Autism is "over-diagnosed"?
dyadiccounterpoint
Velociraptor

Joined: 31 Jan 2019
Age: 34
Gender: Female
Posts: 464
Location: Nashville
I'd be willing to bet it is overdiagnosed within certain demographics and underdiagnosed in others.
If you're a high functioning aspie who is African American, female, grows up in poverty, and lives in a small town in Appalachia, I'd bet you'd have to figure it out yourself.
If you're an aspie who is Caucasian, male, grows up upper middle class, and lives in L.A., I'd bet they found it very early in your development.
Diagnosis depends on the awareness of authority figures, including parents and educators, the ability of parents to physically arrive at testing centers, the ability of parents to afford testing, and perceptions of mental illness (as in...a community with heavy stigmas on mental illness might be hesitant to screen their children)
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We seldom realize, for example, that our most private thoughts and emotions are not actually our own. For we think in terms of languages and images which we did not invent, but which were given to us by our society - Alan Watts
I once read in a book "Back To Normal" by Enrico Gnaulati that autism is diagnosed more in the US than it is in the UK. Culture also has something to do with it too. This therapist believes we pathologicalize behavior too much in the US. He believes that adults have too of high expectations on kids they get diagnosed. If I were seeing him in person, I would ask him this following questikn:
"So Dr. Gnaulati, what about the kids and adults out there who are you say "normal" but are a bit different, eccentric, have a different way of learning and processing things and different way of approaching people and socializing but it is affecting their education or employment and it is going to hold them back, but you can't force the world to work the way your brain operates, you can't just force people to just accept them and change how they do things to accommodate their brain wiring and how they function, so what do you suggest for these people?"
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
"So Dr. Gnaulati, what about the kids and adults out there who are you say "normal" but are a bit different, eccentric, have a different way of learning and processing things and different way of approaching people and socializing but it is affecting their education or employment and it is going to hold them back, but you can't force the world to work the way your brain operates, you can't just force people to just accept them and change how they do things to accommodate their brain wiring and how they function, so what do you suggest for these people?"
Changing the culture is a slow and complex process but it is possible. I think this was his point - that American culture should adapt to neurodiversity more instead of pathologicalizing it. He may bellieve the change to be possible as closely related UK culture seems better adapted to neurodiversity.
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Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
"So Dr. Gnaulati, what about the kids and adults out there who are you say "normal" but are a bit different, eccentric, have a different way of learning and processing things and different way of approaching people and socializing but it is affecting their education or employment and it is going to hold them back, but you can't force the world to work the way your brain operates, you can't just force people to just accept them and change how they do things to accommodate their brain wiring and how they function, so what do you suggest for these people?"
Changing the culture is a slow and complex process but it is possible. I think this was his point - that American culture should adapt to neurodiversity more instead of pathologicalizing it. He may bellieve the change to be possible as closely related UK culture seems better adapted to neurodiversity.
Then that would mean less people will be autistic because their differences will now be normal.
Gnaulati is one of those doctors who doesn't do labels and will not diagnose a child unless nothing works after the parents have adapted to the kid and the teacher has changed her environment for the kid and her approach and the problems do not resolve after trying everything. But the thing is, only way to do this is if the kid has a diagnoses. Schools can do a diagnoses but it wouldn't be a real one and they use it to give the kid a IEP so they can get their education. Gnaulati seemed to be against this. You can't get accommodations unless you have a label. Teachers and bosses are not required by law to accommodate you unless you have a diagnoses. If you can still get accommodated without having to disclose anything, great.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
In my opinion, if someone needs acommodations, then they is not overdiagnosed.
Sometimes the accommodations (a certain place to sit, routine, earmuffs) can be cheaply provided without any official paper, just understanding.
Overdiagnose is:
Parent: Oh, dear, my 2yo child does little eye contact and doesn't talk yet!
Doc: Autistic! Do ABA!
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Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
This.
I am on the fence about getting a diagnosis. Growing up certain family members held my difficulties against me; I tried to assert myself, but it didn't stick. It continues in the business world in certain groups: exclusion, not understanding. That said, if I had a healthy self esteem, then perhaps I could "own" my style and stop most the nonsense. I'd more or less happily get by.
Where is the "disability" threshold? I think to myself: Am I under or over that? When I am in group that is friendly to neuro-diversity, I don't feel disabled. But now that I am in a group that is not, well... is it nature or nurture: ASD or that I am simply an anxious, oversensitive person who is socially awkward and subject to frequent shutdowns and meltdowns? Who can totally "get by" by the hair on her chinny chin chin, as long as she finds a "safe" place. (On the RDOS test I score ASD for talent and social, but balanced NT/ASD for perception and communication.)
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"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."
Wreck It Ralph
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