Question for those diagnosed with AS...

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sbcmetroguy
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14 Jan 2009, 12:19 pm

glider18 wrote:
I feel fortunate that my therapist, the one who diagnosed me, read my entire set of notes. He did it in front of me. He keeps it in a file now. In the previous two sessions he has always made comments back on things I wrote in those notes. If I talk about something that happened to be in those notes, he will even comment how interesting he found that to be in my notes. I truly believe he cares about me. On the day of my diagnosis, I even gave him two poems I had written. Both of those poems address feeling I had as a child about being autistic. Now, in the therapy sessions, as my family is coming with me, he keeps charts of our interactions. Our agreement is that he is in now way trying to cure me (as there is no cure), but that he is trying to help me with issues dealing with socializing with my family. I feel good about things so far. It really helps the therapy if you know that the person cares about you.


What you said about writing a poem when you were younger about thinking you might be autistic. Well, I haven't written a poem about it but I have had similar thoughts. Though I never knew anything about autism, retardation, or anything else, I do remember telling many people throughout my life - including my wife - that I felt ret*d, for lack of a better word, obviously. I lack social skills, can't mimic the actions of others around me, always had a hard time learning in school, always feel confused, etc.



pavel_filonov
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14 Jan 2009, 1:09 pm

Even if the psychiatrist doesn't read the notes, I think it'll be worthwhile you writing them, because you can have them with you when you're being asked questions and it'll stop you from drawing a total blank when you know there's something important you want to say.



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14 Jan 2009, 6:40 pm

I did exactly the same thing.



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14 Jan 2009, 6:55 pm

I think writing notes can be helpful to think things through, so in a way it doesn't really matter if the professional doesn't read them. The specialist will likely have their own quirks on how they determine whether to give a diag or not.

When I was first thinking about myself (and had the ah-ha moment), I wrote a bunch of things on this website; which helped me be prepared for my conversations with the therapist. I was given a diag after seeing the guy for about two months, and he did little more than have conversations with me. I don't think he was not really looking for symptoms, per se, but where my mental focus is (on social things or not). I think this is at the core of ASD anyway.



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14 Jan 2009, 7:02 pm

If that works for you then continue that path of writing your history. Do consider editoring and condensing the notes once all your thoughts are down. Psychologist assessments are not an all day event, my experience is usually two hours.



sbcmetroguy
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15 Jan 2009, 4:55 pm

Thanks again for all the replies. I finally feel that I have finished my paper. It is 17 pages, and though I have tried a few times to shorten it, as soon as I delete something, I think of something else that seems extremely relevant and I will add it. So I think I am just going to leave it alone for now and then present it to her on my visit and hope she doesn't think I'm crazy. :) Just over 2 weeks now... I am nervous, but optimistic. I have never wanted a diagnosis of anything in my life as much as I want this one. But I only want it if it's true. And since I have no doubt about that, I believe I will be diagnosed and I will be so relieved. Then I can work on my social skills, because I really would like to start my business up again. This time I would like for it to be a success, but in order for that to happen I have to have better social skills and I have to get over my anxiety.



ike
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15 Jan 2009, 10:38 pm

What kind of business will/did you run?

I'm in much the same situation. I'm past the diagnosis part, but I need to get with a disability attorney and start dealing with some legal issues and voc. rehab. Hopefully I'll be able to get funding for a disabled-owned company. My hope is that I can grow a small software company that specifically hires people with ASDs so they can have a place to work where they don't have to worry about being singled out for stimming and such. It's a problem I've experienced over and over in the workplace, so it's something I want to do something about.


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sbcmetroguy
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16 Jan 2009, 10:38 am

ike wrote:
What kind of business will/did you run?

I'm in much the same situation. I'm past the diagnosis part, but I need to get with a disability attorney and start dealing with some legal issues and voc. rehab. Hopefully I'll be able to get funding for a disabled-owned company. My hope is that I can grow a small software company that specifically hires people with ASDs so they can have a place to work where they don't have to worry about being singled out for stimming and such. It's a problem I've experienced over and over in the workplace, so it's something I want to do something about.


I had a very short-lived photography business. After I made quite a bit of money from photography as a hobby, I decided to give the business idea a go. And then I quickly came to realize something: I didn't have the social skills to get out there and advertise and meet people, so I immediately went in the hole financially and had to end the business.



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16 Jan 2009, 10:52 am

There's no problems with having too much information. I know exactly how you feel. I went for a diagnosis on Monday with a whole refill pad full of writing. I didn't need most of it. I was communicating badly with speech, but I guess that's an aspie trait isn't it. The Psych directed the conversation, I guess he was used to dealing with people who take ten minutes to make a sentence. But before I went in, I was afraid I'd act too normally. I thought that the psych would think I was faking it or something. But I guess I don't really appear that normal to others. There are a lot of non verbal indicators that someone is on the spectrum and you may not notice al of your own symptoms.

This seems to be a common feeling among WP members. At eleven pages you're probably prepared enough. There's no harm in bringing more information, but don't stress out about it. You won't need to tell him every single aspie thing you've ever done. The Psych will direct the conversation if you ask him to.

