Page 3 of 3 [ 40 posts ]  Go to page Previous  1, 2, 3

Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

29 Apr 2013, 2:58 pm

There's also the fact that when girls present with clear symptoms of autism, they are not taken as seriously as boys who present with clear symptoms of autism and are less likely to receive a diagnosis on that basis alone. It makes me wonder how many are really hiding their symptoms vs. how many are having their symptoms ignored by biased clinicians.



daydreamer84
Veteran
Veteran

User avatar

Joined: 8 Jul 2009
Age: 40
Gender: Female
Posts: 5,001
Location: My own little world

29 Apr 2013, 3:28 pm

Adamantium wrote:
I was "gifted" with motor control issues, no friends or social skills, special therapy for poor eye contact, extreme focus on special interests and pedantic (or, as I would have said, precise, accurate and complete) speech.
\

:lol: :lol: Sorry, I know this is off topic but I've always thought it was weird that " superficially perfect expressive language" and "pedantic speech" are signs of ASD. Speaking properly is a symptom of a neurological disorder nowadays?

Edit: I get the theory behind it,that ASD kids don't speak like their peers , they speak too formally. It just sounds wrong....



Last edited by daydreamer84 on 29 Apr 2013, 3:31 pm, edited 1 time in total.

Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

29 Apr 2013, 3:31 pm

daydreamer84 wrote:
:lol: :lol: Sorry, I know this is off topic but I've always thought it was weird that " superficially perfect expressive language" and "pedantic speech" are signs of ASD. Speaking properly is a symptom of a neurological disorder nowadays?


Superficially perfect, however. Coupled with things like not understanding the words you're using, or simply deploying words from a memorized "phrase bank" when they appear to fit.



zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

29 Apr 2013, 3:49 pm

Thanks Whirly - I may follow that up but I have to be careful as I have already been accused of munchausens for suggesting she might be on the spectrum (I also suggested 2 other things she now has diagnosis of!).

What I really want is a referral to Judith Gould who is quite keen to see her but I have to wait till we have exhausted local resources before we can ask for it as she doesn't take private referrals.

The problem with local camhs here is they only use the ADOS which is male biased - girls and women do better on the revised DISCO



whirlingmind
Veteran
Veteran

User avatar

Joined: 25 Oct 2007
Age: 58
Gender: Female
Posts: 3,130
Location: 3rd rock from the sun

29 Apr 2013, 4:30 pm

zemanski wrote:
Thanks Whirly - I may follow that up but I have to be careful as I have already been accused of munchausens for suggesting she might be on the spectrum (I also suggested 2 other things she now has diagnosis of!).

What I really want is a referral to Judith Gould who is quite keen to see her but I have to wait till we have exhausted local resources before we can ask for it as she doesn't take private referrals.

The problem with local camhs here is they only use the ADOS which is male biased - girls and women do better on the revised DISCO


That's very interesting. I have a secret fear that the 'services' think I am some sort of Munchausen's too. If you knew my story of a fight to get diagnosed myself, and now this is happening with my eldest too, I was incredulous that they didn't diagnose her because of the wealth of information on all her history and traits I gave them. I keep thinking there is probably some "warning" or "alert" on my records that I'm some sort of attention seeking weirdo. Who accused you of this?

I have requested CAMHS refer my daughter to Judith Gould too (or at least the Lorna Wing Centre). Did you make direct contact with Judith because I tried before and can't reach her? They used the ADI-R and the ADOS II for my eldest. But the assessment was less than an hour for her and just over an hour for my interview on her history it was pathetic, really rushed.


_________________
*Truth fears no trial*

DX AS & both daughters on the autistic spectrum


zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

29 Apr 2013, 5:22 pm

I was very, very fortunate to come out of it in the clear - I had to give up my career and my postgraduate studies but they never took my children and they never got as far as bringing in the police so I still have a clean CRB. I had good support from excellent professionals who I knew through my voluntary work and from specialising in ASCs in education - some of whom worked with either one or both of my children. My children's caseholder at CAMHS was truly wonderful.

And I now have a social services report from when we were signed off from child protection that states we were one of the best families our social worker had ever had the pleasure to work with.........

..........but I am still very, very wary

I would rather bide my time than risk losing my children.

I don't have personal contact with Judith but I have met her through my boss.



whirlingmind
Veteran
Veteran

User avatar

Joined: 25 Oct 2007
Age: 58
Gender: Female
Posts: 3,130
Location: 3rd rock from the sun

29 Apr 2013, 7:15 pm

OMG. I can't believe all that has happened to you through wanting to get your child assessed for ASC!

That's unbelievable.


_________________
*Truth fears no trial*

DX AS & both daughters on the autistic spectrum


zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

29 Apr 2013, 8:45 pm

The problem is that the criteria for assessing the symptoms of child abuse are very similar to the criteria for autism - severe abuse can cause a child to have autistic traits, that's one of the reasons clinicians are usually insistent on a history, even when diagnosing adults. The NAS were extremely vocal when the new child protection checklist first came out.

Unfortunately, the paediatrician my daughter was referred to actually wrote the bit on munchausen's (now called Fictitious Illness Syndrome - a crime, not a condition) in the child protection manual......

An arrogant zealot who believes it is fine to destroy 9 innocent families if the 10th attempt saves a child from real abuse.

And actually, I was asking about IBS rather than AS because that was the problem she was referred for.

Gifted and Autistic is not an easy road.