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bleh12345
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02 May 2014, 5:56 pm

marshall wrote:
I think the fact that most are inclined to treat the problem of not showering due to severe sensory issues as something trivial is the problem. It might be that the benefit of increased self-esteem from smelling better makes washing worth it, even if it's extremely uncomfortable. But dismissing someone's issues as "silly" tends to kill any motivation to change.


Yes, I find that concerning. I don't have severe sensory problems, but I do have them. I can imagine a situation in which I had them severely. I don't think I could function that well. I already don't function well in a lot of situations, but I would be WAY worse. I have respect for people even bothering to complain in light of all the crap they get about it because they are bringing awareness to their problem.



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02 May 2014, 6:01 pm

Well I didn't read the whole thread, but after seeing some more specific examples given, like the showering thing, I can better understand where some of this is coming from.

A victim mentality is about feeling like you have no choice, or feeling like none of the choices you have are viable. It's not an Aspergers thing, it's just a human thing, because every human being alive is going to feel that way about some aspect of their life. And people often have very legitimate reasons to feel that way.

It's easy to give suggestions and point out the simple and obvious things that another person could do to change their situation. But if the other person found it just as easy to actually take those actions, they probably wouldn't be talking about their problems or asking for help to begin with.

Most of us are posting here because we have some kind of trouble functioning. Needless to say that does not get resolved just because a person decides to finally take a shower, or get a job or get out of the house, or whatever else has been suggested by well-meaning people, because the problem is more pervasive than that.

And years of living that way can take a toll. It can lead to depression or anxiety, or other issues that further limit the ability to function. You can't just "think" or "will" your way out of it because it is like getting stuck in a giant rat maze in your mind.

People ultimately have to find their own solutions. Our needs are individual and may change as time goes on. Some need therapy or chemical intervention. Some need support services. Some need emotional support from friends or family. Sometimes people need hope or encouragement, or someone to listen. Sometimes people need to vent and complain. Sometimes people just need to know that others have similar experiences. A lot of times people can't find exactly what they need so they are just making do with the best they can find.

Sometimes, people really do need lots of attention and sympathy! Far be it from me to begrudge it to them, or judge them for it. And it's none of my business to decide whether it's actually helping them or not, or if something else might help them more. It's not my place to figure out what other people need...especially not when it's someone on the internet that I've never met in person, that I am not qualified to diagnose or treat anyway.

I would be especially careful about trying to dispense tough love or criticism to people...again, especially over the internet. A careless, insensitive remark could do so much more damage than you realize.



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02 May 2014, 6:01 pm

bleh12345 wrote:
League_Girl wrote:
My mom who worked as a nurse also worked to maternity patients and she would have ones who were gaining too much weight and holding too much water so she would try and put them on a diet to help with their weight gain and water weight and they would come back for their next appointment and still doing the same mistake as before, eating how they were before she told them their diet plan. They would all say "it's too hard" and my mom would be thinking "Oh for god's sake" but she didn't say anything harsh because she is a professional and can't talk to her patients that way and putting them down no matter how foolish they are being or how lazy they are. She told me it's willpower and some people don't have that so they keep making their same mistakes over and over with diet. I suppose that can happen with diabetes too.



I just got tested for diabetes. Luckily, I'm healthy. However, I wanted to be tested because I have an eating disorder and binge on junk food. I understand the frustrations, but sometimes I literally don't have will power. It's a rather scary feeling, actually. Hell, sometimes I have woken up from sleeping with sugar in my hands, eating it while asleep. Sometimes, I literally scream "NO! I CANNOT EAT THIS!" and when I finally eat it, I do feel the chemical rush calming my anxiety and depression. I'm not sure people are all that dramatic with their eating habits, but man, I know how tough it can be to change them. I'm grateful for people like your mother not putting me down further. I already put myself down enough already. :s


Sometimes I get suicidal and don't have the willpower to keep myself from harming myself....so yeah I end up having to go to the ER, its not fun and there is always the chance I could end up in a bad psych ward and suffer mistreatment but its either that or I might cause a lot of harm to myself or death. There are people that will go on about how I should just get over it, how I just need to talk to someone and not go to the ER and waste resources and how I just need to wait it out because it gets better. What they don't understand is I don't have the self control when I am like that. So while certianly not the same thing as an eating related problem I sort of know how it feels to not have complete control of yourself and it's quite scary and being put down for it or blamed for it just makes it worse.


