For those that believe ASD is Only hard wired/genetic

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Mine isn't worsening per se.

I could pretend to be a Nasty Typical.
If some things are increasing it is because I'm learning how truely nasty and malevolent people really are.
And so I refrain from talking to them, or interracting with people at all. It's better for both, they don't understand me, and I don't understand them.

Start of a meltdown here Sparky?

1.) Because you don't believe me - not my diagnosis, not the benefits I experience from the medicine I use etc.

2.) Because it's gross science & an inconvenient truth. You're a 17yo male. Rectums/colons/intestines are "icky." Doesn't change that this is where the cause & effect science has led to. Like I said, if I could squeeze a pressure point on the back of my hand and achieve the same results I'd do that instead, but that isn't reality.

I persist because everything I am conveying to you all here is the 100% God's honest truth.

I don't know if what I do could benefit you or not, and neither do you. But what I do know is that I am NOT the only human alive who's ASD symptoms are directly caused by intestinal dysbiosis. A very high % of people on the spectrum report digestive issues, and IMO it's underreported. Had anyone asked me prior to ~5 years ago if I had any digestive issues I would have responded with a simple "No," because I didn't know that what was normal for me my entire life was in fact abnormal for a human being. Even go re-read my thread from 5 years ago - 14 pages of discussion and many people who spoke up about their digestive health.

As I've pointed out, I didn't write the articles about Autism pointing at the intestines as the source, nor probiotics as a therapy method. But they exist because other people have also figured this out. I also had nothing to do with the production of this documentary episode about Autism and how this woman's son's only reprieve from his ASD symptoms is via mass amounts of probiotics. Watch it if you haven't: http://www.cbc.ca/natureofthings/episodes/autism-enigma There is a reason why anyone who experiences relief of these symptoms with medicine/probiotics is willing to "shout it from the rooftops." It's life changing stuff and can benefit Millions of people.

There's a very high % of people on the spectrum who report digestive health issues. I'm telling you, from my experience of life over the last 5 years, it is not simple correlation. It is causation & 100% treatable via diet and medicine.

I've read that 70% of people on the Autism Spectrum are sensitive to salicylate food acids. Researching this, I've learned that this is caused by intestinal permeability, and that in turn is caused by intestinal infections/growths etc.

Regardless of whether you believe me or not, or if your symptoms are or are not caused in part by digestive health issues, your negativity is very damaging & toxic to the discussion of the gut-brain connection to ASD on these forums. You are free to decide that you don't believe me and are uninterested in ever trying anything I have done & shared freely here, but your negativity towards me isn't helping anyone else. I am fine; I've figured out how to treat my symptoms and am living a second life for it, but your words are discouraging and damaging to others. Re-read these posts from another forum member very carefully, paying close attention to the bolded part in the second post:







Do you even comprehend that your fierce opposition and negativity to the truth that I share here is damaging to others' ability to discuss, learn, and make progress with treatments that work for themselves? You are a free human being just like any of the rest of us and are free to make your own decisions in what you decide to learn, accept, utilize as a treatment or not - just like RainbowUnion is free to decide for himself that unconditional self acceptance is the path for him & he is anti-treatment entirely, but to discourage others from learning, doing, growing, and changing with your specific hatred towards me and what I share freely is all kinds of wrong, EzraS. If it's not for you and you're not interested in learning from it and you've determined for yourself that it's of no benefit to you & the root cause of your ASD symptoms, then by all means, bow out of the conversation. If you have something of value to contribute or debate about, please, stay in the conversation.

It's a really damned good thing that I have a VERY thick skin and can tolerate all of the hate and negativity thrown at me from yourself and others here. I accept that the message I share is not an easy one for people to accept, and thus my recent comparison to Ignaz Semmelweis who knew in 1850 that lack of hand washing by doctors was killing patients and maintained that truth until his death in 1865. It wasn't accepted by the medical community until after his death, but he didn't waver because he knew.

As for your comments about me making money/having social success: I've never made good money. I've earned below average wages for all of my efforts. The only reason I have any money at all is because I didn't spend it and invested it wisely. My ability to work & my social success the last 5 years has been a direct result of treating my AS symptoms in the manner in which I've shared. I have never ever said "I made some money and friends, Nah na na na na naa!" Instead, my message has been "I wasn't able to work or be around people at all 6 years ago, but now I can, and you can too. This is how." There's a big difference between that and bragging that I've achieved below average wages.

Despite the negativity here, I persist because everything I share here is 100% true and it's important. It can help a LOT of people. If I didn't believe that, I wouldn't subject myself to your ridicule nor take it in stride like I do. But I know it to be fact & I can tolerate an immense amount of hate for the greater good of this knowledge being shared with others that it can benefit.

The one thing on my mind lately that you have contributed positively to is your pointing out that doing the same thing over and over again and expecting different results is in fact insanity. It's inspired me to propose a different approach entirely, and to ask the forum community here to contribute to it and perhaps come to some sort of consensus on a process, some math, statistics, timeline etc. I'll share it later & legitimately look forward to your contribution to the topic.

Last edited by goldfish21 on 09 May 2018, 5:46 pm, edited 2 times in total.

