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Niko_Oeyes
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24 May 2015, 2:58 am

queensnicklefritz wrote:
It seems to me as if everyone on here is a fantastic communicator, maybe just not verbally. Sometimes I just think my brain goes to fast for my mouth & people can't keep up, so I get frustrated & don't articulate myself properly because I have to phrase things in such a way for people to understand. ]

I am an excellent writer; however, if we were to talk in person you would clearly see a difference. I simply can't communicate as well orally and really dont know why. It became apparent to me in high school. I was always a quiet child and people attributed it to me being shy and now I am clearly aware I stutter,repeat words and stammer, but it isn't anxiety. Too bad only now is anyone noticing that I've been mislabeled as shy she I really have a communication problem.

Also the tattoo thing sounds really interesting.

And yes it is extremely difficult to find help as an adult if you flew under the radar. I have been to many doctors who could not explain my "sensitivities" as I know now. Then people see my academic record and hear me talk about my interests and respond with things like you have no disability you are so intelligent!
Yet I clearly dont understand people. I dress comfortable not to impress. That is just stupid to me. I dont follow tabloids because what benefit is it to me to know that Ben Affleck bought a mansion? I probably would get mad at them for wasting money! Lol

I tried to be a cashier once,but my senses were bombarded constantly and I started having panic attacks. Noises literally make me want to attack whatever is making it and nobody can tell me why or I'm just left feeling invalidated.

[ No one cares that I can compare and contrast all the religions & mythologies of antiquity because they are all the same gods with different names & it is fascinating to no one but me.]

Hey now that's not true! I like noticing things like that myself. And by no means am I trying to offend, but religion scares me. It scares me because throught history it has been a tool used by those in power to keep people deemed inferior in servitude. I have philosophies and moral on life, but they are not in just one religious text.

[ Maybe we should just follow Widespread Panic around in tents for the rest of our lives, except I have a heightened sense of smell & hippies smell like nag champa covering BO & it makes me gag. ha.]

I have thought off going off grid,but it would be too hard for me. Ha

[ My son has a pair of chromosomes deleted on one strand, but to make up for it, has a duplicated set on another strand. So, the exact same numbers as a normal person, just rearranged. ]

That sounds like the chromosomes did not split properly during mitosis, can't remember the term for it, it's been a while since biology class! That would have occurred when "Your" sex cells were formed, aka in the womb which leads back to the whole hormonal / gene regulation in the womb. Once acquired this mutation can easily stay within your family's bloodline. So even if it wasn't formed in your cells, you very well could have inherited it. And this could have been inherited many many generations ago! It clearly can't be a detrimental mutation, nature simply doesn't work that way. Society could beg to differ though. Makes me wonder if we are the type of people who will help humanity progress for the better.

Unfortunately the Adderall is not working as intended. It wears off too fast and shocks my system giving me adrenaline induced panic attacks, just like I had as a cashier a few years back. She in my system I feel calm and can think, but the side effects are too much. I was doing a little research and found I may need something that affects that neurotransmitter that begins with an n, I can't remember how to spell it. I was on Effexor a while ago, which also affects it, and it helped with my over sensitivity, but the serotonin part killed my motivation and made me emotionally numb. Another reason SSRIs did nothing but make me worse. I might try Strattera and see how that works. And yes I agree many are addicts because we can't find relief. Many in my family are alcoholics.

Fluorescent lights also make me sick. It could be because they oscillate rapidly and our brains are sensitive to it. Most people are not aware of the flickering until the bulb is about to burn out and we can actually see it flicker.

I will look into that book. Could be helpful.

Not sure if I mentioned it, but I went to high school for visual arts. Did a year of art college but it wasn't for me so I switched to biology. I love drawing animals and plants anyway! I am trying to get into natural homemade soaps, cleaners, foraging, salvaging, etc. And the big companies don't want you to know most of the "good stuff" is naturally derived, cheap and may even be in your garden or home already! If I ever get my soap making going, try looking me up if you are interested :)

I am ambidextrous to a point. I only use my right hand for writing/ drawing and the left for just about everything else, but switch if I get tired. I can't play instruments because I can't use both hands simultaneously which is also a reason I can not drive because it affects my feet as well. Meaning, I can only focus on one limb at a time and my switching speed is slow.

