More about my situation.
You disliked the idea of me having help in the first place, so it's hardly a surprise you put he idea of me having it down
No quite the opposite. I think you need full time assistance.
What I have a problem with is what looks like you trying to guilt-trip manipulate an autistic WP member to move to Santa Cruz and take care of you.
You are in a care facility and you are being looked after. That's your help. And the only help you actually need. They are pressuring you to stay put because by your own admission you are in severely poor health as in basically terminally ill.
Oh, I definetely agree with what you say here. The care facility would be the best for him. It's three hots and a cot and whatever there else is there to do there. If he can procure some books then he can read.
My dad said my great aunt was self destructing on a daily basis regarding her junk food consumption, before they finally got her to agree to a care facility. That was after she fell down and it took her several hours to crawl to the phone to call for help. She complains that they're starving her to death, but she's getting 3 nutritious meals with reasonable portions a day.
You know really for the most part I'm like an invaild myself. I'm frail and fragile and crippled and all that and am frequently housebound because of it. And I'm 17 not 57 with diabetes, chf, copd and kidney failure.
...I,m not asking anyone to move, some helo - in addition to what I've been told, help with the storage and connecting with things, and tee improvement of computer knowledge - would be nice. Yes, a senior apartment could be nice, I don't know how I'd go getting it.
_________________
Renal kidney failure, congestive heart failure, COPD. Can't really get up from a floor position unhelped anymore:-(.
One of the walking wounded ~ SMASHED DOWN by life and age, now prevented from even expressing myself! SOB.
" Oh, no! First you have to PROVE you deserve to go away to college! " ~ My mother, 1978 (the heyday of Andy Gibb and Player). I would still like to go.
My life destroyed by Thorazine and Mellaril - and rape - and the Psychiatric/Industrial Complex. SOB:-(! !! !! !! !! !! !! !! !! !!
He was warned if he didn’t clean up his act...that he might die within 1 year.
He retracted that statement, anyway.
Whatever. If you think he's going to bounce back and get his own place and attend university and all that, so be it.
So who do you think should move to Santa Cruz and help him with all that?
You're trying to get some autistic WP member to come to Santa Cruz and take care of all your affairs for you. That's why you keep shooting down the wealth of self help suggestions given to you. All you are interested in is a companion caregiver earrand runner computer tutor etc. And you seem to think that should be simple easy as pie for whoever.
Give it a rest already.
Last edited by EzraS on 11 Dec 2017, 9:17 am, edited 1 time in total.
...Basically, I've asked for help, but I've bever received it
.
Help could be administered through a distance, through 'Web/phone.
_________________
Renal kidney failure, congestive heart failure, COPD. Can't really get up from a floor position unhelped anymore:-(.
One of the walking wounded ~ SMASHED DOWN by life and age, now prevented from even expressing myself! SOB.
" Oh, no! First you have to PROVE you deserve to go away to college! " ~ My mother, 1978 (the heyday of Andy Gibb and Player). I would still like to go.
My life destroyed by Thorazine and Mellaril - and rape - and the Psychiatric/Industrial Complex. SOB:-(! !! !! !! !! !! !! !! !! !!
Help could be administered through a distance, through 'Web/phone.
I still have absolutely what you're expecting from someone.Teach you how to use a computer over your phone?
You've insisted before that you need someone to sit next to you in the flesh to teach you.
Last edited by EzraS on 11 Dec 2017, 10:04 am, edited 1 time in total.
Help could be administered through a distance, through 'Web/phone.
In the past, people have pointed to on-line tutorials and YouTube videos that could help you.
You've repeatedly said that you need someone to come and sit next to you in order to show you how to use technology.
_________________
"If we fail to anticipate the unforeseen or expect the unexpected in a universe of infinite possibilities, we may find ourselves at the mercy of anyone or anything that cannot be programmed, categorized or easily referenced."
-XFG (no longer a moderator)
Help could be administered through a distance, through 'Web/phone.
In the past, people have pointed to on-line tutorials and YouTube videos that could help you.
You've repeatedly said that you need someone to come and sit next to you in order to show you how to use technology.
That and transport him places.
Getting someone to transport him places would be a pipe dream.
I doubt it that HE'S even expecting this to happen.
I think this situation is a matter of ASS-P fearing the loss of his independence. That's what I feel.
It's difficult for a person to concede that they might need considerable care which might sacrifice full independence. I've noted this in my grandmother; she hated being in the nursing home. I've noted this in other people who could not stand the thought of not living in their own place.
Though, in this case, a nursing home is definitely not the only possible solution.
Hey, people - if all ASS-P has is a smartphone, and we don't know what kind (do we?) he may not be able to pull up this info as easily as we think. I have a smartphone and it is severely limited, so I was offline for all intents and purposes for almost two years post retirement, until I was able to afford cable wi-fi.
