Dealing with a parent who doesnt understand aspergers

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Sea_of_Saiyan
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16 Mar 2009, 7:05 pm

Your dad doesn't seem like a very loving parent if he feels that there is something wrong with his own child being aspie (or gay for that matter, noting the fact that he keeps questioning you about it).

Maybe his problem is trying to accept that you, the child of his that he has known for the last 26 years, might be different than everyone else. If this is the case, then what he needs is time to accept this fact and to learn how to become a better father to you. I would expect things to be better for you after your diagnosis.



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16 Mar 2009, 9:39 pm

JeffJ wrote:
But I think my dad has some obvious social problems as well. Hes never gotten along with ANYONE that I can think of. He criticizes everything and everyone. He will absolutely go into a rage over the most mundane thing if it is not exactly to his specification or expectation (and nothing rarely ever is)


This is EXACTLY how my mom is. Has had zero friends the whole time I have been alive, no one ever visited our house growing up save for the occasional relative and the one time my dad rescued a couple whose vehicle slide down the side of the mountain in the snow and brought them home till they could get calmed down. My mom criticizes everyone, no one does anything right you know. I am quite sure she is Aspie, but way lower on the spectrum than myself.



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16 Mar 2009, 11:52 pm

JeffJ wrote:
Ticker wrote:
Not only that I noticed where you live. I grew up in the South too. Let's face it people there tend to be on the stupid side. My parents are very ignorant about medical and mental health issues as well as a lot of other things. My advice is do like I did and run like heck from the South and move somewhere out West to get away from family.


Well I live in Southern Louisiana which is not much like the traditional "South" as people know it. It is heavily French-Canadian influenced and very very different from northern Louisiana (which Is like the rest of the south). I guess thats hard to explain really. I like living in southern Louisiana for the people and the food/culture and to visit New Orleans alot, but I can see some aspects of how living in the South could be seen as damaging to one's psyche. But that isnt my particular problem. I have a bit of a conservative bent in terms of many htings, with exception of social disorders and a few other issues. From first-hand experience I am definitely sure such things exist and that I deal with it as well, so theres no denying it. But I think my dad has some obvious social problems as well. Hes never gotten along with ANYONE that I can think of. He criticizes everything and everyone. He will absolutely go into a rage over the most mundane thing if it is not exactly to his specification or expectation (and nothing rarely ever is)


...Sounds like both my parents: my mom acts mildly ret*d and my dad acts like a jerk when he can't get his way.



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17 Mar 2009, 2:17 am

JeffJ wrote:
I am having one hell of a time dealing with my dad. Tonight I admit, I cried a bit I got so frustrated. I hardly ever cry. I guess maybe I hold my emotions in check for a very long itme until I finally see something and just break down. Well tonight was one of those times.

Anyway, my question here is, how do you deal with a parent who not only doesnt believe in autistic disorders, but also thinks you are a total failure because of how slow you devleop? He still thinks of me like a teenager because lets be honest, I dont act or take interest in common adult things. I have a job, and I do ok for myself, but when it ocmes to managing everyday independent life, the possibilities scare me to death. I am always htinking of one million different outcomes and things I have to do to get through every stupid day and it gets mentally exhausting. But the most frustrating thing is, my dad totally DOES NOT UNDERSTAND nor does he even WANT TO. Im fortunate that my aunt recognized my problem and pointed out to me that I have aspergers (will be tested officially in the summer) and my mom is 100% supportive, but it really hurts that my dad does not even want to consider whats wrong with me and work with me through it. Hes a perfectionist on top of that and you can imagine how tough that makes it. Does anyone have suggestions on how to get a really steadfast, traditional, conservative htinking father to understand this crap? Im running out of ideas.


my father acted much like yours. Except for the fact that I was diagnosed and he was still in denial.

I was diagnosed with OCD and AS at the same time and my parents helped me with my OCD but totally ignored my AS.

My dad was so in denial he said I wasn't officially diagnosed because it wasn't on the DSM-IV when my doctor diagnosed me and he called him a quack.

Well I looked up the year it became an official diagnoses and then checked my medical records.

I actually had to put the papers in his face and read him the internet article for him to believe me.

And now I spend my time teaching both my parents about AS.

Sadly I could have gotten treatment for this as a child but I didn't.

