For those that believe ASD is Only hard wired/genetic

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auntblabby
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10 May 2018, 1:34 am

that's a bummer about not having any warning before the brain objects. I've been blessed in that I always had some kinda warning, at least when I learned to heed them.



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10 May 2018, 1:36 am

EzraS wrote:
A lot of times when I'm out between dark shades and noise cancelling earphones i might as well be helen keller. One more reason i need an escort.

You and I would make a fine pair.
I often feel like I'm sleepwalking.


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goldfish21
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10 May 2018, 1:40 am

Raleigh wrote:
goldfish21 wrote:
Raleigh wrote:
I basically do follow goldfish protocols (not all of them) and have since 2009, yet I'm still autistic and my health is hilarious, although I do feel good most of the time.
So what am I doing wrong?


Depends on what you’re doing differently or not doing that I am. Care to share?

What, share my failures?
That would max this thread out. :lol:
Like I said, this is over almost 10 years, and it had nothing to do with treating autism.
But you would think autism symptoms would have improved instead of having the biggest autistic burnout of my life in the middle of it.


No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"

My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.


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EzraS
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10 May 2018, 1:44 am

Raleigh wrote:
It's not that I hear or see anything nasty, it's more like everything's too shiny, too bright, too cluttered, too echoey, too smelly and the people moving in all random directions do my head in.


Right that's it for me too. Some days are better than others. When I'm out at some huge crowded place like an amusement park they plop me in wheelchair and I hide under a blanket.



Raleigh
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10 May 2018, 1:46 am

auntblabby wrote:
that's a bummer about not having any warning before the brain objects. I've been blessed in that I always had some kinda warning, at least when I learned to heed them.

Sorry, didn't express that right.
There is a warning.
I shut down first, but that part does come on rather suddenly.
Then I feel like I have to escape.
Then I start to get shaky and brain goes into matrix dejavu scene, like it gets stuck.
Then I get emotional and need quiet, isolation and a hard surface.
From shutdown to meltdown feels like it takes forever but sense of time seems to go out the window too.


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EzraS
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10 May 2018, 1:48 am

Raleigh wrote:
auntblabby wrote:
that's a bummer about not having any warning before the brain objects. I've been blessed in that I always had some kinda warning, at least when I learned to heed them.

Sorry, didn't express that right.
There is a warning.
I shut down first, but that part does come on rather suddenly.
Then I feel like I have to escape.
Then I start to get shaky and brain goes into matrix dejavu scene, like it gets stuck.
Then I get emotional and need quiet, isolation and a hard surface.
From shutdown to meltdown feels like it takes forever but sense of time seems to go out the window too.


Good description. I always have trouble putting such experiences into words.



EzraS
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10 May 2018, 1:58 am

goldfish21 wrote:
No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"

My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.


Perhaps you should make out a concise step by step list for Raleigh to check off Y or N to.



goldfish21
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10 May 2018, 2:01 am

EzraS wrote:
goldfish21 wrote:
No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"

My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.


Perhaps you should make out a concise step by step list for Raleigh to check off Y or N to.


He's the one who says he does things I do. I asked which ones he does and which ones he doesn't. I'm curious whether they correlate with the things I consider most/least effective, and whether the things he doesn't do correlate with the symptoms he still has bothering him. That's why I asked which ones he does and which ones he doesn't do.


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EzraS
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10 May 2018, 2:06 am

goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"

My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.


Perhaps you should make out a concise step by step list for Raleigh to check off Y or N to.


He's the one who says he does things I do. I asked which ones he does and which ones he doesn't. I'm curious whether they correlate with the things I consider most/least effective, and whether the things he doesn't do correlate with the symptoms he still has bothering him. That's why I asked which ones he does and which ones he doesn't do.


What if he accidentally leaves something out? Besides it would be informative and give a better frame of reference to have a quick glace list of yours for people to compare to his.



