Do you sometimes feel that AS is a made up disorder?

Page 2 of 7 [ 108 posts ]  Go to page Previous  1, 2, 3, 4, 5 ... 7  Next

b9
Veteran
Veteran

User avatar

Joined: 14 Aug 2008
Age: 53
Gender: Male
Posts: 12,003
Location: australia

06 Jan 2009, 6:26 am

i think it is real. you have to be autistic to have aspergers and autism is not made up.
i think autism ranges from "profound" at the bottom end to "asperger's" at the top end.

but at the top end, the level of autism is so mild as to be almost indistinguishable from normal people.

where should they draw the line?

where on the spectrum does a person no longer warrant a diagnosis of autism.

imagine a threshold between the land of autism and the land of NT's. the mildest asperger people are on that line slightly into the autistic side.
there is no resolution on that line and it is arbitrary.

i think that to have autism means to be much more than socially paralyzed.
"social inadequacy" is just a "symptom" noted by NT's.
it is a result of a deeper wiring incompatibility that is more fundamental than simple communicative ability.

you know you "have something" if you never meet anyone who you identify with or who identifies with you.

it is a lonely world is autism. i never met anyone who i can look in the eye of and let them talk for me.

only i have ever been able to explain what i think, and i never heard anything from the mouths of others that describe what i am thinking.

there is a very stale meeting point between me and NT's, and i just go through the motions of protocol i have learned and it is a chore.

there are many people i have seen on forums who claim thay are "asperger syndromites" and they seem so vastly socially superior to me that i question their honesty.

but i must realize that they are milder in autism than i, and i believe they are truthful mainly. but they seem so unimpaired by anything other than just "not having much charisma" and i think they are sometimes clutching at straws to explain their lack of fame amongst their friends.

AS seems to be the rage at the moment and that is sad.
many NT's clamor to join the AS procession, because AS people look normal and they are just "naive in a cute way".
the pretenders lie in their profile that they are diagnosed AS to join the potentially fruitful party of people who do not perceive their social flaws.

many people are socially maladjusted, but very few are so because of a brain design that is not facilitating to "connection and socialization".

most socially backward people are that way because of their nurture and not their nature.


these people do not complain of sensory issues they have like textures of fabrics and the sound of squelching from vacuum tubes in appliances.

if i am in a room with incandescent lighting at 50hz alternating current, i can see the flicker effect and it drives me insane. it is incessant and i encounter another aspect of autism... i can not shut it out and look away until i leave the environment.
i can not ignore what irritates me and it gets amplified until all my nerves are at breaking point and i have to run for safety or curl into a foetal ball.

mostly what i see discussed by pretenders is how they want a girlfriend and they try to remarket themselves in the light of "having aspergers".



Sora
Veteran
Veteran

User avatar

Joined: 15 Sep 2006
Gender: Female
Posts: 4,906
Location: Europe

06 Jan 2009, 7:04 am

No. AS is often the same as (early) verbal, high IQ kanner's. So it's plenty real.


_________________
Autism + ADHD
______
The trouble with having an open mind, of course, is that people will insist on coming along and trying to put things in it. Terry Pratchett


TPE2
Veteran
Veteran

User avatar

Joined: 20 Oct 2008
Gender: Male
Posts: 1,461

06 Jan 2009, 7:16 am

Putting the question in another way: what is really the difference between Asperger's Syndrome and simply a variant of personality type? You can answer "sensory issues", "difficulties in understanding non-verbal/non-literal communication", etc., but nothing of that are necessary conditions for a diagnosis of AS ("sensory issues" does not appear in any diagnostic criteria; even the A1 criteria of DSM seems to have more with difficulties with using non-verbal comunication than to with difficulties with understanding it...).

Like I already wrote in another thread, what is really the difference between an introvert person with a strong interest in some issues and a person with AS (not every people with AS are introverts-with-a-strong-interest-in some-topic, but I think that all introverts-with-a-strong-interest-in some-topic can be diagnosed with AS, at least according to the criteria of DSM)?

