Is self-diagnosis okay/valid/a good thing?

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Persimmonpudding
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08 Dec 2014, 4:14 pm

Adamantium wrote:

Persimmonpudding wrote:

I take a diagnosis with a grain of salt unless it's done by a high-polish clinic equipped with the kinds of high-precision empirical tests that are suitable for making a solid diagnosis.

Can you name these tests, what they measure and how this is used in making the diagnosis?

All the diagnosticians I have talked to directly have said that most of their diagnoses are made primarily on the basis of their direct observation of the person being assessed.

I am very interested in empirical tests.

Well, ADOS is currently the gold-standard, according to this:

http://www.scielo.br/scielo.php?pid=S1516-44462013000500008&script=sci_arttext

Its correct use requires training.

Last edited by Persimmonpudding on 08 Dec 2014, 4:15 pm, edited 1 time in total.

NiceCupOfTea
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08 Dec 2014, 4:15 pm

Persimmonpudding wrote:

NiceCupOfTea wrote:

All three links are speculative.

I said that he had ASD-related behaviors, which I substantiated.

Not really. He was apparently a child with few friends who enjoyed reading poetry. Those aren't necessarily ASD-related behaviours, m8 - the guy might just have been a brooding child Romantic.

Have you read this article?

http://www.ncbi.nlm.nih.gov/pubmed/17917805

I'm not paying £30 to access the full text version, but if anyone has read it, what was the conclusion?

B19
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08 Dec 2014, 4:16 pm

You make a compelling point, HGlitch. I'm sad to hear your experience and understand your regret.

starkid
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08 Dec 2014, 4:16 pm

hybridglitch wrote:

There's a lot of severe health conditions in my family; will the doctors still provide the best possible care?

What do you mean? You are worried the doctors won't treat your medical conditions as well as they can because you've been diagnosed with ASD?

Persimmonpudding
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08 Dec 2014, 4:18 pm

NiceCupOfTea wrote:

the guy might just have been a brooding child Romantic.

See? You're trying to render a diagnosis yourself, based on even less information.

Persimmonpudding
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08 Dec 2014, 4:20 pm

btbnnyr wrote:

Problems with professional diagnosis and diagnostic procedures currently in use don't legitimize self-diagnosis.

It fully proves that a well-thought-out self-diagnosis is probably more reliable than a "diagnosis" by an agency that doesn't even try to apply the gold-standards used in screening for ASD.

On the other hand, a diagnosis confirmed by a correct application of ADOS as well as other diagnostic instruments has more face credibility for me than any self-assessment. I really strongly recommend seeking diagnosis from an agency that is equipped to administer these kinds of tests.

Last edited by Persimmonpudding on 08 Dec 2014, 4:21 pm, edited 1 time in total.

btbnnyr
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08 Dec 2014, 4:20 pm

Brooding child romantic is not a diagnosis, as autistic traits are not diagnosis.
Neither is particularly relevant to Hans Asperger identifying and characterizing autism.

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btbnnyr
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08 Dec 2014, 4:20 pm

Persimmonpudding wrote:

btbnnyr wrote:

Problems with professional diagnosis and diagnostic procedures currently in use don't legitimize self-diagnosis.

It fully proves that a well-thought-out self-diagnosis is probably more reliable than a "diagnosis" by an agency that doesn't even try to apply the gold-standards used in screening for ASD.

No, it does not prove that self-diagnosis is more reliable.

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dianthus
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08 Dec 2014, 4:22 pm

hybridglitch wrote:

It didn't occur to me that if I ever, for some reason, want children, I'll likely not be allowed to adopt due to this diagnosis on my record.

That's something I hadn't even thought about...although I know I don't want children of my own, if I ever married someone who already had children I would probably want to be able to adopt them.

NiceCupOfTea
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08 Dec 2014, 4:24 pm

Persimmonpudding wrote:

btbnnyr wrote:

Problems with professional diagnosis and diagnostic procedures currently in use don't legitimize self-diagnosis.

