Question about rights and wrongs of researchers using WP .

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aghogday
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07 Jul 2011, 3:03 am

I've often wondered how many people online at any given time are non-autistic spectators, doing there own personal research on what it's like to be within an autistic mind. But maybe only an autistic person would be interested in doing something like that; after all, if they know about social media they would probably be pretty wrapped up in facebook, myspace, and twitter.

I'm still not sure how facebook, twitter, or my space works; it seems like a competition on who is the happiest in life. I heard on the radio the other day that they have identified "facebook depression". People having tough times looking up old school pals who seem to be in all their glory, not realizing that it is just a collage of what they want other people to think about them.

When I think about Facebook it reminds me of a perpetual High School Year Book, and the highly social, competitive nature of highschool. I was glad to leave that behind. But, I am sure there are those that continue to enjoy it as much as they did in High School.



oddone
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07 Jul 2011, 3:16 am

aghogday wrote:
I'm still not sure how facebook, twitter, or my space works; it seems like a competition on who is the happiest in life. I heard on the radio the other day that they have identified "facebook depression". People having tough times looking up old school pals who seem to be in all their glory, not realizing that it is just a collage of what they want other people to think about them.

Facebook is a marketing tool. Even if you're not actively in the market for friends, relationships, employers or whatever you are still marketing yourself and you are going to present yourself at your most awesome. Here's oddone snowboarding / climbing a mountain / parachuting / bungee jumping / being generally awesome!

Set your status to 'is going to kill him/herself :(' and see how many 'friends' you lose.



aghogday
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07 Jul 2011, 4:02 am

oddone wrote:
aghogday wrote:
I'm still not sure how facebook, twitter, or my space works; it seems like a competition on who is the happiest in life. I heard on the radio the other day that they have identified "facebook depression". People having tough times looking up old school pals who seem to be in all their glory, not realizing that it is just a collage of what they want other people to think about them.

Facebook is a marketing tool. Even if you're not actively in the market for friends, relationships, employers or whatever you are still marketing yourself and you are going to present yourself at your most awesome. Here's oddone snowboarding / climbing a mountain / parachuting / bungee jumping / being generally awesome!

Set your status to 'is going to kill him/herself :(' and see how many 'friends' you lose.


Probably one of the the most realistic interactions of the facebook experience.



memesplice
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07 Jul 2011, 5:53 am

I know this is going slightly off thread, but I tracked the guys who've doing visual aversion study and related stuff on us , not necessarily here.

They are trying to unify the field, genetic, neurological, cognitive , behavioral, social .

Problem is once they have a coherent multidisciplinary model that convincingly explains our 'pathology' then they have one of the biggest labels ever applicable to a 'sub group' ( hey I love these descriptive terms , so warm and cuddly ).

From cradle to grave, us and our descendants we will have no way back to the matrix, the possible normal, Ahogday describes. School, career, marriage, kids, grand kids , services for elderly when old , insurance, general life chances will be potentially determined by this model.

The teams working on this have left one huge piece of the puzzle out , their own attitudes and behaviors towards us.
To me this coherent model they are developing is just a refinement, dressed up in ethics of NT social aggression and another exercise of power.

I think if they are studying us then all things being equal we have the right to study and test their contribution in shaping our experiences and futures.


But that's just me, like I say I have a few mild sociopathic tendencies and don't get how one bunch of guys can do this to another and that other bunch of guys like us are expected to sit there and take it.

For all we know it might be another crazy NT mortgage paying food ticket scheme. Gut worms ,birch sticks and cold baths.

OT: Did anyone else get a pair of soccer boots thrown at them by a sports teacher. The boots would have come out of a lost property locker at school, and they had like two foot long laces that kept coming undone,or when multi -looped the lace loops were flapping around like rabbits ears all the time? What are you supposed to do with these laces? Why did you get these laces and other kids had short laces? Like didn't they have scissors in schools back then? Why were the boots thrown at you, is it a ritual ?

See, these are the questions research could helpfully answer.

Meme.



blue_bean
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07 Jul 2011, 8:35 am

I dunno, as long as the researcher abides by the ethics of research I see no problem.

Ie. if they were to come here, make an account and pretend to be a severely troubled aspie, then observe and collect data on everyones responses towards said fake persona, then that would be deception/dishonesty and a huge breach of ethics. Hopefully they would then get sacked from their place of employment, or if they were a student they'd get a big fat FAIL for their research assignment. And they can't just cover up what they're doing, they would have to disclose thier research methods if they want their findings to be taken seriously by publishers and scientific bodies.

If you happen to catch a researcher, it's probably ok, just as long as they're doing it in an ethical manner. And for all we know they could have gotten Alex's permission to carry out their work here.



Surfman
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07 Jul 2011, 10:01 am

Many forum groups have visitors reading

Some register and start contributing

Some eventually start threads

This sort of 'mining' happens all the time, on all sites

IRL I often try to bump into someone so I can pump them for information about something I want to know

But yeah here on WP I dont want to be a lab rat to kids with clip boards and certain career aspirations



memesplice
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07 Jul 2011, 10:43 am

It looks like the research company have come clean and are now running a consensual gaze aversion test. This is in puzzles and games. Please note the first image is very,very stary and may cause trauma to those of a stare-sensitive nature. Surfman don't blame me , it's the mother of all stary images Ok ,so don't look. :)

Meme