And, if we think a bit, perhaps allmost all psychiatric diagnosis are made-up conditions: when the psychiatrists think that some people are:

a) enough different from the "average individual"; and

b) enough similar between them

they (the psychs) invent a label and give that label to these group of people. But, in the end, the frontier between having a "condition" and being "normal", and the frontiers between the various conditions are simply arbitrary decisions of the psychiatric community.

Returning to AS - there are at least four AS: DSM-AS, ICD-AS, Gilberg-AS and Szatmary-AS.

As I know, if we choose two of these AS and comopare them, most people who have one don't have the other (specially, in the case of G-AS and S-AS, it is even more probable to have one if you don't have the other!). It is needed more evidence that the concept of Asperger's Syndrome is an arbitrary social construction?



Danielismyname
Veteran
Veteran

User avatar

Joined: 2 Apr 2007
Age: 44
Gender: Male
Posts: 8,565

06 Jan 2009, 7:26 am

TPE2 wrote:
Putting the question in another way: what is really the difference between Asperger's Syndrome and simply a variant of personality type?


Wing:

Quote:
Normal variant of personality

All the features that characterise Asperger syndrome can be found in varying degrees in the normal population. People differ in their levels of skill in social interaction and in their ability to read nonverbal social cues. There is an equally wide distribution in motor skills. Many who are capable and independent as adults have special interests that they pursue with marked enthusiasm. Collecting objects such as stamps, old glass bottles, or railway engine numbers are socially accepted hobbies. Asperger (1979) pointed out that the capacity to withdraw into an inner world of one's own special interests is available in a greater or lesser measure to all human beings. He emphasised that this ability has to be present to marked extent in those who are creative artists or scientists. The difference between someone with Asperger syndrome and the normal person who has a complex inner world is that the latter does take part appropriately in two-way social interaction at times, while the former does not. Also, the normal person, however elaborate his inner world, is influenced by his social experiences, whereas the person with Asperger syndrome seems cut off from the effects of outside contacts.

A number of normal adults have outstandingly good rote memories and even retain eidetic imagery into adult life. Pedantic speech and a tendency to take things literally can also be found in normal people.

It is possible that some people could be classified as suffering from Asperger syndrome because they are at the extreme end of the normal continuum on all these features. In others, one particular aspect may be so marked that it affects the whole of their functioning. The man described by Luria (1965), whose visual memories of objects and events were so vivid and so permanent that they interfered with his comprehension of their significance, seemed to have behaved not unlike someone with Asperger syndrome. Unfortunately, Luria did not give enough details to allow a diagnosis to be made.

Even though Asperger syndrome does appear to merge into the normal continuum, there are many cases in whom the problems are so marked that the suggestion of a distinct pathology seems a more plausible explanation than a variant of normality.


DSM-IV-TR:

Quote:
Asperger's Disorder must be distinguished from normal social awkwardness and normal age-appropriate interests and hobbies. In Asperger's Disorder, the social deficits are quite severe and the preoccupations are all-encompassing and interfere with the acquisition of basic skills.



b9
Veteran
Veteran

User avatar

Joined: 14 Aug 2008
Age: 53
Gender: Male
Posts: 12,003
Location: australia

06 Jan 2009, 7:36 am

TPE2 wrote:
Putting the question in another way: what is really the difference between Asperger's Syndrome and simply a variant of personality type? You can answer "sensory issues", "difficulties in understanding non-verbal/non-literal communication", etc., but nothing of that are necessary conditions for a diagnosis of AS ("sensory issues" does not appear in any diagnostic criteria; even the A1 criteria of DSM seems to have more with difficulties with using non-verbal comunication than to with difficulties with understanding it...).

