"You can't be autistic, you can speak/write/have a job"

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germanium
Snowy Owl
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02 Feb 2016, 8:56 pm

I for one think that most genetic testing about autism should be stopped unless it's goal is to help us deal better with our sensitivity issues by finding medicines that are shown to work for autistics with that particular gene. Too much of gene research goes toward eugenics, in other wards killing us before we are born. My feeling is that once the sensitivity issues are dealt with the other issues will be much easier for the autistic person to deal with. It will still be difficult & problems with poor short term memory, dyspraxia, poor coordination & executive function won't necessarily go away but at least they can be more comfortable & happy. I have struggled with all of these issues even though my over sensitivities are for the most part mild but yes I still have some both in the over & under sensitivity categories. My sense of smell is quite poor but by the time I do smell something it is very close to being overwhelming for example.



germanium
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02 Feb 2016, 9:16 pm

kraftiekortie wrote:


But, because of perceptual difficulties, I cannot be a trucker. I would probably destroy the truck in the city; I would have difficulties with the tight turns. I'd do okay in rural and suburban areas, though.



I'm not sure what you perceptual difficulties are. Mine were to do with a lack of 3D vision due to strabismus & amblyopia. I for the most part corrected these when I was about 25 with exercises I developed myself. I still have moments of them drifting when tired but I'm very good at compensating due to not having 3D vision for all of my childhood. I had to correct these before I could drive truck.



kraftiekortie
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02 Feb 2016, 9:26 pm

I need a back-viewing camera to park; otherwise, it takes a really long time to park. I don't want to accidentally hit another car.

I have trouble telling precise distances and angles in general. If I had to drive a truck, I would have difficulty with tight turns.

I might overcorrect and jackknife the truck, too.

They're subtle, my perceptual problems--but they could cause lots of problems.



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02 Feb 2016, 11:16 pm

btbnnyr wrote:
I think people may judge who is autistic based on how similar the others are to themselves

I can relate to this. After I was diagnosed, I spent the next year (actually more) doubting my diagnosis. Why? Because I didn't think I was that similar to others here on WP. Well, that wasn't the only reason (for my doubts). It actually wasn't even the primary reason. Still, it seemed to be another "data point" (I put that in quotes, because I really have no clue how similar I am to others here).

At this point in time, the only thing I do know is that I find these threads interesting and entertaining. But I am not altogether certain why.



Rocket123
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02 Feb 2016, 11:18 pm

kraftiekortie wrote:
I need a back-viewing camera to park; otherwise, it takes a really long time to park. I don't want to accidentally hit another car.

I have trouble telling precise distances and angles in general. If I had to drive a truck, I would have difficulty with tight turns.

I have this problem as well (telling precise distances). When I first started driving, I put matching dents on the left side and right side of my parent's car.



germanium
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03 Feb 2016, 1:23 am

My 3D vision though present now is still not that strong. I compensate by getting out & looking a lot more than the typical truck driver & that has saved me from accidents.



kraftiekortie
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03 Feb 2016, 1:43 am

That's pretty good, sir.

I'm still afraid, though.

I like truck stop food.

Ever watch Ice Road Truckers?



Reboot895
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03 Feb 2016, 3:04 am

As I explore ASD and waiting to see someone to find out what it is Im affected by, I couldn't help but read the last few posts about driving and 3D vision etc.

It reminds me that I have a 4th Nerve Palsy - possibly of recent onset according to the eye doctor.

He did all the tests and found out that my eyes don't seem to work together. In the normal day to day things, this isn't a problem, but dissasociatively, it's a bit of a problem. I have no stereopsis either, I can't tell find distance. But apparently I compensate all the time.

The other interesting thing is that I've had an ERG and a VEP which came back normal, but the photosensitivity test he ran which tests for sensitivity to light for a variety of frequencies, suggests that I am hypersensitive and possibly affected by migraine.

Of course, now Im thinking... I wonder if any of this might possibly tie in?



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03 Feb 2016, 3:35 am

:cry:

GodzillaWoman wrote:
EzraS wrote:
Want to address a couple of things. People with autism do not lack self awareness in a self analysis way. But do lack it as how they are being perceived by others. Especially in the moment. Later on they might realize they behaved in a certain way.

That hfa was diagnosed as a bunch of stuff other than autism before the 90's is no surprise. But at least there was a clinical history of being diagnosed with something significant along those lines.

Then there are people who had difficulties growing up, but not to the point where it raised any red flags requiring any clinical intervention. I just have trouble seeing someone with such a background as genuinely autistic. Where basically the whole thing began well into adulthood when they read about aspergers on the internet and took a couple of online tests.

There are such people as hypochondriacs and posers. The world is full of them. And there are a bunch of them who claim to be autistic. The question is which does one more closely resemble? Do they more resemble someone with autism who has a documented clinical history from childhood of significant behavior and learning problems? Or do they only have how they feel and how they scored on an online aspie quiz?

