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Strapples
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04 Dec 2007, 4:25 pm

insomniakat wrote:
I mean that i have the book. I have too many sensory issues to go on about here.

And I'm 27, and my parents had no clue, so you are one up on me, eh?

well could you please tell me what sensations you like?

and what your parents are doing to help you... or what you are doing to help yourself if your living independently now...


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KimJ
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04 Dec 2007, 4:39 pm

I will just say that we only did sensory exercises with our son when he wasn't able to verbalize his problems or identify what was bothering him. We did "wheelbarrow" with him-having him walk on his hands while we lifted his feet. Squeezing, like a hug but quicker and harder. Intense tickling.
These days he can do stuff on his own and request special fabrics.



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04 Dec 2007, 4:40 pm

I also have sensory intergration disorder, and my parents never take my pain or needs seriously. It's super annoying.

I would just ask for the blanket for christmas or your birthday and not even tell them what it is. Just be like "I want this awesome soft blanket for christmas" and hopefully if your parents are stupid like mine they will order it without caring.


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insomniakat
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04 Dec 2007, 4:40 pm

I do not live with my parents. I'm independent and work.

I am very senstive to sound. As such, it's painful to work in the office environment that I am in right now (I get headaches and nausea). I fear I may start cracking up soon, just because of how nuts and angry it is making me. I tried noise canceling ear phones. They didn't work. I tried ear plugs, but I can't get used to the feeling of them in my ear, and it was just as bad. I can't listen to music to drown out the sound, because I can't concentrate with music on and music is also NOISE that gives me headaches.

Also they move around and canceling the noise doesn't do anything for this.

I hate dressing professionally, because (since I'm female) that usually entails tighter clothes in fabrics that aren't soft. As such, I work in a laid back office that does not require this of me most of the time.

I have to sleep under a lot of blankets to sleep at night, otherwise, I wake up a lot and can't go back to sleep very quickly. It also has to be quiet, dark, and cold to sleep or I wake up.

It's often too bright for me. I would rather walk around with sunglass on all day, but that looks dumb and I forget them anyway.

Some stronger smells bother me, so I don't go places that have them (candle shops, places with cig smoke). Yadda yadda yadda.

I get angry/irritated when I go places where there is a lot of people (crowded stores/mall etc).

My biggest issue right now is work. I'm being driven insane, of I'm halfway there. :evil:


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Strapples
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04 Dec 2007, 4:40 pm

KimJ wrote:
I will just say that we only did sensory exercises with our son when he wasn't able to verbalize his problems or identify what was bothering him. We did "wheelbarrow" with him-having him walk on his hands while we lifted his feet. Squeezing, like a hug but quicker and harder. Intense tickling.
These days he can do stuff on his own and request special fabrics.

the thing on special fabrics is a big one with me... ive always loved the feel of neoprene and wish my whole wardrobe could be neoprene :( again another problem here is they would think its fetish and its not... the feel just calms me....


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Last edited by Strapples on 04 Dec 2007, 4:43 pm, edited 1 time in total.

insomniakat
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04 Dec 2007, 4:41 pm

Also, I don't like being touched. My parents want me to hug them though.


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insomniakat
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04 Dec 2007, 4:45 pm

Strangely enough my problems seem to be decreased if I'm in motion. I find that I walk extremely quickly in crowded places, partly out of agitation, but I think it helps me block things out???

Also I worked at UPS as a package handler and I loved it. It was very repetitve so I didn't need to concentrate, but I don't recall having problems with the noise of the machinery. But I was constantly moving...VERY ACTIVE the entire shift.


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Strapples
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04 Dec 2007, 4:47 pm

insomniakat wrote:
Strangely enough my problems seem to be decreased if I'm in motion. I find that I walk extremely quickly in crowded places, partly out of agitation, but I think it helps me block things out???

Also I worked at UPS as a package handler and I loved it. It was very repetitve so I didn't need to concentrate, but I don't recall having problems with the noise of the machinery. But I was constantly moving...VERY ACTIVE the entire shift.

constant movement does not help me... agitates me... although very very fast speed over long distance (race car, rode in a friends once) is calming for me...


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nominalist
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04 Dec 2007, 4:47 pm

It seems to me that, since sensory integration disorder is diagnosed by occupational therapists, it would be best to discuss any related issues with an occupational therapist. You could then, in consultation with the occupational therapist, decide what to tell your parents.


