Did you think/hope that you'd someday turn "normal"?

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Clakker
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01 Dec 2017, 1:36 am

Raleigh wrote:
Raleigh wrote:
I knew I'd never be normal.
Normal is boring, anyway.

I mean, it's far more interesting to have meltdowns and shutdowns and weird and painful sensory issues and non-existent communication skills and go mute and have relationship breakdowns and make spastic hand movements, isn't it?


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If we’re going to normalize fidget toys(which I’m all for) then we should also normalize it when disabled people flap their hands, rock back and forth, or other behaviours that are viewed as “weird” but are actually self stimulation. Or at the least could you not stare or mock us. Because for some it’s just a case of fiddling around with a toy, but for us it helps us to function.

wayward-renagado on tumblr

I really enjoy your wit but I’m pretty sure you’ve heard that before as you have: “That not everything’s a joke.”

What are the sensory issues if you live in a less technologically advanced time? Our hyper senses developed to save ours and our groups “proverbial behinds”. Yes, the person with the hyper sensitive hearing walks point followed only second by the person with a hyper sensitive nose...

Dulled senses may be great now in a time of constant ticking and buzzing but less than 150 years ago they got you killed.

It’s been an interesting ten days WP but its back to RL now. Happy Holidays and a Happy New Year!


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EzraS
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01 Dec 2017, 2:44 am

Clakker wrote:
EzraS wrote:
I live in a real life world where everyone I'm around is either autistic or is extremely understanding and accepting of autism. Having autism still sucks.


That’s the rub isn’t it “Autism Sucks!” You and many normal people out there seem to agree. Just like many people agreed and still agree that heterosexuality is normal and everything else

You’re intelligent and I’ve noticed and read your posts with interest. I was using the LGBT as an analogy for advocating for the right to be your normal selve but I think you know this.

You may be surprised but I am much more aware of your type of autism than you might think.

Now, would you take a pill to make yourself more normal?



Would I take a pill to eliminate meltdowns, shutdowns, catatonia, hypersensitivity, inability to grasp abstract concepts, difficulties, dependent on fixed routines, perceptual difficulties, dependent on others to look after self, inability to control physiology, echolalia, being extremely withdrawn from everyone, being nonverbal? Hell yes.

Tell me which of the above should I want to hang on to? You may be aware of the problems of autism, but you seem to obviously want to gloss them over. And they don't just pertain to my type of autism, they pertain to actual autism period.

See your idiology, and we've seen it here before plenty of times, is like the polar opposite of Autism Speaks and it's just as detrimental in its own way.

I think there should be a new category for people like you. Something that's not in the DSM. Something like, rainbows and sunshine spectrum gift.



rogueone
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01 Dec 2017, 5:11 am

I do almost everyday

I wish I knew more about life than just movies and art stuff

I wish I was normal and not so weird and bizarre



kraftiekortie
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01 Dec 2017, 5:43 am

It would have been nice to be normal, and be able to relate to people.

Only recently have I gotten okay at relating to people.

It's just a pain in the tushey, godammit!

But it is nice to be Wolfie when others want you to just suck it up and join the human race.

My mother's boyfriend actually used to implore me to "join the human race."



Dataunit
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01 Dec 2017, 5:57 am

Yes, I did. Between ages 10-14, long before I got my diagnosis (or even knew that autism existed), I assumed it was an age thing and that I'd automatically snap out of it and become normal in adulthood. In my mid-teens, I realised it wasn't going to happen on its own, that I needed to work at it, so I began consciously copying NT behaviour (eye contact, conversational styles, etc) until I started being able to mask my autism so well that not even psychiatrists could tell. At my formal diagnostic interview two months ago, the clinician said that they've only recently realised just how many adults there are who appear normal but are actually concealing autism.


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01 Dec 2017, 7:49 am

TheAP wrote:
I did. When I was little, I used to pray to God that by a certain date, I'd be normal and able to have real friends and be able to do the things I couldn't. I would fantasize about what my life would be like in the future, and it always included me having close friends and being normal. When I was nine, I even vowed to myself that when I turned ten, I would start being brave and confident and tough and outgoing, all the things I was not. That didn't work out, of course. I didn't even last one day.

Fortunately, I've now accepted that I will never be normal. I have real friends online, and I'm fairly satisfied with myself and my life as it is.


I think your opening post was brave :D You've admitted to having feelings that clearly someone has reacted negatively. You were honest and open, something people of all nurotypes find hard to do.

Being able to share problems with others who will at least try to understand, is something most people have in real life. Finding somewhere to do this online has been life changing for me and I think for others too, as has reading about other peoples difficulties.

Clakker has been quite critical of our apparent lack of Autism Pride. His pride includes not putting anything of his status on his profile. This does not normally bother me, people should only share what they are comfortable with but I find it hypocritical in someone lecturing on being proud when they don't say what they are. I also don't think he had any idea what he was talking about.