When I DID get cable wi-fi, I had to go to Geek Squad several times because I knew it would be useless for me to call tech support. I didn't know enough IT terminology to be able to work with someone over the phone! I had to see what they meant, in person. And I have a PhD - in a STEM field - and worked full time for more than 30 years.
Do we know how much his SSDI amounts to? How much his rent is? What his insurance costs and what it pays for? How much his prescription copay is? What he actually has left over after all that?
Maybe we do, I haven't read the entire thread. But what I see happening here disturbs me deeply. I've sampled here over the past week, and I see a ganging up, I see it snowballing, I see someone who is more disabled than the average person here being scapegoated. Why? Because the help we're suggesting won't work for him and he says as much? Because we're communicating at cross-purposes? Because he's terrified and can't see a way through?
So he is asking for help with a face and hands, in the same room? That can be just as much a form of reasonable accommodation as a keyboard for nonverbals, large font for visually disabled, the new Dyslexie font for dyslexics, a sign language interpreter for the deaf. Please, try to see it that way?
I know I haven't read the whole thread, but honestly, there has to be a better way to respond to him than this. Please guys. From what I'm seeing here, you're doing to one of your own (yes he is, like it or not) what you accuse the non-ASD world of doing to you, and you don't seem to be aware of that. Even if some of the helplessness he's displaying arises from emotional disabilities - how many people on this board have social anxiety or other mental/emotional obstacles keeping them housebound?
Please.
_________________
"I believe you find life such a problem because you think there are the good people and the bad people," said the man. "You're wrong, of course. There are, always and only, the bad people, but some of them are on opposite sides."
-- Terry Pratchett, Guards! Guards!
He gets his SSDI in weekly increments. I know about how much he gets----it's a little more than SSI. I believe part of the money goes to some payee or other. He, most assuredly, doesn't get that much.
If he had a smartphone, he would have to have a 4g phone for all intents and purposes. Otherwise, he would be totally dependent on Wi-Fi. Wi-Fi might be available in his rehab facility---but certainly not available in a shelter. It's available in Starbucks/McDonald's type of places, usually.
I'm not a fan of Tracfone---but he could get a decent phone for around $60 from Home Shopping Network. If it's on sale, he'd also get about 1500 or so phone minutes, texts, and 1.5 gigabytes Internet (which isn't much).
Not that I can help anyone much here (since I'm not from the US and not even from an English speaking country), but an old laptop should also be affordable. An old laptop won't have 3g/4g included, but can be extended via a 3g/4g laptop stick. Of course, to set this up, the OP would need help from someone.
I don't know, couldn't someone from WP meet up with him? I know the US are a big country, but isn't anyone living near him? I guess this is essentially what his threads are about. He wants to meet with someone.
When I DID get cable wi-fi, I had to go to Geek Squad several times because I knew it would be useless for me to call tech support. I didn't know enough IT terminology to be able to work with someone over the phone! I had to see what they meant, in person. And I have a PhD - in a STEM field - and worked full time for more than 30 years.
Do we know how much his SSDI amounts to? How much his rent is? What his insurance costs and what it pays for? How much his prescription copay is? What he actually has left over after all that?
Maybe we do, I haven't read the entire thread. But what I see happening here disturbs me deeply. I've sampled here over the past week, and I see a ganging up, I see it snowballing, I see someone who is more disabled than the average person here being scapegoated. Why? Because the help we're suggesting won't work for him and he says as much? Because we're communicating at cross-purposes? Because he's terrified and can't see a way through?
So he is asking for help with a face and hands, in the same room? That can be just as much a form of reasonable accommodation as a keyboard for nonverbals, large font for visually disabled, the new Dyslexie font for dyslexics, a sign language interpreter for the deaf. Please, try to see it that way?
I know I haven't read the whole thread, but honestly, there has to be a better way to respond to him than this. Please guys. From what I'm seeing here, you're doing to one of your own (yes he is, like it or not) what you accuse the non-ASD world of doing to you, and you don't seem to be aware of that. Even if some of the helplessness he's displaying arises from emotional disabilities - how many people on this board have social anxiety or other mental/emotional obstacles keeping them housebound?
Please.
You're right, you don't know the entire situation.
This has been going on for years, with the same exact results. People have tried to help him, he rejects it, then he reappears with the exact same requests for help.
As for his internet access, the incidents I'm talking about occurred when he still had the ability to use the library and other public computers.
_________________
"If we fail to anticipate the unforeseen or expect the unexpected in a universe of infinite possibilities, we may find ourselves at the mercy of anyone or anything that cannot be programmed, categorized or easily referenced."
-XFG (no longer a moderator)
@XFilesGeek: Then I guess there's an emotional component to this that really needs to be dealt with. Thanks for the background.
_________________
"I believe you find life such a problem because you think there are the good people and the bad people," said the man. "You're wrong, of course. There are, always and only, the bad people, but some of them are on opposite sides."
-- Terry Pratchett, Guards! Guards!