You can only go so far with glossing over established symptoms of autism as "stereotypes".

Some people's stories I read I see solid historical clinical background material. With others all I read is anecdotal fluff.

I've never been clear on whether you think I fall into the hypochondriac or poser category, or if the doctor who diagnosed me was mistaken.

As I recall, you and another poster were skeptical of my story because I was late diagnosed, employed, and married, even though the DSM-V does not say any of these things prevent a diagnosis. But your story didn't match my story, so you were skeptical. We may have differing levels of impairment that makes employment much more difficult for you, or maybe I've learned to do things because I'm older, or maybe I'm just lucky and met some people that gave me a chance. When I was in my twenties, the only work I could get was minimum wage jobs washing dishes and scrubbing toilets.

It would be impossible for me to have been diagnosed with Asperger's in childhood (now called "autism" in the US). The diagnosis simply was not known in the English speaking world when I was a child. If one didn't have speech delays or other severe developmental delays, an autistic diagnosis was not going to happen. You're judging older autistics/Aspergerians by an unfair, impossible standard. By the way, I was referred to a psychologist for evaluation, but he chalked my immaturity and behavioral problems up to my above average IQ. He was a professor colleague of my Mom's, though, so I don't know if he really had the clinical background to make any kind of diagnosis. My parents let the matter drop at that point, and decided I was just misbehaving and dreamy. Keep in mind our parents' generation saw things differently from yours--kids that behaved oddly were being difficult, naughty, or lazy, or were just plain stupid (or "that boy ain't right," as they say in the South). Our parents rarely went to therapists and didn't know much about psychology. Many couldn't afford it or it wasn't covered by insurance. When I got older, my official diagnosis was "PTSD" from the abuse I got as a child, and most clinicians didn't look further.

I think the more important question here is, why do you or anyone on the board care so much whether us lately-diagnosed HFAs are genuine? Why is it such a big deal? Will our using the label "autistic" cause problems for you? We're not out there taking your services or stealing your government support money (well, I'm not). I know many people need it a lot more than I do, and I value my independence. Many of us have not told anyone outside a select few. I'm just trying to find something to make the emotional pain go away.

Why do some people feel the need to "police" the WP boards and accuse or imply that other people are not legitimate? I think it's a bad idea to make judgements on people when you don't know their stories.

I'm sure you want people to give you the chance to prove yourself as worthy. Please give us the same courtesy.



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03 Feb 2016, 4:19 am

Honestly I quit caring when people question if someone is autistic or not. People will always play internet doctors and act like they have their degrees when they undiagnose someone over X, Y, and Z. It seems like every autistic person will get that accusation and be told they are faking it or misdiagnosed when they put themselves out there rather it's a vblog or a blog or being an advocate or writing a book about themselves or appearing on TV in a show. I have even seen someone online claim Temple Grandin didn't have autism or John Robison or Liane Holliday Willey. Then on here someone posted a thread questioning Jack Robison's diagnoses just because he smiled back at people when he was a baby and toddler and the fact he had friends. The whole undiagnosing thing has gotten so ludicrous I just stopped caring and giving a damn. I think everyone else should stop giving a damn too and you will be a lot happier and not feel threatened when someone questions your DX. We even had a member here who seemed to diagnose anyone as a psychopath and toss out other labels on members and she also would undiagnose them with autism. That member was very toxic so she had been banned from here several times and she was the same person who said Temple was not autistic.

I don't need to waste my time to defend myself either and I won't go posting all my medical records online to prove myself. Why even put all my energy to that to someone online who doesn't even know me? Also do I need to waste my time telling my life story to justify my DX? I could be misdiagnosed, I could just be some f****d up child due to my medical history from when I was a toddler and it f****d up my whole brain for life or I could have something that hasn't yet been discovered and it's similar to AS. But right now my DX is Asperger's along with anxiety disorder. But anyway I don't think it even matters what I am diagnosed with and someone might still call me a liar. I just ignore it and remember that every aspie gets that accusation when they open up about their condition. I wasn't the first and I won't be the last.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.

Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.


Marybird
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03 Feb 2016, 5:08 am

Quote:
="EzraS"Want to address a couple of things. People with autism do not lack self awareness in a self analysis way. But do lack it as how they are being perceived by others. Especially in the moment. Later on they might realize they behaved in a certain way.

That hfa was diagnosed as a bunch of stuff other than autism before the 90's is no surprise. But at least there was a clinical history of being diagnosed with something significant along those lines.

Then there are people who had difficulties growing up, but not to the point where it raised any red flags requiring any clinical intervention. I just have trouble seeing someone with such a background as genuinely autistic. Where basically the whole thing began well into adulthood when they read about aspergers on the internet and took a couple of online tests.

