For those that believe ASD is Only hard wired/genetic
goldfish21
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So what am I doing wrong?
Depends on what you’re doing differently or not doing that I am. Care to share?
What, share my failures?
That would max this thread out.
Like I said, this is over almost 10 years, and it had nothing to do with treating autism.
But you would think autism symptoms would have improved instead of having the biggest autistic burnout of my life in the middle of it.
No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"
My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.
I think the only thing I didn't do were the enemas.
And those have been the single most effective thing I've done in the entire protocol I've followed - especially in the beginning, and still now for maintenance. As I reported ~5 years ago, it was after doing this whole process 1-2 dozen times that I passed something like 15-18 "egg-like," masses from my body. I don't know what these "jellyfish," or "egg-like," masses were - but whatever they were, I suspect interfered with my enteric nervous system firing properly. Now as long as I eat a healthy restricted diet to prevent adding fuel to the fire of whatever undesirable stuff grows in my intestinal tract, I only do them every 3-4 weeks-ish, but I really ought to just spend the ~1-2 hours and do it every couple weeks like clockwork to keep myself in even better balance. But I don't because I get lazy and I tend to do it when I notice symptoms are creeping up, or if I have a major social function to attend a couple days later, or if I've sabotaged my diet the day or two before by eating cake at a birthday party or something. Regardless of the frequency or event triggers to decide when to do it, overall, this is the single most effective thing I do for myself and is, in my experience, responsible for the lion's share of my positive results. It's gross science, but it works.
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goldfish21
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Joined: 17 Feb 2013
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EzraS, have you read this book?

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.
It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.
My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.
Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects they can sue you?
I read more than one book, but this was the single most valuable. Have you read it or have you not read it?
What could they sue me for? For telling them what I did to myself? I'm not prescribing anything to anyone nor making them do anything. I've shared what works for me, and they're welcome to try it for themselves.
Ok, so I'll take the blank response to be a "No, I have not read this book & so I cannot comment on it nor how Tony Attwood describes the internal thought processes of AS people so well that anyone reading it who's on the spectrum knows just how accurate he is."
I highly recommend that you do read it, then you'll understand better how I can know my own diagnosis, as well as how others who read this book & learn about AS on their own can be equally as certain about themselves.
_________________
No
So what am I doing wrong?
Depends on what you’re doing differently or not doing that I am. Care to share?
What, share my failures?
That would max this thread out.
Like I said, this is over almost 10 years, and it had nothing to do with treating autism.
But you would think autism symptoms would have improved instead of having the biggest autistic burnout of my life in the middle of it.
No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"
My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.
I think the only thing I didn't do were the enemas.
And those have been the single most effective thing I've done in the entire protocol I've followed - especially in the beginning, and still now for maintenance. As I reported ~5 years ago, it was after doing this whole process 1-2 dozen times that I passed something like 15-18 "egg-like," masses from my body. I don't know what these "jellyfish," or "egg-like," masses were - but whatever they were, I suspect interfered with my enteric nervous system firing properly. Now as long as I eat a healthy restricted diet to prevent adding fuel to the fire of whatever undesirable stuff grows in my intestinal tract, I only do them every 3-4 weeks-ish, but I really ought to just spend the ~1-2 hours and do it every couple weeks like clockwork to keep myself in even better balance. But I don't because I get lazy and I tend to do it when I notice symptoms are creeping up, or if I have a major social function to attend a couple days later, or if I've sabotaged my diet the day or two before by eating cake at a birthday party or something. Regardless of the frequency or event triggers to decide when to do it, overall, this is the single most effective thing I do for myself and is, in my experience, responsible for the lion's share of my positive results. It's gross science, but it works.
It was probably the lining of your gut being stripped.
BTW, my protocol was very effective medicinally, just not for autism.
_________________
It's like I'm sleepwalking
EzraS, have you read this book?

