FleaOfTheChill
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Joined: 31 Jul 2020
Age: 310
Gender: Non-binary
Posts: 3,217
Location: Just outside of reality
16 Feb 2022, 7:00 am
Dandansson wrote:
Is Aperger's syndrome level 1 or level 2 or both?
Yes? No? Yes?
If I understand correctly, a lot (most likely the majority) of people who had a previous dx of Aspergers ended up being dx'd as asd level 1 in the last dsm change. But that doesn't mean everyone who had the Aspergers dx ended up there. I don't know the data on how many ended up being level 2, but there would be some who did.
The levels really just give you an idea on how much support a person needs and even under the Aspergers umbrella, there will be a lot of differences in what each individual needs by way of support. But again, I think the majority of Aspergers folks are now asd level one. I'm no expert though, that's for sure. Just a casual observation here.
16 Feb 2022, 7:11 am
Quote:
What Is Everyone's Problem With The ASD Level System?
Because when we get more functional we don't level up!
16 Feb 2022, 7:59 am
ASPartOfMe
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Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 38,085
Location: Long Island, New York
16 Feb 2022, 8:00 am
16 Feb 2022, 8:22 am
16 Feb 2022, 8:59 am
Dial1194 wrote:
Level 1 (“Ignore their needs”)
Level 2 (“Provide inconstant and unreliable support”)
Level 3 (“Remove their agency and never listen to them”)
Level 2 (“Provide inconstant and unreliable support”)
Level 3 (“Remove their agency and never listen to them”)
BINGO
I think regardless of level (which varies by area and circumstances), many people are underestimated due to visible weaknesses or invisible strengths and overestimated due to visible strengths and invisible weaknesses.
My evaluator said I was "mild to moderate"; I appear as Asperger's. I find Levels change based on circumstances. I have periods of time where I am outwardly a "1", but recently I am more of a "2" and there are occasions I have been a "3". With my outwardly "3" friends, I experience them as "2" and "1" on different occasions.
To me the problem is the identification of needs, availability and quality of support. I have a friend who is outwardly Level 1 (moves and talks "normally") and is fighting to have her support dog on campus b/c she has severe sensory shutdowns (mute, frozen), sometimes on the bus (she doesn't drive), and she was told "but you have a PhD" implying she didn't need support (not so!). Similarly, I have a friend who is outwardly 3 (mostly mute with "erratic" movements) who is ignored when he is capable of -and wants to- interact with people and could do higher level intellectual activities and is not told anything b/c apparently too many people think "mute" means insignificant (not so!).
18 Feb 2022, 5:35 pm
FleaOfTheChill wrote:
Dandansson wrote:
Is Aperger's syndrome level 1 or level 2 or both?
Yes? No? Yes?
If I understand correctly, a lot (most likely the majority) of people who had a previous dx of Aspergers ended up being dx'd as asd level 1 in the last dsm change. But that doesn't mean everyone who had the Aspergers dx ended up there. I don't know the data on how many ended up being level 2, but there would be some who did.
The levels really just give you an idea on how much support a person needs and even under the Aspergers umbrella, there will be a lot of differences in what each individual needs by way of support. But again, I think the majority of Aspergers folks are now asd level one. I'm no expert though, that's for sure. Just a casual observation here.
Some folks nowadays get dx'd as having "Level One autism, with no speech delay". Meaning that "you need some support, but back when you were a tot you learned to speak at the normal time tots learn to speak". That amounts to the same thing as the old "aspergers" diagnosis". Whereas "level one with speech delay" amounts to the same thing as "high functioning autism".
19 Feb 2022, 7:28 am
19 Feb 2022, 1:43 pm
19 Feb 2022, 2:18 pm
19 Feb 2022, 3:43 pm
firemonkey wrote:
ASPartOfMe wrote:
Opinion=mine:
How much support one needs is based on how well one is able to function in society. Am I missing something?
How much support one needs is based on how well one is able to function in society. Am I missing something?
That ideally should be the case. However that's not my experience. The previous MH team I was under just saw me in situations where verbal skills were to the fore. Verbal skills that are far better than average They then presumed that would be the case when other skills such as manual/practical skills were required.
An example of that is being kicked off a cookery course during my last inpatient stay. The reason? Taking too long to peel and cut potatoes. Something I genuinely struggle with. It was seen as my being bolshy and uncooperative.
Hence I never got the help and support needed. Thankfully I have a s/dau who is far more aware of my strengths and weaknesses. She talked to the MH team here and explained things before I moved.
"Bolshy"?
Must be a Brit expression. Does it come from the word "Bolshevik"?
You are clumsy. So it took you so long to peel a potato that they thought that you were giving them attitude? So MUCH attitude that they thought you were a Commie Pinko making a political statement?
Sorry, but I find that story rather amusing.
Ive seen and heard the word "Bolshie" used as a noun in British TV dramas set in the 1920s. "He's a Bolshie" meaning he sympathizes with the then recent Russian Revolution. But Ive never seen it as an adjective before. To "be bolshy".
Double Retired
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Joined: 31 Jul 2020
Age: 70
Gender: Male
Posts: 6,829
Location: U.S.A. (Mid-Atlantic)
19 Feb 2022, 4:00 pm
Technic1 wrote:
I just need a mother or a receptionist, are celebrities autistic because they have a team around them?
if I have one of these things im completely functional.
I suspect at Level 1 you might get by without any official support. But you'd be considered strange and those around you would have to tolerate your quirks. (I think that is a reasonable explanation of my Level 1 assessment.)if I have one of these things im completely functional.
In my experience a supportive bride can be a great help.
And let's not forget Musk. I suspect having billions of dollars is also very useful for coping with having mild Autism. With that kind of money people will tolerate you a lot.
19 Feb 2022, 4:05 pm
19 Feb 2022, 4:12 pm
naturalplastic wrote:
firemonkey wrote:
ASPartOfMe wrote:
Opinion=mine:
How much support one needs is based on how well one is able to function in society. Am I missing something?
How much support one needs is based on how well one is able to function in society. Am I missing something?
That ideally should be the case. However that's not my experience. The previous MH team I was under just saw me in situations where verbal skills were to the fore. Verbal skills that are far better than average They then presumed that would be the case when other skills such as manual/practical skills were required.
An example of that is being kicked off a cookery course during my last inpatient stay. The reason? Taking too long to peel and cut potatoes. Something I genuinely struggle with. It was seen as my being bolshy and uncooperative.
Hence I never got the help and support needed. Thankfully I have a s/dau who is far more aware of my strengths and weaknesses. She talked to the MH team here and explained things before I moved.
"Bolshy"?
Must be a Brit expression. Does it come from the word "Bolshevik"?
You are clumsy. So it took you so long to peel a potato that they thought that you were giving them attitude? So MUCH attitude that they thought you were a Commie Pinko making a political statement?
Sorry, but I find that story rather amusing.
Ive seen and heard the word "Bolshie" used as a noun in British TV dramas set in the 1920s. "He's a Bolshie" meaning he sympathizes with the then recent Russian Revolution. But Ive never seen it as an adjective before. To "be bolshy".
https://dictionary.cambridge.org/dictio ... ish/bolshy
19 Feb 2022, 4:45 pm
AardvarkGoodSwimmer
Veteran
Joined: 26 Apr 2009
Age: 62
Gender: Male
Posts: 7,665
Location: Houston, Texas
19 Feb 2022, 6:41 pm
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