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makelifehappen
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03 Dec 2007, 10:53 am

...all of that said, I would also try to keep these needs in mind. Accommodate, modify, adapt and understand that these needs exist, regardless of what the final diagnosis.

I know that although we spent 7 years running around in circles, beating our heads off brick walls, etc trying to get someone to acknowledge our daughter's needs, it still took some time to sink in before we really understood what this meant for her/us.

When your child is school aged it will really matter, but until then take the time to support her and seek out other opinions if you feel it is too young or inaccurate. I would have to say that we honestly KNEW that our daughter had the sensory issues, anxiety, difficulties with other children her age, "spacing" issues (now know is lack of eye contact), etc at that ripe age! People were always astonished at her otherwise advanced vocabulary, walking at 10 mos., toilet trained at 14 mos. etc.

Just remember, you are your child's best advocate. You know you child better than all the medical professionals and well...if we didn't challenge their "expert" opinions, then we would have a whole slew of misdiagnoses worldwide.

Some of the misdiagnoses/labels that we have had over the years were:

"BAD parent=bad child"
"Agency Shoppers"
"Postpartum depression"
"allergies"
"over exaggeration"
"Generalized Anxiety Disorder"
"Obsessive Compulsive Disorder"
"Rigid Sensitive Temperament"
"Abuse"
"spirited child"
"indigo child"

The list is endless really...none of the above were ever relevant, it was ALWAYS just a case of Asperger's and a terrible misunderstanding in the medical/school communities. Each "expert" with a very narrow view of the world and see only what they know. So while I would never profess to know what your child is coping with, I will say that if your doctor appears to have the faintest clue about ASD's, be thankful and dance about it...you could have been one of us that waited 7 or in my case, 29 years before finding the answers!

Best wishes to you and your family.


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LadyMacbeth
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03 Dec 2007, 11:06 am

If someone was actually paying attention to me at that age, they'd have noticed. I started talking at 9 months.. full sentences at 12 months.. but disinterest in socialising, lack of eye contact, meltdowns, didn't like to be touched, toys being lined up and organised, couldn't stand up/walk until 24 months (motor skills).. the list goes on.

I think that's a good diagnosis to start from.. it might be wise to get her checked every 12 months to see if there is any possibility of a different name for her conditon. Or whether she "grows out" of it. Though I don't believe that will happen. The symptoms might calm themselves though.


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Danielismyname
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03 Dec 2007, 11:57 am

Verbal ability is most likely the reason for an Asperger's diagnosis rather than Kanner's. It sounds like she's stretching the diagnostic criteria as they like to give people who flap at such an early age a diagnosis of autism, but since she's okay verbally....

The criterion needs such an overhaul.