Gender Bias (against females) in Diagnosing Autism

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whirlingmind
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30 Jun 2013, 1:23 pm

...for good measure, my post @ 6.43pm in which I responded directly to your question above me as to whether it was "OK if males were misdiagnosed":

whirlingmind wrote:
@ Thelibrarian: Of course it's not. And I have said nothing to indicate that it is so I have no idea why you are asking such ridiculous questions, take a chill pill. At the risk of becoming highly repetitive this thread is about a study proving gender bias against females - find a similar one about males and we can discuss it.


You cannot see clearly through those "angry glasses" that colour your responses, to read what's on the thread, you are jumping to all sorts of conclusions and attacking for no reason, as well as entirely misinterpreting - like I said.


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Thelibrarian
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30 Jun 2013, 1:28 pm

whirlingmind wrote:
...for good measure, my post @ 6.43pm in which I responded directly to your question above me as to whether it was "OK if males were misdiagnosed":

whirlingmind wrote:
@ Thelibrarian: Of course it's not. And I have said nothing to indicate that it is so I have no idea why you are asking such ridiculous questions, take a chill pill. At the risk of becoming highly repetitive this thread is about a study proving gender bias against females - find a similar one about males and we can discuss it.


The "bias" is questionable in my opinion. It's what happens when Politically Correct politics masquerades as science. Why do I think this? I find it very hard to believe that the medical profession is engaged in a conspiracy to misdiagnose women; instead, they just don't care about either sex. What isn't questionable is that misdiagnoses occur, and often. My point is that it's no less just when males are misdiagnosed than when females are. If you are telling me we agree, and you are willing to fight for fair diagnoses for everyone, then there is no further point in this unpleasant conversation.



Last edited by Thelibrarian on 30 Jun 2013, 1:31 pm, edited 1 time in total.

whirlingmind
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30 Jun 2013, 1:30 pm

wildcoyotedancer wrote:
As to under dx and spectrum some is this subconscious gender bias that autism is a male disease. But also new studies show that duh since the male and female brain is very different, most to some girls with an ASD present differently than boys. Also some girls with an ASD seem to be able to take on the persona of an NT at least superficially however this causes exhaustion, stress, anxiety and a fractured identity and at some point later in life many of us just decide to stop faking being NT and be ourselves.


Although this is true, there is a lot of evidence that even when girl's symptoms are just as obvious as male's symptoms, they are still assessed and diagnosed much less, so for the purposes of this thread, that isn't entirely relevant (although it is still a vital point to be made of course). There is information about the struggles females face to even get referred for assessment in the first place and then to get a diagnosis on this website: www.autism.org.uk. This means that they are treated for incorrect disorders which damage them and miss out on necessary supports.


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whirlingmind
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30 Jun 2013, 1:34 pm

Thelibrarian wrote:
whirlingmind wrote:
...for good measure, my post @ 6.43pm in which I responded directly to your question above me as to whether it was "OK if males were misdiagnosed":

whirlingmind wrote:
@ Thelibrarian: Of course it's not. And I have said nothing to indicate that it is so I have no idea why you are asking such ridiculous questions, take a chill pill. At the risk of becoming highly repetitive this thread is about a study proving gender bias against females - find a similar one about males and we can discuss it.


The "bias" is questionable in my opinion. It's what happens when Politically Correct politics masquerades as science. Why do I think this? I find it very hard to believe that the medical profession is engaged in a conspiracy to misdiagnose women; instead, they just don't care about either sex. What isn't questionable is that misdiagnoses occur, and often. My point is that it's no less just when males are misdiagnosed than when females are. If we agree, and you are willing to fight for fair diagnoses for everyone, then we agree, and there is no further point in this conversation


:roll: how many times do you need telling no-one has said there is a conspiracy! And no-one has said it was any less or more just when anyone is misdiagnosed! And there never was any point to any of the conversation with you in the first place because you approached it cock-eyed from the off! And why are you plonking responsibility on me for "fighting for fair diagnosis for everyone"!? I'm not some crusader responsible for the world. END

Next!


