For curebie hating, NT-bashing, holier than thou aspies

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LVBen
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07 Feb 2008, 5:17 pm

zendell wrote:
Points I've been trying to make

3. It's illogical to say there aren't non-genetic causes because you can NEVER prove a negative



With false statements like that, why should anyone bother to read more?



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07 Feb 2008, 5:23 pm

Zarathustra wrote:
Zendell, the only treatment you need is CBT. Please take the word of a 40 year old autistic that's been thru' the mill. That "never get laid, get friends" etc. attitude is the problem, not autism. Getting girlfriends, friends etc. are skills that need practice to develop. [NT's need to practice too, they just learn better]. Even if you cured your autism, you'd still have these negative thought processes. Cognative Behavoural Therepy and a good shag is the answer, not chelation, HBOT and all that snake oil...


My brother is about your age, and he did go through a period of being incredibly depressed about not finding a woman to date him. He went through personals ads and did get one-night stands or short relationships but the people answering the ads were often very messed up (I remember one who was a murderer). There had been, prior to this, one woman he was truly in love with and might have married, but other people drove them apart in really manipulative ways from what I remember (I was too young to understand all the words about it when it was happening).

I don't know if he got cognitive-behavioral therapy or not. But he did say he's the only person he knows who benefited from therapy in general. He also went, along with a good friend of mine, to a coach who taught him and my friend the meaning and purpose of non-autistic social interaction, and taught them how to understand and do it when possible. He also joined a UU church (I'm... way-not-UU... but it's him, not me, and he likes it).

And while he still is not doing great in the romance department (but neither are lots of 40-something bachelors) he does have a lot of friends, and a job, and he is happy.

A lot of the things that a friend of mine taught me in order to overcome depression are things that are taught in CBT, so I've heard it's basically what happens when you get what used to be commonsense advice about how to change what you think about the world, but you get it from a professional, then it's called CBT. But I learned it all from a friend -- basically how to stop destructive and pointless thoughts, replace them with more accurate but also more positive thoughts, etc. (And I have OCD so that's not easy or fast.) And I had been depressed for most of my life (my entire life since shortly after starting school, basically), including suicidally depressed in parts of it while making serious attempts, but after several years of practicing what she taught me I am on stabler ground emotionally than I ever have been, and currently my only struggles with depression are related to SAD and easily cured with light.

So I can definitely vouch for... having had a kind of severe depression that was totally unresponsive to anti-depressants and traditional therapy... but learning from a friend how to change the thoughts that lead to the sort of endless emotional spiral downward, was really hard, and took a long time, but really worth it. Especially since I don't respond to psych drugs (which in depression often do no better than placebo -- they make you feel like you're doing something, which is a feeling that is in itself the antithesis of depression... this can explain a lot of things that get rid of depression, really, as long as you feel like you're helping yourself out of it, eventually it can come true or at least you feel somewhat better).

Both my brother and I did benefit more from learning to think differently about our lives (which is what CBT is about as far as I can tell), than from much of anything else. It doesn't make me non-autistic, but it makes me not depressed and certainly no longer suicidal. And I really have gained more friends after not being depressed all the time, than I gained when I was depressed all the time. And I am stronger and more impervious to the crap life throws at me than I ever was before -- these things can teach you how to handle hardship of most kinds without falling apart as much emotionally.

So... yeah, while wary of therapy in general, the ideas behind CBT are things that could be researched and practised on one's own if one (like me) would not want to see a therapist. And they are worth a try. Sorry for the really long post, but I hadn't thought of this stuff in awhile.


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07 Feb 2008, 5:33 pm

beau99 wrote:
Reyairia wrote:

Oh of course.
People let schizophrenics, criminals, etc, etc. have children

Not usually.

Agencies may not discriminate, but laws in most states prohibit these two groups from adopting.

Hell, in Texas, if you have kids already and get a schizophrenia DX, they take away your kids even if you haven't abused them.


That's terrible. I wonder if autistics misdiagnosed with schizophrenia can adopt children or keep ones they give birth to. It would prevent some autistics from having children.



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07 Feb 2008, 5:36 pm

LVBen wrote:
zendell wrote:
Points I've been trying to make

3. It's illogical to say there aren't non-genetic causes because you can NEVER prove a negative



With false statements like that, why should anyone bother to read more?


Tell me how you can prove a negative. You would have to test every non-genetic factor and prove each one doesn't cause autism which is impossible.



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07 Feb 2008, 5:48 pm

anbuend wrote:
please don't tell other people that we're higher-functioning or lower-functioning than you just because of the choices we make. That is like saying that a person's choices are ruled by their brain type and nothing else. It denies both your freedom of choice and the rest of our freedom of choice. I've known a lot of autistic people who want and don't want cures and the perceived functioning level" varies so much that it clearly has nothing to do with that, although many people who want one will assert that they are "lower functioning" than those who don't, even when it's demonstrably inaccurate.


