New York Magazine article on over diagnosis from 2014

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Sweetleaf
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30 Mar 2015, 11:57 am

SIDWULF wrote:
If your self diagnosed then who cares if people don't believe you. Its what you believe that counts. My first reaction if I was self diagnosed would be to smile and laugh at people who didn't believe me. I am saying those trendy b*****s walking around identifying as aspies, they have to go. The ones that say "I may have a touch of autism" but don't look into it or the ones who say "I have social anxiety so I must have autism"...the ones who attempt desperately to fit their symptoms into the framework of autism " oh I bite my lips, that must be a stim!"
Aspergers as a term was dropped anyways. Good riddance. Unfortunately trendy b*****s still try to identify with that label to be seen as special snowflakes separate from autism.


And where are you seeing all these 'trendy b****s'? I haven't met any other autistic people IRL, let alone any that would fit your descriptions? Not to say there aren't people who are fake about it but I imagine they are in the minority.


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30 Mar 2015, 12:00 pm

gamerdad wrote:
Haven't read the whole thing yet, but this part really agitated me:
Quote:
Some adults who might be very high-functioning seek a formal diagnosis because it enables them to, in Siegel’s words, “wallow” in their symptoms rather than “ameliorate” them, because they’re “a lunch ticket.”

This statement reflects, what I see as, the broader social cynicism around diagnosis at the HF end of the spectrum, especially self diagnosis. What they call "wallowing", I call self acceptance, and it's been one of the more profoundly positive things in my life in the last year. In my opinion, this sort of attitude is really harmful, far more harmful than the possibility that some might inaccurately think they are on the spectrum. It perpetuates the incorrect concept that people can know the mind of someone else better than they do themselves, and that the default response when they tell you something you don't understand about them should be skepticism and dismissal.

Also, what "lunch ticket" exactly are they referring to here? Public services and accommodations for adults on the spectrum in the US, especially HF adults, are practically non-existent. In my experience diagnosis and treatment has been an enormous expense, most of it not covered by insurance, that will never return anything financially.


Lol probably the lunch ticket of being able to get SSI which keeps you below the poverty line...and being eligible for things like EBT and Medicaid...Oh yeah its such the luxary life :roll:


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30 Mar 2015, 2:13 pm

SIDWULF wrote:
something_ wrote:
SIDWULF wrote:
Great article. So true. The pop culture following of ASD is embarrassing. I was in denile about my diagnosis early on because of this hysteria. Now after accepting I am acctually autistic it's harder to talk to people about it. I think people who defend the wider spectrum feel threatened that their self diagnosis may be false.


I definitely defend the wider spectrum, it seems obvious to me that any spectrum disorder that the threshold for diagnosis is always going to be kind of arbitrary and doesn't mean those that fall just outside of it do not have something real, and I definitely feel threatened that my (once self but now formal) diagnosis might be considered false by those with stricter definitions but I feel like that is irrelevant to the reality of my condition.



With all of these thresholders it deligitimizes people who actually struggle with life because autism negatively effects every facet of their daily exsistance (job, relationships, education, status) Autism has limited me to a simple life focused on minimizing stress or responsibility. That is the only way I can handle it. I feel no one will take me seriously if "everyone has autism" there needs to be a line drawn. A level of severity and functioning as it is now.


I can understand why you might feel like that but I don't think that should have any bearing on how medicine/psychology/psychiatry whatever should work. If one group feels others are delegitimising their diagnosis than that should be dealt with by raising awareness that it is not one size fits all and there is a range of different expressions, rather than denying the other group have a real problem. It would be like the blind begrudging the partially sighted.



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30 Mar 2015, 2:23 pm

Sweetleaf wrote:
But there is a line drawn....one has to be significantly impaired. Also realistically 'everyone' does not have autism, not even half of most people are diagnosed with Autism...sure there gets to be media hype and internet hype but in the real world its not as if everyone you meet is claiming to have autism, I have yet to meet anyone who seriously thinks they have it or are diagnosed. As with ADHD it was said 'all' kids where being diagnosed with it and over-medicated when in reality it still wasn't 'all' kids and some with the diagnoses really do need medications to help....not to say there was no problem whatsoever with over-prescribing or parents looking for an easy solution to make their life easier via going for meds.