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Thelibrarian
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30 Jun 2013, 1:37 pm

wildcoyotedancer wrote:
I was bullied by girls, boys and adults from a very early age and even in adulthood some adult bullying. The most cruel was always from NT girls and women. I am sory but women are vicious backstabbers sometimes and very competitive and insecure. Books on this subject have been written such as "Mean Girls" and "Odd girl Out" etc. NT women can be very covert and extremely passive aggressive so for a person male or female on the spectrum it can be almost impossible to interpret the cues. Plus the bullying female can act like they are the person's beat friend but to an NT they could recognize the insincerity but to those of us with AS who rely on words and can't interpret the non verbal cues can't see the deception and then we are heartbroken when we find out.

As to under dx and spectrum some is this subconscious gender bias that autism is a male disease. But also new studies show that duh since the male and female brain is very different, most to some girls with an ASD present differently than boys. Also some girls with an ASD seem to be able to take on the persona of an NT at least superficially however this causes exhaustion, stress, anxiety and a fractured identity and at some point later in life many of us just decide to stop faking being NT and be ourselves. Plus for myself I have never been very good at faking it. And I point out most women with an ASD aren't consciously taking it. We just start acting in ways we have been pressured to or as an unconscious coping mechanism. I can and do use so ial scripts when I first meet new people but I can't sustain small talk for long or on subsequent encounters so if there is no strong mutual interest or connection then the people see me as aloof or guarded or weird and stop including me.

I grew up before anything but classic autism existed as a dx. Even boys didn't get HFA or AS dx because that dx did not exist at all in the late 60's and 70's. Our parents were told we would grow out of it. Because I am charming on first meeting and good 1:1 in a low stress low sensory environment like say a co I seller or therapist office and I am female I don't know if I will ever get a dx so right now I am on the fence at 45 about obtaining 1. My Aspie score is 171/200 Aspergers and 50/200 NT Very likely Aspie and my AQ is about 38 on average so maybe those numbers would help get a dx.


Coyote, I have also experienced mistreatment from women, but I think we should be careful not to paint with too broad a brush. There are a lot of good women out there despite what we see on this particular thread.



Thelibrarian
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30 Jun 2013, 1:41 pm

"Rolling Eyes how many times do you need telling no-one has said there is a conspiracy! And no-one has said it was any less or more just when anyone is misdiagnosed! And there never was any point to any of the conversation with you in the first place because you approached it cock-eyed from the off! And why are you plonking responsibility on me for "fighting for fair diagnosis for everyone"!? I'm not some crusader responsible for the world. END"

I say what you are describing is a conspiracy, and I AM someone whether you are willing to admit it or not.

As far as you not being some "crusader", you have proved my original suspicion right. You couldn't care less if males are misdiagnosed--at least not enough to do anything; only females matter to you. Again, at least we have clarity if not agreement.

Had you just come out and admitted as much in the beginning, you could've saved yourself getting hysterical.



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30 Jun 2013, 1:50 pm

Thelibrarian wrote:
grahamguitarman wrote:
Whoa everyone take a chill pill :) First off I'm a bloke, and I am not a big fan of feminism if I'm honest.

It is terrible for anyone to receive a misdiagnosis - regardless of sex. It is in no way worse for a girl to be misdiagnosed than it is for a man.

But when a significantly higher proportion of females are being misdiagnosed than males then there is a problem. Statistically it should be roughly even for both sexes, not one sex being misdiagnosed by as much as four times than the other.

I should point out that the friend who originally made me aware of the problem is a man too. His concern wasn't over feminist issues, it was over the fact that people who really needed the help of his department weren't getting it. He would have been just as concerned if the ratio was the other way round and males were less likely to get diagnosis (which does happen with some conditions).


I agree with everything you say except for your utilitarian slant on things. If we view each other as individuals, then, as you note, it is just as wrong to misdiagnose males as females. If the feminists have their way, the males will be left out in the cold whereas I'm advocating that ALL aspies receive a correct diagnosis regardless of numbers or anything else. We will do much better if we work together rather than dividing ourselves over ridiculous issues.


Uh wow, you really do have a big chip on your shoulder there!

I'm old enough at 50 years old to recognise when feminists are trying to hijack a situation (and yes it does happen which is why I'm not a big fan of feminism) But I don't think this is one of those situations. It wasn't feminists who made me aware of this issue in the first place, it was male practitioners concerned about a very real problem!