My advice is wait till you have your diagnoses to convince him. keep in mind your dad may be denying this because he feels it would mean you'll be disabled all your life. This is not true for everyone. When he is ready, explain to him that AS is a spectrum disorder and some are higher functioning then others.

Good luck to you.
I'll pray for you dad to understand.

Keep us posted. :wink:



Iblis
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17 Mar 2009, 2:22 am

Parents need to accept that they simply have sucky DNA.



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17 Mar 2009, 4:08 am

My father has always been like yours. He has (finally) accepted the AS, but not the Tourettes, but he still seems hellbent on this idea that I will become 'cured' from it and be 'normal' one day. When I was diagnosed with dystonia (a condition which makes my leg twist inwards) and had to use a walking cane/crutches he always yelled at me. Told me I was embarrassing to be with. I use a white cane to help with my awful coordination (and night blindness) and now my Dad's getting all funny about that. I can't flaming win...


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17 Mar 2009, 1:21 pm

Jellybean wrote:
My father has always been like yours. He has (finally) accepted the AS, but not the Tourettes, but he still seems hellbent on this idea that I will become 'cured' from it and be 'normal' one day. When I was diagnosed with dystonia (a condition which makes my leg twist inwards) and had to use a walking cane/crutches he always yelled at me. Told me I was embarrassing to be with. I use a white cane to help with my awful coordination (and night blindness) and now my Dad's getting all funny about that. I can't flaming win...


Jellybean my mother is the same way about my disabilities. I've been asked by my mother to hide the fact that I have been battling Lyme disease for years and that I wear hearing aids. Surprisingly no one else in family seems to have noticed the hearing aids in my ears though they all live far away so I don't see them often. My mom literally walks out of the room or else turns her head because she can not stand to look at my HA's as if they are dirty and disgusting. I'm surprised but I was allowed permission to walk with a cane in front of family last time I visited. :lol: My dad is semi-indifferent as he doesn't seem embarrassed by the cane and even pushed me in a wheelchair around Walmart several times. However if I say anything about the medical issues I have he generally does not respond back and never asks about things. I really think part of it is their generation and not completely just their ASD causing this problem.



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17 Mar 2009, 9:51 pm

all of you really do make dealing with this crap alot easier. thanks for the support and advice.
I neverm imagined Id find people so much like me. I always used to jokingly call myself an alien and now I know why I felt that way.



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18 Mar 2009, 8:05 am

My father is like that too. He said someone told em I had this and I used ti as a excuse to act ret*d. Needless to say we don't have the best relationship. Hes in my life but. I feel he would rather go to the fire hall and hang out then spend time with me.


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20 Mar 2009, 1:10 am

I'm sorry you all are going though this.

I hope each and every one of your lives gets better soon!
I said a short prayer for you all.
Good luck!



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24 Mar 2009, 4:59 pm

Randomkid I understand where you are coming from. I mean I'm 40 and yet afraid to tell my dad I have AS. For one thing I'm darn sure he has it as well as my mom. Dad has weird sensory issues and he is very stubborn. While he's a good man he's never had any male friends other than the next door neighbor as long as I can remember. But AS is a dirty word now that he has remarried and his wife's grandson has a AS diagnosis along with 7 other mental health dx. The boy can't help it but he acts worse than an animal so Dad equates Aspergers to this kid and he hates the kid cuz he is a brat. Plus even going to a psychologist is considered a bad thing by my family best kept as a dirty family secret.



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24 Mar 2009, 5:02 pm

JeffJ wrote:
I am having one hell of a time dealing with my dad. Tonight I admit, I cried a bit I got so frustrated. I hardly ever cry. I guess maybe I hold my emotions in check for a very long itme until I finally see something and just break down. Well tonight was one of those times.

Anyway, my question here is, how do you deal with a parent who not only doesnt believe in autistic disorders, but also thinks you are a total failure because of how slow you devleop? He still thinks of me like a teenager because lets be honest, I dont act or take interest in common adult things. I have a job, and I do ok for myself, but when it ocmes to managing everyday independent life, the possibilities scare me to death. I am always htinking of one million different outcomes and things I have to do to get through every stupid day and it gets mentally exhausting. But the most frustrating thing is, my dad totally DOES NOT UNDERSTAND nor does he even WANT TO. Im fortunate that my aunt recognized my problem and pointed out to me that I have aspergers (will be tested officially in the summer) and my mom is 100% supportive, but it really hurts that my dad does not even want to consider whats wrong with me and work with me through it. Hes a perfectionist on top of that and you can imagine how tough that makes it. Does anyone have suggestions on how to get a really steadfast, traditional, conservative htinking father to understand this crap? Im running out of ideas.


