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finrod
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04 Sep 2008, 10:21 pm

i think most everyone is nervous at attending a support group. maybe just go but arrive a bit late so they don't make a big deal out of introducing you (or at least don't do so in the beginning of the meeting, they might do it at the end)



Raaf
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04 Sep 2008, 10:41 pm

lionesss wrote:
Because of my speech history I do not have AS, just PDD-NOS but really... it shouldn't matter at a certain point.


Hi lioness,

I agree it should not matter (and it doesn't, really). I think that we all (autistics, Aspies, PDD-NOSsers) basically have (more or less) the same kind of difficulties. It all 'hides' under the same autism umbrella.

Question for I am a bit confused.
Why did you write that you 'just' have PDD-NOS? Please don't think AS would look down on you because you 'just' have PDD-NOS. Of all the Aspies and PDD-NOSsers I know, it is the PDD-NOSsers who had a much tougher childhood (with the speech delay, occupational therapy and all).



sinsboldly
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04 Sep 2008, 10:59 pm

Raaf wrote:
lionesss wrote:
Because of my speech history I do not have AS, just PDD-NOS but really... it shouldn't matter at a certain point.


Hi lioness,

I agree it should not matter (and it doesn't, really). I think that we all (autistics, Aspies, PDD-NOSsers) basically have (more or less) the same kind of difficulties. It all 'hides' under the same autism umbrella.

Question for I am a bit confused.
Why did you write that you 'just' have PDD-NOS? Please don't think AS would look down on you because you 'just' have PDD-NOS. Of all the Aspies and PDD-NOSsers I know, it is the PDD-NOSsers who had a much tougher childhood (with the speech delay, occupational therapy and all).


maybe she meant just. . as in it isn't all that bad

but you did stumble upon a definate shadow caste ranking that I have seen in these pages all through the years.

Merle


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Raaf
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04 Sep 2008, 11:15 pm

sinsboldly wrote:
you did stumble upon a definate shadow caste ranking that I have seen in these pages all through the years.


How sad!
I am certainly not participating in that kind of 'discrimination'.
Thank you for the explanation, Merle!



regularguy
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09 Sep 2008, 2:38 am

Raaf wrote:
regularguy wrote:
I sometimes think I could be here at WP 24x7, reading and answering the various threads. Of course, that doesn't generate income and would probably be overdoing it.


The voluminous contents of forums can overwhelm me... (~ hey, even my own lengthy posts overwhelm me! :? :wink: )... So many threads, so much to read, so much I could answer to, so much interesting stuff.
I have the tendency to ‘need’ to read all, respond to it all. So I have to be strict to myself and cut to a few number of posts or a specific amount of time. There is so much ‘life’ and things to do besides forums. Still, forums certainly meet part of my needs!

Quote:
My best friend--well, one of my best friends, since I am blessed with a few of them--is also an Aspie. He and I frequently talk about Asperger's issues. It's a relief to have a close friend in my area who really "gets" this stuff, without my having to offer him a 5,000-word explanation.


That is so great, Steve! Such a friend functions as a ‘support group’ as well; probably even better!

Thanks, Raaf.

He's a great guy and very supportive. He is kind of like a one-man support group, but I don't want to lean on him a lot because I respect he has his own struggles with AS. While I appreciate his encouragement and reassurance, I want to be respectful and supportive to him, too. It is cool because we are both supporting one another as we each move into the rather scary process of dating and finding a compatible girlfriend. That hasn't been easy for me, but I'm not giving up.

Quote:
Quote:
I don't mean to put down in-person groups. They can be really good.


Steve, thank you for mentioning it like this. I am sorry. My words about support groups sounded like I was stating a fact, but, in fact, it was merely my experience (and I really don’t like it when people state things like it is a fact while it is just their opinion or their idea… and now I did it myself!).

It was that particular support group and it was not working for me.
Note: I am talking about one of the first autism society Aspie gatherings. It was back in the days (well… only 8 years ago) when autism magazines (or, at least the magazines I read) only talked about autistic kids.
All of a sudden, this autism society seemed to realize that autism doesn’t stop with age 18. So they decided to start up some ‘self-help’ groups (under their guidance, of course :wink: ). The organizers were very sweet and just trying to help us. But it was those NT’s who decided what the topics should be and how the group should interact. Again, I am sure those folks only had our best in mind. Only, what they thought was best for us, wasn’t particularly the case.