I know that a line had to be drawn, but this line is drawn by society deciding that a person has to be 'significantly impaired' probably due to not wanting to use resources where not needed and also not wanting to over medicalise things like personality. As such this threshold is not directly linked to an underlying reality of whether one does or does not have the underlying pathology of autism, but rather a judgement of whether it is severe enough to warrant a diagnosis. Therefore it means people in this borderline grey area may very well have the underlying pathology, and this article seems to paint it as black and white, you are either diagnosable or you are just a bit eccentric.

I think this is quite a bad thing to do when there are so many factors that complicate it, it is not just the underlying level of impairment, but different level of compensation that have been learnt, and the different dimensions of life where it manifests, someone could learn the rules and succeed in work but still have a terrible personal life etc.



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30 Mar 2015, 2:25 pm

jimmyboy76453 wrote:
something_ wrote:
I have been officially diagnosed with ASD, it is just easy to doubt as ultimately so much of the assessment is based on what I thought and I thought I have aspergers.


My diagnosis wasn't based on what I thought. My psychologist listened to what I said, but she also watched my mannerisms, and read into what I said, and asked questions that would bring out indicators. She had me talk about my family, she asked me about my life as it is now and my work history. I would guess that 20% or less of the diagnosis was based on my opinions about ASD. Yours was probably similar.


yes mine was similar, they used three diagnotic tools, as well as the cambridge 3 questionairres for prescreening, and also a battery of neurological tests, and interviewed my parents. I still can't shake the feeling that the crucial part was my diagnostic interview and that I am bias.



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30 Mar 2015, 2:31 pm

SIDWULF wrote:
Why are people trying to explain away this article lol...it's so true. Of course this board doesn't want to admit it. Common guys, if you know %100 your autistic why would you defend the people who use the label on themselves cause its trendy and they want to feel special? Are YOU one of those people ?


i'm not defending those people, I don't think there are many of them though. I don't take the 'I have a touch of aspergers' people seriously, I don't think they are even really claiming they have a diagnosable condition I think they are just using it as a shorthand for saying they are a little out of the ordinary and relate to some autistic traits. That is quite different from those who have after doing there research self diagnosed.

The article says it is one in a long line of fads, I can kind of see that but think that it might actually be due to a better understanding. Autism tends to be the end of the line after other misdiagnoses, other conditions are symptoms not the cause.

Maybe it is different in america but in the UK I have never ever heard of anyone associating aspergers with trendy, it is very much understood as the cold stereotype.



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30 Mar 2015, 3:58 pm

something_ wrote:
Maybe it is different in america but in the UK I have never ever heard of anyone associating aspergers with trendy, it is very much understood as the cold stereotype.


It may be a little bit of a cultural thing. Here in America, it isn't enough to just be a regular person to be cool anymore; you have to have a "PERSONALITY!" with capital letters and jazz hands. Having Asperger's adds to the look, I guess. Although, I think maybe the trend is not so much about people claiming ASD for themselves, but more about people flippantly diagnosing other people; people on TV, people they have personality clashes with, etc. "It's impossible to get along with her; I said hello yesterday, and she just Aspied-out at me! It was totally not my fault." People think Obama has Asperger's, Mitt Romney has Asperger's, Dennis Rodman has Asperger's, Warren Buffett has Asperger's, Steve Jobs had Asperger's, Putin has Asperger's.


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30 Mar 2015, 11:07 pm

Unfortunately that's the second time I've read that exact same article. Got the same feeling this time as last too. The author does everything possible to discount Asperger's-- it's either over diagnosed and you don't really have it, or the clinical definition has changed so it doesn't really exist, or you're making it up to suckle services from truly needy people (I'd like to know the exact benefits of diagnosis the author alludes to because I have yet to see any here in the states).

As for those that don't have it and claim they do, that's life, there will always be some asshat ruining things for other people.

The problem with Asperger's Syndrome is that some can function @ 90% of normal, just enough to where NTs think said person is normal and are just being "difficult", "seeking attention", or "just anti-social". What they don't understand is that it takes a ton of mental processing just to function at that level and that processing takes a toll in the form of stress. I wish we lived in the matrix so I could upload my thought patterns to some NTs and see how "normal" they think I am...if they survive the experience that is.



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31 Mar 2015, 1:21 am

Aristophanes wrote:
Unfortunately that's the second time I've read that exact same article. Got the same feeling this time as last too. The author does everything possible to discount Asperger's-- it's either over diagnosed and you don't really have it, or the clinical definition has changed so it doesn't really exist, or you're making it up to suckle services from truly needy people (I'd like to know the exact benefits of diagnosis the author alludes to because I have yet to see any here in the states).

