Anyone had their brain scanned?
I had a structural brain scan focused on my temporal lobes, which found no gross abnormalities in structure there. I had an EEG which showed activity near where the temporal, parietal, and occipital lobes met which was "consistent with underlying structural abnormalities", but probably more subtle than a structural MRI can pick up. I had a functional brain scan that showed grossly abnormal differences in the functioning of my temporal, frontal, and pre-frontal lobes. And I had a CAT scan last summer designed to pick up on whether I had meningitis or not, and I didn't (yay).
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I've never been scanned.
Why do you think you have "dark objects" in your brain if your brain has never been scanned?
Strapples
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I've never been scanned.
Why do you think you have "dark objects" in your brain if your brain has never been scanned?
i think shes trying to say shes depressed possibly?
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I have only had a static mri and cat, which is pretty much useless for my purposes especially when the nerologists don't have anything to do with ASD. They did find a benign cist in my skull jutting into my cerebellum, which I had removed. That is not likely to be related to ASD.
My GP has tried to find neurologists to do with ASD in the UK for adults. They just don't exist. There are ones for kid that refuse to see adults for some reason. I desperately need a proper neurofuctional study of my cognitive dysfunction. So it is hard not to feel annoyed when there are chefs scanning yogurt culture, and so on. If anyone has had fMRI an other tests can you please pm me. I would like to know how you went about it. I don't care if it is not a diagnostician. The last thing I need is a need is another label, what I need is someone who is thinker and a problem solver. This is not something I'm going to let rest.
It is annoy I'm trying stab in the dark treatment like Aricept, but they still don't really have a functional model of what it is that is causing the problem.
Yeah, I had my brain scanned because of my migraines. Nothing unusual. I have a slightly large sinus cavity that gets blocked up apparently which might explain some of my headaches.
I was hoping they'd find one of the crayons I shoved up my nose when I was five!
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I'm befuddled by the amount of people who said that having their brains scanned with the scan showing up a certain way showed they didn't have seizures. A structural scan doesn't rule out seizures, it just is possible that it shows a visible reason someone might be having seizures (or things that look like them), and that's important to be ruled out. An EEG doesn't rule out seizures, unless you're having the sort of seizures an EEG should be able to pick up on, right at the time you're having the EEG, and the EEG doesn't pick up on it. EEGs only pick up on certain kinds of seizures, and they sometimes can show patterns of activity that occur because of seizures (but that are not seizure activity itself) when seizures are not happening, but some people have seizures without that pattern of activity. And some kinds of seizures are simply not possible to pick up on by EEG.
That's why the next move if a person is having seizures, is to try to figure out if what is being reported sounds like a known form of seizure, and then to attempt anti-seizure medications (particularly kinds that work on that kind of seizure) to see if it helps. That's how they figured out I have complex-partial seizures. (And I also have abnormal patterns of brain activity in a region it's common to have that sort of seizure in, but deeper in the brain than an EEG generally picks up on.) Treating it with anti-convulsants that are generally good for that kind of seizure does work, therefore it's probably that kind of seizure. (And also, another bit of evidence is that on drugs that lower the seizure threshold I start getting atonic seizures and myoclonic seizures very easily.) I've never had a seizure at the same time as having an EEG, so there's no other way they could really know.
It's also unknown whether pseudoseizures are really for emotional reasons or not. I've never been considered to be having pseudoseizures, but from what I've seen of the research, they simply don't know what causes them, and a lot of people with genuine epilepsy also have pseudoseizures along with it. It could be that some other mechanism of the brain or the rest of the body explains them that they don't understand yet, and that's what I've read in places that don't simply put it down to "emotional reasons". It's been my experience that people who are not all that competent in medicine will use "emotional reasons" as a cover for "I don't know," since "I don't know" is a blow to some doctors' egos, and "emotional reasons" will get a patient to go away. A competent doctor will just say "I don't know" and list a number of possible reasons if they know of any, and look into them or consult someone who does know.
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"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams
Strapples
Supporting Member
Joined: 30 Nov 2007
Age: 34
Gender: Male
Posts: 17,861
Location: Chicago Area IL (FAR FROM AUTISM SPEAKS)
That's why the next move if a person is having seizures, is to try to figure out if what is being reported sounds like a known form of seizure, and then to attempt anti-seizure medications (particularly kinds that work on that kind of seizure) to see if it helps. That's how they figured out I have complex-partial seizures. (And I also have abnormal patterns of brain activity in a region it's common to have that sort of seizure in, but deeper in the brain than an EEG generally picks up on.) Treating it with anti-convulsants that are generally good for that kind of seizure does work, therefore it's probably that kind of seizure. (And also, another bit of evidence is that on drugs that lower the seizure threshold I start getting atonic seizures and myoclonic seizures very easily.) I've never had a seizure at the same time as having an EEG, so there's no other way they could really know.
It's also unknown whether pseudoseizures are really for emotional reasons or not. I've never been considered to be having pseudoseizures, but from what I've seen of the research, they simply don't know what causes them, and a lot of people with genuine epilepsy also have pseudoseizures along with it. It could be that some other mechanism of the brain or the rest of the body explains them that they don't understand yet, and that's what I've read in places that don't simply put it down to "emotional reasons". It's been my experience that people who are not all that competent in medicine will use "emotional reasons" as a cover for "I don't know," since "I don't know" is a blow to some doctors' egos, and "emotional reasons" will get a patient to go away. A competent doctor will just say "I don't know" and list a number of possible reasons if they know of any, and look into them or consult someone who does know.
i have intractible epilepsy...
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I had a CAT a couple of years ago which confirmed my head is indeed hollow as expected.
Actually, I got it because I contracted some form of viral encephalitis, or maybe West Nile, which caused me to start stuttering and have difficulty speaking. Didn't reveal anything, because that type of damage doesn't show on a CAT or MRI. They did the CAT just to confirm I didn't have a bleed from a stroke. Took me more than a year for my speech to return (mostly) to normal, although I figure I only got back about 90% percent of my verbal abilities.
When I was about 10, I starting having tiny seizures and took four or five EEGs. They put me on some type of antiseizure medication but never really figured out what was causing them.
Strapples
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Joined: 30 Nov 2007
Age: 34
Gender: Male
Posts: 17,861
Location: Chicago Area IL (FAR FROM AUTISM SPEAKS)
SPECT scans are quite useful in diagnostics for any condition especially a condition that can affect brain blood flow and oxygenation... usually commonly used in strokes to discover cerebral hypoxemia and hypoxia the SPECT scan can easy show oxygenation levels with simple easy readibility and a short imaging procedure... the problem is the contrast that is used can commonly cause severe allergic reactions..
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check out my website at {redacted by admin - domain taken over and points to a porn site}
When in doubt, ask an autistic. Chances are, they're obsessed with what you need to know.
Autism Speaks will NEVER speak for me
CLASSIC AUTISM
