Symptoms of autism appearing at age 4 or later
magz wrote:
Joe90 wrote:
I often wonder if I didn't behave like that when I first started school I perhaps wouldn't have received a diagnosis until adulthood like about 99% of Aspie girls do. I mean, how did you girls make it through childhood without any teachers or anybody noticing your symptoms, and yet I was a bug under a microscope? I'm aiming this question at those who grew up in the 1990s and 2000s.
First, I started school at 6 and half and I didn't go to any kintergarten before. It is possible that at that age I was more ready for such a change than I was when I was 4 and half - I was e.g. awful at church as a preschool child but about an age of 6 I learned to "behave", which meant doing what I saw others were doing.
Second, AS and BAP traits are strongly present in both my mother's and my father's family, so in the eyes of my parents, there was nothing special about e.g. hyperfocus or obsessive interests, or even about feeling alien among my peers. According to my parents, that's life.
Third, my parents are very anti-psychiatry and they dealt with teachers raising concerns by persuading them there was nothing to be concerned about. My mother was quite successful in it, she not only downplayed my excesses but also prevented any intervention about my depression in highschool.
But my school FORCED my parents to go along with all the appointments and assessments. Yes they wanted me to get as much support as possible but also I think they were afraid that if they denied a diagnosis they might have been classes as bad parents or something.
_________________
Female
it was an odd case for me from age 1 i never cried or had any meltdowns or tantrums I was completely mute and rather content
the only time I cried was when I hurt myself but that was it
I got diagnosed with autism at 3
and I didnt speak until I was 8
strangely I was fully potty trained by age 2 cos I hated soiled nappies but god knows how I managed to be able to use toilets without being able to express when I needed to go
_________________
Have diagnosis of autism.
Have a neurotypical son.
Joe90 wrote:
But my school FORCED my parents to go along with all the appointments and assessments. Yes they wanted me to get as much support as possible but also I think they were afraid that if they denied a diagnosis they might have been classes as bad parents or something.
Same time but different country and different people.
In early 1990s Poland was quite a mess, very poor, experiencing radical changes. I remember a girl in my first grade who was in her first grade for the third time before she was moved to "special school". She sometimes asked me if I had a spare sandwitch, which for a picky eater like me was quite a good arrangement. I remember a boy who was never really washed, when the school nurse recommended everyone to use lice medicine, she handed a bottle to him. I remember a girl from my class who smoked as 7yo.
And all the above was mixed with professors' children, nouveaux riches and all kinds of in-between, "regular" people.
I guess in such a crowd, a melancholic child who frequently hysterically cried "for no reason" and made unexpected social gaffes every now and then, was much more likely to be overlooked.
_________________
Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
magz wrote:
Joe90 wrote:
But my school FORCED my parents to go along with all the appointments and assessments. Yes they wanted me to get as much support as possible but also I think they were afraid that if they denied a diagnosis they might have been classes as bad parents or something.
Same time but different country and different people.
In early 1990s Poland was quite a mess, very poor, experiencing radical changes. I remember a girl in my first grade who was in her first grade for the third time before she was moved to "special school". She sometimes asked me if I had a spare sandwitch, which for a picky eater like me was quite a good arrangement. I remember a boy who was never really washed, when the school nurse recommended everyone to use lice medicine, she handed a bottle to him. I remember a girl from my class who smoked as 7yo.
And all the above was mixed with professors' children, nouveaux riches and all kinds of in-between, "regular" people.
I guess in such a crowd, a melancholic child who frequently hysterically cried "for no reason" and made unexpected social gaffes every now and then, was much more likely to be overlooked.
But so many Aspies here in England and the US seem to get diagnosed in adulthood - again I'm talking about those that grew up in the 1990s and 2000s. If they have a disorder, how did it get so overlooked through childhood, teenhood and the remaining adulthood before they got diagnosed? My brother got diagnosed with Asperger's at age 30. Nobody suspected any AS with him, even though he went to the same schools as me and grew up in the same household as a sister on the spectrum (me) and the A-word being thrown around a lot. Is it because he was well-behaved while I was a little hellion? Believe me, I was the devil to bring up. No wonder my poor mum is suffering from ill health now.
_________________
Female
Joe90 wrote:
My brother got diagnosed with Asperger's at age 30. Nobody suspected any AS with him, even though he went to the same schools as me and grew up in the same household as a sister on the spectrum (me) and the A-word being thrown around a lot. Is it because he was well-behaved while I was a little hellion?
Very likely.
_________________
Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
magz wrote:
Joe90 wrote:
My brother got diagnosed with Asperger's at age 30. Nobody suspected any AS with him, even though he went to the same schools as me and grew up in the same household as a sister on the spectrum (me) and the A-word being thrown around a lot. Is it because he was well-behaved while I was a little hellion?
Very likely.
So if I hadn't been a little hellion then I would probably still be undiagnosed today? I have level 1 AS but I also have ADHD, but I didn't get a diagnosis of ADHD until I was older.
_________________
Female
Joe90 wrote:
So if I hadn't been a little hellion then I would probably still be undiagnosed today?
Maybe.
I got diagnosedd because of mental health problems I developed living with an unrecognized codition. And I barely escaped complete misdiagnosis.
If you weren't a little hellion, you would likely not have been diagnosed at 8. But nothing we know about 12, 16 or 24.