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.
It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.
My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.
Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects they can sue you?
I read more than one book, but this was the single most valuable. Have you read it or have you not read it?
What could they sue me for? For telling them what I did to myself? I'm not prescribing anything to anyone nor making them do anything. I've shared what works for me, and they're welcome to try it for themselves.
Yes I've read Attwood and fwiw I've met him in person at a seminar.
You should probably talk to your lawyer about any possible legal ramifications.
goldfish21
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Joined: 17 Feb 2013
Age: 43
Gender: Male
Posts: 22,612
Location: Vancouver, BC, Canada
So what am I doing wrong?
Depends on what you’re doing differently or not doing that I am. Care to share?
What, share my failures?
That would max this thread out.
Like I said, this is over almost 10 years, and it had nothing to do with treating autism.
But you would think autism symptoms would have improved instead of having the biggest autistic burnout of my life in the middle of it.
No. You said that you "basically do follow goldfish protocols (not all of them)"... and asked "what am I doing wrong?"
My response is to that. What you're doing wrong may depend on what you're doing differently, or not doing at al, that I am. I asked if you'd care to share what you Do do that's a "goldfish protocol," & what you do not; what you do similarly to me, and what you do differently or not at all the same as what I do. I'm curious as there are some things I do that I attribute the lions share of my medicinal success to, and others that provide less of an impact. And another that, IMO, helps improve sensory sensitivities as well as meltdown resistance. So, I'm curious which "goldfish," things you do and which ones you don't & if they're the ones I would attribute to cause/effect of those symptoms (or relief of/lack of relief of) in myself.
I think the only thing I didn't do were the enemas.
And those have been the single most effective thing I've done in the entire protocol I've followed - especially in the beginning, and still now for maintenance. As I reported ~5 years ago, it was after doing this whole process 1-2 dozen times that I passed something like 15-18 "egg-like," masses from my body. I don't know what these "jellyfish," or "egg-like," masses were - but whatever they were, I suspect interfered with my enteric nervous system firing properly. Now as long as I eat a healthy restricted diet to prevent adding fuel to the fire of whatever undesirable stuff grows in my intestinal tract, I only do them every 3-4 weeks-ish, but I really ought to just spend the ~1-2 hours and do it every couple weeks like clockwork to keep myself in even better balance. But I don't because I get lazy and I tend to do it when I notice symptoms are creeping up, or if I have a major social function to attend a couple days later, or if I've sabotaged my diet the day or two before by eating cake at a birthday party or something. Regardless of the frequency or event triggers to decide when to do it, overall, this is the single most effective thing I do for myself and is, in my experience, responsible for the lion's share of my positive results. It's gross science, but it works.
It was probably the lining of your gut being stripped.
BTW, my protocol was very effective medicinally, just not for autism.
The lining of our guts is not made up of "egg-like," masses. Whatever it was was growing in my intestinal tract & likely attached to the intestinal wall until multiple treatments caused it to die/release it's grip and be removed. I also described 5 years ago how it seemed to be like removing layers of paint withs a chemical stripper, only I was killing off and removing something that seemed to have a plant-like or mycelial structure.
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goldfish21
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Joined: 17 Feb 2013
Age: 43
Gender: Male
Posts: 22,612
Location: Vancouver, BC, Canada
EzraS, have you read this book?

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.
It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.
My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.
Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects they can sue you?
I read more than one book, but this was the single most valuable. Have you read it or have you not read it?
What could they sue me for? For telling them what I did to myself? I'm not prescribing anything to anyone nor making them do anything. I've shared what works for me, and they're welcome to try it for themselves.
Yes I've read Attwood and fwiw I've met him in person at a seminar.
You should probably talk to your lawyer about any possible legal ramifications.
You've read something else by Attwood, or you've read This book?
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neilson_wheels
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Location: London, Capital of the Un-United Kingdom
This is the mucus, AKA lining, of the intestine. Due to the properties of mucus and the fact it no longer has a surface to adhere to, then it will coalesce into the shapes you describe.
So what am I doing wrong?
Based on what I've seen, the protocols have stronger evidence of improving psychological disorders than they do of improving neurological disorders. My belief is that goldfish's experience is more of a psychological nature. He should look into psychological disorders that have symptoms similar to aspergers and how what his doing can affect those psychological disorders. Even highly experienced credentialed experts misdiagnose one thing for another. Which is why it's always highly recommended to get a second opinion.
Maybe it's these things, but it is physiological for sure. This medicine used in this method on/within these tissues & organs = this result.
Part of the problem here is that you are making the assumption that AS is purely a neurological wiring difference and not taking into account whatsoever what I'm telling you about the very real physical gut-brain connection and the role that gut dysbiosis & probiotic bacteria play. AS is not purely neurological. That's what I've been sharing here for years and what present day research is proving.
I'm very well aware that autism is not purely neurological. That's exemplified in me saying I suspect your main issue is psychological rather than your entire issue. Autism has been a major part of my entire life. Working with occupational therapists. Talking to psychologists and neurologists. Having been surrounded by other autistics my entire life at school at workshops at clinics.
Getting a second opinion to confirm the first diagnosis is a standard commonsense procedure. Has nothing to do with faith or shopping around or hypocrisy.
Not really. Usually they have studied whatever for years and diagnosed and treated hundreds of people. What if you thought you had cancer or whatever. Would you choose to stick with a self diagnosis and concoct a home made treatment? Where do you draw the line at self diagnosis and self treatment?
auntblabby
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Location: the island of defective toy santas
goldfish21
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This is the mucus, AKA lining, of the intestine. Due to the properties of mucus and the fact it no longer has a surface to adhere to, then it will coalesce into the shapes you describe.
Did not look/feel like mucus. It's not impossible, I just really don't think so. They were more solid masses than any sort of mucus I've ever seen/experienced.
_________________
No
EzraS, have you read this book?