[And doctors are Trebeks. They can suck it long & suck it hard. Haha. Did I just say that out loud? I can here :!:
]

HA! I can't remember how many time I say that about things like this.

You are always welcome on this sight. Be sure to share all you knowledge with people here. I'm sure many will enjoy it :)



Niko_Oeyes
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24 May 2015, 3:15 am

iliketrees wrote:
starkid wrote:
CryosHypnoAeon wrote:
the f***** up thing is that these shrinks are the gatekeepers to resources us autistics need.

LMFAO! You started a thread in which you stated that you suspected yourself to be autistic and asked if you seemed to be on the spectrum JUST YESTERDAY.

viewtopic.php?f=3&t=286272

Have you made up your mind so soon???

Also, these essay-long posts in this thread? I am dying. :P


I find it worrying :?

queensnicklefritz, CryosHypnoAeon and Niko_Oeyes all agree with each other and seem to get each other

However, none of them are diagnosed autistic.

But because they all agree they think "we fit in here" and therefore queen and Cryos think "we are autistic" (not sure if Niko has said it, but I know queen and cryos have from their other posts as well as here). It leads to them all becoming sure of their self diagnosis so much they start speaking as though they are sure they are autistic.

I hated to burst their bubble earlier, but now you've started it I might as well.

I honestly think you are NT hypochondriacs. They keep rejecting you for a reason; they see no problem. They help people with problems.


I'm not self diagnosed and don't label myself autistic. I simply want to share my experiences in hopes of finding somebody I can relate to. I do seem to relate very well to people on this website from posts I have read, but that will not make me say that I have their condition. I am seeing a therapist, psychiatrist and neurologist who suspect I do have some form of autism. Being female doesn't seem to help if it is the case.



Cyllya1
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24 May 2015, 3:23 am

On one hand, it makes sense that they shouldn't diagnose you with anything if they don't know what's wrong. I mean, a diagnosis is a declaration of what's wrong, so if they don't know what's wrong a diagnosis would be fake.

But on the other hand, since a diagnosis is so often a starting point for getting help, it seems like there should be some kind of "I can tell something is wrong but I don't know what it is" placeholder diagnosis, to distinguish people with mysterious problems from people who don't have problems. I don't think an individual therapist has the kind of authority to create new officially-recognized diagnostic options though.

Quote:
As self-diagnosis provides exactly zero of the external benefits of professional diagnosis, the only other purpose it can serve is internal: People self-diagnose because their personalities compel them to do so.


That's not true; I know I've gained some pretty substantial benefits from self-diagnosing. You might call those benefits internal(?), because it affects only my actions and not the actions of others, but not if you're using "internal" to mean "not legitimately useful."

I'd actually say (somewhat shamefully) that my personality is irrationally compeling me to pursue a formal diagnosis. I want validation or whatever. I'm hoping that a formal diagnosis will give me access to more help, so I'm using that to justify my choice, but I suspect it'll end up being completely useless beyond giving me more "street cred" on the autism-related sections of the internet.


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Niko_Oeyes
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24 May 2015, 3:36 am

Transyl wrote:
I know there is no perfect comparison to this whole diagnostic drama. The closest thing I can think of is if someone said, I'm Christian, or I'm Hindu, or whatever, and people told them, "No you're not! You don't act exactly like us!" Or, more accurate for the comparison, "Nuh uh! The minister doesn't think you are so you're not!"

Which works well enough just because how often things like that legitimately happen. Tons of believers of one faith or another attack the members of their own congregation. There is so much judgment among people who should be comforting and supporting each other.

I remember once the minister of my old church told me that in his eyes most of the kids that attended service weren't real Christians. Just because their lifestyles didn't perfectly match his vision of how they should be. In the religious sense, he'd probably be considered an expert, but experts can be biased and flat out wrong.