there are many more criteria to be addressed than a simple dsm rating.
the dsm is mainly used to validate a referral to specialist treatment i understand.
it is not a mechanism for diagnosis, but more for validation of referral for further assessment.

the tests i had were very detailed and they obviously had some goal in mind.

eg: i was shown a movie clip and i wore glasses that bounced laser beams
of my iris's and exposed an incidental film that was of my attention trajectory during the clip. the result revealed much.

another example is that i was placed in staged situations to see where my attention went.
there were lots of tests that are not mentioned on the free internet that i underwent.
you do not get diagnosed AS on the basis of a dsm referral guide.



pandd
Veteran
Veteran

User avatar

Joined: 15 Jul 2006
Age: 52
Gender: Female
Posts: 2,430

06 Jan 2009, 8:05 am

TPE2 wrote:
Putting the question in another way: what is really the difference between Asperger's Syndrome and simply a variant of personality type? You can answer "sensory issues", "difficulties in understanding non-verbal/non-literal communication", etc., but nothing of that are necessary conditions for a diagnosis of AS ("sensory issues" does not appear in any diagnostic criteria; even the A1 criteria of DSM seems to have more with difficulties with using non-verbal comunication than to with difficulties with understanding it...).

Non verbal communication skills are core competencies for human beings and these competencies are acquired through an involuntary process (ie nothing to do with personality, effort, etc). The failure to acquire these core competencies is not a personality trait, it is an impairing result of some kind of dysfunction in the non-voluntary, early child-hood developmental processes that usually ensure such skills are acquired.
Quote:
Like I already wrote in another thread, what is really the difference between an introvert person with a strong interest in some issues and a person with AS (not every people with AS are introverts-with-a-strong-interest-in some-topic, but I think that all introverts-with-a-strong-interest-in some-topic can be diagnosed with AS, at least according to the criteria of DSM)?

The AS DX criteria in the DSM require that a person meet the modern definition of 'autistic' (ie has the 'autistic triad of impairments'). Not every introverted person with a strong interest has the autistic triad of impairment, and anyone who does have the triad of impairment is significantly impaired and/or lacking in core species competencies.

Quote:
And, if we think a bit, perhaps allmost all psychiatric diagnosis are made-up conditions: when the psychiatrists think that some people are:

Perhaps almost all medical diagnoses are made-up conditions, certainly AS is not actually a psychiatric disorder.

Quote:
a) enough different from the "average individual"; and

b) enough similar between them

they (the psychs) invent a label and give that label to these group of people. But, in the end, the frontier between having a "condition" and being "normal", and the frontiers between the various conditions are simply arbitrary decisions of the psychiatric community.

Er, no. An important element you missed is pathology. Unless the individual is harmed or is harmful as a result of the difference from the 'average individual' then it does not get disorder label.
Quote:
Returning to AS - there are at least four AS: DSM-AS, ICD-AS, Gilberg-AS and Szatmary-AS.

As I know, if we choose two of these AS and comopare them, most people who have one don't have the other (specially, in the case of G-AS and S-AS, it is even more probable to have one if you don't have the other!). It is needed more evidence that the concept of Asperger's Syndrome is an arbitrary social construction?

It's not uncommon for medical conventions to differ from place to place as part and parcel of localized development of health care knowledges/systems/practice applications, and also to some extent due to fragmentation between locally developing and applied knowledges and practices contexts.



TPE2
Veteran
Veteran

User avatar

Joined: 20 Oct 2008
Gender: Male
Posts: 1,461

06 Jan 2009, 8:29 am

pandd wrote:
TPE2 wrote:
Putting the question in another way: what is really the difference between Asperger's Syndrome and simply a variant of personality type? You can answer "sensory issues", "difficulties in understanding non-verbal/non-literal communication", etc., but nothing of that are necessary conditions for a diagnosis of AS ("sensory issues" does not appear in any diagnostic criteria; even the A1 criteria of DSM seems to have more with difficulties with using non-verbal comunication than to with difficulties with understanding it...).

