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BoringAl
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04 Dec 2008, 11:42 pm

Thank you The_One that is a lot of good information and questions

The_One wrote:
BoringAl what do you mean with "the diet coincided with an increase in services he receives"? Do you mean he got extra help from other people?


We started the gluten free diet shortly before supports services from the school district really kicked in and we arranged bi weekly visits from a development specialist. When my wife and I discussed his improvements it was difficult to separate the different things we were doing trying to figure out what was working.

The_One wrote:
It is difficult to have a gluten free and milk free diet. If your son gets Gliadorphin in his brain it would probably cause effects where the situation looks worse when you stop the diet then before you began. His body was getting used to getting milk and gluten. When you stop the diet the body thinks it will get back to the diet eventually. It is normal when stopping such a diet to get digestive problems. People are advised to eat gluten because they can give you better bowel movement if your are not intolerant or allergic to them. The body is adjusting to the new situation.


We did go through a very difficult transition into the diet. This was part of what convinced us that it was worth trying. We know that we should cut the milk but he will only drink milk. Any other fluid will make him gag. We have gone round and round over this with his doctor. He once went over two days without fluids because he can only tolerate milk. His OT at school has been working with him to help him tolerate water, he can now drink a swallow or two. :?

The_One wrote:
I don't know in what degree he has autism. It could be that he is only showing signs of autism. I don't know if he also has physical problems such as eczema, asthma and muscle spasms. There have been reports that people who have autism symptomes are functioning normally when not eating gluten and milk. It can also be that he has autism and the digestive problems with gluten and milk. Although it is difficult to also have your son a milk free diet it is worthwile to do it if he reacts positivly to a glutenfree diet.


He has gone through two evaluations and one review of an evaluation and he consistently is rated on the upper cusp of LFA. He just turned three so we do not know where he will end up. I do not believe that removing the casein and gluten together would remove all the symptoms but I do believe that the improvement would be a big help.

The_One wrote:
Another cause of the positive effects is that your son can have a gluten allergy (celiac disease). When the gluten are broken down in other products by enzymes it can be that the immune systems sees those products as intruders and tries to send armies of antibodies which fight the gluten harming the intestines, because it is the place they would normally be. I heard from people who have celiac disease that they get the same symptomes everytime. It doesn't matter if you are on a diet or not. Which does not mean that you don't have to get on a gluten free diet when you have celiac disease, because it destroys the intestines. It is easy to test if someone has celiac disease because you can do the test anytime you like by testing blood in a lab.


I agree with you on this. We did have him tested for celiac disease before we started the diet, it is impossible to get accurate results if gluten is not being eaten. He came back negative for celiacs. There is another test for gluten sensitivity but our insurance does not consider it as necessary and there is no way we can afford it. :?



wrongplanetmember
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05 Dec 2008, 4:11 am

Hey there...! Yeah I'm hella interested too..( to find out how NT's respond to this diet )

I for one have improved out of sight since starting on the GFCF diet. But it's hard to stick to. In fact... I'm so sick of it! Every carb I eat is made of either rice and corn.



The_One
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05 Dec 2008, 8:58 am

I am not good with the abbreviations like NT because I am new here. I guess AS stands for Aspergers Syndrome. But I don't know what NT stands for.

Most of the time people who eat some food and don't like the other food is because they can digest them better then other food or it gives them a special feeling. All humans can not tolerate milk that is not from another human well (like cow milk). Some digest it better then others. It is not necessary to use milk products. There are other products which help the body to get enough vitamines and calcium. Although it is a big step to have a milk free diet. For a lot of people it is not directly necessary to have such a diet.

I don't know why the son of BoringAl only wants to drink milk. It does not make sense if it does not effect his son. Though it can be that it reminds the son of the time he got milk from his mother. It could be just a phase where he is in.

It could be for some people of the spectrum of autism to feel better when they don't eat gluten and milk. This can have different reasons. I thought there would be a lot more people who are "normal" when having a gluten and milk free diet. A guess I have a rare condition.



mosez
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05 Dec 2008, 12:01 pm

KaliMa wrote:
mosez wrote:
KaliMa wrote:
macushla wrote:
The_One wrote:
A few years ago tried out a diet which eliminates eating glutes and milk.


What are "glutes"?

Its not a word I'm familiar with except as a nick name for a set of muscles found in one's rear end/sit upon/butt.


Thank you, Macushla! I was thinking the exact same thing but felt too bashful to ask!

Think it's something natural found in wheat grain and some other grains(sorry, but I don't know the word in english). I unterstood the word, cause in norwegian we say gluten. Some people recact to this and milk especial people with digestion deseases.


Ohhh, GLUTEN! Thank you very much, Mosez!

You're very welcome, glad I could help. Lucky for me the word gluten is the same in both norwegian and english. Seriously, I don't believe in any diet can cure autism, but It might help some to feel better, cause one can't rule out other issues that can have an influence on both body and mind, being in the specter or not.


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The_One
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05 Dec 2008, 12:25 pm

I will ask the association of autism in my country what they thinks about the definition of autism related to my situation.



BoringAl
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05 Dec 2008, 1:56 pm

There are a lot of acronyms here. NT stands for Neuro-Typical. This is "normal" people.

I don't know for sure how much GFCF diet would help my ASD son as we have been unable to test.

I am really hoping that we will be able go GFCF completely in future. Removing the gluten definitely helped. :)



Callista
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05 Dec 2008, 3:50 pm

Oh, it's very common to only want one particular food, or a small group of foods. Simple reason: It's dependable. You know what it's going to taste like and you know you'll like it. No changes; no surprises. It's a wonder more of us don't have restricted diets, really.


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earthmonkey
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06 Dec 2008, 2:08 am

I'm completely dairy free, and while some phyiscal thing have gotten better (such as no gastrointestinal troubles whatever), I am no less autistic, and am having the same troubles with going about my daily life as usual, in the process of applying to DVR and Dial-a-Lift. I have no reason to eliminate gluten, as I have no signs of gluten intolerance and notice nothing different after eating foods that contain it.


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Rjaye
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06 Dec 2008, 4:43 am

I did the GF/CF diet, and it did nothing for me. In fact, I didn't feel as well. Once I added whole grains, i felt much better. The dairy I went back to was dairy and cheese.

Studies have shown that GI tract disorders happen at the same rate in people with ASDs as in the general population, but that's a pretty significant minority.

It doesn't hurt to try, but the thing I would suggest-that everyone in the house go GF/CF. That way the little guy doesn't get into something he shouldn't, and actually, it's not a bad diet--just make sure you get lots of veggies and good proteins. There are some good products out there that are GF/CF.

Good luck.



The_One
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08 Dec 2008, 9:29 am

As far as the association of autism in my country knows gluten don't cause autism when cosuming. I assume by this that autism can't be cured fully when having a diet. Because of the reactions given on this website I assume people with the same condition as I aren't autistic, but have NT. I thank everybody who have given information on the topic and wish everybody good luck.