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SaveFerris
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13 Jul 2019, 9:10 am

I'm satisfied and my diagnosis makes sense , it was the missing part of my jigsaw.

My OCD tells me different :twisted:


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babybird
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13 Jul 2019, 9:18 am

SaveFerris wrote:
I'm satisfied and my diagnosis makes sense , it was the missing part of my jigsaw.


That's great.

I've been a member here for years and although I've always felt more than welcome I've just always felt like I just don't have this condition that I'm reading about.


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DeepHour
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13 Jul 2019, 9:29 am

That 'missing part of the jigsaw' makes sense to me, and it's the main reason why I would ideally like to have a diagnosis.

I did look into the matter a few years ago, and came across an official statement by one of the high priests of the ASD industry (Baron-Cohen) to the effect that Aspergers (ASD Level 1?) diagnoses are now only given in this country if the subject has significant impairment of his or her functionality, or something of the sort.

What the heck does that mean? I can 'function' perfectly well, as all I do is ride around on trams and buses, go to the supermarket, sit at home playing around with computers and surfing the net, etc. I'm perfectly capable of supporting myself financially, but struggle with basic stuff like keeping the house in order, keeping myself in order, planning anything, etc. If I tried to have relationships with other people or pursue a career, I'm pretty sure I'd crash and burn, on past experience.

Does that mean my functionality is 'significantly impaired' or not? :?


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SaveFerris
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13 Jul 2019, 9:31 am

babybird wrote:
SaveFerris wrote:
I'm satisfied and my diagnosis makes sense , it was the missing part of my jigsaw.


That's great.

I've been a member here for years and although I've always felt more than welcome I've just always felt like I just don't have this condition that I'm reading about.


I'm sure you know the quote and have read it a lot of times but

If you've met one person with autism you've met one person with autism


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babybird
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13 Jul 2019, 9:35 am

SaveFerris wrote:
babybird wrote:
SaveFerris wrote:
I'm satisfied and my diagnosis makes sense , it was the missing part of my jigsaw.


That's great.

I've been a member here for years and although I've always felt more than welcome I've just always felt like I just don't have this condition that I'm reading about.


I'm sure you know the quote and have read it a lot of times but

If you've met one person with autism you've met one person with autism


I've never seen that quote before and I get what you're saying..its something to digest.

Thank you.


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babybird
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13 Jul 2019, 9:37 am

DeepHour wrote:
That 'missing part of the jigsaw' makes sense to me, and it's the main reason why I would ideally like to have a diagnosis.

I did look into the matter a few years ago, and came across an official statement by one of the high priests of the ASD industry (Baron-Cohen) to the effect that Aspergers (ASD Level 1?) diagnoses are now only given in this country if the subject has significant impairment of his or her functionality, or something of the sort.

What the heck does that mean? I can 'function' perfectly well, as all I do is ride around on trams and buses, go to the supermarket, sit at home playing around with computers and surfing the net, etc. I'm perfectly capable of supporting myself financially, but struggle with basic stuff like keeping the house in order, keeping myself in order, planning anything, etc. If I tried to have relationships with other people or pursue a career, I'm pretty sure I'd crash and burn, on past experience.

Does that mean my functionality is 'significantly impaired' or not? :?


Have you spoke to your gp about this?

I know you pretty well but I could never give a DX my friend. That just wouldn't be fair.


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IsabellaLinton
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13 Jul 2019, 9:38 am

https://the-art-of-autism.com/females-a ... checklist/

Babybird,
I've posted this many times but maybe it can help you to have those "aha!" moments. I've tried showing it to female NT friends thinking that the descriptors likely apply to everyone, and they didn't relate with it at all.

In my case I wasn't identified ASD until last year and I'm like naturalplastic. I agree with it completely and wish I had been assessed sooner, rather than spending my whole life wondering what was wrong.


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DeepHour
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13 Jul 2019, 9:45 am

babybird wrote:
Have you spoke to your gp about this?
I know you pretty well but I could never give a DX my friend. That just wouldn't be fair.


My GP is useful for taking blood pressure or prescribing a tube of Voltarol, and not much else. He always sounds as if he'd like to retire within the next few minutes. I suspect he'd be hopelessly out of his depth in this area.

I'm not looking for anyone on WP to give me a diagnosis, just highlighting one of the potential anomalies of the situation. Pretty much anyone can be said to have relatively unimpaired functionality if they confine themselves to a very restricted existence...


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babybird
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13 Jul 2019, 9:53 am

DeepHour wrote:
babybird wrote:
Have you spoke to your gp about this?
I know you pretty well but I could never give a DX my friend. That just wouldn't be fair.


My GP is useful for taking blood pressure or prescribing a tube of Voltarol, and not much else. He always sounds as if he'd like to retire within the next few minutes. I suspect he'd be hopelessly out of his depth in this area.

I'm not looking for anyone on WP to give me a diagnosis, just highlighting one of the potential anomalies of the situation. Pretty much anyone can be said to have relatively unimpaired functionality if they confine themselves to a very restricted existence...


Oh I know that but I was just saying.


