Got Gluten?

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Last edited by Cade on 11 Feb 2006, 7:19 pm, edited 1 time in total.

^^^ thanks Cade, that would explain a lot. Ill be looking for a bulk supplier of calcium tomorrow.

Ironically, it'll probably be the same company who were supplying my regular order of 5kg raw casien.

Neuroman, I don't know how you do it. So what CAN you eat? Are there foods you can eat that you really enjoy?

Also, it looks like you've done a lot of research on this. Is there anything to suggest that an adult on the spectrum should consider dietary changes?

I can eat:
any vegetable or fruits
make my own chinese, thai, japanese food (and can make just about anything found in a restaurant) (just had pad thai for breakfast)
after visiting hawaii, make poke all the time - have several good recipes
best gluten free pasta comes from italy
hard pretzels made gluten free are indistinguishable from wheat variety, and know how to make my own honey mustard and onion pretzels
gluten free waffles in the freezer section of the market
gluten free pancake, pizza dough, brownie (delicious), cake mix all available in the market
gluten free soy sauce (san-j) and salad dressings (Annie's are marked gluten free) also in the market
online lists of gluten free foods are available - i downloaded one to my ipaq.
i am mostly vegetarian with intermittent carnivorous activities so it isn't hard. when i make sauces and gravies i use a combination of sticky things like potato or corn starch and tapioca flours. i don't use corn as much because i sometimes have a reaction to it.
when i am being a carnivore i make a fried chicken that rivals the colonel's.
pizza i make with no crust -a lot faster; just line a plate with sauce, cover with cheese and toppings, and bake.
i can buy gluten free bagels which are close but not as good as the wheat kind.
make my own soups too - favorites are bean soup, egg drop and hot and sour.
still working on a substitute for bread stuffing, one of the few things i miss
never liked beer, so don't miss that
the list of things i can eat is longer than the list of things i can't eat.
i thought at first that i would suffer, but i am not suffering

as regards adults and a gfcf diet, it stands to reason that if sympoms are alleviated in children, then the same would be true for adults. i have not looked much at this research as i tend to focus on the celiac disease angle.

Wow - I bet you host great dinner parties

Do you have a recipe for pad thai? I love that stuff. Have you ever had pad kee mow? It's sometimes called spicy basil noodles. It's my absolute favorite restaurant dish, I've never tried to make it though.

I love to cook also. For the stuffing, how about cornbread stuffing with toasted pecans and raisins?
And have you tried macadamia nuts for flour?

Here's my favorite dinner at the moment:

My version of Baja Fish Tacos:

Cabbage slaw: slice cabbage and marinate in lime juice and vinegar
Mango salsa: Jar of sliced mangoes from market, add sliced red onion, cilantro, some kind of chili or pepper
Fried fish: I use either flour and beer to batter it then fry it, or else Japanese panko crumbs (tempura batter) - it's got gluten but I'm sure you would know how to substitute
Sliced avocado

Warm corn tortillas, line with fried fish, slice of avocado, some cabbage, some mango salsa, and your favorite hot sauce (I make my own from little red chili peppers from the farmer's market and vinegar and garlic). Yum.

Can't find my cookbook
however, the most important part of pad thai is the preparation of the noodles - soak a big handful of rice noodles in cold water until they are soft. if you use hot water it will take less time to soften the noodles but when you cook them they will disintegrate.
slice favorite stir fry vegetables (i don't use peppers - makes it bitter).
put two tablespoons of olive oil and a teaspoon of sesame oil into a wok and heat until it smokes. add noodles and vegetables.
fry noodles and vegetables together until the noodles begin to stick together in a clump.
pour sauce in and stir until noodles separate. serve immediately. garnish with chopped nuts and a dash of lime juice.

i can't remember the recipe for the sauce, but it conists of fish sauce, hot pepper sauce and rice vineagar. off the top of my head it is 1/4 cup vineagar, 2 tablespoons each of fish sauce and pepper sauce. i will try to find the recipe when i am feeling well enough to clean.

i have not tried the dishes you posted. the basil noodles sound good, though. i may try those.

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Last edited by Cade on 11 Feb 2006, 7:22 pm, edited 1 time in total.

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Last edited by Cade on 11 Feb 2006, 7:25 pm, edited 1 time in total.

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Last edited by Cade on 11 Feb 2006, 7:27 pm, edited 1 time in total.

here is information on non GI sympyoms associated with gluten sensitivity:

http://brain.hastypastry.net/forums/arc ... -2228.html

i have no vitamin d in me according to my doctor. she has me taking d, and calcium combined with some other stuff.

Not too fond of sunlight, ar yer matey?

Perhaps the celiac diseas contributes to this? Since it interefers with your body's ability to absorb nutrients and all that fun stuff. Vitamin D deficiancy can cause cellular and tissue breakdown, mainly becuase without it your body can't use calcium effectively. So, if yer gots no Vitamen Dee in ya, yer better does as yer doctor tells ya! Aye, matey!

it burns!
really
i cover up year round.
this is part, but you are right that the gut problems interfere with absorption.
makes me wonder if i was a little more religious about the supplements, would this tremor go away? have had it since the last bad gluten exposure.

I'm absolutely not the best person to respond to this because of my lack of info, BUT yesterday I was following some of the links that you and others have been putting on this thread, and I read a story about someone who had tremors, and her herbalist gave her lots of calcium and her tremors went away. But remember, you can't just take calcium, you have to take vit. D also.

I apologize for the pirate-speak. It was a spontaneous act of silliness.

Well, my GP was confused by my tremors. Zoloft is not suppose to have the kind of Parkinson-like side effect other psychoactive meds do, and she doesn't buy that they went away just by increasing calcium in my diet. However, they stopped after one day of taking the blue vervain, and they've stayed away, so hey.

I suspect that your difficulties with nutrient absoption may decrease the benefits of taking supplements. I have this problem with iron. I am prone to anemia (I was born anemic) and supplements alone don't help. I have to get iron from various food sources, since the body better asborbs iron from iron-rich foods (I, in fact, have a bag of dried wakame seaweed, a great source for iron, calcium and other minerals, that I keep by my bed and I nosh on like a snack food). The same is true for calcium. So in addition to supplements, if you can try increasing calcium-rich foods, espeically vegetables, that would probably be best. Learn to love those leafy greens, and your body will love you back.

I wonder if photosensitivity is related secondary problems to your celiac disease. Poor nutrition can cause that - the skin become unusually vulnerable and easy damaged. I too burn easily, and have had problem with what they suspected was a "sun allergy" - I get dizzy, queasy and headachy from being in the sun for an hour or longer. I have had less of problem with since maintaining my current herbal/supplement regime. I don't know what specifically has helped witht his, but I suspect that my "AS Holy Trinity" - Omega 3 fatty acids, CoQ10 and DHEA - that I take mainly to help my nervous system, brain and heart, but all have significant benefits for the skin, has something to do with it.

At any rate, I wonder how predisposed I am to celiac disease now. I have more than one condition on the at-risk list you posted, and since it's so widely undx'd, the fact there's no cases ofit in my history history doesn't really exclude me. I'm considering going gluten-free for a while (your mention of good-tasting gluten-free pretzels is appealling) and see what happens. I tried before, about 5 years ago, but noticed no signifiacnt changes. But your body does change, and I may notice a difference now.