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16 Jan 2009, 11:08 am

Vimse wrote:
. I originally intended to make a simple list but ended up writing about 20 pages. Think that is typical for someone with Asperger syndrom.


So true. I wrote an english speech I got really into last year, was supposed to be a maximum 10 minutes speaking and using images, and by the time I'd finished writing it, getting so embroiled in detail, it took me 35-40minutes just to read the thing straight as fast as I could. It was massive! When I showed my english teacher and asked if she could help me shorten it she actually turned white and had to lean against the desk for support.

We ended up extracting removing about 2/3rds of it with quite some difficulty (the information was so detailed and worked in together). :lol:


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28 Jan 2009, 7:53 pm

I started my evaluation today (it will take a total of 3-4 sessions.) I brought with me a printout of my Aspie Quiz results and my 14-page (typed, single-spaced) self-assessment notes. The therapist, who did his dissertation on adult AS, seemed happy that I had taken the time to prepare - especially since there is no chance of my parents/family members being able to provide information about my childhood.

This first session covered some basic background questions - he really wanted yes/no answers (with a minimal/moderate/extreme qualification for all the yes answers.) I think it went OK - I referred him to the self-assessment when I couldn't think of how exactly to answer a question (I suck at quantifying my social/emotional history.)

I skipped my daily workout the night before, so I was probably at my most "Aspergian" - plus, answering personal questions is not my strong suit, so my eyes tended to wander. I guess I didn't need to worry about appearing too "normal."

Next session is in 2 weeks.


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28 Jan 2009, 8:21 pm

That's what I did at my vocational rehab evaluation. I made a list of my jobs and how well or poorly I'd done them, and other such interesting information; it stretched for fifteen pages. When I went for my follow-up and asked them whether they'd read it, they said, "You practically did the evaluation for us!"

So yes. I've done that, and it worked.


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28 Jan 2009, 10:44 pm

sunshower wrote:
I wrote an english speech...
So how did it go? Did you actually have to present it in front of people?
I stink at that part, no matter how prepared I am.

I'm finally going for another evaluation in two weeks.
My sister recommended this guy, so he might actually be worth something.
This time I'm sending him a letter ahead of time.
It's 28 pages, and I think I'm done.
I tried to cut it back, but very little of it wants to go away.
I'm not stressing. I'm having fun. I could easily write a book.

The only question: Is too weeks ahead of time too early? Too weird?
Should I send it one week ahead of time?



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28 Jan 2009, 11:35 pm

Vimse wrote:
I originally intended to make a simple list but ended up writing about 20 pages. Think that is typical for someone with Asperger syndrom.


I do similar stuff sometimes too.


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sbcmetroguy
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28 Jan 2009, 11:38 pm

Tahitiii wrote:
sunshower wrote:
I wrote an english speech...
So how did it go? Did you actually have to present it in front of people?
I stink at that part, no matter how prepared I am.

I'm finally going for another evaluation in two weeks.
My sister recommended this guy, so he might actually be worth something.
This time I'm sending him a letter ahead of time.
It's 28 pages, and I think I'm done.
I tried to cut it back, but very little of it wants to go away.
I'm not stressing. I'm having fun. I could easily write a book.

The only question: Is too weeks ahead of time too early? Too weird?
Should I send it one week ahead of time?


28 pages? I feel so much better about the fact that I ended up with 20 pages when I finished. I go next Wednesday and I am trying NOT to add anything else between now and then but it's hard sometimes.



sbcmetroguy
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28 Jan 2009, 11:45 pm

zeichner wrote:
I started my evaluation today (it will take a total of 3-4 sessions.) I brought with me a printout of my Aspie Quiz results and my 14-page (typed, single-spaced) self-assessment notes. The therapist, who did his dissertation on adult AS, seemed happy that I had taken the time to prepare - especially since there is no chance of my parents/family members being able to provide information about my childhood.

This first session covered some basic background questions - he really wanted yes/no answers (with a minimal/moderate/extreme qualification for all the yes answers.) I think it went OK - I referred him to the self-assessment when I couldn't think of how exactly to answer a question (I suck at quantifying my social/emotional history.)

I skipped my daily workout the night before, so I was probably at my most "Aspergian" - plus, answering personal questions is not my strong suit, so my eyes tended to wander. I guess I didn't need to worry about appearing too "normal."

Next session is in 2 weeks.


Thank you so much. I might have to take the Aspie Quiz again, as well as the Empathy Quotient, and print those results. Though they may mean nothing to the psychologist, they might make ME feel better about things. I am estranged from my parents so they won't be of any assistance, and my aunt (my mother's sister) who knows me quite well actually seems kind of opposed to this so I don't believe I can count on her to be objective. I know my wife is wanting me to get help with all the related issues I struggle with because it is affecting our marriage negatively. My meltdowns over seemingly minor things, my seeming lack of emotions, my unintentional laughing when she gets upset with me, my tics... all of these things that seem so "wrong" to her.

Your post was very insightful, thank you once again.