Non verbal communication skills are core competencies for human beings and these competencies are acquired through an involuntary process (ie nothing to do with personality, effort, etc). The failure to acquire these core competencies is not a personality trait, it is an impairing result of some kind of dysfunction in the non-voluntary, early child-hood developmental processes that usually ensure such skills are acquired.


I didn't write that failure at non verbal communication was a personality trait - I wrote that was one of the possible differences between AS and a personality trait, but it wasn't a necessary condition for a diagnosis.



Hovis
Veteran
Veteran

User avatar

Joined: 9 Jul 2006
Age: 51
Gender: Female
Posts: 936
Location: Lincolnshire, England

06 Jan 2009, 9:14 am

TPE2 wrote:
Like I already wrote in another thread, what is really the difference between an introvert person with a strong interest in some issues and a person with AS (not every people with AS are introverts-with-a-strong-interest-in some-topic, but I think that all introverts-with-a-strong-interest-in some-topic can be diagnosed with AS, at least according to the criteria of DSM)?


I think that the difference between an introvert and and an Aspie is that the introvert might not enjoy having to socialize or become involved in certain activities, and it might cause them to feel stressed and anxious, but they are able to do it if they have to. They understand what is required of them and how they should be behaving, even if they find it difficult to make themselves do so. The Aspie may not be able, because they simply don't understand those fine nuances of social interaction. The difference between 'really, really doesn't want to' and literally 'is unable to'.

As a self-diagnosed Aspie, or perhaps borderline Aspie, the lack of social understanding isn't my only difficulty, but it's certainly my biggest one. As I read more discussions and analyses of NT social behavior here, I'm beginning to realize that there's in fact even more that I'm 'missing' than I thought there was. :(



Inventor
Veteran
Veteran

User avatar

Joined: 15 Feb 2007
Gender: Male
Posts: 6,014
Location: New Orleans

06 Jan 2009, 9:23 am

It is a measure of a social disconnect. Many have the traits, but not the disconnects. They can read body language, pick up on infered meanings, can carry on a conversation, and function as part of a group.

Many with the disconnects still get by. There is a lot of the world where social communication is not needed. They can function very well within their world.

The problems come with trying to merge them into a more social world. A good cowboy is a bad office worker.

Some of it is just a backlash to the sudden changes of the last hundred years, from life on the farm, to life in the burbs.

The concepts of Asperger come just as most people were living in cities for the first time.

Some people are just not wired to be social. They are only impaired in a social world.

The hunter/warrior would be burdened with social skills, empathy. They need the tunnel vision, the intense focus, to survive. Meeting strangers at the border that seemed friendly, were social and open, would most likely lead to being killed. Thinking about what other people thought of a sports event is not going to make a good hunter.

These Asperger traits are useful in business. Dealing with the world in an impersonal way works.

NT is a made up condition. Being easy to manipulate and socially dependant is a weakness that is encouraged.

The study of mass psychology is called advertising.



sunshower
Veteran
Veteran

User avatar

Joined: 17 Aug 2006
Age: 125
Gender: Female
Posts: 3,985

06 Jan 2009, 9:42 am

I think we (the people on this site) must be different in the same way, nothing else would explain the depth and power of the sudden feeling of talking to people on the same plane as me when I first (truly) started posting on this site.

I doubt myself all the time. A lot of the time I think I am using AS as an excuse, I am a hypochondriac (like my nanna, i actually really do think I can be at times), there's nothing wrong with me except that I am self centered, vain, and just want to be able to say i am different. My family, and even another friend this year, have actually said this; that there's nothing really wrong with me, and I am using AS as an excuse.

The truth is I don't think there's anything really wrong with me (apart from being really unstable emotionally and numerous personality flaws), but sometimes i just want to feel like I know who I am, like I understand myself, and I'm a screw up not because I'm a failure as a person - I'm lazy and I don't try hard enough, but maybe because there is another reason outside of my control (cause I can't accept that even when I think I am trying my hardest I still fail at tasks other people suceed in unless it is out of my control).