As for those that don't have it and claim they do, that's life, there will always be some asshat ruining things for other people.

The problem with Asperger's Syndrome is that some can function @ 90% of normal, just enough to where NTs think said person is normal and are just being "difficult", "seeking attention", or "just anti-social". What they don't understand is that it takes a ton of mental processing just to function at that level and that processing takes a toll in the form of stress. I wish we lived in the matrix so I could upload my thought patterns to some NTs and see how "normal" they think I am...if they survive the experience that is.


You nailed it.



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31 Mar 2015, 1:52 am

Aristophanes wrote:
Unfortunately that's the second time I've read that exact same article. Got the same feeling this time as last too. The author does everything possible to discount Asperger's-- it's either over diagnosed and you don't really have it, or the clinical definition has changed so it doesn't really exist, or you're making it up to suckle services from truly needy people (I'd like to know the exact benefits of diagnosis the author alludes to because I have yet to see any here in the states).

As for those that don't have it and claim they do, that's life, there will always be some asshat ruining things for other people.

The problem with Asperger's Syndrome is that some can function @ 90% of normal, just enough to where NTs think said person is normal and are just being "difficult", "seeking attention", or "just anti-social". What they don't understand is that it takes a ton of mental processing just to function at that level and that processing takes a toll in the form of stress. I wish we lived in the matrix so I could upload my thought patterns to some NTs and see how "normal" they think I am...if they survive the experience that is.


There is no such thing as aspergers/asspurges/assburgers as a diagnosis. So glad that era is over. Autism with levals of functioning is the way.



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31 Mar 2015, 3:02 am

SIDWULF wrote:
Aristophanes wrote:
Unfortunately that's the second time I've read that exact same article. Got the same feeling this time as last too. The author does everything possible to discount Asperger's-- it's either over diagnosed and you don't really have it, or the clinical definition has changed so it doesn't really exist, or you're making it up to suckle services from truly needy people (I'd like to know the exact benefits of diagnosis the author alludes to because I have yet to see any here in the states).

As for those that don't have it and claim they do, that's life, there will always be some asshat ruining things for other people.

The problem with Asperger's Syndrome is that some can function @ 90% of normal, just enough to where NTs think said person is normal and are just being "difficult", "seeking attention", or "just anti-social". What they don't understand is that it takes a ton of mental processing just to function at that level and that processing takes a toll in the form of stress. I wish we lived in the matrix so I could upload my thought patterns to some NTs and see how "normal" they think I am...if they survive the experience that is.


There is no such thing as aspergers/asspurges/assburgers as a diagnosis. So glad that era is over. Autism with levals of functioning is the way.


In America yes (though i'm sure the rest of the world will follow.) I think that is beside the point as ASD-1 is basically exactly the same thing, it is just a change of term, and everything Aristophanes said is still valid.



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31 Mar 2015, 6:48 am

something_ wrote:
SIDWULF wrote:

There is no such thing as aspergers/asspurges/assburgers as a diagnosis. So glad that era is over. Autism with levals of functioning is the way.


In America yes (though i'm sure the rest of the world will follow.) I think that is beside the point as ASD-1 is basically exactly the same thing, it is just a change of term, and everything Aristophanes said is still valid.


Very much so. I agree with Aristophanes completely (especially the part about asshats, which don't seem particularly fun to wear).

Which brings up another question. Does everyone think the DSM-V was right to eliminate Asperger's and group it in with autism? I've gone back and forth. I can see the many parallels, so I've been convinced they are part of the same neurological disorder, although autism proper has many more difficulties. Still, I currently think it is right to combine them. Do you prefer to be considered 'autistic' rather than 'Aspie?' Do you think they are separate enough to be their own disorders, as they were in the DSM-IV? My psychologist says she prefers the DSM-IV definition because, while autism and Asperger's are related, she sees enough differences to warrant a separation; she says Aspies have different needs than autistics with lower function. What does everyone think?


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31 Mar 2015, 11:33 am

jimmyboy76453 wrote:
something_ wrote:
SIDWULF wrote:

There is no such thing as aspergers/asspurges/assburgers as a diagnosis. So glad that era is over. Autism with levals of functioning is the way.


In America yes (though i'm sure the rest of the world will follow.) I think that is beside the point as ASD-1 is basically exactly the same thing, it is just a change of term, and everything Aristophanes said is still valid.


Very much so. I agree with Aristophanes completely (especially the part about asshats, which don't seem particularly fun to wear).

