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ASPartOfMe
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13 Jan 2014, 12:31 am

aghogday wrote:

Life IS long dude...you WILL FIND YOURSELF IN MANY OTHER SHOES..BEFORE YOU CHECK OUT OF THIS LIFE..

TRUST ME ON THAT ONE..

not just a little complaint here or there..cause someone got butt hurt over some words they did not like.. that were said...here or there...or wherever...

There are big bears to fight in life..

And there are feathers that can be avoided..

This is a feather friend..not a friggin bear....

In the bigger picture of life...

And of course all of this is just my opinion..take it with a grain of salt..your will not mine.


I am older then you by 3 years so I have experienced a few things. And one of the things experience has taught me is not to underestimate the power of words. They can have large effects both intended and unintended.


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aghogday
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13 Jan 2014, 12:46 am

I saw that..but it doesn't have much to do with cognitive empathy...IN REALitY.. necessarily....

Here's the thing..i've experienced more adversITy in one lifetime than most folks experience in 10 or 15...

Even doctors tell me that...

So at least in my case... it's a feather friend....

It's all a matter of perspective..

i guess

Like i sAID..JUST MY OPINION...

friend

It is literally impossible for words to hurt me.

But in effect...i'm kinda like a zen master...NOw..so that has something to do with that...

At least that's what people tell me in REAL LIFE..

TO EACH one's OWN WILL..NOT MINE


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ASPartOfMe
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13 Jan 2014, 1:42 am

I have studied marketing and political science where words and their consequences, how they are interpreted and misinterpreted were topics of study. So that is a why my experiences may be different then yours and explains my sensitivity to words.


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aghogday
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13 Jan 2014, 2:26 am

Makes perfect sense to me friend..:) But to be clear i've studied both of those sciences too...and actually done it for the government...as well...and got paid for it too...

There is absolutely nothing unusual about Autism Speaks approach to Marketing...and or political science...

But almost anything in life can hurt someone's feelings..

So that's how life goes..

Marketing and or political science simply cannot please everyone..and gain success..in the real world..

As human beings for the most part buy..vote..and make decisions with their heart..instead of logic..

And the target audience..my friend..is not the people here..and has never been the people here for potential donations...

Nothing said here...or anywhere else beyond the target audience makes any substantial difference...

And that my friend is part of marketing 101..

The target audience is everything..and pulling heart strings..is what empties pockets...

It's really as simple as that...

Anything said here is of no significant consequence to the actual operation of the autism speaks organization...

It's just a little PR annoyance..per total effect.. everywhere folks are talking about a silly boycott against organizations that donate to autism speaks..

But as they say in marketing..the true effect will be sung on the bottom line of the annual financial report...

And in full effect Autism Speaks IS increasing donations when most other large organizations..like the Autism Society of America..are having substantial difficulties in growing donations..

A ten percent increase in total donations for Autism Speaks..in the last report..speaks the truth..on who or what is making a difference..complaints..or actual efforts to gain donations...

And these complaints are nothing new..for at least 4 years now..with much greater overall dissent in the past..over videos like the two expressed earlier in this thread..that are no longer promoted by the organization..but continued as a tool to attempt to discredit the organization..by folks who call themselves autistic..on a few sites on the internet..with maybe at most several thousand folks out of the approximately 3M folks with Autism in the US.

While the criticisms..are certainly true in how they affect the emotions of people here..

They simply are not affecting the bottom line of the organization..Autism Speaks...

Again..simply per the target audience..it just ain't here..period.

It's just the singing to the choir thing..as well.

But i'm not suggesting you or anyone here like it..or accept it..

It's just the truth..and that is what i always seek..the truth..that is all..
friend.

So it's kool to vent..but anyone who thinks that this boycott thingy..is going to significantly impact the bottom line of Autism Speaks..

Simply does not understand..how the charitable organization..business works...

And seriously marketing too..per the actual impact on the bottom line..of donations...

If Autism Speaks were to cater to the desires of folks on this website per marketing efforts..

Donations would simply go down..and that is no option..in the business of charitable organizations.