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Sweetleaf
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02 May 2014, 6:07 pm

marshall wrote:
bleh12345 wrote:
People with autism who don't shower may not smell like in the situation above. To act like all they need to do is simply shower, though. is silly. Those people do not simply have a victim complex. They have legitimate problems that you all are failing to recognize in an effort to reinforce your view that humans have more control over things than what they do. Oh, if only this person JUST showered or stopped complaining, right? I mean, it's so simple, this person obviously must be not doing this very easy task on purpose at this point. Why, it's so easy, that this MUST be the reason! If you call people out on this, they tend to begin to say things like "Well, I never said it was EASY. I recognize this person has legitimate problems. *Insert some story about how you overcame something even though it was hard. which is just another variation of 'If I can do it, you can do it.'"

I think the fact that most are inclined to treat the problem of not showering due to severe sensory issues as something trivial is the problem. It might be that the benefit of increased self-esteem from smelling better makes washing worth it, even if it's extremely uncomfortable. But dismissing someone's issues as "silly" tends to kill any motivation to change.


I remember as a child when I mentioned my sensory issues people where quick to tell me to shut up and stop complaining because its not that bad. Maybe to them a light that's too bright for me wasn't that bad but for me it would cause my eyes to hurt and give me a headache.


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02 May 2014, 6:10 pm

kraftiekortie wrote:
I guess I flew off the handle a little bit.

There was an implication that my contributions were "substandard" in some way and not "up to snuff" because they were not presented in an "intellectual" or "academic" fashion.

I felt offended. I shouldn't have. My job, really, is to increase the quality of my contributions.

I felt myself the Victim here--and that was wrong.

Please accept my apologies.


I didn't intend to imply anything like that, to you or anyone else.



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02 May 2014, 6:11 pm

I have seen people dismiss sensory issues multiple times on this forum.

Saying that it's easy to just "push through the pain/discomfort" or saying that one has to deal with the sensory overload because of reasons. It's yet another way difficulties are often trivialized here.

Reminds me of this guy who told me that all one has to do to deal with anxiety is willpower through it. And, er, no. That doesn't work.



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02 May 2014, 6:12 pm

dianthus wrote:
kraftiekortie wrote:
I guess I flew off the handle a little bit.

There was an implication that my contributions were "substandard" in some way and not "up to snuff" because they were not presented in an "intellectual" or "academic" fashion.

I felt offended. I shouldn't have. My job, really, is to increase the quality of my contributions.

I felt myself the Victim here--and that was wrong.

Please accept my apologies.


I didn't intend to imply anything like that, to you or anyone else.


I thought that was a response to littlebee's comments.



bleh12345
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02 May 2014, 6:12 pm

dianthus wrote:
Well I didn't read the whole thread, but after seeing some more specific examples given, like the showering thing, I can better understand where some of this is coming from.

A victim mentality is about feeling like you have no choice, or feeling like none of the choices you have are viable. It's not an Aspergers thing, it's just a human thing, because every human being alive is going to feel that way about some aspect of their life. And people often have very legitimate reasons to feel that way.

It's easy to give suggestions and point out the simple and obvious things that another person could do to change their situation. But if the other person found it just as easy to actually take those actions, they probably wouldn't be talking about their problems or asking for help to begin with.

Most of us are posting here because we have some kind of trouble functioning. Needless to say that does not get resolved just because a person decides to finally take a shower, or get a job or get out of the house, or whatever else has been suggested by well-meaning people, because the problem is more pervasive than that.

And years of living that way can take a toll. It can lead to depression or anxiety, or other issues that further limit the ability to function. You can't just "think" or "will" your way out of it because it is like getting stuck in a giant rat maze in your mind.

People ultimately have to find their own solutions. Our needs are individual and may change as time goes on. Some need therapy or chemical intervention. Some need support services. Some need emotional support from friends or family. Sometimes people need hope or encouragement, or someone to listen. Sometimes people need to vent and complain. Sometimes people just need to know that others have similar experiences. A lot of times people can't find exactly what they need so they are just making do with the best they can find.

Sometimes, people really do need lots of attention and sympathy! Far be it from me to begrudge it to them, or judge them for it. And it's none of my business to decide whether it's actually helping them or not, or if something else might help them more. It's not my place to figure out what other people need...especially not when it's someone on the internet that I've never met in person, that I am not qualified to diagnose or treat anyway.

I would be especially careful about trying to dispense tough love or criticism to people...again, especially over the internet. A careless, insensitive remark could do so much more damage than you realize.


*STAND UP APPLAUSE* I highly doubt this is just in the USA, but our society tends to favor those who boot-strap their way out of a situation and look down upon receiving sympathy as one of the worst things you can accept from another person. You are supposed to do everything on your own, have the strength to do this, and never complain. If you do complain, people insist wanting any sort of sympathy or, god forbid, empathy, is "wallowing" in your own problems.