You're welcome. I didn't sense that you were negative about support groups. I am just careful now because I don't want to overwhelm myself (very easy to do).

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Quote:
I'm just being cautious now, with everything else going on in my life (my parents just happen to be moving to a new condo around the same time as I am moving, my mom was hospitalized for 5 days last month--she's better now, thankfully--and work has been insanely busy lately).


You have got a lot on your plate right now. How do you cope with an insanely busy workload? How do you cope at work at all? I guess I mean, coping with co-workers, clients, people…

Work has been difficult. Like pretty much anyone who moves, I have a lot of costs connected with my upcoming move. It's rough because some of the clients have asked to pay their fees in installments. I am normally happy to be flexible when I can, but this time it is hard to do that.

Quote:
Quote:
I am going to stick with online groups for now. I will tell my doctor that. I'm sure she'll be fine with it.


Your doctor is a good one if she understands that you can cope very well and that you can make your own decisions according to your needs and what you can handle.
If I were you, I would mention to her the support of your real-life Aspie-friend (besides the forums).

When you have a good friend, especially an Aspie, like you said, you are very blessed!

Thanks for this suggestion. I like my doctor very much. I have been working with her for about 7 years for treatment for bipolar disorder type II. She is easy to talk to and she encourages questions, which is great for me because I always have tons of them!

I will mention my local Aspie friend. As I have said, he is a great guy and I really value having him for a friend. Thanks for your friendly reply.


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regularguy
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09 Sep 2008, 2:40 am

finrod wrote:
i think most everyone is nervous at attending a support group. maybe just go but arrive a bit late so they don't make a big deal out of introducing you (or at least don't do so in the beginning of the meeting, they might do it at the end)

I like this idea. Thanks.


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You broke the boy in me, but you won't break the man."
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09 Sep 2008, 3:29 am

One group I go to is a lifesaver for me. I have an ASD but I am not so good at completely accepting it and often take a little trip into denial - it never benefits me to do that and I always feel reassured when I am in the group that I am not the only one in the whole world that paces or has trouble with eye contact at times and that kind of thing.

I strongly recommend a good support group, the people I have met all seem very special to me in one way or another and I value them very much.



GodsGadfly
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09 Sep 2008, 3:50 am

A diagnosis, if nothing else, gives you an *answer*. It says, in essence, you're not "crazy" (as in psychosomatic). There really is something wrong/different about you.

I've relayed this anecdote on here before, but my wife grew up being told she was lazy. When she studied education in college, she started thinking she had ADD. Finally, when we'd been married for 4 years, she was professionally diagnosed as having ADD. She told her family, elated to know that she was not "just lazy," but in fact had a previously undiagnosed learning disability.

"You don't have ADD," said her family. "They just tell you that stuff to make you feel bad about yourself. You're just lazy, that's all."

That is what a diagnosis means: peace of mind, even if everyone else are still gonna be jerks about it.



ProtossX
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09 Sep 2008, 4:10 am

uh wth?

congratulation you have aspergers?

are you for real?

I mean whats next we throw parties for when ppl are diagnosed with cancer?

OMG YESS CANCER!! OH YEAAH

I mean guys aspergers is serious business its not something you go wow GEE im an asperger now my doctor told me

nono you were asperger for ur whole life or none of it

its not something you become or whatever an its not exactly a great thing that should be congratulated on a well done thing like gettin A+ on ur test or promoted at ur job gettin dx'd with aspergers is not a good moment



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09 Sep 2008, 4:53 am

Congrats on the DX Steve! I know you had wondered if and/or when you'd have the opportunity to learn more about your early development and how to categorize it, and now you have a bit more information to help you understand what's going on with you.

I have owed you a message, but I've had a lot going on the last couple of months (work, broken arm, traveling) including preparing for my own DX. Last evening I started what will be several hours of interviews and testing at a university autism center. I'll know the outcome on Friday.

