How did you or your family react to the diagnosis?
Well I thought that my mother was just a bit to eager to embrace it. It didn't change the way my dad treated me one bit. It made my older brother feel guilty about a few of the things he used to do to me when we were growing up (only a few, I was no angel either). It finally gave my older sister something to use as a crutch to try and win any disputes with, and to otherwise try and act superior (we get along better now since she has had time to grow up [even though she is 11 years older than me]).
I think most other people in my family either don't know/don't understand what it is. It isn't something we really talk about. I guess we just talk about normal day to day things if anything at all. For the most part people either respect me or don't respect me because of reasons that have nothing to do with AS. I don't know what people outside of my immediate family think about me and my life, though I did find out what one of my uncles thinks about me in a letter he wrote to my grandmother where he called me an invalid and said other negatives things, unprovoked I might add, at least as far as I know. That makes it clear to me that I don't want to know what anyone else actually thinks about me compared to how they act towards me (my uncle has always been cordial). Some things I am better off not knowing.
My parents are ignorant of me. I came to them with my "problems" during a bad period of mine (first time I ever did), and their recommendation was "You need to go out more." I paused for a second, asked them "Do you ever see me going out?" To which my mom responded "No, and that is why you have this problem."
I lol now because it's truy funny to me.
I'm talking to psychologists currently to see what I have. I know I'm somewhere between Schizoid and HFA/AS. I can be very schizoid, and I'm pretty sure that I have SPD, but from what I understand lack of communication skills are not part of SPD, so I'm confused. I'm not sure if you can have both.
Either way, I'm messed up
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My mother blames herself for no picking me up early -- the signs were there in retrospect (not playing with other children, not talking, lack of eye contact; I was affectionate to her and my family, and I played with my sister, these totally dampen out those signs prior).
It's erroneous on her part, there's no way I would have been picked up as I was too "high-functioning", I never had tantrums (the triggers never eventuated), and if it looked like I might have had one for a simple reason, my mother gave me what I wanted for she's a nice person who thought of me before herself.
She then blames herself for not picking me up in the bad years (see: high school); it wasn't her job to baby me through those times, and the blame lies on the teachers who never bothered to pursue why this seemingly bright person failed everything, missed half of each year, skipped classes, never spoke to anyone but a few people--always challenged authority, etcetera.
Oh, I'd take offence in it too. I read the book and the only thing I did find odd was that the protagonist threw up after his father lied and annoyed him. It was before I knew about autism though, so I didn't know just how truley odd the protagonist was to everybody else.
My family doesn't really know. My mom doesn't want to know what a diagnosis of AS means and the rest just doesn't know anything at all.
I wonder whether I'll ever have the chance to explain it to her. No idea how to tell her. People here don't know anything about autism. And I do think she'd be angry at herself for not noticing if she'd overcome the phase of denial.
So I'm just still crazy, emotionally disturbed and odd to my family.
No reaction I don't think. Their attitudes stayed the same except my obsessions weren't taken away from me anymore and my mother stopped getting mad at me for being fixated on stuff, and I was punished less. She said she and dad knew I had something but didn't know what it was. All the treatment I was getting for ADD wasn't working so my mother also knew it wasn't just ADD. It also got her off my back whom I played with because I didn't play with kids my own age but did when I was little and then it got hard because they didn't want to play with me anymore because their interests changed.
I think it also helped my mother understood me better like why I liked things the same, was inflexible, didn't always like surprises, why it was hard for me to have friends, why I didn't read people well or even figure out how people were feeling, why my mind worked different, etc.