If we are going to make sure that everyone gets a fair diagnosis, then its important that females don't get left behind as a result of people not being aware that there is a problem of them being overlooked or misunderstood.

That's not feminism, it's simply approaching a problem with a desire to see fair play for everyone.



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30 Jun 2013, 1:54 pm

grahamguitarman wrote:
Thelibrarian wrote:
grahamguitarman wrote:
Whoa everyone take a chill pill :) First off I'm a bloke, and I am not a big fan of feminism if I'm honest.

It is terrible for anyone to receive a misdiagnosis - regardless of sex. It is in no way worse for a girl to be misdiagnosed than it is for a man.

But when a significantly higher proportion of females are being misdiagnosed than males then there is a problem. Statistically it should be roughly even for both sexes, not one sex being misdiagnosed by as much as four times than the other.

I should point out that the friend who originally made me aware of the problem is a man too. His concern wasn't over feminist issues, it was over the fact that people who really needed the help of his department weren't getting it. He would have been just as concerned if the ratio was the other way round and males were less likely to get diagnosis (which does happen with some conditions).


I agree with everything you say except for your utilitarian slant on things. If we view each other as individuals, then, as you note, it is just as wrong to misdiagnose males as females. If the feminists have their way, the males will be left out in the cold whereas I'm advocating that ALL aspies receive a correct diagnosis regardless of numbers or anything else. We will do much better if we work together rather than dividing ourselves over ridiculous issues.


Uh wow, you really do have a big chip on your shoulder there!

I'm old enough at 50 years old to recognise when feminists are trying to hijack a situation (and yes it does happen which is why I'm not a big fan of feminism) But I don't think this is one of those situations. It wasn't feminists who made me aware of this issue in the first place, it was male practitioners concerned about a very real problem!

If we are going to make sure that everyone gets a fair diagnosis, then its important that females don't get left behind as a result of people not being aware that there is a problem of them being overlooked or misunderstood.


Does not "everyone" include females? The way Whirlingmind is interpreting it, "everyone" ONLY includes females--at least insofar as any action is needed.

At fifty, the same age I am, you should be more mature than to lob insults in place of arguments. I would have hoped you would act your age.



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30 Jun 2013, 2:03 pm

Uh I have presented a very fair and unbiased argument - but you are so incensed that you can't even see it. As for 'lobbing insults' all I said is that you appear to have a very big grudge there, an observation not an insult.

No one here has suggested a conspiracy, or that women should have more rights than men, if you took a deep breath, calmed down and re-read the thread you will see that this whole argument is way overblown.

As for acting my age, is throwing a public tantrum and turning on anyone who doesn't agree with your argument acting your age?



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30 Jun 2013, 2:04 pm

grahamguitarman wrote:
Uh I have presented a very fair and unbiased argument - but you are so incensed that you can't even see it. As for 'lobbing insults' all I said is that you appear to have a very big grudge there, an observation not an insult.

No one here has suggested a conspiracy, or that women should have more rights than men, if you took a deep breath, calmed down and re-read the thread you will see that this whole argument is way overblown.

As for acting my age, is throwing a public tantrum and turning on anyone who doesn't agree with your argument acting your age?


You have a nice day.



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30 Jun 2013, 2:06 pm

Thelibrarian wrote:
grahamguitarman wrote:
Uh I have presented a very fair and unbiased argument - but you are so incensed that you can't even see it. As for 'lobbing insults' all I said is that you appear to have a very big grudge there, an observation not an insult.

No one here has suggested a conspiracy, or that women should have more rights than men, if you took a deep breath, calmed down and re-read the thread you will see that this whole argument is way overblown.

As for acting my age, is throwing a public tantrum and turning on anyone who doesn't agree with your argument acting your age?


You have a nice day.


Why thank you, I surely will



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30 Jun 2013, 4:31 pm

grahamguitarman wrote:
Thelibrarian wrote:
grahamguitarman wrote:
Whoa everyone take a chill pill :) First off I'm a bloke, and I am not a big fan of feminism if I'm honest.

It is terrible for anyone to receive a misdiagnosis - regardless of sex. It is in no way worse for a girl to be misdiagnosed than it is for a man.