I'm starting to wonder if being diagnoses young is a good thing. I was diagnosed at 42 which felt late, but all those things that go wrong, had been going wrong for 42 years, so getting an answer was great, I'm an Aspie :D All those things that turn out to be Aspie, I thought of as just me. To have not accepted them, would have been to not accept myself, so I accepted them. I'm indecisive, obsessive, petty, and self-centred. I'm not listing the ones people think I am, like unfeeling because I'm not. But I'm also kind, honest, and loyal, I'd make a great Labrador :) I think of those things as me, just as an NT person doesn't think to themselves 'hey I make quick decisions because I'm NT'

My point is, sorry I'm rambling, that for me taking away the Aspie would terrify me because the person left wouldn't be me, but being on here has shown me that our experiences are all very different and therefor so are our feelings.
Although I have a lot of integration issues, many on here have problems that I do not share and difficulties I have not had to struggle with so I think we're all answering the question differently and that's ok



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01 Dec 2017, 7:52 am

Dataunit wrote:
At my formal diagnostic interview two months ago, the clinician said that they've only recently realised just how many adults there are who appear normal but are actually concealing autism

That's a very good point. There's a great deal of my own thinking/hoping that I would one day become "normal" that was encouraged by mental health practitioners. My autism wasn't identified until I was 45, but my persistent anxiety and depression were very easily diagnosed. Now that I look back on it, almost all of the counsellors and therapists who I saw were actively promoting the idea that once the depression and anxiety were treated, the "normal" me, concealed by mental illness, would be revealed. For all of that time, they were, in effect, actively encouraging me not to accept my autistic traits as an innate part of who I am, albeit out of ignorance rather than malice.

However, I do also agree strongly with the points made by EzraS. For example, my poor executive functioning interferes greatly with my ability to get things done which I want to do. Many of these things that I wish I could get done more easily are independent of any expectations placed upon me by the society around me, and are not being hindered in any way by other people or institutions, only by my innate autistic traits. While I do accept that these traits are innate and should not be a source of guilt, that does not mean that I am necessarily proud of them or happy to have them.

Even if the world around me were to come to accept my autistic traits as simply another flavour of "normal", there are some traits which would be no less frustrating to me, just as many non-autistic people have personality traits which frustrate them or make them more susceptible to mental illness.


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01 Dec 2017, 8:14 am

I thought I was "normal", it was everyone else who had a problem.


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TheAP
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01 Dec 2017, 9:42 am

Clakker wrote:
It’s the internalized ableism that I roll my eyes at...you should never have to grow up to learn to accept your autism but you have haven’t you. You’re ok with it now but what if you could take a pill tomorrow and you wouldn’t have to be ok with it? You’re young according to you’re profile, if this is so then you’ve grown up during a time of great activism for ‘normal’ to be more inclusive. The neurodiversity movement isn’t any different from the other movements it’s saying stop telling me us we’re not normal. The title of your post says that your not and I am asking you to stop and think about why you think that you’re not normal.

Yes, in the past I had internalized ableism. I think I've gotten better with that now. People shouldn't be judged for the wrong attitudes they had in the past. And I put normal in quotation marks for a reason. I know there's no such thing as normal. But that's how I felt back then: like I was different from others, and wanted to be like everyone else.

fluffysaurus wrote:
I think your opening post was brave :D You've admitted to having feelings that clearly someone has reacted negatively. You were honest and open, something people of all nurotypes find hard to do.

Thank you.



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01 Dec 2017, 2:32 pm

EzraS wrote:
Clakker wrote:
EzraS wrote:
Clakker wrote:
I've spend ten days here and WP is a lot of things but a celebration for being born Aspie it isn't. There's a neurodiversity movement out there in the Real World you wouldn't know of it if you came on WP. Just imagine a site for transgender, lesbians, or homosexuals lamenting the fact of their differentness as much as is done here on WP.

Being an Aspie isn't something awful, pitiable, or in need of being lamented. It's a completely normal way of being human. Is there mistreatment of those on the spectrum you betcha but from all the threads I've read I'm absolutely horrified at the lack of Aspie Pride on this site.


Inapplicable. LGBT is not disorder, but autism is a disorder. It would be applicable to compare this site to one for people with another neurological disability like cerebral palsy.

I also have severe dyspraixa (which in my case is similar to cerebral palsy) and also has traits similar to autism. Am I supposed to celebrate it as well?


EzraS you know as much as I know that it wasn’t to long ago when being anything but heterosexual was intrinsically disordered, an abomination, illegal, and a mental disorder. Normal neurologically for you, for me, for everyone not born neurodiverse?