Look, we all do it now and then. Maybe someone handles things better socially, or they don't have a lot of negative side affects, and we doubt them being autistic. Just like how Christians judge each other based on stuff like how often they go to church and other nonsense.

The thing that we should do is recognize that it is in fact nonsense. I mean, what's the worst case scenario? That someone has enough symptoms that they're convinced they're autistic? That their life is similar to the point that they relate to us, but they're brain is technically NT?

Oh, how terrible! We should kick them out of our club! They need to be cast out!

They'll be fine. Surely they're not lonely and in need of someone like us to give them company. It's not like they came to us because talking to NTs still left a void that maybe we could fill.

And clearly we'd never benefit from them. Sure, they relate to us and are kind, but like... we'd never be good friends. It just wouldn't work out. For reasons I can't explain, but trust me, they exist, because I said so.


Yeah I just started using this forum again because I'm kinda lonely. I dont know if I'm autistic, but " normal" people dont really accept me. I grew up with few if any friends because of it and it stings to come here and be shunned again when I was only looking for acceptance. I would assume that, myself being neurotypical or not, people here would like people who can relate?



iliketrees
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24 May 2015, 4:40 am

That seems fair enough, Niko. I have no problem with what you are saying. I hope you are able to find out for yourself, but in the meantime of course you can stay on WP. Queen and cryos are who I was talking about after my first sentence, sorry it was not so clear.



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24 May 2015, 5:03 am

queensnicklefritz wrote:
So I went to the head dr today. I told him I think I am an Aspie. All my symptoms, family history, etc. He just types & quit scheduling me. He referred me to another dr. Every single doc I have ever been to sends me to another doctor or quits scheduling me. This is a waste of my time, money, and energy. I have decided to stop going to doctors. What is the point? I double majored in psychology. My IQ is 140. I can Pavlov myself. They just want to give you a pill to cover it up. I am manic, but i am not depressive. I don't need an antidepressant. I am hyper & I can't focus with my eyes, but I do not have ADHD. Aderall just makes me loose stuff faster. I do not have a personality disorder, I just have a personality. No one can give me a diagnosis. I have been in finishing school my entire life & have learned to fall under the radar by massive effort. I think it is easier for women, honestly. I was a cheerleader, but only because I am loud & like to jump. I hung out with the nerds. I can mimic body language. This is the only thing that has allowed me to exist. I have no idea what other people are feeling, nor do I honestly give a s**t. I can tell what they are thinking before they think it though, & it is always so mundane & shallow, it makes me want to vomit. Handbags & shoes! Barf. Like this is what matters in life! I go to the country club, but I find the facade of the entire experience exhausting & I want to tell everyone to go f**k themselves. I just want to sit alone in my room and read about mollusks, is all I can think as I eat escargot. I wish I could hide in a shell. When I was a kid, I played with turtles instead of other children. Now I have 3 children. Children love me. They think I am old mother hubbard. They are loud & want to touch me all the time & I want to go into the fetal position. I am getting my third divorce because I can't reciprocate emotions. Ok. Just had to vent to anyone who understands. My house looks like a tornado came through it & I am sick of being talked down to about it like I am stupid. Why do people think they are better than everyone else just because they can match socks? Socks make my teeth itch. I wore flip flops all Winter & my toes froze, not theirs. Why do they care? Then I start talking about Eastern Philosophy & they stare at me with blank faces (they all look blank) & I want to take my flip flop off and throw it at their head. Am I the only one who feels this way? The End. 8)


Why don't you seek a diagnosis at a center that specializes in diagnosing autism spectrum disorders?



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24 May 2015, 1:22 pm

starkid wrote:
ASPartOfMe wrote:
From what I have read it is either personality, inherent difficulty of obtaining professional diagnosis, and difficulty or need to receiving external benefits even with professional diagnoses or some combination of the previous. I do know it is inherently difficult to know motivation based on an internet thread.