Some coincidence, huh? 8O

Z



Kaleido
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09 Sep 2008, 6:40 am

ProtossX wrote:
uh wth?

congratulation you have aspergers?

are you for real?

I mean whats next we throw parties for when ppl are diagnosed with cancer?

OMG YESS CANCER!! OH YEAAH

I mean guys aspergers is serious business its not something you go wow GEE im an asperger now my doctor told me

nono you were asperger for ur whole life or none of it

its not something you become or whatever an its not exactly a great thing that should be congratulated on a well done thing like gettin A+ on ur test or promoted at ur job gettin dx'd with aspergers is not a good moment


I disagree to some of this. It is GREAT to finally get an official diagnosis if you feel unsure and its also very useful to know one way or the other.

I would suggest that the pleasure or joy is not because we have an ASD but the relief of knowing after a lot of anxious uncertainty.

A diagnosis is very useful even if unwelcome at times. It explains things and then we can move forward knowing more about where our strengths and weaknesses are.

Also, it is a happy thing to be able to get an accurate diagnosis, so many people in the past have been misdiagnosed with other things which is very unhelpful.

Congratulations Steve to the end of uncertainty and the stress that sometimes comes with that unknowing.



lionesss
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09 Sep 2008, 9:47 am

Kaleido wrote:
ProtossX wrote:
uh wth?

congratulation you have aspergers?

are you for real?

I mean whats next we throw parties for when ppl are diagnosed with cancer?

OMG YESS CANCER!! OH YEAAH

I mean guys aspergers is serious business its not something you go wow GEE im an asperger now my doctor told me

nono you were asperger for ur whole life or none of it

its not something you become or whatever an its not exactly a great thing that should be congratulated on a well done thing like gettin A+ on ur test or promoted at ur job gettin dx'd with aspergers is not a good moment


I disagree to some of this. It is GREAT to finally get an official diagnosis if you feel unsure and its also very useful to know one way or the other.

I would suggest that the pleasure or joy is not because we have an ASD but the relief of knowing after a lot of anxious uncertainty.

A diagnosis is very useful even if unwelcome at times. It explains things and then we can move forward knowing more about where our strengths and weaknesses are.

Also, it is a happy thing to be able to get an accurate diagnosis, so many people in the past have been misdiagnosed with other things which is very unhelpful.

Congratulations Steve to the end of uncertainty and the stress that sometimes comes with that unknowing.


Yeah well I think just by having the peace of mind why your life has been the way it has is a good enough reason to celebrate. How can anyone possibly compare AS to cancer??????


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intense
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09 Sep 2008, 10:51 am

lionesss wrote:
How can anyone possibly compare AS to cancer??????
ProtossX that's who :roll:


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intense
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09 Sep 2008, 10:54 am

Raaf wrote:
Quite a mixed feelings-feeling (eh?) to get a diagnosis after surving such a long time. At least, that is how I felt when I got my dx at age 38. At that moment, for me, it was both grief (I am different) and relief (I am different) at the same time.
That's pretty much how I felt when I was diagnosed aged 34 earlier this year.


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aintnowreck
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09 Sep 2008, 11:33 am

I got diagnosed a few weeks ago at 36 y.o.

So it's never too late.....

And yeah, cancer and AS is two different things: I was relieved when I knew I have AS, not so when I knew I had cancer a few years ago.

I definitely didn't want to throw a party.


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regularguy
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11 Sep 2008, 3:57 am

Zonder wrote:
Congrats on the DX Steve! I know you had wondered if and/or when you'd have the opportunity to learn more about your early development and how to categorize it, and now you have a bit more information to help you understand what's going on with you.

I have owed you a message, but I've had a lot going on the last couple of months (work, broken arm, traveling) including preparing for my own DX. Last evening I started what will be several hours of interviews and testing at a university autism center. I'll know the outcome on Friday.

Some coincidence, huh? 8O

Z

Thanks, Zonder.

No worries about the message. I'll be happy to receive it whenever you send it.

I hope things go great for you this week.


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You broke the boy in me, but you won't break the man."
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