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angelgirl1224
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10 Apr 2008, 12:49 pm

I agree with you. these 'clinical' sites do annoy me.

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EvilKimEvil
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10 Apr 2008, 1:23 pm

I think that it is possible to describe AS in a clinical, objective manner without being overly negative. Many clinical articles about AS describe the symptoms and resulting disadvantages, concluding that people with AS are socially isolated and rarely lead normal lives. They do not mention that there can be advantages to many of the AS symptoms. This is an example of exaggerated negativity:

http://www.ninds.nih.gov/disorders/asperger/asperger.htm

quoted:

Quote:
Children with AS are isolated because of their poor social skills and narrow interests. They may approach other people, but make normal conversation impossible by inappropriate or eccentric behavior, or by wanting only to talk about their singular interest. Children with AS usually have a history of developmental delays in motor skills such as pedaling a bike, catching a ball, or climbing outdoor play equipment. They are often awkward and poorly coordinated with a walk that can appear either stilted or bouncy.


I think this is a bit extreme - a lot of people who meet the criteria for an AS diagnosis are capable of some social interaction and normal conversation, just not to the extent necessary to blend into society.

Here's one that's better:

http://www.nlm.nih.gov/medlineplus/aspergerssyndrome.html

quoted:

Quote:
Asperger's Syndrome

Asperger's syndrome (AS) is an autism spectrum disorder. It is milder than autism but shares some of its symptoms. It is more common in boys than girls.

An obsessive interest in a single subject is a major symptom of AS. Some children with AS have become experts on dinosaurs, makes and models of cars, even objects as seemingly odd as vacuum cleaners. Their expertise, high level of vocabulary and formal speech patterns make them seem like little professors.

Children with AS have trouble reading social cues and recognizing other people's feelings. They may have strange movements or mannerisms. All of these make it difficult for them to make friends. Problems with motor skills are also common in children with AS. They may be late learning to ride a bike or catch a ball, for example. Treatment focuses on the three main symptoms: poor communication skills, obsessive or repetitive routines, and physical clumsiness.


Another annoying thing about these articles is that adults with AS are only mentioned briefly at the end, if at all.

However, a lot of the ones I looked at were not as bad as I expected them to be.



Belfast
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10 Apr 2008, 1:31 pm

Jaded wrote:
WE know why things are the way they are, but there is literally no explanation on any of these sites. If they exist in a capacity to inform and provide understanding of the "disorder," shouldn't a thorough explanation be offered??
Jaded wrote:
And because there aren't any forward-thinking websites out there with adequate descriptions of life with AS, nobody knows differently. It rubs me the wrong way because alone, those clinical statements make me look like a freak. They don't even attempt to explain that normal senses are amplified.
As sartresue suggests, anbuend's blog is excellent & has many links:
http://ballastexistenz.autistics.org/
My current favorite description (which incorporates p.o.v. of people who are dx'd, not just external folks) is here:
http://www.aane.org/about_asperger_synd ... dults.html

However, I admit the explanations are limited anywhere you go-it's mostly circular reasoning that doesn't get at any primary reasons/causes. I have sensory issues, and the terms "sensory processing/modulation/integration disorders" are better than the previous labels of "lazy, obstinate, difficult", etc. that were applied to me as kid. But sensory blah blah blah still doesn't get at what that actually is, or why-an improvement over saying mean things to me, but still doesn't shed much real light on what's going on physiologically.


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IsThatAFact
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10 Apr 2008, 4:31 pm

Quote:
It is REALLY hard to find sources to help explain AS to people that don't glaze your eyes over with clinical, medical references. It's all cold fact. And I get the impression that most of it is presented from a clinician's point of view - ZERO interpretation.


I think for two reasons:
1/ Such web sites are written by clinical people or even AS people who want the site to appear factual, given the level of opinionated, non-factual and invalid data the most of the Internet is based on this is not a bad thing
2/ Web sites are generally 'owned' be people with very limited resources (time/money/motivation) and generally provide abbreviated levels of information. Equally the Web is generally a poor source of interpretative information and frequently suffers from poor validity, because with few exceptions there is no editing/validation system (anyone can write anything).

If you want greater detail along with interpretation you generally need to use books e.g., Tony Attwood's Complete Guide to AS, Ashton's Aspergers in Love: Couple Relationships and Family Affairs. The problem with books is every time I loan them to people I have trouble getting then back!

Attwood has a good list of suitable books with high levels of interpretation Attwood's list of AS books