Lived Self-Diagnosed, then Confirmed not to have AS

Page 3 of 7 [ 105 posts ]  Go to page Previous  1, 2, 3, 4, 5, 6, 7  Next

Prosser
Veteran
Veteran

User avatar

Joined: 9 Nov 2008
Age: 33
Gender: Male
Posts: 941
Location: Perth, Westen Australia

09 Feb 2010, 3:33 am

bdhkhsfgk wrote:
Don't come and say you have Aspergers unless you have been diagnosed.


... :?


Also Broox, it sounds to me like you do not have AS. The opinion of 3 professionals is unlikely to be incorrect. Nevertheless, welcome to WP.


_________________
I wandered though the weird and lurid landscape of another planet.


pat2rome
Veteran
Veteran

User avatar

Joined: 29 Jun 2009
Age: 35
Gender: Male
Posts: 1,819
Location: Georgia

09 Feb 2010, 3:43 am

Prosser wrote:
bdhkhsfgk wrote:
Don't come and say you have Aspergers unless you have been diagnosed.


... :?


Also Broox, it sounds to me like you do not have AS. The opinion of 3 professionals is unlikely to be incorrect. Nevertheless, welcome to WP.


Wait, three professionals? My reading skills seem to tank late at night; I thought it was just one.

Disregard my advice of going to a testing center, then.


_________________
I'm never gonna dance again, Aspie feet have got no rhythm.


Prosser
Veteran
Veteran

User avatar

Joined: 9 Nov 2008
Age: 33
Gender: Male
Posts: 941
Location: Perth, Westen Australia

09 Feb 2010, 3:53 am

pat2rome wrote:
Wait, three professionals? My reading skills seem to tank late at night; I thought it was just one.

Disregard my advice of going to a testing center, then.


BrooxBroox wrote:
Finally, after constantly being told by parents of ASD kids and Aspies themselves that I should have an official diagnosis, I went for one to a psychologist who worked with "kids" with AS. She said "kids", so I don't know if she meant children, adolescents, or adults, or what. But anyway, she completely ruled out AS and said I most certainly did not have it. She said I read body language, made eye contact too well, and communicated what I was feeling too well to even be on the high end of the autism spectrum. Instead of AS, I was just diagnosed with Generalized Anxiety Disorder and put on Lexapro, and the medicine REALLY did help me function better.

I was not satisfied with my psychologists' opinion, however, and went to another. It was a male this time. He also evaluated me and said he did not think I had AS, and that if I did have it, it was too mild and high functioning to be considered on the spectrum. I argued that I met more than enough diagnostic criteria for it, but he refuted that if you bring out the DSM and just go through it, you will find you fit the diagnostic "criteria" for MANY disorders, but it doesn't necessarily mean that you have them and that if all one had to do to "have a disorder" was "meet criteria" every single person in the world would have multiple mental disorders.

BrooxBroox wrote:
Also... I had a special ed teacher (who deals with both AS and Classic Autism) say that I would be one of the last people she would think would have AS.


;)


_________________
I wandered though the weird and lurid landscape of another planet.


MizLiz
Veteran
Veteran

User avatar

Joined: 7 Nov 2008
Age: 39
Gender: Female
Posts: 890
Location: USA

09 Feb 2010, 4:29 am

First of all, that's a great career path you've chosen. The world needs more people in that field (and I'm not just saying this as an epileptic aspie).

Now, about the diagnosis.

You may have to fight for it. I had to fight for mine. I saw a psychiatrist who told me I was perfectly normal (? Really? Really, now). Then I find out that psychiatrists will pretty much always deny the existence of crap they can't dope you up to treat. Then I saw a psychologist for some other stuff that didn't have to do with autism. I figured I might try for a diagnosis while I was at it. Her response? She didn't know anything about autism in adults (this... is actually fairly common, I've heard. Even so-called professionals see autism spectrum disorders as childhood things). I finally found a neuropsychologist and a neurologist who listened to me and made the diagnosis.

I blame my delay on being in my 20s (because only three year olds are autistic *eye roll*) and female (because that's SUCH a guy thing *eyeroll*)

Get a second opinion. Good luck.

EDIT: Nevermind. I didn't realize that you had gotten several opinions already. Hm.