Sweetleaf, I understand. I, too, have issues with self harm. I always tell people "Well, gee, I've never considered trying to "just stop it". What a revelation! If ONLY I was THAT intelligent to try that FIRST! I've wasted years of my life being miserable when all I had to do was take your advice! I will promptly "get over myself" and snap my fingers to be magically better! After all, it's only about how badly you want to get better. Obviously, if I'm not better by now, I'm willfully choosing not to help myself. I'm not REALLY working hard, or even trying at all, if I'm making absolutely no progress. Why don't all humans just not suffer?"

The sarcasm is usually taken as more of me "not trying"... :roll:



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02 May 2014, 6:13 pm

Verdandi wrote:
I have seen people dismiss sensory issues multiple times on this forum.

Saying that it's easy to just "push through the pain/discomfort" or saying that one has to deal with the sensory overload because of reasons. It's yet another way difficulties are often trivialized here.

Reminds me of this guy who told me that all one has to do to deal with anxiety is willpower through it. And, er, no. That doesn't work.


It can work for natural anxiety, like first time I finally convinced myself to get on a roller coaster in that case yes pushing through it was a good thing since I had fun. However people don't seem to understand having an anxiety disorder is not the same thing as feeling anxious sometimes which happens to everyone.


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02 May 2014, 6:14 pm

Verdandi wrote:
I have seen people dismiss sensory issues multiple times on this forum.

Saying that it's easy to just "push through the pain/discomfort" or saying that one has to deal with the sensory overload because of reasons. It's yet another way difficulties are often trivialized here.

Reminds me of this guy who told me that all one has to do to deal with anxiety is willpower through it. And, er, no. That doesn't work.


Why aren't all of us anxious people as smart as this wonderful gift to humanity? I can't believe we NEVER tried to willpower through it! Why are we so dumb? :roll:

Sorry. If you guys can't tell, I can only do sarcasm if it's painfully obvious. :lol:



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02 May 2014, 6:18 pm

I often apply willpower to deal with sensory issues.
Like shopping for groceries or attending a meeting.
I hate those activities, and I get sensory overload from them, but I have to do them and deal with them.
I have various ways to deal with things that cause me problems and the consequences of going ahead and doing these things, but the doing these things is usually not optional for me, if I want to be independent and do what I want to do in life.


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02 May 2014, 6:30 pm

I'm deemed "mild" AS, which still seems in dispute as to definition, but I've had life-long "social problems" along such lines.

Re bullying, from pre-K to 12th grade, only the 7th grade was bully free. I'm intorvert and HSP too. In combination, I think that makes me a target -is being an antelope before a hungry lion a victim over-identification problem?

Here's the thing I want to ask you all who may know/relate. Have you experienced the effects of gaslighting, or character assassination, or severe ostracisicm or any much of such pyschopathy? One person on WP had said that was also a problem in her life with her brother. I've been experiencing this for long with my family. I'm in counseling over it all and can prove such actually happened to me by names, dates, places, witnesses, etc., but that doesn't matter. The counselor attributes it all to me (I've hardly spent 3 hours w/her and she's 1/2 my age with only a BA.)

So, while it is reported here by others that Aspies can be targeted for their naivatie, social awarkwardness, etc., and are prone to being bullied, does all such mean everything is our fault and we seek victim sympathy when we're undeservedly taken advantage of & accused? I mean, was Ingrid Bergman at fault in that "Gas Light" movie or was it her husband? Was Ingrid just seeking sympathy and feeling sorry for herself? Or, did she actually need help against her predator?

I'm poor now and have trouble finding work. My siblings benefited by taking advantage of me to the tune of $1m. Just one fraud of theirs, which I have the documents to prove would have me with $232k in the bank. I'm about near homeless and ill and others are saying it's "all my fault". I just want some justice recognition, not victim sympathy. Plus, I'd like some input on any experiences you may have had re this and any helpful advice on dealing with/recovering from such.

"Avoid the wicked" has been my motto, but that gets harder and now it's a bit late. Thanks for any comments



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02 May 2014, 6:56 pm

Sweetleaf wrote:
marshall wrote:
bleh12345 wrote:
People with autism who don't shower may not smell like in the situation above. To act like all they need to do is simply shower, though. is silly. Those people do not simply have a victim complex. They have legitimate problems that you all are failing to recognize in an effort to reinforce your view that humans have more control over things than what they do. Oh, if only this person JUST showered or stopped complaining, right? I mean, it's so simple, this person obviously must be not doing this very easy task on purpose at this point. Why, it's so easy, that this MUST be the reason! If you call people out on this, they tend to begin to say things like "Well, I never said it was EASY. I recognize this person has legitimate problems. *Insert some story about how you overcame something even though it was hard. which is just another variation of 'If I can do it, you can do it.'"