I think functioning level is related to how people feel about treatment. The more problems a person has, the more they want to be cured. I think LFAs may have less problems than some other autistics and that would explain if it's true that a bunch of them don't want a cure.

High functioning end of autism - it has less impact on a person's life so there's less need for a cure

Low functioning end of autism - has some benefits such as free housing, food, no need to work or worry about bills, and stuff like that

I think those in between want a cure the most. It sucks being considered high functioning enough to work but not functioning enough to be able to get a job. I may end up homeless due to being unable to work but ineligible for disability because they think I can work.

I realize there are exceptions. I'm just referring to how I think other people think in general.

anbuend wrote:
Also, whenever it becomes considered normal to want to die rather than have a condition, then people with that condition start to experience lower standards of living conditions...


I realize that but I'm just expressing my opinion. It's not my fault if other people use it for evil purposes.



LVBen
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07 Feb 2008, 5:59 pm

zendell wrote:
LVBen wrote:
zendell wrote:
Points I've been trying to make

3. It's illogical to say there aren't non-genetic causes because you can NEVER prove a negative



With false statements like that, why should anyone bother to read more?


Tell me how you can prove a negative. You would have to test every non-genetic factor and prove each one doesn't cause autism which is impossible.


Proof by contradiction.



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07 Feb 2008, 6:29 pm

1. so?
2. Will they EVER by your reasoning?
3. So we should go along with what you say? It doesn't even really make a difference to this conversation anyway.
4. A lot of people have said that, and MANY symptoms wouldn't even be apparent in a good environment.
5. WHAT "studies"? A few symptoms don't show a disorder. BESIDES, removing a knife doesn't remove the cut.
6. Wow, you seem to argue both sides. MANY people have infections, EVEN things like meningitis, and don't get swelled heads. It IS interesting how sometimes ability takes a jump with head growth and that, though head growth slows dramatically, etc... the final size is so similar. Many scientists believe the size is due to a lack of paring.
7. Actually, REAL science is more than a casual observation of a similar part of the disease, and saying that is FACT.
8. I think people hate "curebies" ONLY because they don't state the FULL truth, state lies, steal money, etc....
9. WOW, I thought that was what you wanted!
10. Maybe YOU'LL be more assertive and successful with suicide.



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07 Feb 2008, 6:31 pm

Quote:
zendell wrote:
anbuend wrote:
please don't tell other people that we're higher-functioning or lower-functioning than you just because of the choices we make. That is like saying that a person's choices are ruled by their brain type and nothing else. It denies both your freedom of choice and the rest of our freedom of choice. I've known a lot of autistic people who want and don't want cures and the perceived functioning level" varies so much that it clearly has nothing to do with that, although many people who want one will assert that they are "lower functioning" than those who don't, even when it's demonstrably inaccurate.


I think functioning level is related to how people feel about treatment. The more problems a person has, the more they want to be cured. I think LFAs may have less problems than some other autistics and that would explain if it's true that a bunch of them don't want a cure.

High functioning end of autism - it has less impact on a person's life so there's less need for a cure

Low functioning end of autism - has some benefits such as free housing, food, no need to work or worry about bills, and stuff like that

I think those in between want a cure the most. It sucks being considered high functioning enough to work but not functioning enough to be able to get a job. I may end up homeless due to being unable to work but ineligible for disability because they think I can work.

I realize there are exceptions. I'm just referring to how I think other people think in general.


One of my thoughts has been related to my experience of ticcing. It is not very severe right now. So it's not really a central part of my life in any way. But I know people with severe Tourette's where it really has shaped their life in such extreme ways that it has more impact on their personality. So I wouldn't mind not ticcing, but they would because it would take away other attributes that are internal and not just the external tics. It has shaped who they are more because it is more a part of their brain than it is mine.

I have wondered in fact if those living a life closest to "normal" in many ways, might feel more pressure to be cured, because they can see that they are almost experiencing a "normal life" but not quite. Whereas those further from "normal" can sometimes feel more impact on who we are, and therefore not want to give up something that's a large part of our lives instead of a little one.

Sort of like if a person has brown hair with one grey hair, they might want to dye it the same color as the rest of their hair, but when they go completely grey or white, they might forgo the dye because their real color now is grey or white instead of brown. (Hair is far more superficial than anything we're talking about, it's just an example.)

