Why is Aspergers on the spectrum?
blondeambition wrote:
A big part of me wonders how many LFA kids could be HFA kids but for poverty or inadequate education.
Great question. Sadly, it seems that more people are of a mind to let the impaired stay on the margins of society. It costs too much to keep then within so they push them out.
graywyvern wrote:
i would just like to point out something that seems to me is not often enough examined: by employing the LINEAR concept of "low"--"high" we are obviating the palpable impact of circumstances & surroundings--indeed, i believe these are greater determinants of response than one's place on the "spectrum".
when my wife & i are with people i don't know, i notice she apologizes for me not saying much (or anything) & says, "he does talk"; when i am with people i trust & know well i can be actually quite verbose. likewise for spaces that are comfortable (close, familiar, not intensely loud or bright)--things i know about & can to some degree compensate for, but it takes an effort (occasionally an extreme effort) to overcome--versus, say, WalMart, an amusement park, or airports.
having a clear purpose, like a thread in the labyrinth.
and the whole sequence is important also. if i have had to drive in heavy traffic for an hour, even reaching a comfortable destination doesn't do me much good at first, & for some time thereafter.
i learned to travel early to the site of job interviews, & wait leisurely at a separate location to calm down. or the thought of having to leave on a similar journey, at a preordained time: this also jangles.
so you see that tests performed in a "lab" environment, travelled to from home, in themselves create a distortion-effect that is not considered part of the result.
i believe most people with whatever degree of aut-spectrum impairment could function in a society that granted them the possibility of secure spaces wherever they went, & peaceful transit thereto; even those whose are practically nonverbal.
but this is too utopian. it would be enough, just to take away the BLAME.
m.
when my wife & i are with people i don't know, i notice she apologizes for me not saying much (or anything) & says, "he does talk"; when i am with people i trust & know well i can be actually quite verbose. likewise for spaces that are comfortable (close, familiar, not intensely loud or bright)--things i know about & can to some degree compensate for, but it takes an effort (occasionally an extreme effort) to overcome--versus, say, WalMart, an amusement park, or airports.
having a clear purpose, like a thread in the labyrinth.
and the whole sequence is important also. if i have had to drive in heavy traffic for an hour, even reaching a comfortable destination doesn't do me much good at first, & for some time thereafter.
i learned to travel early to the site of job interviews, & wait leisurely at a separate location to calm down. or the thought of having to leave on a similar journey, at a preordained time: this also jangles.
so you see that tests performed in a "lab" environment, travelled to from home, in themselves create a distortion-effect that is not considered part of the result.
i believe most people with whatever degree of aut-spectrum impairment could function in a society that granted them the possibility of secure spaces wherever they went, & peaceful transit thereto; even those whose are practically nonverbal.
but this is too utopian. it would be enough, just to take away the BLAME.
m.
great point...I would hope more solutions are on the way but I have no idea- we're certainly no utopian...on any part of the earth.
I wonder....mayb this is a good new topic...maybe already been discussed- where is the best place for someone with autism to live?
_________________
“It is better to offer no excuse than a bad one.”
― George Washington
PangeLingua wrote:
Ok, thanks. yeah, I wasn't trying to be annoying, I was just confused. Yeah, I think it was Tony Attwood who said that HFA is supposed to take precedence over AS even in the absence of a speech delay, but that in practice most clinicians do the opposite.
the main differences between aspergers and classic autism is the communication category of the diagnostic criteria that is found in classic but not in aspergers, and that aspergers requires no cognitive impairment. a huge number of people, diagnostic professionals included, erroneously assume that no speech delay = aspergers, or even no cognitive impairment = aspergers. that is defiitely not true. classic autistics can be average or above average in cognitive ability and can also have near or normal general speech development. in the communication category, there are 3 other criteria besides speech delay that would fulfill that requirement and those are 1) impairment in the ability to initiate or sustain conversation, 2) stereotyped and repetitive use of language or idiosyncratic language, or 3) lack of varied, spontaneous make-believe play or social imitative play.
i completely agree that a lot of people are misdiagnosed aspergers, my son is one of them. i believe his diagnosis was wrong because of those previously mentioned assumptions. his IQ tests in the superior range and his speech was slightly delayed but not "significantly", so he was classified as aspergers. the truth tho is that he fulfills all 3 of the other communication criteria, and therefore should be diagnosed autistic disorder.
one other big difference between the two, and probably the most overlooked diagnostic criteria for people being misdiagnosed, is that the final criteria in aspergers is that the patient does not meet the criteria for any other pdd. so its not really a precedence issue, but rather if a person fulfills the diagnostic criteria for autistic disorder, they therefore CANNOT fulfill the criteria for aspergers.
i also think sometimes the misdiagnosis is purposeful, as many care providers look more favorably on the diagnosis of aspergers than of classic autism, especially since there is no distinction in the diagnosis of functioning level. aspergers is seen as "mild" and therefore better to have than classic autism. thats not true either, but its often what we hear from medical and school personnel.
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Neurotypically confused.
partner to: D - 40 yrs med dx classic autism
mother to 3 sons:
K - 6 yrs med/school dx classic autism
C - 8 yrs NT
N - 15 yrs school dx AS
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