Why Are Aspies Suspicious Everyone Is Lying About Autism?
This claims that Temple Grandin wasn't formally diagnosed until her 40s.
Despite her family having a ton of money for special services and educational opportunities that most parents would love to have today.
I read she was two when diagnosed, then I read she was 14, and now it says she was in her 40's. She even wrote in one of her books that she was 12 when she was told she was autistic and the first thing she thought was "So that is what's different about me." It sounded like she didn't ask any questions or ask what it was or ask how it fits her.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
Sweetleaf
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I don't think that.
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BirdInFlight
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ASPartOfMe
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Aspergers/Autism has been the seen as a "disease of the month" for probably two decades now. I mostly agree with above reasoning. The truthful cliche "If you tell a lie often enough people will believe it" applies here. People in thier 20's who have been told they are part of a fad or a scam their whole life are going naturally start looking for the supposed fakers and wanabees who have invalidated thier struggles instead of putting the blame where it belongs, those spreading these myths. Once you start looking you can start seeing "them" everywhere.
The undiagnosed missing older generations have been told similar things there whole life they are weak, lazy excuse making losers. The only logical explanation at the time was charactor flaws. Then an explanation that makes sense arrives. Acceptence, relief, increased self esteem follows. Some overcompensation in the form of supremisicm and retro diagnoses occurs. And here comes threads that mimic what they have been told thier whole by seeming ungreatful mellenials who are seemingly judging them based on the extremists. That obvoiusly does not go over well. Us older people start to see every post with this theme as yet just another accusation against us same old, same old. Sometimes these threads are really just about a few idiots on tumbler.
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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I see this theory mentioned a lot to try and explain this strange skepticism around autism, but have yet to see this actually happen.
When has anyone said they're autistic and received any kind of "special snowflake" like treatment? In my experience you disclose and you get treated like a ret*d. Suddenly no one wants to know you is the most common response. I have never received any kind of veneration for it. No one has told me I'm "special" for it, just delayed/defective. I've actually never run into any way in which autism was "trendy" in the slightest.
It not that people are treating us like special snowflakes, so much as they seem to be implying that we think we're special snowflakes. I don't get any veneration, either. But some people will despise you for having the audacity to say that you are somehow different.
Maybe it's some warped kind of jealousy - I don't really know. I certainly didn't choose to be born on the spectrum so I could opt to be "trendy."
But isn't that person kind of a rare occurrence? From what I've noticed, more people seem to have come here stating that they've done more research than that.
I know I for one did more research after my initial suspicion, a lot more, got more and more depressed, and then stopped even wanting to think about it for years.
Then I began again to research but it was still a dark thing for me, not something I was eager to embrace.
I only finally got diagnosed two years ago having first suspected myself in the early 2000's. That's a long time to consider something and turn it over in one's mind before making rash proclamations.
Also, self-suspecting is better than self diagnosing but a rose by any name is often necessary as a precursor to pursuing a real diagnosis anyway.
I realize that's only one person and anecdotal, but if there was me there may be more like that, and I've seen more who describe this also.
Again all anecdotal, but it's very hard to be one of the deeper explorers for whom this was a painful thing to even suspect, and find that everyone merely assumes: "Oh you read Wiki and saw Big Bang" or whatever the raft of accusations may be that week.
I guess the real question is, even if someone only did read on wiki and take an online test why does it matter so much to you? By the way, seeing something online or in the news, having a friend or family member mention something to you and then looking things up their selves, then seeing a physician is how most adults find out they have Asperger's to begin with. So I don't see your point.
I don't see why someone would diagnose themselves with a disorder just because the quiz says they are if they are not having any problems in life or don't think they have anything wrong with them nor if have they never felt different from others and never had to figure out how to act an to study behaviors to figure out how to act and what not to say and keep making mental lists of what not to say to people, etc. I have scored high on a personality disorder test and it said I was moderate or high with personality disorders but I didn't take it seriously. That was years ago.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
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AdamLain -- did you post the wrong quote when you posted mine and said you don't see my point? The reason I ask is that I'm one of the ones who are in complete agreement with you on this thread. It doesn't "matter so much to me" at all -- that was someone else on the thread who finds it matters to him if someone only read a Wiki page, not me.
