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timeisdead
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13 May 2009, 4:58 am

AmberEyes wrote:
timeisdead wrote:
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They either deny it, are ignorant, tell you not to label yourself or start talking to you like a very young child, and that includes professionals.

If they start patronizing you, try to talk over their heads and embarrass them in front of their colleagues. If that doesn't work, play dumb and allow them underestimate you while you secretly plot their ruin.


We're talking doctors, nurses, therapists and psychologists here.
We're talking about people who've been through medical school or intensive training.

Maybe that isn't such a good idea. 8O

I'd either get thrown out or talked down to even further.

People can be knowledgeable in high places, but still be ignorant.
Yes that's possible.

They only talk to me in that way when I'm labeled.

If they don't know I'm labeled, they talk to me like a normal human being.

Before I give you advice, are these your colleagues or your caretakers?



AmberEyes
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13 May 2009, 6:03 am

Optician_Of_Urza wrote:
I was only diagnosed a few months ago so I wonder what school would have been like if I'd been diagnosed earlier. At uni, it's not been a big deal for people to learn about my AS, especially as I'm usually with my housemate (also AS) when it comes up.


You must both be very mild.

I couldn't live out.

I couldn't even make the social connections to live out.
I never even wanted to live out.

It's not worth it.
I still have nightmares about not being able to find anyone and living in an awful place even now.


I'm sorry, but I'm having real difficulty believing you here.

I was having more severe difficulties than this and the only thing I was diagnosed with was depression.

Where I was people thought AS only happened to little boys.

When I mentioned about my past AS assessment, people said I was labeling myself.


I'm sorry, but I had really severe social and sensory difficulties and nobody even batted an eyelid.

College was hell.
I'm so glad I left. :(



AmberEyes
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13 May 2009, 6:07 am

timeisdead wrote:
Before I give you advice, are these your colleagues or your caretakers?


They aren't my colleagues.

People who looked through my past records and found my past AS assessment.

I don't know if they were meant to take care of me or not, but I guess that was they were there for. :shrug:

They didn't seem very friendly or understanding though.



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13 May 2009, 8:18 am

I didn't have a DX until late in my school years, before that I had a horrible time at school and became very depressed. I didn't get along with any of my teachers because neither of us understood each other. I was seen as a trouble maker that didn't care about learning. I actually love to learn which may surprise many of my old teachers. Since I got my diagnosis I told the SENCo and all my teachers new. Suddenly school life was brilliant and I enjoyed it. I'm at college now and all my teachers know (in fact I think most of the teaching staff know) and lots of the students in my classes know. This for me is great because now people understand why I act weird.


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13 May 2009, 8:42 am

I am still in the middle of getting a diagnosis, but I had to explain what is going on to some of the staff at the University.
Turns out they had already guessed!
The guy that is working with me from DSU said that it is really obvious if you know what you are looking at, so they had all already started treating me in a suitable way!
Some of the students had worked it out too...
I'm always the last to know anything!
Trust me to find out half-way through my final year!
Having the label really helps in the academic environment, but I have a feeling that it is going to trash my career.


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Sora
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13 May 2009, 10:35 am

Throughout my schooling, teachers and students didn't know. neither did I or my parents though.

I had a rough time because of my AS.

Since nothing was official and normal people could not make sense of why I was behaving 'abnormally', I was at the end of a lot of bullying from students of the schools I went to and from several teachers of various schools.

My autism during the first few years showed mostly in that I didn't look people in the eyes, didn't talk to students, sometimes didn't answer teachers and cried silently whenever things turned really unexpected. I didn't get in trouble in elementary school.

The teacher was at first very reluctant to believe my homework really was done by me because she thought I was probably immature for my autism. (My homework was good, always, as I had no trouble doing it.)

My ASD behaviours only escalated suddenly and abruptly in a matter of weeks when I changed to secondary school and was bullied for the above. When students started to attack me verbally and physically and then realised it horrified me out because of the sensory issues and made me freak out I fought back or ran.

That I was socially so aloof and reacted enthusiastic and friendly really got them

Nobody would help me because they said it was all my fault. At that time I didn't understand that. I'm not sure if the average 10 and 11yo understands they're bullied for a disorder they have in a way that implores their impairment? Anyway, I just didn't understand.

Teachers and students (who heard so from teachers) later thought that I might be learning disabled/borderline mentally ret*d for my autistic behaviours that they just didn't understand.

I had to leave the school. It got better at the next and I was only any more attacked verbally all day for the next 4 years because students and teachers still thought I was emotionally disturbed for and 'not particularly intelligent', which was probably meant insultingly.

The following three schools after that were a little better still, but I still got all the bullying and at one time I had to leave because of the bullying even. The guy who started it and was absolutely obsessed for it for months was one with slight AS. They did the sort of things that can freak out only those with special neurological. Making noise when you're sensitive to it, touching, pushing you, when you're sensitive to touch and all that.

In one word, school was hell because I never knew and neither did others despite that it was painfully obvious I was autistic from kindergarten-age on.

If you talk of unfortunate circumstances and things going all wrong, then you're talking about me.

On the other hand - if people had known about my autism, I would have been pressured into a school for learning-disabled children or if I were lucky, into a school for 'difficult' children (the violent, criminal type) as that's the two options that would have been available. And that wouldn't have worked out at all.

In a way I could say I was lucky walking through hell.

Meanwhile, I watched other children with official disability status succeed in the place I failed because I was 'nobody and nothing' to everybody.


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14 May 2009, 3:00 am

Thank you all so much for your replies... I wish I could reply individually to each and every one of you, but time is an issue for me, but again I really appreciate you all for replying. :)

I do want to say though, that I couldnt possibly imagine how hard things must be for you all at times. I find it very sad that you've had bad experiences in school. ... Huge hugs to you all.

My aim for this thread is to understand what you guys go through during the school years so that I can be prepared and avoid certain things for when my (ASD) Son starts school.

Do you think that ASD is more accepted amongst NT students in schools these days?

Is it a common thing for kids to get bullied specifically because they are ASD?

Or are they more accepting of your behaviours if they know that you are ASD?

Thanks again