Aspergers referred to as a disease?
Personally I wouldn't care what they are called, but sometimes it seems to be an issue and I have found it impossible to find a term that wouldn't hurt anyone. Condition sounds quite indefinite to me, I think it can to refer any kind of... condition. I have also heard the term "medical condition", but I think it can also be used as synonyme to disease.
According to dictionary.com, syndrome is "a group of symptoms that together are characteristic of a specific disorder, disease, or the like." I think that fits to Asperger's syndrome as well.
Epilepsy is a syndrome too. It's not one single illness, but a group of different symptons caused by different reasons. It's still also a disease.
I think the main problem is the negative connotations related to the word "disease", because it used to be linked to infectious diseases and other conditions that do catch and that people just want to get rid of. But many diseases are inborn and life-long conditions that cannot be cured even if there are ways of medical treatment that make it easier to live with the disease.
Earlier I did think "disease" is a wrong word for autism and found it insulting. That was because of the stigm around the word.
Autism is not a "disease" under any definition. Sometimes, it could manifest itself as a "syndrome," a "disorder," a "condition," and a "difference."
As dictionary says
"A disease is a particular abnormal condition, a disorder of a structure or function, that affects part or all of an organism. The study of disease is called pathology which includes the causal study of etiology. Disease is often construed as a medical condition associated with specific symptoms and signs." Autism can be considered as a "abnormal condition" as well as "a disorder of a structure or function".
If it was just a condition, or a differencem there wouldn't be a medical diagnosis for it. Or maybe some people think there shouldn't be, but I don't agree. Autism causes symptoms that really harm my life, and calling it just a difference feels like undermining all the sufferings. Plus, having a difference would not justify needs for medical treatment and extra support. Sometimes left-handedness or even eye colours can be seen as differences (for example heterochromia), but as they don't cause any kind of harm themselves, they cannot be called diseases.
In many cases, there is a relative lack of "objective signs" in autism, especially the milder varieties. And lots of subjective impressions.
The diagnosis of autism is based on a similar premise as many psychological disorders. There's no "test" like a Pap Smear or a Tuberculin test for autism.
There are many theories floating around--but, in reality, there is no characteristic "autistic brain." One cannot look at a brain post-mortem, like with Alzheimer's Disease, and determine if a person had autism.
The diagnosis of autism is based on a similar premise as many psychological disorders. There's no "test" like a Pap Smear or a Tuberculin test for autism.
There are many theories floating around--but, in reality, there is no characteristic "autistic brain." One cannot look at a brain post-mortem, like with Alzheimer's Disease, and determine if a person had autism.
Ok now I got the point, and I do agree with that. Especially when it comes to slight forms of autism I think it's really culture-related thing. Just as some other "neuropsychiatric" conditions. A fellow student from Ecuador told that they don't have that "ADHD thing" in their country because all children are hyperactive and it's not seen as a problem...
And yes, there's no test, it's mainly based on the anamnesis and observation. Tests can provide some additional information but they are only tools for diagnosing. Of course there are lots of research that show some differences in the brains but nothing that would prove that it really exists.
But this apply to many diseases. I take epilepsy as an example again. Sometimes there can be seen signs in the MRI picture, but in most cases the aetiology remain unknown. Sometimes even the EEG looks like normal but the person still gets epileptic fits. So ultimately the diagnosis is based on the anamnesis. I still think people don't deny the word disease when it comes to epilepsy. It causes symptoms that harm one's life, no matter if there's a test that could prove 100% the existence or the nature of the disease. The problems still exist. And, even if I think both epilepsy and autism as diseases, I don't consider myself or other people with autism and/or epilepsy as a "patient" or "sick" unless in specific medical-related contexts.
For many people the word disease conjures up images of sickness, plague, leprosy and carrying a little bell and warning people that you are "Unclean." Those are not mental images that I'd willing wish anyone to associate with autism.
And I for one do object to the use of the word disease being used for epilepsy. I have it and I have diabetes too, neither are diseases they are conditions. People can be born with them or they can develop them later in life but you can't catch them, they are not infectious and they are not diseases.