_________________
Into the dark...


Mysty
Veteran
Veteran

User avatar

Joined: 24 Jun 2008
Age: 55
Gender: Female
Posts: 1,762

06 Jan 2009, 10:52 am

B9, some of what you say I much agree with. On the other hand, I suspect I might be one of those people you talk about at the end of your post who you think are NTs pretending to have AS. Except, I don't say I have it. I say I'm on the spectrum, or that I have both aspie and NT traits.

b9 wrote:
i think it is real. you have to be autistic to have aspergers and autism is not made up.
i think autism ranges from "profound" at the bottom end to "asperger's" at the top end.

but at the top end, the level of autism is so mild as to be almost indistinguishable from normal people.

where should they draw the line?

where on the spectrum does a person no longer warrant a diagnosis of autism.

I'm glad I'm not one of the "they" who are in the business of drawing such lines. I don't have to draw the line on how these labels are used to be able to come to better understand myself and others through understanding the autistic spectrum.

b9 wrote:
you know you "have something" if you never meet anyone who you identify with or who identifies with you.

That was true for me until 2003. I was 33.



AmberEyes
Veteran
Veteran

User avatar

Joined: 26 Sep 2008
Gender: Female
Posts: 1,438
Location: The Lands where the Jumblies live

06 Jan 2009, 11:27 am

the_enigma wrote:
Sometimes I feel that getting diagnosed with AS is the nice and professional way of saying, "You utterly fail at socializing." or a way to make excuses for major shortcomings.


I thought it was someone's nice professional way of saying:

"You utterly fail at socialising in the way we expect you to socialise. We can't understand you (because you don't socialise or behave like we do), therefore so something must be wrong with you. We don't know what to do with you."

I think it's just a different operating system of the mind. It may be different kind of perception that's been pathologised because it's perceived as asocial or "rude" in very social environments.

My perception focusses on details in the physical environment first before focussing on people's emotions. I can understand why this could be misconstrued as being insensitive towards other people at first. I always try and fight these distractions as best as I can, but it's not always easy.

I would see a room as box that just happened to be inhabited by people. I'd observe the textures and patterns in the carpet, the woodgrain in the panelling, the style of lights and so on first. I would enter the room as a lone independent individual (even if I entered accompanied by someone) and I'd see everyone else as individuals.

Perhaps other people would see their group of friends and focus on their body language reactions/facial expressions to the conversation. Perhaps other people would ignore the physical details of the room until others pointed these details out to them.

Whatever I am, I'm not disordered.
I have been very helpful and friendly to people in the past.
Some people have appreciated me as a friend.

I've certainly had some kind of extreme personality or condition that I've inherited that has caused me to act the way I have done in the past.



Prof_Pretorius
Veteran
Veteran

User avatar

Joined: 20 Aug 2006
Age: 67
Gender: Male
Posts: 7,520
Location: Hiding in the attic of the Arkham Library

06 Jan 2009, 11:39 am

AS is real, Autism is real. I'm convinced that it's only a matter of time before significant brain differences are discovered, and after that, genetic differences. I recently read about "William's Syndrome" and the road to recognition they faced. Now the syndrome is well recognized, and the genes responsible have been identified. Which means there is no 'cure' for Williams, it's genetic, and there will soon be a pre-natal test for the genetic 'flaws'.
How anyone can say Autism isn't real is quite beyond my understanding...


_________________
I wake to sleep, and take my waking slow. I feel my fate in what I cannot fear. I learn by going where I have to go. ~Theodore Roethke


anna-banana
Veteran
Veteran

User avatar

Joined: 30 Aug 2008
Age: 42
Gender: Female
Posts: 5,682
Location: Europe

06 Jan 2009, 12:06 pm

Danielismyname wrote:
TPE2 wrote:
Putting the question in another way: what is really the difference between Asperger's Syndrome and simply a variant of personality type?


