Magazine article about Temple Grandin

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nostromo
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04 Apr 2011, 7:46 pm

Interesting because our boy is not talking at 4.5yrs (used to have a few words) so is classified Autistic, but the lead Peadiatrician who DXed him said he might move up to the category of Aspergers if he develops language and higher skills in the future.
I guess thats technically not correct if you go by the DSM (but then we're not in the USA here).



jmnixon95
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04 Apr 2011, 7:51 pm

Poke wrote:
jmnixon95 wrote:
I wasn't even talking to you, so I'm just going to leave it at that. If you don't detect it, you don't detect it.


LOL--I wasn't even talking to you...


It's true. It wasn't in reply to you, was it?

Poke wrote:
Your understanding of autism/Asperger's is obviously crude and superficial.


Who are you to judge? :roll:
Rude.



anbuend
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04 Apr 2011, 9:03 pm

Verdandi wrote:
I don't dislike her, myself. Just some things she's said annoys me (like the slob comment in the quoted interview, but there are other things as well).

There are other things that annoy me that I would not actually say have to do directly with her, such has how the media frames her as an autistic spokesperson and how her views seem to get propagated a bit more widely than other autistic people. That is, her views should be out there, I am not saying otherwise. Just that there are other takes, some with more nuance, that are not nearly so well known.


^ All of that and more.

1. Don't dislike her.

2. Do get annoyed by her. The slob stuff is the least of it.

3. Do get annoyed by things she can't help, and that I can understand some from the other side because in a more limited way I've watched people twist my story in ways I have no control over at all (including the media) and then being held responsible for that is just a terrible thing to do to anyone because you can talk your head off to the media about who you really are and they'll still turn you into who they want your story to be. And then you get people going all fanboy/fangirl on you, which is creepy, and then you get people thinking you just wanted the attention or that you created all these stories that circulate about you, and eventually who you are has been lost. Meanwhile you're held responsible for things that are like... practically every autistic person does them but when a high-profile person does them then they're not allowed as much leeway as the average person gets. (Which I didn't understand until it happened to me.)


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wblastyn
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04 Apr 2011, 9:05 pm

Honestly, some people are never happy. They moan and complain about how awful organisations like Autism Speaks are, because they view autism as a terrible disease. Then when someone comes along, who actually advocates for the autistic community, they still moan and complain, because they disagree with some of her views, or she doesn't say "Asperger's Syndome" correctly. Good grief, catch a grip. :x

If your not happy with how she does things how about you go out and advocate for autism instead?



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04 Apr 2011, 9:20 pm

Personally, I do go out and advocate (that's how I have enough experience not to blame her for the fact that the media distorts who she is and all the fanboy/fangirl types treat her like she can do no wrong... in a more limited way, I've been there). But then I also don't fall into the category you describe -- what I'm annoyed by that she does isn't trivial, and I don't discount the advocacy work she has done just because I don't like some of what she's done. In other words, my perspective is more nuanced than a soundbite.


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Verdandi
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04 Apr 2011, 9:28 pm

anbuend wrote:
Personally, I do go out and advocate (that's how I have enough experience not to blame her for the fact that the media distorts who she is and all the fanboy/fangirl types treat her like she can do no wrong... in a more limited way, I've been there). But then I also don't fall into the category you describe -- what I'm annoyed by that she does isn't trivial, and I don't discount the advocacy work she has done just because I don't like some of what she's done. In other words, my perspective is more nuanced than a soundbite.


^ This. She's done some good work, and I wouldn't discount that.

Although my advocacy has not been about autism, but I know how it goes and how images are manipulated (thankfully it has not happened to me that I am aware of).

anbuend, I definitely had the worse stuff in mind when I wrote my post. I was thinking of her comments about how without autism we'd all be socialites like people who have William's Syndrome? And things she's said about "low functioning" autistic people when discussing a cure?