Which brings up another question. Does everyone think the DSM-V was right to eliminate Asperger's and group it in with autism? I've gone back and forth. I can see the many parallels, so I've been convinced they are part of the same neurological disorder, although autism proper has many more difficulties. Still, I currently think it is right to combine them. Do you prefer to be considered 'autistic' rather than 'Aspie?' Do you think they are separate enough to be their own disorders, as they were in the DSM-IV? My psychologist says she prefers the DSM-IV definition because, while autism and Asperger's are related, she sees enough differences to warrant a separation; she says Aspies have different needs than autistics with lower function. What does everyone think?



I think it doesn't much matter come October there will be a huge shift in how people are diagnosed again (in the U.S.). As they try to make a globally unified system of diagnosis. So then people can argue over how horrible that is. :roll:



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31 Mar 2015, 11:36 am

jimmyboy76453 wrote:
Which brings up another question. Does everyone think the DSM-V was right to eliminate Asperger's and group it in with autism? I've gone back and forth. I can see the many parallels, so I've been convinced they are part of the same neurological disorder, although autism proper has many more difficulties. Still, I currently think it is right to combine them. Do you prefer to be considered 'autistic' rather than 'Aspie?' Do you think they are separate enough to be their own disorders, as they were in the DSM-IV? My psychologist says she prefers the DSM-IV definition because, while autism and Asperger's are related, she sees enough differences to warrant a separation; she says Aspies have different needs than autistics with lower function. What does everyone think?


Yeah I still default to Asperger's Syndrome, but high functioning on the spectrum, or level1 (must be European, haven't encountered that one yet) are all the same thing, it's just a different term for the same concept.

As for different categories, no I think they should all be on a spectrum because they all come from the same thing: the mind processing too much information. I have level1, high function, AS, whatever you want to call it, but I do understand low functioning (which is a poor term in my opinion because the term itself is derogatory-- low functioning meaning "low functioning to other people/society"). For the people with higher functioning autism, imagine your mind's ability to absorb information cranked up an extra 20%...in a sense "low-functioning" is actually very very high functioning autism-- so high that the outside stimulus is so intense you can't concentrate enough to form verbal words in real time and the constant need for stims to alleviate the sensory pressures. If someone is upset that they're being lumped together with "low functioning" I find that to be worse than NT's behavior towards people with Asperger's-- they should know how it feels to be left out, harassed, and put down and should have much more compassion towards people that actually get worse social stigma than themselves.

When I was a substitute teacher I was in a classroom with a low functioning autistic child. I wasn't diagnosed with anything but depression at the time, had no idea what AS or low functioning autism really was. The kids were 5th graders and constantly harassed the child because "he doesn't speak, so he doesn't know what's going on". I was 23 at the time and even though I knew nothing about autism my instincts told me that the autistic child understood everything going on around him because I myself had gone through "phases" of mutism. I ended up sitting next to him the rest of the class and interacting as much as I could, even eating lunch with him at break-- I could tell he understood because he stopped flapping his hands and screaming when I gave him the attention he probably always craved but was completely neglected. That experience right there is all I need to know about high functioning/low functioning differences, because we're all the same just differing degrees.

Do "low functioning" autistics need different services/accommodations to function in society than "high functioning" autistics? Certainly. But that doesn't negate the underlying fabric that ties us together-- our brain wiring. I view the "higher functioning" as having a responsibility to defend, befriend, and accept their "low functioning" brothers and sisters because as hostile as the world seems to a person with Asperger's it's actually much much more hostile to those on the lower side of the spectrum that can't verbally communicate and have to constantly stim to control their sensory overloads. That's why I'm against separating it.

*side note: I sent three kids to the principles office for harassing the child. The principle brought them back, took me outside the classroom and told me he didn't have time to babysit "kids just being kids. Just do your job or you won't be back". I told him that was fine with me. Unfortunately for him, substitute teachers were in high demand and he didn't have any other options throughout the school year except to rely on me, lol.



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31 Mar 2015, 11:58 am

kicker wrote:
jimmyboy76453 wrote:
something_ wrote:
SIDWULF wrote:

There is no such thing as aspergers/asspurges/assburgers as a diagnosis. So glad that era is over. Autism with levals of functioning is the way.


In America yes (though i'm sure the rest of the world will follow.) I think that is beside the point as ASD-1 is basically exactly the same thing, it is just a change of term, and everything Aristophanes said is still valid.


Very much so. I agree with Aristophanes completely (especially the part about asshats, which don't seem particularly fun to wear).