But when a significantly higher proportion of females are being misdiagnosed than males then there is a problem. Statistically it should be roughly even for both sexes, not one sex being misdiagnosed by as much as four times than the other.

I should point out that the friend who originally made me aware of the problem is a man too. His concern wasn't over feminist issues, it was over the fact that people who really needed the help of his department weren't getting it. He would have been just as concerned if the ratio was the other way round and males were less likely to get diagnosis (which does happen with some conditions).


I agree with everything you say except for your utilitarian slant on things. If we view each other as individuals, then, as you note, it is just as wrong to misdiagnose males as females. If the feminists have their way, the males will be left out in the cold whereas I'm advocating that ALL aspies receive a correct diagnosis regardless of numbers or anything else. We will do much better if we work together rather than dividing ourselves over ridiculous issues.


Uh wow, you really do have a big chip on your shoulder there!

I'm old enough at 50 years old to recognise when feminists are trying to hijack a situation (and yes it does happen which is why I'm not a big fan of feminism) But I don't think this is one of those situations. It wasn't feminists who made me aware of this issue in the first place, it was male practitioners concerned about a very real problem!

If we are going to make sure that everyone gets a fair diagnosis, then its important that females don't get left behind as a result of people not being aware that there is a problem of them being overlooked or misunderstood.

That's not feminism, it's simply approaching a problem with a desire to see fair play for everyone.


Hear, hear! It's rare to come across someone someone with such openly-veiled mysogyny and such a chip it must be more like a block on their shoulder. Everything he falsely accused me of was his own behaviour (rather ironically including projecting). Lying as well, how many times I repeated that I did not say it was "just" (his word) for a male to be misdiagnosed and he is still claiming I don't care if men are misdiagnosed. Utterly baffling. Unless of course he is trolling, and I take deliberate antagonism and deliberate twisting of what's been said, as trolling. And trolling is also derailing a thread with ridiculous arguments to try to put others off responding. Anyway, I gave up answering him as you can't make someone see sense if they are determined not to.

Let's hope some more worthwhile posters (such as yourself grahamguitarman) are going to join the thread, despite this obvious attempt at derailment.


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30 Jun 2013, 5:33 pm

whirlingmind, if possible I'd just blow him off. His reliance on irrational and false arguments just means you'll get stuck responding to a series of false accusations and bizarre misunderstandings.



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30 Jun 2013, 5:54 pm

Very interesting study. I've long wondered whether boys are actually more likely to have autism or whether the skewed gender ratio was due to bias in diagnosis. This study shows that there's definitely some bias in diagnosis, though of course it still doesn't show that the bias is the only reason the ratio isn't officially 1:1.



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30 Jun 2013, 5:55 pm

The_Walrus wrote:
Very interesting study. I've long wondered whether boys are actually more likely to have autism or whether the skewed gender ratio was due to bias in diagnosis. This study shows that there's definitely some bias in diagnosis, though of course it still doesn't show that the bias is the only reason the ratio isn't officially 1:1.


I think that Lorna Wing has estimated the true ratio to be between 1.6:1 and 2:1.

Tony Attwood has indicated that he diagnoses men and women at roughly equal rates. I'd have to dig that quote up again for precision, however.



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30 Jun 2013, 6:05 pm

this thread reeks of devils advocate trolling and whataboutery.

Quote:
Noun

whataboutery (plural whatabouteries)

(informal, pejorative)

Protesting at hypocrisy; responding to criticism by accusing one's opponent of similar or worse faults.  [quotations ▼]
Protesting at inconsistency; refusing to act in one instance unless similar action is taken in other similar instances.  [quotations ▼]


isnt it strange how people who post whataboutery have never bothered campaigning and sharing awareness of how males can be affected,until a thread about a significantly researched issue for females is discussed?
when hijacking a different issue;its corny,bitter and resentful looking;and takes the piss out of a real problem in pyschology.

perhaps instead of just whining about it to people on a forum who cant do anything and will more likely not want to listen when have not even brought the issue up without thread hijacking;go speak to specialists and experts on the subject,perhaps try asking tony attwood and temple grandin why they have have wrote for books about how aspergers largerly affects females differently and has had a huge affect on diagnosis levels.


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