It fully proves that a well-thought-out self-diagnosis is probably more reliable than a "diagnosis" by an agency that doesn't even try to apply the gold-standards used in screening for ASD.

Lol @the concept of inherently biased individuals using "gold standard" clinical tests on themselves. There's no flaw at all in that plan; nope, nothing could possibly go awry there.

Sweetleaf
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08 Dec 2014, 4:26 pm

btbnnyr wrote:

TTRSage wrote:

btbnnyr wrote:

You are authority on you, but autism specialists are authorities on autism.

Not necessarily... they only know about it by second hand information at best.

Autism is defined from the outside by behavior, not by introspection from first-person perspective.
In future, as the definitions improve, it will likely be defined by clinician-observed behavior, objectively measured behavior, and possibly patterns of brain activity.
But it is unlikely to become primarily defined by introspection.

That is a lie autism is also defined by introspection from the first person perspective...

When you where diagnosed did they skip the part where they ask you questions about your symptoms and how they effect you or something?

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starkid
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08 Dec 2014, 4:27 pm

Persimmonpudding wrote:

NiceCupOfTea wrote:

the guy might just have been a brooding child Romantic.

See? You're trying to render a diagnosis yourself, based on even less information.

"brooding child Romantic" is a diagnosis?

Persimmonpudding
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08 Dec 2014, 4:27 pm

btbnnyr wrote:

Persimmonpudding wrote:

btbnnyr wrote:

Problems with professional diagnosis and diagnostic procedures currently in use don't legitimize self-diagnosis.

It fully proves that a well-thought-out self-diagnosis is probably more reliable than a "diagnosis" by an agency that doesn't even try to apply the gold-standards used in screening for ASD.

No, it does not prove that self-diagnosis is more reliable.

Well, your mentality is very dangerous and could potentially be lethal. You need to understand that there are disreputable psychiatric practices out there that go to strong antipsychotic medications without detour or put children on strong stimulant medication without performing empirical tests to make sure they don't have a condition for which strong stimulant medication is contraindicated. Your kind of thinking could actually get someone killed.

I insist that interim self-assessment, combined with seeking out a reputable clinic that is equipped to use appropriate diagnostic instruments, is the safest route.

btbnnyr
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08 Dec 2014, 4:29 pm

Sweetleaf wrote:

btbnnyr wrote:

TTRSage wrote:

btbnnyr wrote:

You are authority on you, but autism specialists are authorities on autism.

Not necessarily... they only know about it by second hand information at best.

Diagnostic criteria for autism are not primarily defined by introspection, but that doesn't mean that self-report can't be part of the professional diagnosis process. Self-report generally is part of the process for HFA adults. What I said was not a lie.

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Persimmonpudding
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08 Dec 2014, 4:31 pm

starkid wrote:

Persimmonpudding wrote:

NiceCupOfTea wrote:

the guy might just have been a brooding child Romantic.

See? You're trying to render a diagnosis yourself, based on even less information.

"brooding child Romantic" is a diagnosis?

No, he's trying to declare affirmatively that he is CERTAIN that Hans Asperger was neurotypical. The thing is, he thinks that he's justified in stating a negative diagnosis just because some quack with a license and a big ego hasn't written a diagnosis to the contrary.

Last edited by Persimmonpudding on 08 Dec 2014, 4:31 pm, edited 1 time in total.

btbnnyr
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08 Dec 2014, 4:31 pm

Persimmonpudding wrote:

btbnnyr wrote:

Persimmonpudding wrote:

btbnnyr wrote:

Problems with professional diagnosis and diagnostic procedures currently in use don't legitimize self-diagnosis.

It fully proves that a well-thought-out self-diagnosis is probably more reliable than a "diagnosis" by an agency that doesn't even try to apply the gold-standards used in screening for ASD.

No, it does not prove that self-diagnosis is more reliable.

I never said that interim self-assessment such as recognizing one's autistic traits with plans to seek out a professional clinic is a problem.
I said that people saying that they have autism without official diagnosis is not good in my opinion.
I must continue to state this opinion in these words just to keep the record straight of what I said.

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