I don't know about others, but my reason for not wanting a cure is certainly not because I get a lot of assistance with things. I grew up with the same aspirations to have a job as anyone else, and am rather workaholic in nature even in my unemployment. I have so many staff coming into my house for long periods every day these days (4 or 5) that it's starting to get on my nerves and affect my ability to function in my usual ways. If I could somehow not need all these staff, and have a job that completely supported me, I would do those things. That is how I planned to live and there is less hassle to it from my perspective.

I do think my reason has to do with the fact that the traits that make me fit the autism criteria are things that are pretty deeply embedded, and that I recognize that. I hate having so many staff, but I'd rather have staff than become non-autistic in order not to have staff, and that has to do with autism involving certain deeply-embedded traits that I happen to value.

And maybe it's easier to see those since I'm not "almost-normal" with autism the same way I'm "almost-normal" with tics. I just don't know. I do know people of all descriptions who do and don't want a cure, or partial cure, though, so it wouldn't explain everyone any more than the reverse would.

When I was growing up I was closer to expected norms in some ways (not as much because of anything innate to me, though) but at that point in time all I wanted was not to be hated. It was depression and a crappy environment that changed to make me have a life where some people don't hate me and those who do are made more bearable. But I wouldn't have known that then. So who knows.

Quote:
anbuend wrote:
Also, whenever it becomes considered normal to want to die rather than have a condition, then people with that condition start to experience lower standards of living conditions...


I realize that but I'm just expressing my opinion. It's not my fault if other people use it for evil purposes.


Fair enough, I guess.


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07 Feb 2008, 6:50 pm

zendell wrote:
Zarathustra wrote:
zendell, if you're going to spend the rest of your life trying to get cured, you might forget to live the life you have.


Without treatment, I will never be able to get a good job, have close friends, get a girlfriend, get married, have kids, or be part of a family. I will always be lonely and depressed without biomedical treatments. You are probably higher functioning than me and can enjoy your life but I can't.


You live now, not tomorrow, I'd like to repeat that point from Zarathustra's post. It is pointless to wait for a 'cure' for all the things you miss, or rather, that you believe you miss. Try to get rid of your idea's of wha constitutes failure as well as what would mean succes. Look at what you are good at now, what things make you happy now and what you really want for yourself.



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07 Feb 2008, 8:01 pm

And my opinion is, all of that has been studied, and nothing has come of it, except some super salesmen selling snake oil. It is beyond proven this stuff you go on and on about is the work of quacks and frauds.

You say it could be this cause or that, but they have been screened, I doubt that autism is a plot, and you avoid any science that can be verified.

I do not think anyone is anti treatment, if it can be shown to have benefits, but you produce no proof.

Many of us older folks have learned ways of coping, that can be taught. Look at the number of married people here, they are not all high functioning, they just wanted to be married, did, and made it work.

The same for having friends, it may be more effort for us, but it can be done.

It is the same for work, look at the job, fit yourself to it, it is only a job, and few bring their personality to work.

But as has been mentioned, you go on and on about what a mess you are, and have to have a cure.

Your point of view is more of a social problem than autism. You are not trying because you need a cure, is an excuse, we are all in the same boat, and education, work, a social life, seems reachable by most.

Your cures are unsupported dreams, for all of your belief, you have not reported trying any, and the results.

It is not the results of any treatment you seek to have understood, you just want people to want a cure, where there is none. It is about the same as saying your life is worthless, until there is a cure for death. You know there could be a cure, it cannot be proven there is no cure for death, but then you want others to stop living, and look for the cure. That is where you go overboard.

It is the oldest book still in print, Gilgamesh, who wastes his life seeking immortality.

You also missed a few of my favorites, cancer was near unknown a hundred years ago, it starts with electric wires, it is still rare in places without electric power. A great wave of mental disorders arose with the broadcast of television, and the rise of autism closely matches color TV.

I was raised in the country, I can feel it in the cities, and when the power grid goes down, it is like I drop a twenty pound pack, and deeply relax.

Now it is cell phones, and the bees are getting lost, just flying away from the hive and not being able to find their way back. Electromagnetic pollution matches the changes in human medical conditions exactly. With TV and cell phones we got closer to the power, and it was not the 60 cycle, but high energy, and modulated.

Autism does not seem to affect the Amish.

It is known, has been known, I had an uncle, he died of brain cancer, very rare, except he was a high tension lineman, and it is a very common cause of death for that job.

The lead in gas did terrible things to a generation, their IQ's 20 points below what would be predicted, schools had to be dumbed down, the lead was taken out, but the damage was done.

The new atmosphere, soot particles, Nitrous Oxides, Ozone, Carbon Monoxide, plus a huge amount of solvents, Benzine, Carbon tetnacloride, and pesticides.

So your idea of autism could be caused by a virus, is missing the big picture, and we have had little luck in treating any virus.

