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gwynfryn
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18 Jan 2009, 4:08 pm

Anemone wrote:
Technically speaking, you're not supposed to be diagnosed with AS unless you're significantly impaired in some way. Of course, diagnoses can be wrong, and people can be borderline. They're just going to roll AS into autism, anyways, next version of the DSM, so I think it's academic.

But at the same time I can see a need to be able to discuss personality differences effectively, and AS as a concept may be helping people with that, even if there's no significant impairment. So perhaps we need a better vocabulary for describing people who are different and how they are discriminated against.

Certainly gifted people are discriminated against for being different. As are more unconventional types, highly sensitive people, and introverts. What other personality traits look like AS? Extreme low neuroticism? Schizoid/schizotypal?


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gwynfryn
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18 Jan 2009, 4:11 pm

garyww wrote:
I imagine that there are a huge number of people who have Aspergers or even HFA and have no idea about it.


And who have no need of such labels?



pandd
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18 Jan 2009, 4:23 pm

KingdomOfRats wrote:
there is too much fuss from people all over the disability spectrum over the word disability,it does not mean are less human,overall less able as a person etc,it means the impairments have got significantly affects things a person does on a day to day basis-this is how am understand the official definition of disability-which is written in the DDA/disability discrimination act in a bigger form.

I strongly agree with this. It seems handicap was offensive, so it was popularly changed to disability, now that apparently is offensive, so I suppose soon enough it will be 'subject to exceptional challenges', which will then no doubt become offensive, leading us to use the word/phrase.....'X'....which shortly thereafter will be deemed offensive....and so on.... :roll:



garyww
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18 Jan 2009, 4:41 pm

To stay sane i just used to constantly repeat to myself when I was younger
" Sticks and stones may break my brones but words will never hurt me".


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sinsboldly
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18 Jan 2009, 5:11 pm

pakled wrote:
yup...and I was one of those for about 48 years. It's kind of hard to spot the symptoms once you're grown up (at least as far as developmental disorders). In fact, I'm not sure they're doing much serious research on adult AS.

I think we've only scratched the surface of AS, and in the coming decades, a lot of research will turn out to be incorrect, and a lot of unknown facts will come up. But that's true of most avenues of research anyway...;)


the psychologist I found wasn't even interested in my Asperger's. . said there was no future in Adult AS. . . the 'real progress' was with the children. . .(of course, I don't go back to him anymore).


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garyww
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18 Jan 2009, 7:39 pm

The truly horrible thing about the professions lack of interest in adults is that 'we' can teach the clinicians and shrinks what types of questions to ask both children and adults so that a diagnosis is easier and more accurate. Sometimes they are so far removed from our reality it is scary.


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18 Jan 2009, 8:03 pm

Ah! The System. There is money for disability, so some want to become the gatekeepers, then the means of defining get twisted.

I see several versions.

There are those who need services.

There are those who could use services,

There are those who could use a clue about what is with them.

For those who need services things are getting better, they are no longer considered to be possessed by deamons, and the use of restraints, ice water baths, Thorazine, and electro shock is declining.

For those who could use services, in Europe they culled from the pool of unemployed, and retired. In America they have to fight just to get an education. Neither system helps much.

For those clueless folks, Me, finding a name for it at 59 was interesting, but they got it wrong. Like many here I lived and worked, and while people did not understand me, I did not understand them, so we were even.

I would like to think that the disabled were being taken care of, that education was broad enough to reach all the people, and theose in need of speach therapy, accomidation, were getting it.

If that takes putting up with psychobabbling pill pushing witch doctors, it is the best our culture has produced.

I can only speak from the view of the clueless. I had no idea there was a Clueless Club.

We who live on the border are a bunch of half breeds that both sides claim and neither wants.

The disabled say we are not trying hard enough. The world says we are not trying hard enough, and we ask, "Trying what?"

Rejection is our normal state, Autism purists are no different than the Christian Right, True Believers.

We have survived by going with what works. We do have some things in common, besides being clueless, but life is somewhat random, as are people, so we came to many outcomes.

While we may see ourselves in the DSM, because we work, own homes and businesses, they do not, no way could people who survive have a disability. I do not lik ethat group anyhow.

I am on WP for some information I can use as a non-disabled person. I have met many non-disabled people in business who could use that information. I would go as far as to say the majority of people who fit the DSM description of AS/HFA do not know it. They are just going through life as best they can, and do have some questions, but everyone has questions.

While for 1%, perhaps it is a disability, but 10% fit under Broader Autism Phenotype, and could use some information about why they are so clueless.



melissa17b
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19 Jan 2009, 5:16 am

Inventor,

I like your perspective. Very insightful.



DentArthurDent
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19 Jan 2009, 7:49 am

Yes Aspergers is a disorder.Is it a disability? not in the traditional sense, although I think it is a social disability


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