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.
It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.
My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.
Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects they can sue you?
I read more than one book, but this was the single most valuable. Have you read it or have you not read it?
What could they sue me for? For telling them what I did to myself? I'm not prescribing anything to anyone nor making them do anything. I've shared what works for me, and they're welcome to try it for themselves.
Yes I've read Attwood and fwiw I've met him in person at a seminar.
You should probably talk to your lawyer about any possible legal ramifications.
You've read something else by Attwood, or you've read This book?
That book plus more. Have you read Cohen and Grandin etc? Listened to their lectures been to their seminars etc?
goldfish21
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Joined: 17 Feb 2013
Age: 43
Gender: Male
Posts: 22,612
Location: Vancouver, BC, Canada
Not really. Usually they have studied whatever for years and diagnosed and treated hundreds of people. What if you thought you had cancer or whatever. Would you choose to stick with a self diagnosis and concoct a home made treatment? Where do you draw the line at self diagnosis and self treatment?
I've lived 100% of my life like this, I know myself. They can talk to hundreds of patients & still have it equate to only 2nd hand information from other people during a small % of their life. It's incomparable to leaving with AS 24/7, 365. I am confident in my diagnosis.
I draw the line whenever I require someone else' expertise or prescription writing authority. I'm not anti doctor. Whenever I need to see a doctor, I go see one.
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goldfish21
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Joined: 17 Feb 2013
Age: 43
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EzraS, have you read this book?

Dr. Tony Attwood does an EXCELLENT job of describing the internal thought processes of the AS brain & our life's experiences after interviewing who knows how many Aspies to come to his conclusions. Anyone who reads this book and can relate to it cover to cover as matching their entire life's experiences Knows that they are on the spectrum. If you haven't read it and you don't have a copy at home, I will gladly buy you one and then you can give it a read and know what I am talking about.
It takes a highly trained specialist to properly diagnose autism and differentiate it from other conditions. And then when that's done it's often essential to get a second opinion from another expert.
My parents have read Attwood and Cohen and Grandin and everyone else. My mom even obtained a masters in behavioral psychology specializing in autism. And I have been immersed in all of that my entire life and I'm plenty familiar with Atwood and all the others plus more. Whereas you read one book. So yeah I question your ability to properly diagnose yourself for a number of reasons.
Normally amateur self diagnosis isn't much of an issue with me. But in your case it's a major issue. Btw, did you know if someone follows your specific medicinal formula that you are instructing them on and it has adverse effects they can sue you?
I read more than one book, but this was the single most valuable. Have you read it or have you not read it?
What could they sue me for? For telling them what I did to myself? I'm not prescribing anything to anyone nor making them do anything. I've shared what works for me, and they're welcome to try it for themselves.
Yes I've read Attwood and fwiw I've met him in person at a seminar.
You should probably talk to your lawyer about any possible legal ramifications.
You've read something else by Attwood, or you've read This book?
That book plus more. Have you read Cohen and Grandin etc? Listened to their lectures been to their seminars etc?
So then if you've read the book, then you can comprehend how when someone else reads it & it matches their entire life from their earliest childhood memories and experiences up until the moment they're reading that book how they can be certain if they fit the diagnostic criteria described within it.
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goldfish21
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Age: 43
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I have no idea & I have no idea if anyone has ever studied this.
What if neurotoxins build up in excess intestinal mucus and interfere with enteric nervous system functions?
Maybe.
But maybe there's exactly zero benefit to it.
One thing I have noticed, though, and also discussed with someone else on the spectrum from this forum, is that there is a benefit to having a bowel movement, period. I know that until I go in the morning I feel.. slow/sluggish/low energy/brain fog almost.. but afterwards I'm much clearer, awake/energetic etc. In our brief chat, we agreed that it is possible that those of us on the spectrum may have some sort of hypersensitivity to enteric nervous system functions and that having a bowel movement has a greater impact on our health than others. Yes, this was a serious actual conversation off of the forums.
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neilson_wheels
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Mucus from a healthy gut would be relatively thin and clear. Mucus is where any adverse bacterial growth will happen and this will change the appearance and consistency.
What do you think these objects were?
Last edited by neilson_wheels on 10 May 2018, 8:21 am, edited 1 time in total.
I can comprehend it. But it's still amateur conjecture. And it doesn't take into account other possibilities. I'm sure Dr. Attwood would recommend a diagnosis from an expert in the field if you're going to go around recommending autism treatments based on yourself as the only subject.