That thing about the DSM is pretty much true. It's called the Forer Effect. It also works with horoscopes.



League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,299
Location: Pacific Northwest

09 Feb 2010, 4:57 am

Wow that must have been hard and embarrassing. That's one of the reasons why I am not fond of self diagnoses. It does sound like you have traits but not enough to have it. I know I have it because I have the diagnoses.



scorpileo
Veteran
Veteran

User avatar

Joined: 22 Mar 2009
Age: 33
Gender: Male
Posts: 764
Location: cornwall uk

09 Feb 2010, 5:42 am

ive had alot of bad expirence with 'the experts' not just me but with my LFA sister aswell it is obvious that she has autism. yet they say theres no reason for her to be like she is and that her problems are cuased by lack of care when she was young.. shes been diagnosed with 'global delay'.

back to me.. it was clear from a young age (in hindsight)) that i have AS but they just blames it all on my past.. even though there is a history of autism in my family.. my grandmother.. her sister and my cousin aswell as myself and my sister..

so DON'T take every 'expert's' opinion as fact... they can and will get it wrong.


_________________
existence is your only oblitgation
Quietly fighting for the greater good.


Last edited by scorpileo on 09 Feb 2010, 5:48 am, edited 1 time in total.

Avarice
Veteran
Veteran

User avatar

Joined: 5 Oct 2009
Age: 32
Gender: Male
Posts: 1,067

09 Feb 2010, 5:46 am

BrooxBroox wrote:
Hi,
I just joined yesterday, so many of you may not be familiar with me.

I'm an 18-yr-old pre-med college student and plan on being a neurologist or neuropsychiatrist as a career and I want to specialize in autism as well as seizure disorders.

Anyway, I had always felt a bit different my entire life, like I didn't belong. I was always described as quiet and shy, never had many friends growing up, felt anxious a lot, was very strict and routine about everything, slightly self-injurious, and was "particular" about everything.

Well, when I was 14, I came across Asperger's on the internet and was like "Wow! This really sounds like me!" I began reading about it, buying books, watching documentaries, videos, researching it, etc and I was convinced that I had it. It sounded a lot like me in many ways. I became convinced that I had AS, especially since I read some autobiographies and could relate to the people with it in many ways. I was so sure I had it that I even began declaring that I had AS to teachers, friends, and family members. I even joined many myspace groups for Aspies and such. I even joined the "anti-cure movement" so to speak. Finally, after constantly being told by parents of ASD kids and Aspies themselves that I should have an official diagnosis, I went for one to a psychologist who worked with "kids" with AS. She said "kids", so I don't know if she meant children, adolescents, or adults, or what. But anyway, she completely ruled out AS and said I most certainly did not have it. She said I read body language, made eye contact too well, and communicated what I was feeling too well to even be on the high end of the autism spectrum. Instead of AS, I was just diagnosed with Generalized Anxiety Disorder and put on Lexapro, and the medicine REALLY did help me function better.

I have to admit, I was literally crushed that she told me I did NOT have Asperger's. Because I was so certain I had it that I had told others and become active in and accepted by the AS community quite well. It was so embarrassing to have to go back to my Aspie myspace groups, admit that it turns out I did not have the disorder. And they weren't supportive of that. Some of those groups have several hundred or even a few thousand members, and I was getting criticised so badly that I had to delete my myspace account and start a new one. Aspies were calling me "fake" and parents of ASD kids were saying that I needed to take back all of my "anti-The Cure" mess since I was not autistic.

I was not satisfied with my psychologists' opinion, however, and went to another. It was a male this time. He also evaluated me and said he did not think I had AS, and that if I did have it, it was too mild and high functioning to be considered on the spectrum. I argued that I met more than enough diagnostic criteria for it, but he refuted that if you bring out the DSM and just go through it, you will find you fit the diagnostic "criteria" for MANY disorders, but it doesn't necessarily mean that you have them and that if all one had to do to "have a disorder" was "meet criteria" every single person in the world would have multiple mental disorders.

So my story got me to thinking, is self-diagnosis really that accurate?

From what I have researched, lots of Aspies say you know yourself best, so only you can know if you have AS/autism, but at the same time, what if you feel with every drop of your being that you have it, but get evaluated by professionals, who both say there's no way you have it?