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Strapples
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04 Dec 2007, 5:33 pm

insomniakat wrote:
Also, I don't like being touched. My parents want me to hug them though.

whaaat!

i am exact different... i dont like light touch, but i love being hugged very very tightly...


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tortietiger
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04 Dec 2007, 5:33 pm

Hi I'm new to this board, but I've had sensory integration issues all of my life. One thing that REALLY helps me feel better all around is getting sensory imput. For me that includes anything bumpy like horseback riding, roller coasters, and even riding in some cars. For weeks or even months after some intense imput my sensory integration issues are much, much better. I'm lucky, I've always lived really close to Disneyland which is sensory imput heaven! (If you can handle the crowds).

I highly recommend that people who have sensory integration find some way to get imput on a regular basis. Depending on who and where you are this may be different but I recommend starting out at a theme or amusement park. The rides which work best for me imput-wise are called motion simulators like Star Tours or Soarin' at Disney Parks or Back to the Future formerly at Universal. Even some malls have some pretty bad motion simulators nowadays.

I hope this helps some people. It's fantastic knowing that I'm not alone and that there's a place where I can help and receive help from other Aspies!



Strapples
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04 Dec 2007, 5:35 pm

tortietiger wrote:
Hi I'm new to this board, but I've had sensory integration issues all of my life. One thing that REALLY helps me feel better all around is getting sensory imput. For me that includes anything bumpy like horseback riding, roller coasters, and even riding in some cars. For weeks or even months after some intense imput my sensory integration issues are much, much better. I'm lucky, I've always lived really close to Disneyland which is sensory imput heaven! (If you can handle the crowds).

I highly recommend that people who have sensory integration find some way to get imput on a regular basis. Depending on who and where you are this may be different but I recommend starting out at a theme or amusement park. The rides which work best for me imput-wise are called motion simulators like Star Tours or Soarin' at Disney Parks or Back to the Future formerly at Universal. Even some malls have some pretty bad motion simulators nowadays.

I hope this helps some people. It's fantastic knowing that I'm not alone and that there's a place where I can help and receive help from other Aspies!


thanks for your informative response tortietiger... although i cant stand bumpy stuff someone else could take this advice and put it to great use!


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04 Dec 2007, 5:36 pm

I think u should explain ur sensory issues to ur parents either by little notes or by having them sit down and talk to them. My sensory issues drive me nuts, showers even drain me out, lights, noise, touch ahhh. I have never given my parents hugs, i rarely give my bf hugs, i only tolerate bear hugs...love them. I hate being touched either, feels like pins and needles.


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Strapples
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04 Dec 2007, 5:39 pm

Age1600 wrote:
I think u should explain ur sensory issues to ur parents either by little notes or by having them sit down and talk to them. My sensory issues drive me nuts, showers even drain me out, lights, noise, touch ahhh. I have never given my parents hugs, i rarely give my bf hugs, i only tolerate bear hugs...love them. I hate being touched either, feels like pins and needles.
i absolutely love extremely tight bear hugs... i love those too... cant stand those light little puny hugs that old people give :evil: and light touch is HORRIBLE :evil:


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tortietiger
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04 Dec 2007, 5:44 pm

When I was younger I couldn't stand bumpy things either. It's like when you're starting a new medicine, you have to start in low doses. I was terrified of and traumatized by imput intense rides like Indiana Jones or Space Mountain a few years ago but now I can't get enough of them!

Why don't you start out on really gentle rides? I don't know where you live, but at a Disney park Honey I Shrunk the Audience, the Monorail, Peter Pan, or Pirates of the Caribbean might be good starter imput rides.



Strapples
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04 Dec 2007, 5:45 pm

tortietiger wrote:
When I was younger I couldn't stand bumpy things either. It's like when you're starting a new medicine, you have to start in low doses. I was terrified of and traumatized by imput intense rides like Indiana Jones or Space Mountain a few years ago but now I can't get enough of them!

Why don't you start out on really gentle rides? I don't know where you live, but at a Disney park Honey I Shrunk the Audience, the Monorail, Peter Pan, or Pirates of the Caribbean might be good starter imput rides.

im no where near any of that... although i do like constant very high speed travel over long distance i.e race car jet airplane. but i cant stand rollercoasters or anything like that bumpy i have also neurological disease explained at http://www.alinssite.info


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