There are such people as hypochondriacs and posers. The world is full of them. And there are a bunch of them who claim to be autistic. The question is which does one more closely resemble? Do they more resemble someone with autism who has a documented clinical history from childhood of significant behavior and learning problems? Or do they only have how they feel and how they scored on an online aspie quiz?

You can only go so far with glossing over established symptoms of autism as "stereotypes".

Some people's stories I read I see solid historical clinical background material. With others all I read is anecdotal fluff.

I should have documented clinical history from childhood Instead of anecdotal fluff.
The principle and guidance counselor in high school told me they were having a psychiatrist come to the school to talk to me because I didn't make friends or talk to the other kids and I had bad grades. I agreed to it.
When the guy came he sat down with me and took some cards with inkblots out of his brief case.
He asked me what I saw in the inkblots and I kept telling him I saw inkblots.
He got up and walked out. I wanted him to talk to me. They told me he was going to talk to me.
But he walked out and that was the end of it.
And my mother wouldn't take me to a psychiatrist because she didn't want them to think she was a bad mother. I heard her tell my father that.
I should have gotten help but I didn't and I had bad things happen to me.
but this was a long time ago.

I also don't identify with people who don't seem similar to me.
I don't understand when people say they have to act or pretend to be normal because it's never fully explained. I see autistic people who appear autistic and they seem nice the way they are and I can't imagine them acting normal.






.



EzraS
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03 Feb 2016, 5:37 am

As usual I can't post quoted replies, because that's asking for too much working technology.

Anyways my comments are not directed at GodzillaWoman or anyone else in particular. But to a certain demographic. I am not attempting to police this thread. I am simply stating my opinions based on all of the posts I have read here since 2013 and my lifetime of being surrounded by people with autism in real life.

Why am I bothered by the idea of the seriousness of autism being water downed into being nothing more than socially awkward and scatter-brained? Well that should be obvious. And I shouldn't be in the minority by being bothered by it either.



EzraS
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03 Feb 2016, 5:54 am

Now the improved captcha won't even let me edit.

A couple of people who act like I am taking about them, go on to say they have a solid factual instance in their childhood development history where they were referred to a psychologist etc. This means you are not the sort of person I am talking about.



germanium
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03 Feb 2016, 8:16 am

EzraS wrote:
Now the improved captcha won't even let me edit.

A couple of people who act like I am taking about them, go on to say they have a solid factual instance in their childhood development history where they were referred to a psychologist etc. This means you are not the sort of person I am talking about.


The reason people think you are talking about them is because you post you posts questioning if diagnosis or whether self diagnosis is truly a valid diagnosis in terms of what is really happening with them right after thier post or within a couple of posts of thiers. I got that feeling myself when I seen your post right near my post.

Yes I am self diagnosed but my psychologist agrees with me that I'm autistic which under the DSM4 would be PDD-NOS even though I self diagnosed it is still valid. It would not be to my advantage to seek an official diagnosis as it would cost lots of money with no real return. I have done my research & I have a history that strongly suggests my autism diagnosis is valid.

I even had a former employer that pointed out he thought that I had aspergers. The problem I had with that is at the time he said that I didn't want to believe him at that time. That was 8 to 9 years ago. Aspergers didn't seem to fit me either as I remembered my real mother telling me of speach & motor delays after a period of what appeared to be normal development but back tracked by age of 1.5 years old. This is extremely common with autism. Aspergers diagnosis implies no such delays verbally. I was put into a foster home at age 9.



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03 Feb 2016, 8:21 am

There is, definitely, something known as "regressive autism," where language skills gained, say, at 1.5 years of age are lost, say, by age 2.5. It's at least fairly common in autism--indicated by case studies going back to the 1940's.

If the loss of language skills (and other skills) remain, it would have been known as "childhood disintegrative disorder" under the DSM IV.

Some people recover their previous language gains; others recover them somewhat; still others remain in a nonverbal state.

I am one who had no ability to actually speak any language until age 5 1/2. Even now, I can only speak English proficiently.



Last edited by kraftiekortie on 03 Feb 2016, 8:44 am, edited 1 time in total.

naturalplastic
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03 Feb 2016, 8:35 am

kraftiekortie wrote:
There is, definitely, something known as "regressive autism," where language skills gained, say, at 1.5 years of age are lost, say, by age 2.5. It's at least fairly common in autism--going back to the 1940's.

If the loss of language skills remain, it would have been known as "childhood disintegrative disorder" under the DSM IV.

Some people recover their previous language gains; others recover them somewhat; still others remain in a nonverbal state.

I am one who had no ability to actually speak any language until age 5 1/2. Even now, I can only speak English proficiently.


So you're not actually an aspie. You're an HFA. The only real difference between the two is the later has speech delays (which you apparently had).

Being monolingual just means you're an American. Europeans can usually speak more than one language.