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Somewhere completely different:
Autism Social Forum
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As far as I'm concerned, a disease does not mean something you must catch. It can be an inborn and life-long condition as well as infectious disease. I don't want to maintain the stigma around the word disease. By doing so we only stigmatize diseases and people with them. It doesn't equal to plague or anything dirty. There's nothing dirty or bad in the word itself. People with diseases are not inferior. Many words have negative connotations that don't belong to the words. It doesn't mean mean we should consider them as such. Also autism is often abused word. Many people only use it in negative contexts when describing someone's selfish or stubborn behaviour that has nothing to do with autism itself.
So, if someone wants to add extra connotations and negative mental images to the word or invent totally new meanings, it's not my problem. I have autism and epilepsy, and I consider them as diseases and want them to be treated as such, not differences. I have some differences as well, but because they are only differences and not diseases, they don't need medical treatment or diagnosis. Disease is nothing I should be ashamed of, or what other people should abhor. I am perfectly fine with having diseases, and I hope others would accept it as well.
Anyway, I understand and accept if someone doesn't want to refer autism as a disease. I used to think just that earlier. Everyone has the right to refer him/herself with a word he/she finds the best, and I can refer my autism and epilepsy diseases as well as medical conditions, depending on the context.
Autism also fits the definition of Mental Disorder, again from wikipedia: "A mental disorder or psychiatric disorder is a mental or behavioral pattern or anomaly that causes distress or disability, and which is not developmentally or socially normative. Mental disorders are generally defined by a combination of how a person feels, acts, thinks or perceives. This may be associated with particular regions or functions of the brain or rest of the nervous system, often in a social context."
As someone who has had a mental illness, depression, for over a decade, it's annoying that many people here, whose autism means they obviously fit the criteria of a mental illness as defined above, think that autism somehow doesn't fit the criteria of being mentally ill. It makes me curious and angry to find out what, exactly, you think a mental illness IS. Just because we know more of the etiology and physiology of autism, it is STILL a disability and causes mental distress and isn't socially normative. Rather, it's like you choose to make the often unspoken point that it makes the distinction between someone who is mentally ill as somehow causing their own mental distress or illness, simply because there's not yet a clear medical reason for its cause. Or for some reason you attach the meaning that circumstances and conditions must cause a mental illness later in life. Or because you see it as something that's merely passing. But none of these things are true.
It quite frankly shows YOUR ignorance if you think that mental illnesses aren't physiologically based. They rather have to be, unless you think our soul or spirit or some such is making people mentally ill. Most importantly though, it comes off as all of you who don't want to be classified as mentally ill clamoring to get away from those crazy nut-jobs who ARE mentally ill, as if you have to put yourself above someone else. It's one thing if you actually, you know, explained how the term 'mentally ill' doesn't apply to you, but you do not, for in order to do that, you must know what the term 'mentally ill' actually means. No, not your own view of the word mentally ill, the actual definition of it.
I can't get upset at those people with autism who perceive that autism isn't disabling at all, if that's what you think then my arguments don't hold any weight with you whatsoever. But I'm not addressing those people, I'm talking about the ones that see that autism causes difficulties in their lives yet who grandly throw off terms that fit them because they don't like the term.
And yes, mental illnesses are also diseases. That's the definition of the word. If you make up your own definitions for words because someone applies a far more negative connotation to them then what they inherently have, or even if you simply want to create a distinction between words because you see that the term 'disease' is far too encompassing to really be useful as a term, and then get upset when someone then uses that word incorrectly from your private definition, that's your fault, not theirs. I am diseased and mentally ill, and I don't give a s**t about those terms because I don't stigmatize myself when I say it, and I don't give more weight to those definitions than what they have.
Well said. Amen.
Perception is everything. People perceive "diseases" as equating to sicknesses. I am not sick, I am not ill, I do not require fixing, I cannot be cured because I am not sick, I simply have autism, just as others have Down's Syndrome or William's syndrome, they're were born that way, they live with it. What they have can't be fixed and it can't be cured because they do not have diseases.