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babybird
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13 Jul 2019, 9:55 am

IsabellaLinton wrote:
https://the-art-of-autism.com/females-and-aspergers-a-checklist/

Babybird,
I've posted this many times but maybe it can help you to have those "aha!" moments. I've tried showing it to female NT friends thinking that the descriptors likely apply to everyone, and they didn't relate with it at all.

In my case I wasn't identified ASD until last year and I'm like naturalplastic. I agree with it completely and wish I had been assessed sooner, rather than spending my whole life wondering what was wrong.


Thank you isabella. That's quite an extensive list. There are some things on there that ring true but there are whole sections that just don't. My daughter has HFA and she really fits the stereotype.


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Edna3362
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13 Jul 2019, 10:51 am

Not misdiagnosed here -- but in so many ways it could've been due to my country's current level of knowledge.
If there were any single mistake on my diagnosis process at that very times, that could've been the case.

At my teen years, I already explored the doubt of diagnosis myself. There isn't just any other way around it.


I'm not any less autistic, just because I couldn't seem to relate to circumstances common to autistics as a human.

Could've been misdiagnosed as something explained fewer stuff than whole, or some co-morbid that may not even lasts or exists. Could've imagine such life.


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Mayel
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13 Jul 2019, 11:08 am

IsabellaLinton wrote:
https://the-art-of-autism.com/females-and-aspergers-a-checklist/

Babybird,
I've posted this many times but maybe it can help you to have those "aha!" moments. I've tried showing it to female NT friends thinking that the descriptors likely apply to everyone, and they didn't relate with it at all.

In my case I wasn't identified ASD until last year and I'm like naturalplastic. I agree with it completely and wish I had been assessed sooner, rather than spending my whole life wondering what was wrong.


I relate to so many of the points on this list on ASD!
I'm also initiating the process of being evaluated for ASD. Of course, I might not have ASD but I'm curious on a report around the various aspects that would be tested.


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SaveFerris
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13 Jul 2019, 1:42 pm

DeepHour wrote:
babybird wrote:
Have you spoke to your gp about this?
I know you pretty well but I could never give a DX my friend. That just wouldn't be fair.


My GP is useful for taking blood pressure or prescribing a tube of Voltarol, and not much else. He always sounds as if he'd like to retire within the next few minutes. I suspect he'd be hopelessly out of his depth in this area.



That's good that he is out of his depth and wants to retire , he is in no position to deny you a referral and probably doesn't want to be hassled. Just be persistent and firm , take some results of online tests and you life history :mrgreen: .

If you want an answer from me I would say your functionality is impaired as you seem unable to hold down a relationship or a job.


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Fern
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14 Jul 2019, 1:34 pm

babybird wrote:
I was diagnosed quite a few years ago and it kind of fit at the time but not long before that I was also diagnosed with SPD and when I was very young with bpd. I also have ADHD and my shrink now is disagreeing with the aspergers diagnosis.

He thinks something else but I'm not willing to disclose.


That's interesting. I'm kind of on the other side of that fence. I was officially diagnosed with ADHD, but have always questioned it because I don't have trouble concentrating. At the time of that diagnosis (childhood in the 90's) I didn't always do what adults wanted me to do, so they interpreted this as "lack of concentration". However, from my internal perspective, I can tell you that the reason I didn't do what adults asked me to do in school was usually because I didn't understand what they wanted. I misinterpret passive or indirect communication, so it was hard for me to even know when I was being told to do something. That paired with my early speech struggles, mild problems with executive functioning, and my auditory and tactile sensitivity made me wonder if maybe ASD was a better explanation. I never heard about autism as a kid, though reading through my old medical records now as an adult I realized that the professional who diagnosed me with ADHD was thinking of ASD as a possibility as well (though he ultimately decided against that diagnosis -he was not an autism specialist though).

I'm an adult now and I have a pretty good quality of life. It's different than a typical NT life, for sure, but it's just right for me. I'm not certain that a formal reevaluation would benefit me since I don't want to seek treatment or disability support. I'm more concerned with getting helpful tips for dealing with my struggles, so that I can live my best life possible.

Anyway, I hope you find the answers you are looking for, or if you don't, that you similarly settle into a sense of peace with yourself.



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15 Jul 2019, 9:01 pm

As a child, I was misdiagnosed as hyperactive and given Ritalin. Nobody knew about Asperger syndrome in the 1960s and 1970s.



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15 Jul 2019, 10:47 pm

After my diagnosis I did wonder if my assessment therapist was 100% correct. I had little doubt, but after living my entire life up to that point without a diagnosis, there was a little part of me that wondered: "Can I be 100% certain? I want to be 100% certain."

I don't doubt it at all anymore for a number of reasons including the fact that I solidly fit the diagnostic criteria in every category and have since my early childhood. Also, my PhD assessment therapist works exclusively with adults with autism and is schooled in giving assessments and after my assessment she very kindly said that although she and I could keep our scheduled followup appointment to review her findings, there was no need to do so. She explained my scoring and the fact that in layman's terms I scored "off the charts" to which there was no doubt whatsoever in her conclusion of my diagnosis.