No, sir. I don't have autistic meltdowns anymore. I haven't for years. The only time I feel any sort of "ASD meltdown stress," is after I have to take a long course of antibiotics, and as I've shared, Doxycycline seems to be about the worst culprit - so whatever it kills that I put in me that benefits me results in increased ASD symptoms. I'm unsure about various other antibiotics because I was deemed to be allergic to Penicillin when I took it for tonsillitis when I was 12 years old and had an extremely itchy rash as a result. Doctors have suggested that I get an allergy test for it because if it's determined that I can take Penicillin, then there are many other antibiotics available to me should I need them to clear up a bacterial infection. I've requested the test several times, but my GP refuses to send me to an allergist for it because every patient he's sent the allergist has refused to test because if someone IS in fact allergic to Penicillin it can be lethal. Doctors' theory is that many were deemed allergic to it when in fact they reacted to binders and fillers in the pills decades ago. The only way to determine it is to pop a pill and wait and see what happens, so basically just take a strong dose under medical supervision so they can save your life if you go into anaphylactic shock. I'm willing to do this, but my GP isn't willing to refer me to an allergist as the allergists refuse to do the test... so, nearly every time I'm prescribed antibiotics for something, it's Doxycycline, and so it's possible that I notice worse effects from it than others simply because I've been prescribed it many more times. Regardless, I'm not about to have a meltdown - I don't have them anymore because I've figured out how to treat & control the severity of my symptoms in order to be a better balanced individual.

Leahbear actually agrees with you about the gut connection to autism.

I never said she didn't & know why she does. Please read my entire post if you didn't. It's important to the forward progress of discussing this.

I read the whole post. Where did you get the idea that I didn't. If you would adopt a more amiable persona, I believe people would respond to you better.

I don't like it when people talk down to me, or make claims like "you didn't read the post." How would you like it if somebody talked that way to you? I try not to talk down to people.

I get enough of this stuff at work. I have to fight tooth and nail so that people don't talk down to me because they think I'm "weird." I'm just as much a valuable person as them---even though I have a "disorder."

She agrees with the gut connection---but she also believes there's other elements to autism as well. All she stated is that she was reluctant to speak of the gut connection because of WP's reaction to your espousal of probiotics.

She's experienced the gut connection herself. So have I, to some extent.

Doing a probiotic diet is not a quick fix for everybody. And it is not the only fix. It is not a panacea.

Many times, autism is a complex disorder---neurological as well as physiological in nature.

I got that idea because you seemed to be pointing out to me that leahbear agreed with me as if I had not just acknowledged it. My mistake, kraftie.

I have never said it is a panacea nor that I know it will work for everybody. But no one will know if it does work for them unless they try it.

I've stated several times over that we know ASD is also different hard wiring. We know this from an Israeli study a few years ago that scanned many ASD brains with an fMRI machine & determined that we each have unique wiring that's different from the NT "map." They went on to hypothesize that it's the hyper and hypo connectivity of various regions that may be responsible for different signs/symptoms/traits in ASD people & that the difference between hyper & hypo connectivity of the same brain regions may explain different ASD people having traits that are polar opposite one another.

Why not create a blog for your ideas Goldfish? (You may have done so already). In a blog, repetition on a topic is thematically necessary, and it attracts people who share your interest or are curious about it.

You are not winning converts here, in any measure, so it seems an unproductive use of your energy and time on top of what you have already recorded here on your special interest over the years, and that can easily be found on Google by interested auties in the future.

For the same reason anyone creates a topic on this forum. It's for discussion. I view your suggestion as one of censorship in hopes to silence me from sharing what I know to be true & discussing it civilly with people it can help - or even with people who remain just as skeptical today as 5 years ago. I'm not making any of this up & I refuse to not share it with the ASD community. You're free to not read it or respond to it if it doesn't interest you.

I don't believe you should be censored, Goldfish.

I don't believe anybody should be censored.

Your ideas aren't particularly harmful or wrong.

What causes problems for you is not the probiotics themselves----but your ire when somebody disagrees with you.

And your "tough love" approach---which makes people feel that you feel superior to others.

Your understanding of censorship must be very different from mine, a wide gulf there. If we wanted to censor you, I guess some mod with vast resources of time and energy could devote years to removing all your special interest posts, but it won't be me.

I think you live an okay life. I don't believe you are out to harm people. I believe you seek to live life to the fullest---which is commendable.

What people might not trust-----is your religiosity about your probiotic approach which seems to preclude other approaches.

I think KK has given you some wise feedback in good faith. Believe it or not, I am trying to do the same. With a blog, you could have all your material in one place for ease of access to those interested, and post links to it on Wrong Planet. Seems like a win win option to me.

A blog is good for organization, too.

B19 is not trying to stifle you. She's trying to find a way for your ideas to be more focused.

Then, people can read the blog, and start threads based on it. And you can defend your ideas within the threads, while not getting too upset.

Think about it: Had Freud listen to Jung in some things, Psychoanalysis might have gone even a longer way. Freud was too stubborn for his own good. He didn't understand that ideas are not stagnant---but dynamic.

What has happened in your life for the last 6 years which could have triggered a change?
Maybe your brain has re-wired. The brain has an incredible plasticity.