Anyway, the reason I am here is not necessarily because I am an Aspie/Aspergerian (not sure of the preferred term) but because I do have *some" AS characteristics, (but apparently not enough for a DX) and I am an autism researcher/ student looking to interact with people from the spectrum and see how HFA and AS have affected your life. :)


It's certainly possible, I'm self-diagnosed actually. But nowhere near as invovled with the Autism community as you were. I can accept that I might not have it. The medicine making you feel better is probably the medicine, not anything to do with a disorder. But yes, diagnostic criteria is generally applicable to many, many things.

I think that I have Aspergers, though to be honest, I would rather not have it. It would be embarassing to come here and say that I was wrong, but I would prefer it to a lifetime of social issues, oversensitivity and stimming. When I first heard of AS I loved it, I thought "I found me, and I love being this way!" I think most people think AS is some really cool thing to have when they first notice it.

No. AS is a disability, and while I don't think a cure is always the best solution, I wouldn't mind one. How nice it would be to look someone straight in the eye and shake their hand the way most people do everyday.

When it comes down to it, I suffer from symptoms, these symptoms match up with As, so I stay here because I can get help from people who suffer from similar problems. I don't give a s*** about official diagnosis anymore. Just the problems that I have and that others have. Not labels, not debates. Not arguments. Just problems. Whether I have As is irrelevant.



zena4
Veteran
Veteran

User avatar

Joined: 30 Jan 2009
Age: 64
Gender: Female
Posts: 6,054

09 Feb 2010, 7:18 am

To BrooxBroox,

Congratulations on your project and best wishes in your studies.
They're not the easiest ones.
We all need people like you and it was courageous to present yourself as you did.



pat2rome
Veteran
Veteran

User avatar

Joined: 29 Jun 2009
Age: 35
Gender: Male
Posts: 1,819
Location: Georgia

09 Feb 2010, 7:20 am

scorpileo wrote:
ive had alot of bad expirence with 'the experts' not just me but with my LFA sister aswell it is obvious that she has autism. yet they say theres no reason for her to be like she is and that her problems are cuased by lack of care when she was young.. shes been diagnosed with 'global delay'.


.....seriously? The old "refrigerator mother" crock? Wow. That just blows my mind.


_________________
I'm never gonna dance again, Aspie feet have got no rhythm.


Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 42
Gender: Female
Posts: 10,775
Location: Ohio, USA

09 Feb 2010, 7:25 am

Inventor wrote:
Close enough. While it takes impairments in three criteria to make a legit Dx, impairments in only two, throw that fish back.

That is three out of a dozen, so there are a lot of people with impairments in one or two who are nothing? I have been using the term, Half-Aspies.

The sub clinical where no trait reaches impairment, are just called Geeks, but have a lot of the same problem areas. This BAP, Broader Autism Phenotype, amounts to 10% of the population. The problems are just as real.

The DX is a statment of legal disability. Your function sounds higher than that.

It is very easy to be autistic and not meet the DSM, for the same reason that it was considered a condition of childhood, with no adult examples, children grow up and learn to cope.

We do learn, but at 40, that RDOS test will still spot the person beneath the social mask.

So welcome to WP.
re. your first group, with not enough symptoms: In fact, if these traits cause impairment, Asperger's is not a possibility, but PDD-NOS is. Quite a few of those PDD-NOS cases are people who don't quite fit criteria for Asperger's, along with the people vaguely in between AS and autism, the people who are too young to tell or too old to take childhood history from, the people with so many complicating factors that you can't tell which is which... PDD-NOS is the largest part of the spectrum.

That said, if the OP doesn't have any impairment specifically from autistic symptoms, he can't be given a formal diagnosis. That doesn't stop him from participating in autistic culture any more than it stops your average joe from learning ASL and participating in Deaf culture (as, apparently, many parents of Deaf children, and people with auditory processing disorder, do).


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


BrooxBroox
Blue Jay
Blue Jay

User avatar

Joined: 6 Feb 2010
Age: 37
Gender: Female
Posts: 87

09 Feb 2010, 9:42 am

Thanks for all the responses. It's good to see what kind of feedback I can get.