Wing:

Quote:
Normal variant of personality

All the features that characterise Asperger syndrome can be found in varying degrees in the normal population. People differ in their levels of skill in social interaction and in their ability to read nonverbal social cues. There is an equally wide distribution in motor skills. Many who are capable and independent as adults have special interests that they pursue with marked enthusiasm. Collecting objects such as stamps, old glass bottles, or railway engine numbers are socially accepted hobbies. Asperger (1979) pointed out that the capacity to withdraw into an inner world of one's own special interests is available in a greater or lesser measure to all human beings. He emphasised that this ability has to be present to marked extent in those who are creative artists or scientists. The difference between someone with Asperger syndrome and the normal person who has a complex inner world is that the latter does take part appropriately in two-way social interaction at times, while the former does not. Also, the normal person, however elaborate his inner world, is influenced by his social experiences, whereas the person with Asperger syndrome seems cut off from the effects of outside contacts.

A number of normal adults have outstandingly good rote memories and even retain eidetic imagery into adult life. Pedantic speech and a tendency to take things literally can also be found in normal people.

It is possible that some people could be classified as suffering from Asperger syndrome because they are at the extreme end of the normal continuum on all these features. In others, one particular aspect may be so marked that it affects the whole of their functioning. The man described by Luria (1965), whose visual memories of objects and events were so vivid and so permanent that they interfered with his comprehension of their significance, seemed to have behaved not unlike someone with Asperger syndrome. Unfortunately, Luria did not give enough details to allow a diagnosis to be made.

Even though Asperger syndrome does appear to merge into the normal continuum, there are many cases in whom the problems are so marked that the suggestion of a distinct pathology seems a more plausible explanation than a variant of normality.


DSM-IV-TR:

Quote:
Asperger's Disorder must be distinguished from normal social awkwardness and normal age-appropriate interests and hobbies. In Asperger's Disorder, the social deficits are quite severe and the preoccupations are all-encompassing and interfere with the acquisition of basic skills.


so you're saying that a genuinely AS person can not conciously learn social skills by observation, analysis, trial and error...?

if that's true then I don't know what I'm doing here :roll:


_________________
not a bug - a feature.


drowbot0181
Veteran
Veteran

User avatar

Joined: 1 Dec 2008
Gender: Male
Posts: 700
Location: Oklahoma

06 Jan 2009, 12:21 pm

anna-banana wrote:
if that's true then I don't know what I'm doing here :roll:


I used to think that everybody learned to socialize that way, but they were just better at it. Learning about AS has given me a far greater understanding of myself than I have ever been able to reach before. It is very real and it is not simply a label applied to the socially awkward. I've always known I was different. And not just different in outward behavior but different on a function level. Hale_Bopp stated it precisely when she said it feels like you are a different species. Why do you think this sight is called WrongPlanet?



anna-banana
Veteran
Veteran

User avatar

Joined: 30 Aug 2008
Age: 42
Gender: Female
Posts: 5,682
Location: Europe

06 Jan 2009, 12:29 pm

drowbot0181 wrote:
anna-banana wrote:
if that's true then I don't know what I'm doing here :roll:


I used to think that everybody learned to socialize that way, but they were just better at it. Learning about AS has given me a far greater understanding of myself than I have ever been able to reach before. It is very real and it is not simply a label applied to the socially awkward. I've always known I was different. And not just different in outward behavior but different on a function level. Hale_Bopp stated it precisely when she said it feels like you are a different species. Why do you think this sight is called WrongPlanet?


yes I know, I've always felt like that too. I'm just trying to get some more answers off Danielismyname because he knows about stuff and I'm quite puzzled now as to the whole criteria thingy.


_________________
not a bug - a feature.