I was described as a 'picky eater' as a child. I was severely underweight and this caused my family a great deal of anxiety. The Dr's didnt know what to do, as then, there was a poor understanding of sensory drivers for avoidant behaviour around food.
I currently am diagnosed under DSM5 with ARFID (Avoidant & Restricted Food Intake Disorder) - the assessment was carried out by the London Eating Disorder Centre.
I cannot tolerate wet food of any kind and will only eat 4 food items. Meal replacement bars, cream crackers, twiglets and oat milk. The meal replacement bars were a 'game changer' for me as they are nutritionally balanced and allow my to maintain my weight. Before these I really struggled with this. I am now very happy how things are and no longer worry about food. At 5'11" and just over 9 stone I dont think that Im ever going to be 'large' though!
My eating is primarily driven by sensory aspects of food and there is also an element of the connotations that various foods and the 'eating meals' process have for me. Some foods remind me of certain animals/insects and I have a profound aversion to the social expectations and rituals around communal eating.
Years ago it was queried as to whether I was suffering from Anorexia - however, as my behaviour is not driven by thoughts related to body image or the results of trauma then I do not fit the diagnostic criteria for this.
If you are not familiar with ARFID do Google it and have a read.
Until recently I worked as a clinician in childrens neurodevelopmental services and it was accepted that there was a much higher incidence of ARFID within the cohort of Autistic children and young people who accessed our services.
I now work in adult Autism diagnostic services and I would say that more than 75% of the Autistic people I assess have distinct preferences and aversions in relation to food.
Also, I spend a lot of time with other Autistic adults in the local community and a significant number fit into this category.
At home we are an Autistic household. Of the 4 of us 2 have distinct ARFID characteristics (I am the more extreme of the 2!) whilst the other 2 are not 'fussy' or 'picky' at all. So its a 50% incidence domestically.
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Diagnosed: ASD, hEDS, MCAS, ARFID
Retired specialist neurodevelopmental clinician
Member of Autistic & LGBTQ+ communities in South West UK
Trustee at Cornwall Pride charity & Coordinator at Kernow Neurodivergent Artists network