_________________
Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
magz wrote:
losingit1973 wrote:
magz wrote:
losingit1973 wrote:
We have those, and he does enjoy them. He has to be alone though. If someone sticks their hands in it while he is playing he will lash out violently. His older brother is also on the spectrum and does not respect personal space at all. With Christmas approaching, there will be new choices available to them to satisfy their tactile sensory needs.
I get furious when someone puts their hands into something I do!
It's a lot about focus, at least for me. Interacting with others takes away my focus from the task I enjoy.
And I know what you mean with his brother, I have a pair of one child withdrawn and the other not respecting boundaries. It's hard.
One of my major issues is being interrupted, especially over something trivial. It just derails me, and I am rarely able to get back to what I was doing. I often do not start a project so I will not have to deal with the interruption that is inevitable.
So you relate to your son's lashing out, too
Absolutely. We also have the same audio sensitivities, smell sensitivities, and aversion to touch.
_________________
RAADS-R Score 199
Aspie-Quiz Neurodiverse score: 141/200
Aspie-Quiz Neurotypical score: 70/200
AQ 42
Quote:
But so many Aspies here in England and the US seem to get diagnosed in adulthood - again I'm talking about those that grew up in the 1990s and 2000s. If they have a disorder, how did it get so overlooked through childhood, teenhood and the remaining adulthood before they got diagnosed? My brother got diagnosed with Asperger's at age 30. Nobody suspected any AS with him, even though he went to the same schools as me and grew up in the same household as a sister on the spectrum (me) and the A-word being thrown around a lot. Is it because he was well-behaved while I was a little hellion? Believe me, I was the devil to bring up. No wonder my poor mum is suffering from ill health now. 
I think it the case that the knowledge about our profiles was not out there. Only the obvious parts of the spectrum were in the reference books at the start of the 1990s; Asperger Syndrome did not make the DSM until 1994, and it would take a while for the information to be picked up by the professionals and probably even longer for people who might spot signs the earliest, such as parents, teachers, nursery staff.
We showed the signs back then just as we do now, but they were either missed, put down to laziness, naughtiness, shyness, or something we would grow out of in our own time. I recall being taken for an assessment of some sorts when I was aged six or so, having had a very difficult time in nursery even at one day a week, and had many rocky periods in the first year of primary school. But the name which can draw the symptoms together into a diagnosis was not there in 1969. There was nothing particularly conclusive as far as I am aware from that one visit to the professional. Autism ? No way. I had language, lots of it. i hoovered up information. I was not disruptive,( but the social side and the unspoken side was something I did not seem to get). At that point, Autism meant Non Verbal, high chance of an intellectual disability as well, Very aloof, unsocial, all the aspects which would be at a severity level of 2 or 3 in today's reference books, meaning that a profile which would be a severity one had no name and was not believed to exist.
Being good at the academic subjects for the most part, being generally well behaved, following the rules at school (which all seemed very sensible rules to me) meant I kept out of trouble; the worst I had was over poor handwriting, or if I seemed to every fall short of the potential parents and teachers could see. It was still just about the era where one could find long term employment in specialist technical fields with some organisattions which had a paternalistic ethos, and this was the path I took, meaning that the amount of masking I had to do was small, I was in the company of others in my part of the spectrum but like me unaware of it.
rowan_nichol wrote:
Quote:
But so many Aspies here in England and the US seem to get diagnosed in adulthood - again I'm talking about those that grew up in the 1990s and 2000s. If they have a disorder, how did it get so overlooked through childhood, teenhood and the remaining adulthood before they got diagnosed? My brother got diagnosed with Asperger's at age 30. Nobody suspected any AS with him, even though he went to the same schools as me and grew up in the same household as a sister on the spectrum (me) and the A-word being thrown around a lot. Is it because he was well-behaved while I was a little hellion? Believe me, I was the devil to bring up. No wonder my poor mum is suffering from ill health now. 
I think it the case that the knowledge about our profiles was not out there. Only the obvious parts of the spectrum were in the reference books at the start of the 1990s; Asperger Syndrome did not make the DSM until 1994, and it would take a while for the information to be picked up by the professionals and probably even longer for people who might spot signs the earliest, such as parents, teachers, nursery staff.
We showed the signs back then just as we do now, but they were either missed, put down to laziness, naughtiness, shyness, or something we would grow out of in our own time. I recall being taken for an assessment of some sorts when I was aged six or so, having had a very difficult time in nursery even at one day a week, and had many rocky periods in the first year of primary school. But the name which can draw the symptoms together into a diagnosis was not there in 1969. There was nothing particularly conclusive as far as I am aware from that one visit to the professional. Autism ? No way. I had language, lots of it. i hoovered up information. I was not disruptive,( but the social side and the unspoken side was something I did not seem to get). At that point, Autism meant Non Verbal, high chance of an intellectual disability as well, Very aloof, unsocial, all the aspects which would be at a severity level of 2 or 3 in today's reference books, meaning that a profile which would be a severity one had no name and was not believed to exist.
Being good at the academic subjects for the most part, being generally well behaved, following the rules at school (which all seemed very sensible rules to me) meant I kept out of trouble; the worst I had was over poor handwriting, or if I seemed to every fall short of the potential parents and teachers could see. It was still just about the era where one could find long term employment in specialist technical fields with some organisattions which had a paternalistic ethos, and this was the path I took, meaning that the amount of masking I had to do was small, I was in the company of others in my part of the spectrum but like me unaware of it.
I'm talking about those of us born between late 80s onwards, not prior.
_________________
Female
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