I think the fact that most are inclined to treat the problem of not showering due to severe sensory issues as something trivial is the problem. It might be that the benefit of increased self-esteem from smelling better makes washing worth it, even if it's extremely uncomfortable. But dismissing someone's issues as "silly" tends to kill any motivation to change.


I remember as a child when I mentioned my sensory issues people where quick to tell me to shut up and stop complaining because its not that bad. Maybe to them a light that's too bright for me wasn't that bad but for me it would cause my eyes to hurt and give me a headache.


THIS! It's always been my experience that people simply DO NOT LISTEN. They simply refuse to take your suffering seriously. I don't have serious sensory issues now, but I did when I was a small child and people DID NOT GET IT. They didn't acknowledge how sensitive I was until I got violent, and then they would punish me for that. When you're a kid you don't know how to communicate your needs in a way that gets taken seriously. That's why I have problems with anger as an adult. I'm almost sure of it. I have a hard time trusting people. I don't trust people to respect my limits.



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02 May 2014, 7:03 pm

marshall wrote:
Sweetleaf wrote:
marshall wrote:
bleh12345 wrote:
People with autism who don't shower may not smell like in the situation above. To act like all they need to do is simply shower, though. is silly. Those people do not simply have a victim complex. They have legitimate problems that you all are failing to recognize in an effort to reinforce your view that humans have more control over things than what they do. Oh, if only this person JUST showered or stopped complaining, right? I mean, it's so simple, this person obviously must be not doing this very easy task on purpose at this point. Why, it's so easy, that this MUST be the reason! If you call people out on this, they tend to begin to say things like "Well, I never said it was EASY. I recognize this person has legitimate problems. *Insert some story about how you overcame something even though it was hard. which is just another variation of 'If I can do it, you can do it.'"

I think the fact that most are inclined to treat the problem of not showering due to severe sensory issues as something trivial is the problem. It might be that the benefit of increased self-esteem from smelling better makes washing worth it, even if it's extremely uncomfortable. But dismissing someone's issues as "silly" tends to kill any motivation to change.


I remember as a child when I mentioned my sensory issues people where quick to tell me to shut up and stop complaining because its not that bad. Maybe to them a light that's too bright for me wasn't that bad but for me it would cause my eyes to hurt and give me a headache.


THIS! It's always been my experience that people simply DO NOT LISTEN. They simply refuse to take your suffering seriously. I don't have serious sensory issues now, but I did when I was a small child and people DID NOT GET IT. They didn't acknowledge how sensitive I was until I got violent, and then they would punish me for that. When you're a kid you don't know how to communicate your needs in a way that gets taken seriously. That's why I have problems with anger as an adult. I'm almost sure of it. I have a hard time trusting people. I don't trust people to respect my limits.


See that could be a major reason I have a hard time trusting people, never quite thought of it like that....but that could be a very big part of it. I don't trust anyone to take me seriously, I don't take myself seriously and it contributes a lot to my low self esteem I think. I am not so sure I currently have severe sensory issues but I certainly have noticable sensory issues....bright light still hurts my eyes and makes my head hurt. But as an adult I can simply turn off the light, go to another room if people in there need the light and things like that. People still wonder how i can read in the 'dark' lol but to me rather dim light is not dark and bright light has a tendency to reflect off the white pages causing too much contrast so it actually makes it harder for me to read.


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02 May 2014, 7:07 pm

I'm giving up here.
Clearly you need to state every single tiny thing or risk getting blown up with paragraphs.

I'm not here to argue the genetics of diabetes. The point was, if it's not the genetic type (which it wasn't, it was the one that develops due to diet), how the hell is it the doctors fault? Sweet Leaf you seem to just be wanting a fight now, as opposed to address the actual issue.

Thanks to those who actually *GET* what I mean.



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02 May 2014, 7:12 pm

Verdandi wrote:
Taking the food industry into account in terms of packaging, ingredients, convenience, price etc. makes far too much sense. It's so much more reasonable to judge people as if their choices are unrestricted and free and they're just choosing poorly /sarcasm

That's meant as more general frustration about that particular topic.


Please. You don't need to spend a lot of money to eat properly. If you want another argument, open a new thread.