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10 May 2018, 2:08 am

EzraS wrote:
LaetiBlabla wrote:
goldfish21 wrote:
6 years ago at the peak of my AS symptoms I was most definitely in my own little autistic world like many others here. Now I live, well, and play in the social world with everyone else.


What has happened in your life for the last 6 years which could have triggered a change?
Maybe your brain has re-wired. The brain has an incredible plasticity.


Goldfish is completely self-diagnosed so we only have his subjective self-appraisal on what his issues were before or after. And due to the fact that numerous people keep trying and failing to get him to understand that he has a significant problem in how he comes across to others and how he presents himself, his ability at self-appraisal seems highly questionable. The whole thing seems that his entire experience could likely be mainly psychological rather than neurological.


Telling me I don't know my own diagnosis is akin to telling someone who's face is on fire that they aren't a burn victim until someone with some letters after their name tells them so. It is that obvious. I am still autistic, merely much higher functioning & what I do "turns on the social circuitry," and allows me to navigate the social world much more naturally & fluidly vs. forced, anxiously, and relying on coping mechanisms like intellectual processing.

Even the boy I dated briefly a couple of Winter's ago, (during the lowest light Winter we had in my entire life which led to eventually helping learn the importance of vitamin D and UV light to my functioning levels) Knew nearly instantly that I was on the Autism spectrum. The only movie we went to see together was The Accountant. The week after that when we were hanging out talking I decided to disclose my neurotype and he already knew prior to that date. He likely knew from the first day we met - Halloween 2016 - and went out for dinner. He knew because he recognized the signs of AS as one of his older brothers is Autistic. People who Know AS can tell, people who don't just think I'm slightly weird like every other slightly weird person in the social scene I hang out in.

EzraS, have you read this book?

Image

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.


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Last edited by goldfish21 on 10 May 2018, 2:22 am, edited 1 time in total.

goldfish21
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10 May 2018, 2:17 am

EzraS wrote:
goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"

My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.


Perhaps you should make out a concise step by step list for Raleigh to check off Y or N to.


He's the one who says he does things I do. I asked which ones he does and which ones he doesn't. I'm curious whether they correlate with the things I consider most/least effective, and whether the things he doesn't do correlate with the symptoms he still has bothering him. That's why I asked which ones he does and which ones he doesn't do.


What if he accidentally leaves something out? Besides it would be informative and give a better frame of reference to have a quick glace list of yours for people to compare to his.


There's been a lot to what I've done.

Does he use epsom salts on his skin regularly/daily for the magnesium sulphate to detox excess food acids out of his body? (this, IMO, helps w/ audio/light sensitivity as well as reduces/eliminates meltdowns)
Did he follow a cleansing diet & protocol for long enough to clear his digestive tract?
Did he consume supplements that heal the intestines?
Does he follow a specific diet? What is it?
Does he take probiotics orally to populate the gut with healthy bacteria?
Has he ever, or does he continue to do, high volume enemas w/ ACV? (the main type I've used) This is the single most effective thing I do ~once every 3-4 weeks or so.
Does he now, or has he ever, used probiotics rectally? This is ~2nd most effective thing I do.

There are many variables at play & they likely vary for many different people. I'm just curious if the things he does are maybe the things that get me ~20% of my results (but I still find are necessary) and if the things he doesn't do are the ones I find get me 80% of my results, or particular results with particular symptoms etc.

edit: And I've more recently realized the importance of Vitamin D and UV light to my functioning levels. Supplementing it here and there throughout the Winter made for much better functioning vs. declining brain functions that won't return until early Summer after a lot of sunlight exposure.


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Last edited by goldfish21 on 10 May 2018, 2:30 am, edited 1 time in total.

goldfish21
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10 May 2018, 2:28 am

EzraS wrote:
Raleigh wrote:
I basically do follow goldfish protocols (not all of them) and have since 2009, yet I'm still autistic and my health is hilarious, although I do feel good most of the time.
So what am I doing wrong?