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ASPartOfMe
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13 Jan 2014, 3:14 am

In the general world of politics negative advertising to pull heartstrings is the norm. While it is effective we are not a better country for it, to put it mildly. With charity fundraising in general and with charity fundraising related to diseases, disabilities etc only with cancer have I seen any marketing resembling this. I sure if you try hard enough you will find other examples but it is not the norm for successful charities.


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aghogday
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13 Jan 2014, 9:15 am

ASPartOfMe wrote:
In the general world of politics negative advertising to pull heartstrings is the norm. While it is effective we are not a better country for it, to put it mildly. With charity fundraising in general and with charity fundraising related to diseases, disabilities etc only with cancer have I seen any marketing resembling this. I sure if you try hard enough you will find other examples but it is not the norm for successful charities.


Well friend..i only seek the truth..that does not mean i agree with the truth..always...

I do not like Ms. Wright's approach..as i am a person of details..and she did not describe the full spectrum in her report...the videos are in the past and per my philosophy that does resemble Zen Buddhism..i live in the NOW..IS ALL...So that is always a non-issue to me.

That's my REAL interest in life..the NOW..but what can i say..i am still autistic ..so it's hard to let go of this Autism Speaks Controversy for me..as it has been a special interest for about 3 years...

I don't think we have to look much farther that those dog commercials or those starving kids commercials..to see a greater attempt..at manipulating human emotion..those commercials have been around for decadeS now...

And OH YES..GOD YES.. many people have been emptying their pockets..and now by credit card..or even smartphone and texting...

As technology takes hold of heart strings also...

One of my hobbies too is attending different and unusual churches..in my local area that is an Extreme one for the business of religion...

IN attending what is described as a Pace Assembly of Church in my local area...

Their MO to gain donations now is mainly through texting...

And they have the congregation..raise their cell phones to the sky..when it's time to donate in church...

WELL..that kind of says it all..per donations..and the power of persuasion..in herd think...

I'm a maverick though..so herd think has never been my way..nEither 'there'..or 'here' my friend...

So I don't make many friends..except for what i understand as the truth..and a way of harmony with nature....

To experience bliss every moment of now...even when tHere might be an illusion of conflict in my words..

IT I
S ALL a path..

It's pretty obvious huh..that my communication meanders like a stream too...

IT'S ALL PART OF ONE..
THOUgh
ASonE


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HDLMatchette
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13 Jan 2014, 2:25 pm

well if you're only trying to help someone on the spectrum talk or use the toilet, that's not curing, that's helping. we teach NT kids to talk and use the toilet all the time and yet we don't call that "curing". Why us?



aghogday
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13 Jan 2014, 2:54 pm

HDLMatchette wrote:
well if you're only trying to help someone on the spectrum talk or use the toilet, that's not curing, that's helping. we teach NT kids to talk and use the toilet all the time and yet we don't call that "curing". Why us?


Well friend..you may not describe that as curing..but the modern medical definition of cure most definitely does include this in full consideration of the disabling symptoms and associated symptoms of any disorder and or disease...per remediation and improvement of those symptoms..as linked and quoted below...

This is what ABA does..and this is why it is simply essential for some folks on the spectrum ..but not all.. of course.. as it IS an extremely diverse spectrum with an abstract definition..that leaves room for an almost limitless potential of causal factors...


http://www.merriam-webster.com/dictionary/cure

Quote:
1cure noun \ˈkyu̇r\
: something (such as a drug or medical treatment) that stops a disease and makes someone healthy again

: something that ends a problem or improves a bad situation

: the act of making someone healthy again after an illness

Full Definition of CURE

1
a : spiritual charge : care
b : pastoral charge of a parish
2
a : recovery or relief from a disease
b : something (as a drug or treatment) that cures a disease
c : a course or period of treatment <take the cure for alcoholism>
d : spa 1
3
: a complete or permanent solution or remedy <seeking a cure for unemployment>
4
: a process or method of curing


And again..as i will link and quote here for oh my god..probably 23 times now..

