Do you think that society should care more about Autism?
I also think that it is very important to understand that some people who appear to be high functioning are not as high functioning as others might assume or think they are. People like me, for instance, I appear incredibly high functioning and am often mistaken for an nt. So I get treated like an nt. But people don't realize that I am actually a level 3 Autistic. It's just that the things that are life threateningly severe with me are not things that are visibly obvious to untrained people. So I require special needs and services to survive but no one wants to give them to me because I don't look the part. And I have been a target of bullying all my life and I continue to be as an adult and I have no defenses but because everyone thinks I need no help because I appear high functioning, I am left to fend for myself and it is literally life threatening at times. I actually have a concussion right now because I collapsed from sensory overload in a parking lot and hit my head and could not move for about ten minutes. I literally lay in that parking lot in a pool of my own vomit. And that was three weeks after physically collapsing and hitting my head and being unable to move for almost ten minutes from sensory overload in a grocery store pharmacy. The week I got the concussion, a couple of weeks ago now, I got checked out at the hospital and was so overwhelmed just walking through the hospital hallway that I became catatonic.
I was so overwhelmed with a ten minute social situation a couple of months ago that the ten minute conversation I had with the person I was talking to took so much effort for me to be socially acceptable in it that I was completely nonfunctional and incapacitated for three days afterwards. I literally could not get out of bed for three days just trying to recover from that single social interaction.
So I agree and believe that there are some of you and quite a few of you who are high functioning and are only a little awkward and who truly do not need help or services. But some of us really do need them to the point where our very lives depend on them; so for those of us who do, it is very important that these kinds of needs that we have are not under the radar and ignored even if we don't look the part.
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"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."
Wreck It Ralph
As I continued to read and was shocked. Im sorry to read that. ezras or KraftieKortie maybe both.. One of them mentioned being level 3 ASD .
So distressing that your concussion has unpredictable repercussions. Also that someone dare bully you.
U know what is horrifying? PSWs arent allowed to pick up a client or help them up if they fall. So my sons psw who comes briefly.. She told me of a situation where a woman she was bathing
Literally collapsed n fell onto the floor of the shower. Well of course the PSW helped her up n put her back safely.
But shr GOT in TROuble for that. She was supposed to (according to her supervisor) call the primary caregiver n wait for them to drive over n arrive to pick a naked disabled person cold in a shower on the floor..
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Take defeat as an urge to greater effort.
-Napoleon Hill
I just believe from my initial post on thos thread.. Tbat if society and professionals are not fulfilling some basic decency n respect n understanding requirements.. In fact perpetuate wrong ideas too.. Of obvious n severe cases...
N the person is obviously disabled n their brains resist acknowledging it consistently n resents them n neglects them a
(Not all professionals but many)
Then how can i expect normal non professionals to sincerely understand n care n be better towards any less obvious case?? The pros and the system the way its set up.. Those need to fix their act first.
The burden of fixing the gap n situation is on them .. U cant bridge the gap n be stuck halfway which is currently the case bcuz actual professionals n ppl in the field including non medical things like vendors of special needs equipment
... Those are so awful..
Its not only the burden of the person with ASD to try n explain all the time or the average uneducated in these things person to learn what even the professionals dont care about /dont acknowledge
_________________
Take defeat as an urge to greater effort.
-Napoleon Hill
Not really. I'm not expecting society to understand something or care about a condition that they never experienced themselves. Outside of parents and those with the condition itself,people have little understanding of what Autism is and that's not expected to change since have no experience with Autism itself.I want to see Aspie/Autistic be treated better than they are now,however I wouldn't expect society to ever care about the issues at Autistic people as a whole have to go through since they don't have the "Aspie/Autistic" experience.
Mod note from B19 - It seems like an error. Perhaps I mixed you up with someone else at the time. I've removed your name from the quote in this post and from my post in previous pages.
I think that ASD is not only group which should be treated better. I have no typical symptoms of ASD like speech delay, prosopagnosia, visual thinking, idiosyncratic sensory processing, rigid and concrete thinking, fear of unpredictability and need of sameness and even lack of intuitive theory of mind. But I received AS diagnosis about 11,5 years ago. In specialist center.
I am not "Kanner's autistic"! But it does not mean that I function better than everybody who has clinical ASD or PDD diagnosis while displaying more "bookish" symptoms! I would say that I am more "creepy" than typical autistic or even schizophrenic, for example because of repulsive, early-onset, deep-rooted, bizarre paraphilias, completely bonkers ideas like metaphysical solipsism or being the God (they belong to the worst, most kooky thoughts which human can have).
I do not function well in life. I was good in school for above 15 years, sometimes even very good. I can buy many product by myself, totally normal. I can use public transport without any difficulties. It was so since quite many years and I could say that I was not delayed in acquisition of these skills. But in occupational and interpersonal relations areas I fali severely. I have never had a girlfriend (despite the fact that I crave for female partner, wife and was "in love" with girls when I was about 6 years old (but they did not want me, so I bullied, stalked them when I was below 16 years old - now I am 28,5)). I have never had closer friend (and even did not feel the need of having such a person if I remember it well - I was interested in physical relationships (such as sexuality which I now reject almost totally due to faith) and intimacy, having female to "hug and caress", but I did not think about platonic love or such friendship in my life as far as I remember). I do not have driving licence. And ever never have driven a car! Many people with AS have driving licence since younger age that my current one.
I think that "autism" should be considered as something wider than just clinical ASD from DSM-V, definitely. I would say that all with social communication disorder from DSM-V have the same sort of disorder like those with ASD and other than people with "mere" language problems and dyslexia, dyscalculia, dysgraphia. The same is obviously thrue also for many (and quite probably most) individuals with nonverbal learning disability (which, in my opinion, may occur as pure LD quite rarely) - they also have "pervasive developmental disorder" which makes them "odd", "peculiar" and socially inadequate since childhood, just like ASD! Also people with many other disorders (like some cases of schizophrenia and schizoid, schizotypal or schizoaffective disorders) would be placed by me in PDD category.
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