Which brings up another question. Does everyone think the DSM-V was right to eliminate Asperger's and group it in with autism? I've gone back and forth. I can see the many parallels, so I've been convinced they are part of the same neurological disorder, although autism proper has many more difficulties. Still, I currently think it is right to combine them. Do you prefer to be considered 'autistic' rather than 'Aspie?' Do you think they are separate enough to be their own disorders, as they were in the DSM-IV? My psychologist says she prefers the DSM-IV definition because, while autism and Asperger's are related, she sees enough differences to warrant a separation; she says Aspies have different needs than autistics with lower function. What does everyone think?



I think it doesn't much matter come October there will be a huge shift in how people are diagnosed again (in the U.S.). As they try to make a globally unified system of diagnosis. So then people can argue over how horrible that is. :roll:


what is happening in October? I think it is already more unified than people might think, even though in the UK we don't use DSM-V they have already stopped diagnosing AS in favour of ASD in anticipation of ICD changing



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31 Mar 2015, 12:02 pm

Aristophanes wrote:
jimmyboy76453 wrote:
Which brings up another question. Does everyone think the DSM-V was right to eliminate Asperger's and group it in with autism? I've gone back and forth. I can see the many parallels, so I've been convinced they are part of the same neurological disorder, although autism proper has many more difficulties. Still, I currently think it is right to combine them. Do you prefer to be considered 'autistic' rather than 'Aspie?' Do you think they are separate enough to be their own disorders, as they were in the DSM-IV? My psychologist says she prefers the DSM-IV definition because, while autism and Asperger's are related, she sees enough differences to warrant a separation; she says Aspies have different needs than autistics with lower function. What does everyone think?


Yeah I still default to Asperger's Syndrome, but high functioning on the spectrum, or level1 (must be European, haven't encountered that one yet) are all the same thing, it's just a different term for the same concept.

As for different categories, no I think they should all be on a spectrum because they all come from the same thing: the mind processing too much information. I have level1, high function, AS, whatever you want to call it, but I do understand low functioning (which is a poor term in my opinion because the term itself is derogatory-- low functioning meaning "low functioning to other people/society"). For the people with higher functioning autism, imagine your mind's ability to absorb information cranked up an extra 20%...in a sense "low-functioning" is actually very very high functioning autism-- so high that the outside stimulus is so intense you can't concentrate enough to form verbal words in real time and the constant need for stims to alleviate the sensory pressures. If someone is upset that they're being lumped together with "low functioning" I find that to be worse than NT's behavior towards people with Asperger's-- they should know how it feels to be left out, harassed, and put down and should have much more compassion towards people that actually get worse social stigma than themselves.

When I was a substitute teacher I was in a classroom with a low functioning autistic child. I wasn't diagnosed with anything but depression at the time, had no idea what AS or low functioning autism really was. The kids were 5th graders and constantly harassed the child because "he doesn't speak, so he doesn't know what's going on". I was 23 at the time and even though I knew nothing about autism my instincts told me that the autistic child understood everything going on around him because I myself had gone through "phases" of mutism. I ended up sitting next to him the rest of the class and interacting as much as I could, even eating lunch with him at break-- I could tell he understood because he stopped flapping his hands and screaming when I gave him the attention he probably always craved but was completely neglected. That experience right there is all I need to know about high functioning/low functioning differences, because we're all the same just differing degrees.

Do "low functioning" autistics need different services/accommodations to function in society than "high functioning" autistics? Certainly. But that doesn't negate the underlying fabric that ties us together-- our brain wiring. I view the "higher functioning" as having a responsibility to defend, befriend, and accept their "low functioning" brothers and sisters because as hostile as the world seems to a person with Asperger's it's actually much much more hostile to those on the lower side of the spectrum that can't verbally communicate and have to constantly stim to control their sensory overloads. That's why I'm against separating it.

*side note: I sent three kids to the principles office for harassing the child. The principle brought them back, took me outside the classroom and told me he didn't have time to babysit "kids just being kids. Just do your job or you won't be back". I told him that was fine with me. Unfortunately for him, substitute teachers were in high demand and he didn't have any other options throughout the school year except to rely on me, lol.


well said. I don't think anything except the scientific understanding of the condition should be a factor in classification. So that goes for Aspies who don't want to be considered Autistic, and Aspies who don't want other Aspies to 'delegitimise' their own condition etc, that just shouldn't be a factor if the same underlying pathology exists across all cases.