Autism Speaks clearly identifies..on their website..that not all folks on the spectrum are looking of a cure...

and more specifically some are just looking for greater acceptance..respect and supports..and a way to make a contribution to society..overall..like most human beings..anyway....

It seriously don't matter what the f**k Ms. Wright says in this environment or that environment..in any substantial real effect..overall..AS

The general public has no idea even who she is...

The general public does though..most definitely look at this fair representation of the spectrum as specifically provided for everyone in the entire world..for easy internet access to get informed..and yes more fully aware of the entire autism spectrum..not just one focus in a press interview .. sharing of empathic feelings..or emotions..and stuff like that...

http://www.autismspeaks.org/what-autism

Quote:
What Does It Mean to Be “On the Spectrum”?

Each individual with autism is unique. Many of those on the autism spectrum have exceptional abilities in visual skills, music and academic skills. About 40 percent have average to above average intellectual abilities. Indeed, many persons on the spectrum take deserved pride in their distinctive abilities and “atypical” ways of viewing the world. Others with autism have significant disability and are unable to live independently. About 25 percent of individuals with ASD are nonverbal but can learn to communicate using other means. Autism Speaks’ mission is to improve the lives of all those on the autism spectrum. For some, this means the development and delivery of more effective treatments that can address significant challenges in communication and physical health. For others, it means increasing acceptance, respect and support.


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Last edited by aghogday on 13 Jan 2014, 3:00 pm, edited 1 time in total.

HDLMatchette
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13 Jan 2014, 2:59 pm

remember that what you are saying now is how you're shaping america to be: a country with a lack of respect for those who aren't like "the rest".



aghogday
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13 Jan 2014, 3:02 pm

HDLMatchette wrote:
remember that what you are saying now is how you're shaping america to be: a country with a lack of respect for those who aren't like "the rest".


OH MY GOD FRIEND...

PLEASE READ THE QUOTE FROM THE AUTISM SPEAKS INTERNET SITE..
AND GET EDUCATED THAT THIS IS EXACTLY WHAT THE ORGANIZATION IS DOING ..ON THE GRANDER SCALE..

OUT OF DISTANT NEWS INTERVIEWS....

IF YA WILL...

HER YA GO..

THIS IS THE FACTS...OF WHAT AUTISM SPEAKS SAYS ABOUT FOLKS LIKE YOU....

CLIPPED OUT OF THE QUOTE ABOVE..TO MAKE IT AS EASY FOR YOU AS I CAN.

Quote:
For some, this means the development and delivery of more effective treatments that can address significant challenges in communication and physical health. For others, it means increasing acceptance, respect and support.


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13 Jan 2014, 5:04 pm

If Autism Speaks showed and talked about people on the higher functioning end of the spectrum and did documentaries about happily functional families where the parents had no other problems than remembering to bring their kids stuffed animal to school or not letting the chicken nuggets touch the fries on their kids plates or people who are having trouble coping with smaller things, or those whose problems could be solved if people were simply more understanding of differences that autism causes, exactly how much money do you think they would raise? Probably less than ten grand, that's how much.

They are going to give worst case scenarios because that's what causes people to say "Oh no, that's horrible! We can send them some money to help." Everything I've ever seen from them shows kids who are profoundly effected by autism. By that, I mean kids who have major issues. It doesn't imply that everybody with autism has those, even though it doesn't say that everybody with autism doesn't have those.

Compare it to how other places raise money. Did you ever see any of Jerry's kids that was just mildly effected? Do you see the Humane Society showing families who just bring their well taken care of pet in to be given away because their kid has an allergy and they can't keep him anymore? Do you see those Sally Struther's places show kids who get meals at home and have a decent roof over their heads but are just enrolled in the programs those places fund? No. You don't. Because it wouldn't raise squat that way.

Genocide gets brought up quite often in these debates because of the chance of being able to detect autism in utero and the fact that a lot of parents would choose to abort because of it. That's not genocide. It's done with Down's every day, and you don't see people going around rounding up and killing Down's kids who are already here and killing them. And no, it's not going to lead to it. It hasn't led to locking away all Down's folks either, and it's not going to.

