New, Improved Autism Speaks Slogan!

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Give me a giant axe and I'll deal with Autism Speaks.

Autism Speaks. We think that we speak for everybody on the Spectrum.

Chutes and I have been having long dialogues over PMs and I think we've come to an understanding. He even stood up for me in defense to some other parents.

Woah.

I have a large club...will that do

Scary thought.

His website is a little odd, from what I hear. It's called littlepilgrims or something.
http://www.littlepilgrims.com/?page_id=4&resource_id=35
He seems pretty angry at the ND and pretty interested in chelation etc, but maybe he's an ok guy.

Re: big clubs, etc....What's going to bring Autism Speaks down is when people realize that there hasn't been an autism epidemic, and for instance if congress realizes that AS convinced them to pass the Combatting Autism Act as if the nation was about to be destroyed by a tidal wave of autism, etc, etc, when it's all a big lie or a big boffo ignorant error. Autism Speaks minus big contributors and minus a connection to congress is a big fat goose egg. Even an empty shell.....

He told me he has only done GFCF with his kids. He doesn't really seem interested in pursuing other treatments, from what I got out of him.

He also gave me his opinion of you, and it wasn't completely negative.

Pffft! As if they'd act on that. They'll only uphold their Terms of Service with a court order!

Autism Speaks. We're asking to get ran over by a Routemaster.

Fixed.

Beau, Zara, Last Crazy & others who are still over there talking with parents, I really appreciate your being there.

I disagree that anyone would get swayed or contaminated or abused by the parents at AS, simply by being an Aspie on that board. The parents who are more extreme and nasty are that way with everyone who opposes their viewpoint. I know this from lotsa personal experience on these parent boards! Parents who have a lighter heart about it all and can actually discuss and disagree in a productive way are that way with everyone else, too.

And I'm glad to see livsparents, I Hate the FDA, c.darwin and The Diva over here, too.

My experience is that most parents really do want to listen to and learn from autistic adults. Y'all just gotta go slowly with us.

"Autism Speaks, But we're talking over them... "

LBP, *HUGS* back...

I can see that one of the worst of the harpies/bullies is saying that she appreciates a really great post by one of the WP folks who is also over there. All of the stuff that that person wrote, are things I have written about being an Autistic adult. Not saying that the WP person took the ideas from anyone else, just that they are very common statements about how we feel about being on the spectrum. If I posted the same things I'd get vicious digs from that same mom.

The difference is that the autistic adults over there who haven't yet had an attempted evisceration by the harpies have not questioned the harpies love of chelation, chemical castration and other dangerous quackery or their hatred of vaccines.

I mean, it's great to have that flow of respect going between putatively NT parents with the ASD adults there who are articulating their thoughts so well. But hang onto your hats if any of the ASD adults question the epidemic (that they are too old to be part of) or the antivaccine hatred or the CDC hatred or the FDA hatred.

Autistic adults are fine in their place as far as those people are concerned. Our place is to be decorative knick-knacks and not to question anything the parents do, not even IV vinegar and garlic infusions. Not even putting kids in a potentially explosive mHBOT balloon. Don't dare question it in the least or the harpies will attack, and usually in a very insidious and passive aggressive way that leaves autistic people very hurt.

I'm not saying that the WP members who are now on the AS board need to challenge the (few) monsters there on anything in particular or that they need to write about their concerns about quackery or try to undo the lies about the epidemic. I'm just saying the "love" and "respect" there that the harpies are displaying is about a half a micrometer deep and it will vanish if the autistic adults stray from their place and say the wrong thing. On the other hand parents who aren't that dedicated to quackery might really benefit from reading the posts by the autistic adults.

The overwheming majority of new cases of this supposed epidemic of autism are Aspergers. So it is mainly us, that Autism Speaks are using to justify their existence.... But we haven\'t been asked our opinion...

Doing history revision.
It takes a lot of time to write down 12 years of Russian history.

I would agree here. AuSk's statistics show it's on the rise, but they fail to see that 1) It's because more people are finding out about it and getting diagnosed, and 2) They don't even tell you how many of those cases are what they advertise them to be, which presumably is a small percentage compared to the amount who have it in a lower, less severe form.