Breaking: Advocate Does Not Want Autistic Input on New Bill
BTW: I just sent in my donations for Autism Speaks and requested their newsletter.
ETA: Here is my reasoning: Growing up gay in a hetero-world I have learned that (like publicity) bad representation is still representation. You may not like the person, their voice & ideas or what they're advocating. But at least they are speaking on your behalf. Don't like it? Do something about it.
Im gonna call troll.
I can see if it was a position paper, a commercial decision, or something that would be privatized. But you're talking about a bill to be presented to Congress, which would, in effect, make it a public document. There's this little (well, actually huge) set of published works called The Congressional Record?...
(supposedly the actual record of everything said and presented to Congress .However, much of it is shoehorned in later...there's not enough hours in a day to put it all in...
I'm just scratching my head wondering how you can 'pirate' a bill. Is there an alternative Congress we don't know about? And if so, that gives me ideas...![]()
You'd be wrong.
What "troll" actually lasts past 500 posts?
Speaking of, have you even read any of my previous posts?
Lastly, is this another, "He doesn't agree with me = troll?"
Edited for grammatical errors.
Last edited by NocturnalQuilter on 31 Dec 2008, 12:14 am, edited 1 time in total.
Kassiane
Yellow-bellied Woodpecker
Joined: 20 Dec 2008
Age: 43
Gender: Female
Posts: 60
Location: Portland
At first I was all WTF?
Then I saw it was Michael Robinson, who has gotten kicked off Aspie lists for calling us ingrates for not accepting his version of advocacy and telling him his goals aren't his goals. He tried to legally serve a whole newsgroup, which is hilarious and not legally binding.
Also, he claims to be a lobbyist in Hawaii but isn't registered. I've no idea the merits of what he wrote but if it's like what I've seen before, it's more of the same.
sinsboldly
Veteran
Joined: 21 Nov 2006
Gender: Female
Posts: 13,488
Location: Bandon-by-the-Sea, Oregon
BTW: I just sent in my donations for Autism Speaks and requested their newsletter.
ETA: Here is my reasoning: Growing up gay in a hetero-world I have learned that (like publicity) bad representation is still representation. You may not like the person, their voice & ideas or what they're advocating. But at least they are speaking on your behalf. Don't like it? Do something about it.
Im gonna call troll.
on whom, Messygeek?
Merle
_________________
Alis volat propriis
State Motto of Oregon
Gays aren't usually at high risk for poverty and homelessness. If anything, gays as a group tend to be better off financially than many breeders (double income, no kids). Lesbians, not so much.
We, on the other hand, have about 10% employment, which makes us very vulnerable to negative stereotypes. We can't just go out and hire lawyers to slap down our enemies when they actually endanger us. We don't have the money for that. Too often we can't even afford decent food and shelter. And do you know what a press release costs? And how many autistic adults don't have access to the internet because of poverty? Or can't go on it because of overload?
Nocturnal Quilter, you have recently stated that you doubt you're on the spectrum after all. Is it not possible that there's something here that you personally don't have experience of that you're missing? Lots of us feel threatened by not being included in decisions made about us. There's probably some very good reasons for that. We are very very vulnerable.
And as for doing something about it, our disabilities make it hard for us to communicate effectively, period, never mind being able to keep up with the media machines out there doing our thinking and talking for us, without our permission. We need accomodation and access to more resources just in order to be able to put our heads together, figure out what we want, and get the word out. Don't forget there is very little research on adults, so often we're not even sure what's going on.
It's a miracle that forums like this exist in the first place. I don't know who's paying for it, but I'm eternally grateful, since it's something that's way beyond what I could do. But forums like this, and blogs, seem to be pretty much all we can do without resources we don't have, resources that are going to parents' groups to solve their problems, not ours.
^^
I hear what you're saying about money- though there is precious little evidence to support the claim that gays have more expendable income I do believe a portion of that claim is true. Not for me
since I'm unemployed and broke as hell.
But you do bring up an interesting point: If in fact people on the spectrum have diminished fiscal means, and if working in the public sector is such a hardship (as I do believe it is) then why complain about other people who are willing (much less able) to represent "you"? It's not making any sense to me at all. My father would call this ungrateful behavior.
The point I was trying to make is that if the people in the public eye arent' serving your needs, then you have 2 choices: Do it yourself or find someone else more favorable OR put-up-and-shut-up. These are the choices I face whenever I see our local G&L spokespeople on the news; I don't often agree with our "leaders'" pacifist stance on equal rights. So I took it upon myself to speak before the city council members to voice my opinion. I made signs and stood out on the street corners with the rest of the more militant gays and lesbians. NOT because it was the most fun or the most comfortable, but because I felt it was what I had to do at the time. Yeah, I bitched a lot on the computer too. But I try to strike a balance between talking and doing. and doing some things costs nothing at all.
Finally, there is much hate on this forum directed towards JMcC, Michael Robinson and the like. The fact is that they are individuals doing what they can and I very much doubt it's simply all about the money. And when I read crap like, "I voted for Jenny 'cuz I don't like the way she flips her hair." WTF?! How is that even a valid point to bash someone who is sticking their neck out on behalf of the autistic community in an effort to educate a broader community who knows next to nothing about you?
All socio-political movements are, in fact works in progress. And I dare say, people with Asperger's or on the spectrum at all might be the last people I'd want in the political arena represnting me during these movements. I feel the expectation is to have everyone single person and need met by the representative works of Michael Robinson and I think it's foolish to have those expectations. Also, based on what I read (and subsequently c-n-ped here) this all came about from a single disgruntled person who didn't feel they were being taken as seriously as they thought they should be.
This, that you said earlier as well, is the exact reason I decided to do a counter-act and put it up. Only to find out after I put it up that I only have until the end of today to get 2000 votes. I think what I put up is much more far-reaching. I just don't think I have the time to get the votes it needs. But I did email Mr. Robinson, and he feels I hit the nail on the head, so to speak. So I thank you for making me put my neck out there for myself and my children.