Just because Autism Speaks shows kids with major issues doesn't mean that they are trying to say you have those issues. Just because they show parents who have a hard time coping with them doesn't mean all parents have a hard time coping with them. Just because being able to detect autism in the womb would lead to some parents aborting because of that doesn't mean they are saying you shouldn't have been born. Just because some people realize that having autism is a pain in the ass and would be glad to take a cure that was available doesn't mean that people who don't want the cure shouldn't have accomodations.

You want people to respect your differences, and your rights and beliefs and thoughts, so how about extending that same courtesy to other people? Not everybody wants to go through life with the difficulties that autism causes. Not everybody has the opinion that it's some sort of "gift".


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13 Jan 2014, 5:10 pm

OliveOilMom wrote:
If Autism Speaks showed and talked about people on the higher functioning end of the spectrum and did documentaries about happily functional families where the parents had no other problems than remembering to bring their kids stuffed animal to school or not letting the chicken nuggets touch the fries on their kids plates or people who are having trouble coping with smaller things, or those whose problems could be solved if people were simply more understanding of differences that autism causes, exactly how much money do you think they would raise? Probably less than ten grand, that's how much.

They are going to give worst case scenarios because that's what causes people to say "Oh no, that's horrible! We can send them some money to help." Everything I've ever seen from them shows kids who are profoundly effected by autism. By that, I mean kids who have major issues. It doesn't imply that everybody with autism has those, even though it doesn't say that everybody with autism doesn't have those.

Compare it to how other places raise money. Did you ever see any of Jerry's kids that was just mildly effected? Do you see the Humane Society showing families who just bring their well taken care of pet in to be given away because their kid has an allergy and they can't keep him anymore? Do you see those Sally Struther's places show kids who get meals at home and have a decent roof over their heads but are just enrolled in the programs those places fund? No. You don't. Because it wouldn't raise squat that way.

Genocide gets brought up quite often in these debates because of the chance of being able to detect autism in utero and the fact that a lot of parents would choose to abort because of it. That's not genocide. It's done with Down's every day, and you don't see people going around rounding up and killing Down's kids who are already here and killing them. And no, it's not going to lead to it. It hasn't led to locking away all Down's folks either, and it's not going to.

Just because Autism Speaks shows kids with major issues doesn't mean that they are trying to say you have those issues. Just because they show parents who have a hard time coping with them doesn't mean all parents have a hard time coping with them. Just because being able to detect autism in the womb would lead to some parents aborting because of that doesn't mean they are saying you shouldn't have been born. Just because some people realize that having autism is a pain in the ass and would be glad to take a cure that was available doesn't mean that people who don't want the cure shouldn't have accomodations.

You want people to respect your differences, and your rights and beliefs and thoughts, so how about extending that same courtesy to other people? Not everybody wants to go through life with the difficulties that autism causes. Not everybody has the opinion that it's some sort of "gift".


Thank you..eloquently expressed and quoted for truth...:)


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13 Jan 2014, 5:20 pm

ITT*: Autistic people argue vociferously in favor of ableism against autistic people and minimize difficulties autistic people face when they are not labeled "low functioning."




* In this topic.



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13 Jan 2014, 6:35 pm

Why don't they mention that there are many "high functioning" autistics who are still disabled, but maybe will live independently, contribute to society in many more ways than they already do, etc, but ONLY if their needs are acknowledged and accomodated so that they CAN be the most succesful [by each persons definition] autistic possible. There are already so many accommodations for what works best for NTs'. MAJOR accommodations. That is how this culture is set up. Why do our people not have access to many even minor accommodations?



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13 Jan 2014, 6:50 pm

Verdandi wrote:
ITT*: Autistic people argue vociferously in favor of ableism against autistic people and minimize difficulties autistic people face when they are not labeled "low functioning."




* In this topic.