I too ask why so many people on the spectrum think others are lying. I then gave the story of my personal journey with being an older person who found out late and got diagnosed later in life. I told my story to illustrate that I'm quite the opposite of one of the trend-seekers -- which is what the suspicious aspies accuse "new aspies" of being.
If you need further clarification please let me know. I'm with you on your original question, not against you.
My stepsister has made multiple snarky comments about my "label." I recently had to unfriend and block her, as she was becoming increasingly obnoxious online.
It happens.
This is just an honest observation I had personally on reading your post, so I'm not trying to attack or offend you....but you seem to rail against the belief that people with ASD want to be considered special snowflakes....wasn't that the imprssion you gave off yourself when you posted on Facebook, ergo the reactions? The very reactions this thread is about?
None of my family know about my diagnosis, none of my friends or coworkers know, the only person who knows is my partner as they're the only one that deserves to know. There is a message you're giving off when you announce these things, so you can't really announce then complain at the backlash.
I will own up to this suspition, because i see that people "symptoms" arent very symptom like. And people pick and choose what symptoms do mean autism and which ones dont. Also as soon as your aware of the autism symptoms you will start acting more autistic unintentionally.
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I have seen countless "autism problem" blogs where most of the "autism problems" have nothing to do with autism, at all.
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BirdInFlight
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You see, I never get to see anything like that because WP is the only place I go that has any connection to autism issues. I don't look at blogs or belong to Facebook groups or anything like that. So I guess I don't get to witness hordes of fakers claiming this or that.
In my real life I don't disclose or discuss autism with anyone. Nobody knows I have a diagnosis. I've had to fill some people in on difficulties but I've addressed only the specific "thing" -- I've said I have anxiety or sensory processing problems or even just "I don't like crowds" " I don't like noise" ----- without actually going all the way and saying I have an ASD. If I have to explain anything I've just said the above. I don't announce it to people.
The only people who know I have it are here on WP, and even here I don't feel comfortable, precisely because of the cynical suspicion so often expressed here. There's something wrong with that. This is one place that's kinda-sorta supposed to be a source of support, not suspicion.
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I have not looked at autism Facebook pages or tumblr but I do read autism bloggers and vloggers and I can tell you what goes on here is relatively tame compared to thier comments sections. They are constantly accused of faking it for attention,"diagnosed" with narcissism, since for whatever reason most of these bloggers are women using thier hot body to gain sympathy. This is especially bad because in some cases they have been accused by one or more proffessionals of the same things.
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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
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If those online platforms are that bad either leave those platforms or confront the fakers over there. For awhile people in nearly every comments sections were telling us how we should define ourselves. When that happened they were immediatly confronted by multiple people. This problem has been greatly reduced. These fakers need to have holes punched in thier overinflated egos.
Since the problem seems rampant in those two platforms the thing to do is start a thread about self dx fakery in those platforms and not to make it into a widespread general accusation. When people have been accused of attention seeking or fakery thier whole lives they are often they think these type threads are about them personally and people like them generally. This vicous cylcle has been repeated here nearly weekly and has done nothing to solve the autistic wanabee issue as far as I can tell. We have older members who most likly do not use tumblr so we will be oblivoius to whatever goes on there.
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
None of my family know about my diagnosis, none of my friends or coworkers know, the only person who knows is my partner as they're the only one that deserves to know. There is a message you're giving off when you announce these things, so you can't really announce then complain at the backlash.
Are you saying that people that disclose their diagnosis are doing it for attention or to be treated like a 'special snowflake'?
I disagree with that. It all depends on the reason why.
I have always been an open book. That's something that's really important to me. I don't want to hide any aspect of my personality, and that includes autism. I told some family members (receiving very mixed reactions) and I am now 'naturally open' about autism - I won't go around telling people for no reason, or bringing it into random conversations, but if it's on topic then I would definitely not have an issue with telling someone. I'm also waiting on a piece of jewellery (with the controversial jigsaw design) that may be noticed by people.
Just because I have nothing to hide and would like those closest to me to just be aware of this part of me, doesn't mean that I want to be treated as though I'm 'different' or 'special'. In fact, the responses I've been happiest with from friends and family have been 'this changes nothing'.
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