentalise. I end up blurting whatever is in my head as soon as I'm stressed. I don't want to blurt, but it's just what happens when I'm stressed.


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28 Jun 2019, 5:18 am

A lot of close people in my life know. When it comes to new people, I am not sure how to go about it because I know there are a lot of people who are ignorant about ASD/get the wrong idea. Some people sense there is something off about me anyways.

If I know I can trust someone, I might bring it up, and I've had people help me with disclosure about my disability in the past. There are a lot of positives that come with ASD so there are things I don't mind about having it. It's just that I know there are ignorant people out there who assume.


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28 Jun 2019, 5:25 am

Joe90 wrote:
I was just wondering if anyone else here with a diagnosis of ASD have a problem accepting their condition and avoid telling other people that you have it.


I actively tell people I am on the spectrum.
Whether they like it or not. :wink:



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28 Jun 2019, 5:58 am

Joe90 wrote:
I must be the only one who feels ashamed about it then.

But when I meant telling people, I meant people like co-workers, friends and even your partner.
I've been with my boyfriend for 5 years and I've been living with him for about 18 months, but I haven't told him I have ASD. For some weird reason my ASD doesn't seem to interfere with relationships. I'm very open about my feelings, good at listening, very affectionate and understanding, loyal, and don't have trouble communicating. He's figured out my anxiety, and I told him about my ADHD, but I just cannot say about my ASD. I don't think he knows much about ASD anyway, and if one day he did suspect anything, I could say I was never diagnosed or didn't realise I had it. But telling him I have a diagnosis from childhood just makes it sound more serious, because most people with high-functioning Asperger's, particularly girls, don't get diagnosed until adulthood.

When I was younger I used to think that every person on the spectrum got a diagnosis before adulthood, because I did, and I didn't know any other Aspies until I left school.


Though it is up to you, it probably is a good idea to let him know. Just incase he would in future years find it out by accident and be upset that you didn't want to tell him. Do not fear as he loves you anyway and telling him this does not change that, or who you are. :)

You could copy those Purple Bricks adverts to tell him... (Was a joke... Don't copy them. Just tell him).

Hasn't he asked what this site is about? Is hard to hide the distinctive logo.


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Joe90
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28 Jun 2019, 6:51 am

Quote:
Hasn't he asked what this site is about? Is hard to hide the distinctive logo.


He doesn't know I go on this site. Nobody in my life knows really. I have never physically shown anyone, although I have said that I go on an autism site to my mum, but I don't think she'll be very happy if she knew I have spent the last 9 years posting about my life and all the people in my life (even though I have never revealed any personal information like names, addresses or phone numbers, etc).

I usually go on WP on my phone, which is easily accessible with one tap, and people can't really see what I'm doing on my phone unless they peer over my shoulder and stare. Also I don't really go on WP if I am physically with my partner. It may seem like I go on WP a lot, because I am often waiting at bus stops, or on a bus, or having a break at work while everyone else are on their phones anyway, or I go on it when in bed (while my partner's asleep) or whatever.

But anyway, I don't tell people I should tell, because of the reasons I posted in my original post. When I'm with him I like to forget about my shame. My mum is NT but has always been a highly anxious person, so my boyfriend thinks I get my anxiety issues from her. And I've told him about my ADHD. And if he accidentally finds out about my ASD I'll just say that I was too embarrassed to tell him, not just him but to everyone who doesn't know I have it. Anyway, I think he has some skeletons in the closet from his past that he hasn't 100% discussed with me, and I don't mean bad things. But I won't go all into detail about that, as I shouldn't discuss his life on the internet.


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28 Jun 2019, 7:05 am

I think of it this way:

I can’t give my partner autism....so I’m under no obligation to tell my partner.

If I had AIDS, then I would be obligated to tell my partner, because I could give her AIDS.

I’m not ashamed of having autism....because I didn’t do anything wrong that caused me to get autism. I do embarrass myself sometimes, though.



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28 Jun 2019, 7:18 am

For me it's a little different: I once talked to a couple of coworkers about my suspicions of being on the Autism Spectrum and the response was essentially "We all figured that out a long time ago." My wife actually told me she thought I was Autistic so I didn't even need to bring it up. I'm not too worried about costing myself employment opportunities because I have tried unsuccessfully for 7 long years to find a more suitable position with no success (despite superior education and experience) so it can't get much worse.