And just to clarify for everyone, I am a female. :lol: I noticed that I was being referred to as "he" a lot and just wanted to make it clear, not that it really matters, though.

bdhkhsfgk wrote:

I didn't mean to offend; I would never tell all my friends, family and teachers that I have AS unless I've really been diagnosed with it, it's not something you can guess.


Actually you would not believe how many self-diagnosed people are in those groups. There were literally hundreds of people who would be like "I read about this and it sounds just like me. I have AS." There were also lots of psychology students who would study autism, find out about AS, and deem themselves as being on the spectrum. Whether or not these people told their friends, teachers, etc, I have no idea. But I guess I felt that since I was so sure about having it, I felt like I could definitely be "officially" diagnosed. On top of that, there were so many people in those communities being accepted so well by Aspies and HFA by claiming self-dx that I didn't see anything wrong with it.

BTW, no offense taken at all.



Last edited by BrooxBroox on 09 Feb 2010, 9:53 am, edited 1 time in total.

scorpileo
Veteran
Veteran

User avatar

Joined: 22 Mar 2009
Age: 33
Gender: Male
Posts: 764
Location: cornwall uk

09 Feb 2010, 9:51 am

pat2rome wrote:
scorpileo wrote:
ive had alot of bad expirence with 'the experts' not just me but with my LFA sister aswell it is obvious that she has autism. yet they say theres no reason for her to be like she is and that her problems are cuased by lack of care when she was young.. shes been diagnosed with 'global delay'.


.....seriously? The old "refrigerator mother" crock? Wow. That just blows my mind.


indeed, it has stopped me having any trust in them at all.


_________________
existence is your only oblitgation
Quietly fighting for the greater good.


zer0netgain
Veteran
Veteran

User avatar

Joined: 2 Mar 2009
Age: 57
Gender: Male
Posts: 6,613

09 Feb 2010, 11:35 am

It's also possible your doctor got it wrong.

AS is often mis-diagnosed by "experts" and the focus on adult AS is almost non-existent in many areas.

Even before you reach 18, you have learned to adapt in many ways, and if your AS is mild enough, it's just enough to be a problem but nothing too major that makes it easy to spot.

You cannot use the criteria for Dxing AS in children and apply it to adults with AS. Children lack the coping and adaptation skills to conceal their symptoms. If you make it to adulthood without being diagnosed with AS, odds are you are very much HFA and have learned to mimic "normal" conduct and conceal abnormal conduct.

I'm self-diagnosed at this point. Can't find anyone who can diagnose AS in adults anywhere near me...never mind the cost.

Problem is that ever since I learned about AS, I've been empowered to better cope and adapt with the symptoms. I suspect in a few years, an "expert" would never say I have AS because I've gotten much better at dealing with it. However, if that same expert watched me interact from a distance to see how I normally am when I'm not trying to compensate, they might get a very different image of my condition.



angelbear
Veteran
Veteran

User avatar

Joined: 11 Sep 2009
Gender: Female
Posts: 1,219

09 Feb 2010, 12:17 pm

Maybe you are very mild and it will give you more insight into the field of work that you are choosing to pursue. There is definitely a need for it with the large increase in cases in the last 10 years!



ursaminor
Veteran
Veteran

User avatar

Joined: 20 Nov 2009
Age: 159
Gender: Male
Posts: 936
Location: Leiden, Netherlands

09 Feb 2010, 12:29 pm

scorpileo wrote:
shes been diagnosed with 'global delay'.
Global delay sounds like another name for PDD.



scorpileo
Veteran
Veteran

User avatar

Joined: 22 Mar 2009
Age: 33
Gender: Male
Posts: 764
Location: cornwall uk

09 Feb 2010, 12:31 pm

ursaminor wrote:
scorpileo wrote:
shes been diagnosed with 'global delay'.
Global delay sounds like another name for PDD.


no, it isn't a PDD. It means that she is delayed in all areas.. the reason for that is unexplained. well as i said it has been blamed on bad parenting.. but that was 5 years ago and she has hardly changed.


_________________
existence is your only oblitgation
Quietly fighting for the greater good.


Last edited by scorpileo on 09 Feb 2010, 1:52 pm, edited 1 time in total.