My dad was similar. He is dead now though.



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24 Mar 2009, 5:51 pm

Your dad sounds very like mine, too, JeffJ - mine does, however, know of the autistic spectrum (and once said he thought he might be on it somewhere!), but I'm certain if I were to get, or just mention the possibility of trying to get, a diagnosis of AS, he'd refuse to accept and understand it. He already hates the fact I'm 'not normal' and 'weird', but at least right now he seems to be sure if he constantly criticises, nags and, sometimes, blatantly tells me off for these things then they'll disappear - anything that would, even to an extent, say that I'll never be entirely like others would be terrible for him. And he'd probably secretly blame himself for it, both thinking he's been a bad parent and caused it that way (which he might already think with my other problems), and that, because he probably has it, he's passed it on to me.
Honestly, it took him months to accept - or at least stop making 'so when are you getting a job?' or 'get off your lazy backside and get a job!' comments - my current social anxiety (as well as the general worry/terror of having to do all sorts of new things myself, and other reasons) would make it far too stressful for me to just go out and get a job right away.

Ah, well, I'll speak to my psychologist next Tuesday about things - both about the possibility of a diagnosis and about how to try and get my father to accept/understand it - and see what she has to say. If I think anything useful is mentioned, I'll try to remember to post it. Good luck to everyone else going through this!



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24 Mar 2009, 6:25 pm

Sounds like my dad, the perfectionist consummate a**hole who was never satisfied with anything I did. I know I got my AS from him but of course he'd never admit that there was anything wrong with him. Nowadays I live 3000 miles away from him on opposite sides of the country, and I speak to him at most once per year, if at all... and it's a lot better that way, honestly. I know that you wish your dad were proud and supportive of you, but sometimes nothing you say is going to change his mind, sometimes things just don't work out the way you want. I guess you could always tell him that you wished he were more supportive, but probably you've already tried that and nothing good came out of it. So if anything, I would suggest breaking contact with him. You don't need that extra pressure and disappointment in your life, it'll help you on your path towards being an independent adult (albeit a difficult path but I have absolutely no regrets), and the time away will allow your dad time to realize how much he actually cares about you now that you're no longer around. He takes you for granted. It would be interesting to see what he does when you are no longer around... he could possibly find himself feeling more regretful about how he has treated you all this time.

Heh, interesting about your remark that your dad questioned your sexuality. For years my dad always grated on my nerves, making jokes about my supposed effeminacy. Two years ago, in a moment of e-mail anger, I told him I was bi and after that, all the dumb gay jokes stopped and there's never been any mention of it since then. I am convinced he is in the closet too; maybe he just doesn't know what to do, now that I'm a lot stronger than he must've thought I was.


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24 Mar 2009, 7:23 pm

I have an extreme problem on my end that is not dissimilar. My mum understands, but doesn't act upon it, my Stepdad couldn't care less. Or at least that's how it feels. They don't understand that when I use an angry tone, I probably don't mean it to be so, I generally use it by accident.

Yet my college tutors understand perfectly, point it out to me very nicely if i'm doing something socially wrong, and everything is okay life moves on, and it's beginning to peeve me off a little that my parents cannot do this. I think it is their personality. They keep saying i'm attention seeking and that sort of thing, the attention seeking being to do with the fact I am highly depressed. Fact of the matter is, I'm not going to lie to someone. I am. End of. They are sarcastic a lot about such things and I don't understand it.

In particular tonight I have been upset. An argument occuring when I put my plate away after dinner, which basically resulted in me saying "B******* to this, you don't understand" and walking away to prevent injury adding to insult. As I walked away, I heard up the stairs yelled at me "F*** You too," from my mum. This is particularly hurtful as she is supposed to understand.

I'm unsure as to exactly how to deal with this. Generally I go out and walk alone for a while which helps. Getting my own place would help but that is unfortunately not possible at 17. Swearing blanked as to the effect of trying not to break any rules. Any feedback is appreciated. This is my first post on my first forum, please be aware I may not use it entirely correctly.



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24 Mar 2009, 11:55 pm

Actually just your mom using the F word to you as an underage term is considered either abuse or neglect. Its not proper parenting to use vulgarity in front of kids. If you really want you could report them.