Granted I am not officially diagnosed yet but I can state when I go for my formal testing if the Psychologist says "no" she needs to have her license revoked as I am about as textbook as you can get. The biggest thing to remember is that ASD is a "disability" ONLY because the majority of the population doesn't have it and with proper support I can not only keep up with but exceed most people in all aspects of life.



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28 Jun 2019, 7:41 am

Not embarrassed of autism, it's just no one needs to know it. I simply thought it's no one else's business but my own.
More so if those people neverminds the realms of disability, neverminds the realms of neurodiversity, just neverminds anything more unusual than their relatable realms of human continuum.


There are so many times I seriously felt like discussing my case to some... It's other else's contexts that holds me back.
Their assumptions, their over/underestimations, their own idea of what makes an autistic... Didn't mattered much of how much they knew, be it an amateur with interest or an experienced professional.


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28 Jun 2019, 8:32 am

kraftiekortie wrote:
I think of it this way:

I can’t give my partner autism....so I’m under no obligation to tell my partner.

If I had AIDS, then I would be obligated to tell my partner, because I could give her AIDS.

I’m not ashamed of having autism....because I didn’t do anything wrong that caused me to get autism. I do embarrass myself sometimes, though.


Some people are concerned about the inheritance factor when having children.
Some partners may be anxious about that.

Having said that, the partner *should* be told what he/she *might* be getting into.
Not disclosing being on the spectrum may be understandable, but it lacks moral integrity and is a lie through omission to the significant other.

If there is no intention of having children there is still the possibility of an accidental pregnancy.
And that may lead to an unfortunate decision.



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28 Jun 2019, 8:59 am

Pepe wrote:
kraftiekortie wrote:
I think of it this way:

I can’t give my partner autism....so I’m under no obligation to tell my partner.

If I had AIDS, then I would be obligated to tell my partner, because I could give her AIDS.

I’m not ashamed of having autism....because I didn’t do anything wrong that caused me to get autism. I do embarrass myself sometimes, though.


Some people are concerned about the inheritance factor when having children.
Some partners may be anxious about that.

Having said that, the partner *should* be told what he/she *might* be getting into.
Not disclosing being on the spectrum may be understandable, but it lacks moral integrity and is a lie through omission to the significant other.

If there is no intention of having children there is still the possibility of an accidental pregnancy.
And that may lead to an unfortunate decision.


Well said, I agree completely. I think it isn't something you need to tell a romantic partner on the first date, but if things get serious it is the morally right thing to do. Not to mention, if they find out later on they might be rightfully upset that this was withheld from them, and you could lose a relationship over it. If you were up front, the same person might have been accepting.

I think the elephant in the room is that many people wouldn't be OK with it, to be honest. While it is true that anyone who doesn't accept you for who you are is not a right fit for you, it is also true that some people have a really small pool of people who can accept them as they are.

I don't think anyone is obligated to tell anyone else though, really.



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28 Jun 2019, 9:27 am

When I was in my teens I was embarrassed to tell people because of stigma and stereotypes, but now that I'm older, care less about what other people think and am for the most part less interested in socialising, I have no problem telling people.

If I tell people, it tends to be after I've gotten to know them a bit, or if it's relevant to a conversation I'm having, or if I just plain feel like it. I'm not embarrassed to tell people but I also don't feel obligated to. It largely depends on what my relationship dynamic with them is like, and whether it ever seems relevant conversation.

I would probably tell someone I was dating about it after we'd gotten to know each other well enough to where I could reasonably expect that she'd be able to see me for who and what I am as opposed to evoking stereotypes, but it would also depend on the flow of conversation and topics we chose to talk about. It wouldn't be inconceivable for me to tell someone about it on the first date if we got on well enough and it felt like it fitted into our conversation.



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28 Jun 2019, 3:44 pm

I just can't do it. I have never told anybody that I have it. The only people who know are my immediate family, because I was only a child when I got diagnosed so of course the family knew. But anybody else, I cannot let them know. It's NOT because I think my boyfriend will leave me if I told him, because he won't.
Words can't describe how I feel about it. When I was a teen I used to self-harm, because I hated my AS. I'd smack myself in the head, yelling, "I HATE MY f*****g BRAIN!!"
The shame and feeling of being victimised by it has left me wanting to hide it under the carpet. Maybe the diagnosis will come in useful one day, but at the moment I'm quite happy coming on to WP to talk about my life and "leaving my Asperger's here", if that makes sense. I do talk to my mum and aunties about my Asperger's but that's it. They know I don't want to tell anyone outside the family about it, and they understand that some people like to reveal their diagnosis to people while some don't. I'm the latter.