Personality is ALWAYS the reason because self-diagnosis is fundamentally nothing more than a state of mind. There is literally NOTHING external to the self that can compel one to self-diagnose because there is nothing external to the self that can compel one to adopt any particular state of mind. External circumstances may provide a context for the decision, but they are never the core reason. Barring severe brain damage and the like, the individual retains control over her state of mind no matter what happens to or around her; she, not her circumstances, is therefore the ultimate arbiter of whether or not to self-diagnose.


Personality is at most one reason, but the others could be core reasons also. Without the difficulties obtaining diagnosis or problems getting or lack of need of benefits I do not think most of the people we are discussing (mature adults) would stop at self diagnosis, but you have to ask them to be sure.


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Niko_Oeyes
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24 May 2015, 2:14 pm

ASPartOfMe wrote:
Personality is at most one reason, but the others could be core reasons also. Without the difficulties obtaining diagnosis or problems getting or lack of need of benefits I do not think most of the people we are discussing (mature adults) would stop at self diagnosis, but you have to ask them to be sure.


I find diagnosing is very hard, even for medical professionals because, as humans, we try to fit people into neat little categories when in reality it isn't so simple. I have found it to be similar to differentiating species since categorizing can have massive upheavals once new information is obtained and even still separate species lines can be difficult to divide.
The more recent adoption(or public awareness?) of spectrums for mental health issues seems to be a bit more accurate.

Then growing up in a place with few resources or in a lower economic class (which I did) could also prevent getting a diagnosis and lead people to self-diagnose.

For these reasons I do not self diagnose. I will share my experiences and "symptoms". Then if people also have them, we can talk about how to help each other, if not, then that's okay too.

Also just a side note. Growing up, my mom was told I was gifted and shy by my school. I didn't talk much, but because I could write well and received excellent grades, no one thought anything out of the ordinary. I was just a quiet girl. Then as I started falling behind my peers in late high school (Not in grades, but in being able to work and learn to drive, have friends, etc.) I was labelled depressed/anxious and took medicine after medicine for it, believing I was just treatment resistant. Luckily, the therapist I am seeing now is getting to know me and has made me aware that I have gross motor problems with multitasking in my limbs, but because I am gifted in the visual arts, this problem was largely ignored. She has also noticed that I have a verbal language problem which was always labeled as me being anxious, but I still stutter, stammer and trip over my words even when I'm not anxious. I wasn't even aware of it until she was able to tease it out. And then when the possibility of ADHD was brought up, I was shocked because that thought never even crossed my mind. So we will see where it goes and hopefully I start to get a better hold on my life whether I have Aspergers/ADHD or not.



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24 May 2015, 2:43 pm

Niko_Oeyes wrote:
I still stutter, stammer and trip over my words even when I'm not anxious.
Sorry, I know how hard that is. I have a severe stutter. It's been more difficult for me than I think anyone realizes. My family kind of sees how rough it is on me... but it's worse than even they think. It affects everything.

Like you, I did well enough in school, but I couldn't do the verbal things like answering questions, giving speeches, etc. I felt more crap because of that. I felt like the others thought I was getting off easy but I wish I could do those things instead of being incapable and feeling ashamed because of it.

After all the hardships people on this board have went through I hope we can be happier some day. Maybe we can do a little good just by supporting each other.



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27 May 2015, 8:19 pm

iliketrees wrote:
Your self diagnosis with such little basis doesn't mean you are autistic. Only a professional can decide that. You are not autistic until then.


8O Wow. How wonderful to know, now I just never have to go see a psychologist and I get to be neurotypical. Problem solved. Great news. This is going to make my life so much easier. I just never have to get diagnosed--that means my inability to interact with or understand the vast majority of humanity will just fade away...oh wait, it's still there like it's been since I was a child.
:roll:

Now that the obligatory sarcasm is out of the way. As has been mentioned previously by others here and in all the literature I've read, if you actually want a diagnosis it's best to seek someone who specializes in autism, I've even seen it suggested if you can't find an adult autism specialist you might try a child specialist and see if they are willing to take adult clients (some are). The real issue is whether they specialize or not. I'm kind of lucky in that I'm close to Atlanta and there is active research in autism going on here so I've been able to find a psychologist who has experience testing for autism and Asperger's, I'm just waiting on the appointment.