Imagine a future where autism can be detected in a routine prenatal screening. What kind of picture do the titles I highlighted communicate of how ‘normal’ the life of the potentially autistic child will be? Now imagine that before Stonewall and the LGBT pride movement the ‘homo’ gene had been detected how many parents would choose to have a non heterosexual child.

TheAP and EzraS this isn’t about you or me this is about that normal includes being born autistic. If you’re not willing to believe that why should those you call ‘normal’ do it? When the heteronormative make the rules then not being heterosexual is not normal and when the normal get to define normal guess where that leaves you, me, and everybody else who doesn’t fit their definition. Women’s history is full of horrendous examples of men making rules to the disadvantage of women. Do you really think this is any different?


Your analogy is still completely inapplicable and unrealistic.

Being gay does not result in any kind of impairment or disability, while autism does.
Does being gay cause communication difficulties with virtually everyone?
Does being result in sensory overload that results in meltdowns, shutdowns and catatonia?
Does being gay result in hypersensitivity?
Does being gay result in hyperfocus?
Does being gay result in an inability to grasp abstract concepts?
Does being gay result in learning difficulties?
Does being gay result in being dependent on fixed routines?
Does being gay result in in perceptual difficulties?
Does being gay result in being dependent on others to look after self?
Does being gay result in an inability to control ones physiology?
Does being gay result in echolalia?
Does being gay result in being extremely withdrawn from everyone?
Does being gay result in being nonverbal?
Does being gay result in having coordination difficulties?

I live in a real life world where everyone I'm around is either autistic or is extremely understanding and accepting of autism. Having autism still sucks.


I have been wondering about this "aspies are not good at grasping abstract concepts" for some time now...I've read this at numerous places, but this doesn't seem to fit anything else. Many (not all) aspies are very good at maths, physics and computer science, which requires lots of abstract thinking. In computer programming you have to form abstractions out of real world objects. Then there are also aspies who are very good with literature and arts, which are way less formal than STEM.

Also, when I read this message board, most postings seem to be about abstract and difficult concepts like disorder, empathy, intelligence or even abstract concepts (yeah, I love recursion, which is a concept again :D). In fact, there is much more talk about concepts than with usually with NTs (who talk about other people, the weather, the tv and something like that).

Also aspies seem to love generalization (yes, I'm aware that this itself is a generalization), many threads here are about "is there some connection between x and y" or "I noticed a general pattern in something". Some aspies are described as being very good with finding patterns (doesn't that involve some kind of abstraction?).

To summarize this...many threads here are really, really abstract. How does that fit? Isn't someone writing blog posts theorizing about they cannot grasp abstract concepts contradictory in itself?



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01 Dec 2017, 2:47 pm

It's probably another one of the contradictions of autism. Some autistic people may have trouble grasping abstract concepts, while others may be good at that.



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01 Dec 2017, 5:56 pm

I really sucked at grasping abstract concepts until recently.

Same with sarcasm and irony. I was the "classic stereotypical Aspie" in that sense.....



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01 Dec 2017, 6:20 pm

My bad. I am unable to grasp abstract concepts. Especially mathematics. Although I had abstract philosophical concepts in mind at the time.

A list like I made out or any list of things people experience because of autism is usually some of these things but not necessarily all of them are what comes with being autistic.

The point I was trying to make is autism is indeed a disorder because of the neurological and cognitive problems it causes. Rather than it's supposedly only viewed a disorder because society mistakenly calls it a disorder.

It's like there are some if not many who want autism to be viewed as someone who's very smart and creative but simply happens to behave differently. Therefore it's supposedly not a disorder at all, it's just a difference. It's supposedly not a disability, it's just being differently abled.

I think people who have that view of their autism should call themselves something else since they obviously want to remove themselves from any of the clinically negative aspects of having autism.

What would happen to people like me if autism is no longer viewed as a disorder or disability? And I don't mean just level 2 and 3 autistics. There are many level 1 autistics who still need the substantial support that comes with having a disability.



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01 Dec 2017, 6:31 pm

TheAP wrote:
It's probably another one of the contradictions of autism. Some autistic people may have trouble grasping abstract concepts, while others may be good at that.


Just like there are people with cerebral palsy who are capable of walking and running, while there are others who can't walk at all.



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01 Dec 2017, 6:33 pm

^^^ The above is an illustration of why Autism is called a "Spectrum" these days.



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01 Dec 2017, 6:43 pm

kraftiekortie wrote:
^^^ The above is an illustration of why Autism is called a "Spectrum" these days.


Cerebral palsy is a spectrum as well I suppose from being mild to severe. The problem with a term like spectrum is it seems to conjure mental images of rainbows and eliminates unwanted words like disorder and disability. I don't think I've ever heard of CP being called a spectrum or there being an "aspie" version of CP. If you have cerebral palsy, you have cerebral palsy, period.