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28 Jun 2019, 3:57 pm

Joe90 wrote:
I just can't do it. I have never told anybody that I have it. The only people who know are my immediate family, because I was only a child when I got diagnosed so of course the family knew. But anybody else, I cannot let them know. It's NOT because I think my boyfriend will leave me if I told him, because he won't.
Words can't describe how I feel about it. When I was a teen I used to self-harm, because I hated my AS. I'd smack myself in the head, yelling, "I HATE MY f*****g BRAIN!!"
The shame and feeling of being victimised by it has left me wanting to hide it under the carpet. Maybe the diagnosis will come in useful one day, but at the moment I'm quite happy coming on to WP to talk about my life and "leaving my Asperger's here", if that makes sense. I do talk to my mum and aunties about my Asperger's but that's it. They know I don't want to tell anyone outside the family about it, and they understand that some people like to reveal their diagnosis to people while some don't. I'm the latter.


It’s hard for me to understand that outlook because, to me, romantic relationships involve having such a close bond with somebody that you can share intimate and personal things about yourself (and vice versa). Having autism is a big part of who I am so not sharing that with someone would feel like I couldn’t fully embrace one of the most important things that a relationship is about - open, honest, and supportive communication.

I don’t think it’s morally wrong to not tell somebody, but it wouldn’t feel right (even from a selfish standpoint) not to.

Perhaps you need to work on changing the way you view autism. It’s not entirely a bad thing. It’s part of what makes you you, and you are the person he fell in love with.


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28 Jun 2019, 4:00 pm

Even if you hate having autism, if you could share that and your experiences with him, it would do nothing but deepen your relationship. It seems like being on the spectrum has been a big part of your life. I think you owe it to yourself and to him to share it.

Of course you should do what feels right, but I’d think seriously about it.

Having autism isn’t something to feel ashamed of.


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28 Jun 2019, 8:42 pm

Mountain Goat wrote:
Not knowing if I am on the spectrum or not I don't know what to say.

Something I think is cool. If I am assessed and found to be on thw spectrum, I can tell people in a way that makes it space age... "Spectrum"... Like the James Bond bad guys... Haha!

Ok. You guys can carry on chatting. Ignore my humour! But the truth is, should I say or not if I am? It is hard foe me not to say as I am a very open person.


There’s nothing wrong with saying “I think I may be autistic,” but you can’t really honestly say “I have autism” until/unless an assessment conducted by a professional says you do.


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28 Jun 2019, 8:46 pm

plokijuh wrote:
Joe90 wrote:
I'm OK talking about it on WP because it's anonymous (which is why I don't post pictures of myself here), but I just cannot bring myself to face a friend and say "I have ASD". Maybe the stigma attached to autism that gets thrown about in the media puts me off telling people too, like when murderers claim they have autism in court, or sites like the "heartlessaspergers" s**t written by angry NTs in such a convincing way.


I can certainly understand how you feel. I appreciate your candor in talking about this. We're trying to work out whether to get my daughter diagnosed. I flip flop because I feel like it's such a big call for us to make on her behalf, especially when she already gets the support she needs at school without a diagnosis. The diagnosis impacts so deeply on identity, and you're right that there is some absolutely horrible rubbish on the internet.

It sounds as though you don't want to feel this way about your diagnosis though. Do you have a psychologist/therapist you could work through these feelings with?

I personally couldn't hide my diagnosis from my partner. Apart from the fact that he has to cover for my deficits on a daily basis in significant ways, and the fact that I cannot work (barely part time, let alone full time), I lack the ability to hide things about myself. I just don't compartmentalise. I end up blurting whatever is in my head as soon as I'm stressed. I don't want to blurt, but it's just what happens when I'm stressed.


If it were me, I would strongly recommend getting your daughter assessed. My mom knew I was autistic when I was in grade school, but never told me or got me evaluated, and I had an awful time at school thinking there was something inherently wrong with me and that I could never do anything right. That would have been massively alleviated if I knew I had autism back then. I had the supports I needed to do well at school academically, but not socially or personally.


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