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28 May 2015, 2:25 am

What's up with the sarcasm? :| I wasn't saying the problems don't exist, just that they might not be autism and something else. The human mind is complicated. I've seen people here who were not sure if it was autism and in ways were autism-like but a professional found them to be on part of a different spectrum, which actually fits them better and makes sense later to them. Difficulties with socialising are not unique to autism and there are a whole variety of things not considered. It doesn't go to say they have no problems, just the problems people who are self diagnosed are facing are not necessarily autism. Please don't be sarcastic because I didn't explain very well, I try my best to. :|



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29 May 2015, 5:23 pm

ASPartOfMe wrote:
starkid wrote:
Personality is ALWAYS the reason because self-diagnosis is fundamentally nothing more than a state of mind. There is literally NOTHING external to the self that can compel one to self-diagnose because there is nothing external to the self that can compel one to adopt any particular state of mind. External circumstances may provide a context for the decision, but they are never the core reason. Barring severe brain damage and the like, the individual retains control over her state of mind no matter what happens to or around her; she, not her circumstances, is therefore the ultimate arbiter of whether or not to self-diagnose.


Personality is at most one reason, but the others could be core reasons also. Without the difficulties obtaining diagnosis or problems getting or lack of need of benefits I do not think most of the people we are discussing (mature adults) would stop at self diagnosis, but you have to ask them to be sure.

It is as if you have not even read the comment to which you have responded. I do not see the purpose of quoting my post just to repeat a point with which I have disagreed without addressing the reasoning behind the disagreement.



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29 May 2015, 6:20 pm

starkid wrote:
ASPartOfMe wrote:
starkid wrote:
Personality is ALWAYS the reason because self-diagnosis is fundamentally nothing more than a state of mind. There is literally NOTHING external to the self that can compel one to self-diagnose because there is nothing external to the self that can compel one to adopt any particular state of mind. External circumstances may provide a context for the decision, but they are never the core reason. Barring severe brain damage and the like, the individual retains control over her state of mind no matter what happens to or around her; she, not her circumstances, is therefore the ultimate arbiter of whether or not to self-diagnose.


Personality is at most one reason, but the others could be core reasons also. Without the difficulties obtaining diagnosis or problems getting or lack of need of benefits I do not think most of the people we are discussing (mature adults) would stop at self diagnosis, but you have to ask them to be sure.

It is as if you have not even read the comment to which you have responded. I do not see the purpose of quoting my post just to repeat a point with which I have disagreed without addressing the reasoning behind the disagreement.


I just think external factors are hugely important and core reasons in the decision making process be it self diagnosis or anything else. The amount externals influences factor in should vary among people. But liked I said I am not sure. I can just go by what people write. You claim to know that internal factors are the core reason. If you do know this then you have a cognitive ability I just do not possess.


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nomad42
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30 May 2015, 1:43 am

queensnicklefritz wrote:
Mainly what I come up with is that they can't diagnose me with anything. I have never gotten any sort of diagnosis. And I tell them I don't want to take pills. I am thinking about going to a homeopathic doctor. I told my doctor I wanted some sort of cognitive-behavioral therapy because I had gotten off my pills and felt fantastic. I just need to learn some communication skills and how to interact in the world. Psychiatrists are in the business of writing prescriptions. Psychologists don't know what to do with me because they can't pin me with anything. I think they are a little taken aback by my self-awareness & knowledge of psychology in general. Trust me, after years and years of going to these people, they don't like to have patients other than mindless drones. And I am a jovial person. I laugh a lot and make jokes. I loose my temper some, but I am not depressed. I think they are only used to seeing depressed people.

btbnnyr wrote:
If there is a pattern of psychs quitting you, then you might be coming across in a way that makes multiple psychs want to quit you, but I don't know what way that could be.


What would be the most autistic things you do? Anything you could pinpoint. Are you jovial around people? several people at once? There are a lot of Psychiatrists who just like to push pills and are not qualified to recognize autism in anyone beyond 12, especially in fly over country (middle of the U.S.A.)