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Somewhere completely different:
Autism Social Forum
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I understand that point.
But I don't care what people perceive the word. It's their problem, not mine. Although I don't know many people who would see disease that way. It's just a medical umbrella term.
People also perceive autism with lack of empathy, being simple, sociopath, rude, stupid... It's nit nice, but it doesn't mean autos would mean that. And I don't stop using the word just because the incorrect perceptions.
Of course I must say that as a non-native speaker I don't maybe hear all the nuances in the words. In my native language there is only one neutral, general word for illness, sickness and disease. Some people find it not suitable in the case of autism, but it is often considered as such in scientific language. And others who do suffer from their autism find it just harmful when people are denying their sufferings by saying it's only a personal trait.
But I don't care what people perceive the word. It's their problem, not mine. Although I don't know many people who would see disease that way. It's just a medical umbrella term.
People also perceive autism with lack of empathy, being simple, sociopath, rude, stupid... It's nit nice, but it doesn't mean autos would mean that. And I don't stop using the word just because the incorrect perceptions.
Of course I must say that as a non-native speaker I don't maybe hear all the nuances in the words. In my native language there is only one neutral, general word for illness, sickness and disease. Some people find it not suitable in the case of autism, but it is often considered as such in scientific language. And others who do suffer from their autism find it just harmful when people are denying their sufferings by saying it's only a personal trait.
The simple fact is that the vast majority of people do not use the correct medical or scientific terminolgy. Instead they use, as KraftieKortie pointed out, vernacular expressions. They also assign vernacular interpretations to words, among those is the word disease, which many people associate with sickness, poor hygiene and squalor. You state that you don't care what people perceive, it's their problem not yours. In that you are incorrect. The person who thinks the thoughts and perceives disease as a sickness, akin to leperosy or plague isn't the one who has autism, so they don't have any problem at all. But due to the unnecessary use of the word disease in connection with autism some people do perceive that those of us who do have autism are in some way tainted with something unpleasant and unclean, that is a problem for those of us who have it. That's why I object to the word disease being used in the context of autism. You concede that... "Of course I must say that as a non-native speaker I don't maybe hear all the nuances in the words." I am a native speaker and I do hear all of the nuances, which is why I object to the use of the word.
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Gamsediog biptol ap simdeg Bimog, toto absolimoth dep nimtec gwarg. Am in litipol wedi memsodth tobetreg bim nib.
Somewhere completely different:
Autism Social Forum
I am no longer active on this forum, I've quit.
There is the same struggle going on in many language. And as it can be seen, not all natives agree with you (given that the writer above is a native). Here are also good points http://www.savagelightstudios.com/warpedlens/?p=113
And, most English-speakers are non-natives. So the majority doesn't get all the nuances (and even natives may understand in different ways). I have been treated by experts who used the term "disease" when referring to autism (I have no idea if they were native speakers or not, but could've been). I didn't find it insulting in any way. As doctors they know the differences between infectious diseases and chronic illnesses better than I do.
But anyway, by avoiding the word we just maintain the stigma around it, and I don't want to do that. I rather want to help people to wide their image of what disease can be and what it really is. If someone is so narrow-minded that cannot understand it other way than as a dirty sickness, he probably is not able to understand the concept of autism. Where I live most people are aware of the nature of autism; they know it's not something dirty that can be catched. It's still a misunderstood word, it has at least as bad meanings as disease. Difficult, selfish or persnickety people are called "autistic". Also "special needs" is a an abused term and often used very negatively, even though I think it was created as an euphemism for someone with a disease or disability. If the word "condition" become more usual, people start to misuse it as well. (Without doubt it might be a bit more difficult because it's so indefinite term and could refer to anything. But often medical terms just must be more accurate. No one understand the need for medication or special support if I just say I have a condition...).
In many languages, disability used to be an offensive and abuse term before the disability movement adopted it and created the positive image and identity related to disabilities. Now it's rather a neutral term, although still sometimes misused. (And I have also read it's not a correct word - "I don't have a disability, I have a different ability"). But I rather fight against the stigmatization and misusing of words than give up.
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