Based on what I've seen, the protocols have stronger evidence of improving psychological disorders than they do of improving neurological disorders. My belief is that goldfish's experience is more of a psychological nature. He should look into psychological disorders that have symptoms similar to aspergers and how what his doing can affect those psychological disorders. Even highly experienced credentialed experts misdiagnose one thing for another. Which is why it's always highly recommended to get a second opinion.


Maybe it's these things, but it is physiological for sure. This medicine used in this method on/within these tissues & organs = this result.

Part of the problem here is that you are making the assumption that AS is purely a neurological wiring difference and not taking into account whatsoever what I'm telling you about the very real physical gut-brain connection and the role that gut dysbiosis & probiotic bacteria play. AS is not purely neurological. That's what I've been sharing here for years and what present day research is proving.

Interesting how you claim to put so much faith in professional diagnoses, but then suggest they make mistakes so if you don't like you're diagnosis you can just go shop your symptoms down the street to another Psychiatrist until someone tells you what you want to here. Just pointing out the hypocrisy of that.

I'm not suggesting that professional diagnoses are of no value, merely that they are, for many of us, simply a confirmation of what we already know.


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EzraS
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10 May 2018, 2:31 am

goldfish21 wrote:
Telling me I don't know my own diagnosis is akin to telling someone who's face is on fire that they aren't a burn victim until someone with some letters after their name tells them so. It is that obvious. I am still autistic, merely much higher functioning & what I do "turns on the social circuitry," and allows me to navigate the social world much more naturally & fluidly vs. forced, anxiously, and relying on coping mechanisms like intellectual processing.

EzraS, have you read this book?

Image

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.


It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.

My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.

Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects it cause you all sorts of legal issues?



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10 May 2018, 2:39 am

EzraS wrote:
goldfish21 wrote:
Telling me I don't know my own diagnosis is akin to telling someone who's face is on fire that they aren't a burn victim until someone with some letters after their name tells them so. It is that obvious. I am still autistic, merely much higher functioning & what I do "turns on the social circuitry," and allows me to navigate the social world much more naturally & fluidly vs. forced, anxiously, and relying on coping mechanisms like intellectual processing.

EzraS, have you read this book?

Image

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.


It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.

My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.

Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects they can sue you?


I read more than one book, but this was the single most valuable. Have you read it or have you not read it?

What could they sue me for? For telling them what I did to myself? I'm not prescribing anything to anyone nor making them do anything. I've shared what works for me, and they're welcome to try it for themselves.


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EzraS
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10 May 2018, 2:43 am

goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
Telling me I don't know my own diagnosis is akin to telling someone who's face is on fire that they aren't a burn victim until someone with some letters after their name tells them so. It is that obvious. I am still autistic, merely much higher functioning & what I do "turns on the social circuitry," and allows me to navigate the social world much more naturally & fluidly vs. forced, anxiously, and relying on coping mechanisms like intellectual processing.

EzraS, have you read this book?

Image

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.


It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.

My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.

Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects they can sue you?


I read more than one book, but this was the single most valuable. Have you read it or have you not read it?

What could they sue me for? For telling them what I did to myself? I'm not prescribing anything to anyone nor making them do anything. I've shared what works for me, and they're welcome to try it for themselves.



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10 May 2018, 2:44 am

goldfish21 wrote:
Raleigh wrote:
goldfish21 wrote:
Raleigh wrote:
I basically do follow goldfish protocols (not all of them) and have since 2009, yet I'm still autistic and my health is hilarious, although I do feel good most of the time.
So what am I doing wrong?


Depends on what you’re doing differently or not doing that I am. Care to share?

What, share my failures?
That would max this thread out. :lol:
Like I said, this is over almost 10 years, and it had nothing to do with treating autism.
But you would think autism symptoms would have improved instead of having the biggest autistic burnout of my life in the middle of it.


No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"

My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.

I think the only thing I didn't do were the enemas.


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