I am FED UP of the way autism is diagnosed
Yes, I find that strange.
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Opinion polls have officially begun!
Posting will be on and off due to school studies for a while. I am still around though and will occasionally pop in!
I'm on an old scuba gear forum and I see people do this all the time: a one post and ghost...
Yeah, anyway: my wife found a doc in San Francisco who does on-line evals, specializing in adults and a relatively good price too, so I'll get my official diagnosis very soon.
All too often they only want to do children or young adults
and it's always so freaking touchy-feely too--BARF! One of the things that gets me super PO'ed is you never see people of color in those places, it's always upper middle class white kids, because most people can afford the extortion priced they charge: I'm really quite bitter about it, can you tell?
DIVAIR
The first thing that is wrong about Autism is that it is an entry in the DSM. It shouldn't be an entry in the DSM.
The criteria is all wrong. The criteria for Autism in the DSM is the criteria the psychiatrists have themselves. The psychiatrists describe their own disorder and call it Autism.
It looks like the psychiatrists decided to diagnose themselves and write the criteria and put it in the DSM. It has the entry "Autism". Psychiatrists are Autistic. But the real Autistic people aren't like that. The real Autistic people are not the criteria in the DSM. Let the psychiatrists be Autistic. The real Autistic people have to find their own name. No longer a chosen name for the real Autistic people that the real Autistic people didn't choose themselves. Psychiatrists are that criteria. Real Autistic people are something else. Real Autistic people shouldn't even be in the DSM. Real Autistic people have to choose their own name to call themselves.
I was extremely clear when assesed to mention things that spoke against a diagnosis.
Like "Do you like word play?" "Very much so, but it could come from my grammas second husband who was very fond of those kinds of jokes,"
"Your uncle told me you could go skiing for hours as a child." "Yes, but it was partly because my mom forced me, and partly because another uncle paid me 50 cents per lap."
There are lots of typical traits that I don't have, I usually don't get exhausted from social contact and such. I don't mind eye contact. etc.
Anyways, I got the diagnosis, and I'm pretty sure it's correct. I have great confidence in the psychologist.
Bottom line may be: Get the assesment from a person you trust, change if needed. And be brutally honest, no matter what you think yourself about the outcome.
/Mats
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CockneyRebel
Veteran
Joined: 17 Jul 2004
Age: 51
Gender: Male
Posts: 121,052
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Because my mom was SOOOOOO persistent at it. I think they're trying to diagnose as many people without leaving anyone in the dust. One of my doctors literally said to my mom at the start 'With this criteria you are not going to get diagnosed with anything because it's so barely there, people with more severe symptoms than you have be turned away, so I'm just going to exaggerate every of your single symptoms before showing it to others so that you're taken seriously'. And then my mom exagurrated them more. For a damn diagnosis.
I can't deny that I DO have autistic traits, but they're so barely there they don't even interfere with my life. e.g not liking too much noise isn't the same as hating it so much to have a meltdown over it and feel like every noise and sensations, even the lightest of them, is out to get you (like someone described to me)
Even if my mom doesn't exagureate it, the doctors will. If my mom says 'she doesn't like noises' the doctors would interpret that as 'she hates it to the level of someone with autism, having anxiety and meltdowns over too many sensations at once'.
Regarding how autism is commonly diagnosed, I had the opposite experience where the assessor (and my parents, but that's not the assessors fault) downplayed everything in an effort to make me seem not as affected as I am. I know everyone's experience is different, but that seems more par the course for people diagnosed after childhood from reading threads on these forums.
You have a special kind of quackery going on that I don't think is necessarily how a lot of adult/adolescent assessments pan out, which is honestly even weirder to me. I don't get why they are scrambling for signs of autism as they don't usually do that and do the opposite.
I'm not sure, maybe it's because of the circumstances (lockdon). I feel like I'm being nitpicked, and I don't have enough experience of these sorts of procedures to know whether I'm just feeling that way and it's not actually that way, or if they're actually nitpicking me out too much. It's stressing me to tears, and ever since it started my ok-ish self esteem has totally shot down as they don't remember the human and I feel like everyone's deciding EVERYTHING for me.
That's how they did yours???? Yours sounds WAY better than mine, maybe they're afraid of me masking?? Or maybe just lockdwn. I wouldn't feel stressed if they did the exam that way, talking to me instead of treating me like paperwork.
It doesn't sound like it was your idea at all. Is that correct?
Yep. It was my teacher's and parents. I go into depression due to leaving my religion, my mom goes nuts about that and absolutely devastated I left my religion. Then she starts the diagnosing procedure. People like my uncle (who's a psychiatrist doctor), my friend (who's autistic), my mom (who's watched me since birth and does have a good idea of what autism is) etc etc say I am pretty autistic, and with all that evidence in mind it makes me feel like my say is NOTHING. And to be honest, they're probs right, they've got way more credit than me, of course
but then why do when I look at blogs made by autistic people, I can never relate!
even worse, at the start of the entire thing I had no bad feelings about autism. I knew what is was pretty well, and I knew how to accomodate people with it. But now that i'm halfway through the thing, ableism has literally started to creep up in me due to the way they diagnose me. Most of it's internalised, sure, but i'm not happy about it either way.
For example, a symptom would be hating change of routine. I don't fricking care if that happens, it doesn't matter to me whether I miss my bus or take a different route or change schools or whatever. But my parents dig through my entire life to find the very few instances I did do that, present them to the doctors, and make it seem like I've got that symptom strongly. They do it with NEARLY EVERY SYMPTOM and it drives me up the wall!! !
Then, when they notice that I'm doing well in life and aren't really showing that many symptoms, they start talking about masking, saying that I might be hiding my autism. WELL I CAN TELL YOU I'M NOT. I don't get tired or anxious or anything like that when talking to people like someone without autism would do, I don't plan out social interactions, I don't second guess my every move like people with masking say they do. But apparently they don't believe me!
The way they're going about this is SO harsh, that I'm even starting to question myself if I'm autistic and just pretending to be a neurotypical even though i know damn well that I'm not autistic! I get they don't want to accidentally miss someone's autism while diagnosing, but I just feel picked apart. They can't see me face to face and see that I behave and handle stuff like an NT because of lockdown, and any online interaction won't work because our wifi is too bad to do video or audio at all! I'm fed up!
Take the assessment and find out if you are or not. Its no skin off your nose if you are or aren't. It won't magically change who you are, the only difference it might change how your parents view you.
I'm more or less like you. Minus after uni I tend to have a nap as I'm exhausted be it from social interaction or actually learning things I'm not 100% sure. Change I can cope with and I love to travel. I dislike people in general but that is mainly more of an intelligence thing I've concluded and people being two faced. I wouldn't fit a sterotypical autistic person nor if you met me, thought there was anything wrong with me, as lets face it, nothing is. However, I got my label and that is fine. It doesn't make me any more or less me, I'm still me. Autism is just a tiny part of me, such as all the other labels such as a gamer, dyslexic, daughter, etc.
As someone else mention they notice everything you do. Your eye contact and if it's normal or not. How you read social ques etc which a fair amount of girls on the spectrum will pick up over time.
But I don't even relate with the 'being tired after socialising' thing that usually happens from masking. The autism assessment itself doesn't bother me, the way it's done is.
If it were done how that other commenter's was done (watching them do some activities and social interaction), then I'd be perfectly fine. I'd feel as if the label was valid. But right now they're not even looking at me (or at least I don't feel like it), how the hell am I suppose to accept a label if I feel that way!