Whats your definition of "ableism"? Autism Speaks promotes "ableism" because it shows the problems that some people have with it? Is that one lady CFOakly if I remember correctly, on YouTube, who puts up the videos of her grown son who has all those problems and has to be taken care of like a toddler promoting "ableism" by showing what it's like? I don't see her saying "He's got a GIFT! His ONLY problem is because the entire rest of society won't give him a job and girls aren't flocking to him and nobody comes over to hang out and vote him Homecoming King, and it's all because they are just discriminating against his differences!" Well, since she's showing how hard it is, since she talks matter of factly about it too, since she's not going around singing "I'm so glad he's autistic" then she must be, right? Must be promoting "ableism".

What about that one other chick on there? The one who gets on there with her rants about how cars driving up her street are discriminating against her and harassing her because she's autistic and the noise bothers her. Is she a victim of "ableism" because cars drive on her street? Is it "ableism" to suggest that if it were available, she could take a pill and the noise wouldn't bother her anymore? Or would it be much better to suggest that the people in her city totally avoid her street and walk everywhere instead, so they don't make noise?

What about people with phobias? Can they be victims of "ableism" as well? I'm sure they could, right? But, what if somebody had a phobia of people with another disability/illness/God-given-wonderful-gift, etc? Say somebody had a phobia of autistic people? Would that person be "ableist" or does this just not apply because both people have something wrong with them? My oldest son has a huge phobia of people who are albinos. Is he "ableist" or does he just have a phobia? Should he get treatment for that phobia? What if it's causing "ableism"? What if it's a GIFT?

Just because somebody doesn't agree with your point of view doesn't mean that their point of view is some sort of whatever type of "ism" you come up with and want to brand them with.


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13 Jan 2014, 9:11 pm

aghogday wrote:
ASPartOfMe wrote:
In the general world of politics negative advertising to pull heartstrings is the norm. While it is effective we are not a better country for it, to put it mildly. With charity fundraising in general and with charity fundraising related to diseases, disabilities etc only with cancer have I seen any marketing resembling this. I sure if you try hard enough you will find other examples but it is not the norm for successful charities.


Well friend..i only seek the truth..that does not mean i agree with the truth..always...

I do not like Ms. Wright's approach..as i am a person of details..and she did not describe the full spectrum in her report...the videos are in the past and per my philosophy that does resemble Zen Buddhism..i live in the NOW..IS ALL...So that is always a non-issue to me.

That's my REAL interest in life..the NOW..but what can i say..i am still autistic ..so it's hard to let go of this Autism Speaks Controversy for me..as it has been a special interest for about 3 years...

I don't think we have to look much farther that those dog commercials or those starving kids commercials..to see a greater attempt..at manipulating human emotion..those commercials have been around for decadeS now...

And OH YES..GOD YES.. many people have been emptying their pockets..and now by credit card..or even smartphone and texting...

As technology takes hold of heart strings also...

One of my hobbies too is attending different and unusual churches..in my local area that is an Extreme one for the business of religion...

IN attending what is described as a Pace Assembly of Church in my local area...

Their MO to gain donations now is mainly through texting...

And they have the congregation..raise their cell phones to the sky..when it's time to donate in church...

WELL..that kind of says it all..per donations..and the power of persuasion..in herd think...

I'm a maverick though..so herd think has never been my way..nEither 'there'..or 'here' my friend...

So I don't make many friends..except for what i understand as the truth..and a way of harmony with nature....

To experience bliss every moment of now...even when tHere might be an illusion of conflict in my words..

IT I
S ALL a path..

It's pretty obvious huh..that my communication meanders like a stream too...

IT'S ALL PART OF ONE..
THOUgh
ASonE


Other charities pull heartstrings of course. Those ads make starving kids and dogs the object of pity, and that empties peoples bank accounts. Outside of cancer they do not describe the persons or dogs condition or situation as an evil, predatory, entity. It does at least partially undo the good stuff they have done in regards to acceptance. Based on the misunderstanding, fear and ableism that exists in the general population towards autistics that type of characterization can do a lot of damage to the people they claim they want accepted. Starving children and most especially dogs are generally not feared.


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