Scientifically sound treatments for the symptoms of autism are worth listening to, you have not brought up any. It is part of the reason these cure threads are all the same.

You do not understand the scientific problem, jump from one brand of mystery snake oil to another, and anyone who questions your cures, is a curbie hating, NT-bashing, holier than thou aspie.

No, we just asked what Science are you using, if any?

I think the problem is enviormental, but when a generation is poisoned with lead, you do not tell them they should be pro cure, for the damage has been done and is irreversable. You stop putting lead in gas.

The government and oil companies did not announce they had poisoned a generation who were under five between 1955 and 1972, when lead in small amounts does it's damage, they just pulled lead from gas, paint, and ignored the problems.

Now it is broadcat TV being replaced by cable, perhaps for the same reason, and as for cell phones, it will not affect workers, it is the Social Security set who will be dying younger, saving the government lots of money.

Autism seems to be a byproduct of color TV, children develop normally till they have watched Sesame Street for a year or so, then sudden autism. It starts in the 1960's with the first mass use of color TV, as a baby sitter, and it strikes in upper class homes first.

A strong electromagnetic field can affect neural development, it has been used on fruit flys, with proven results. It can well trigger a secondary pattern of brain development in toddlers.

Cancer, shortened life expectancies, sudden death for 40,000 a year due to automobiles, were all seen as acceptable excess deaths for the benefits they brought to most.

If we had just died, no problem, our deaths would have been accepted. But we invented computers, the Internet, and have a view of Science as a way of life that stikes fear into some.

So here come people demanding that we should want to cure ourselves, when we know that cannot be done. Why is one small group the target of such attacks?

Could it be because mutants, sucessful mutants, are a major threat to the conserative Fundamentalist view of life? Because power built on social control is failing in an era built on technology and logic?

You have no Science, but you do have an agenda. You spout the Cure Autism Now line that autistics are failures at life and would be better off dead, to Degreed Professionals, Published writers, business owners, inventors, who are autistic, and have made it work. You say that marriage and children are impossible, to married people with children.

Then you and your kind resort to name calling, we must be hating, bashing, holier than thou, cowards, who could not know our own minds, because we are defective.

If you wish to seek a cure for yourself, fine. Your demands that we accept that one, you are autistic, and two, that because you say so , we are defective and should be begging for any cure, and for social control by the likes of you, are falling on deaf ears.

We are doing well and growing, you are beating a dead horse.



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07 Feb 2008, 8:16 pm

Inventor wrote:
Autism seems to be a byproduct of color TV, children develop normally till they have watched Sesame Street for a year or so, then sudden autism. It starts in the 1960's with the first mass use of color TV, as a baby sitter, and it strikes in upper class homes first.


That can't be it for me. I was born in the 1980s, but for some reason we didn't get a color TV until a few years after I remember first seeing TV.


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07 Feb 2008, 8:20 pm

Age1600 wrote:
I like the way you put it! I for one am doing anything possible to make sure to keep myself happy, and make sure everybody around me is happy as well. Meaning, finding a way that doesn't hurt me or change me, but that makes me be able to control my autistic tendencies better where it won't affect my lifestyle or anybody else around me. I'm doing it the non-biomedical way, the non-therapautic way, I'm doing it a way, I can still be me and not hurt or change me in any way.

I'm doing sign, pecs, redirecting my autistic behaviors into better ways, finding other ways of expressing the way im feeling with certian things, talking to other ppl, making autism more aware so ppl can understand who i am, and still accept me. Therefore, i can still handflap, giggling uncontrollably, spin out of excitement, and be myself, without doing stuff thats too expensive, or that might eliminate what god gave to me in the first place! The gym i go to, already knows im autistic, they talk to me in a calm voice, no loud tones, no sarcasm, understands i dont give eye contact, and treats me like an individual, and know my exact routine, I spread my awareness there. I let the world know who i am, i'm not afraid to. When i do become a mother, i'm going to do the same thing for that child, make sure as much as i can possible to make that child happy, no matter how functioning they are, and make sure everybody around that child accepts that child as well.


Yea Age 1600!

That is exactly what my NT daughter is doing for her boys. After two years of tears, counselling, learning new ways to communicate she hase two (maybe 3) sons who are proud of their asperger's brains. They are calm and self contained. Their friends know they have aspergers and two have even been to counselling with Aussie Boy! I aam so proud of the boys and how far they have come!

Way to go, Age1600! (are you 16?


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07 Feb 2008, 8:24 pm

nannarob wrote:
Age1600 wrote:
I like the way you put it! I for one am doing anything possible to make sure to keep myself happy, and make sure everybody around me is happy as well. Meaning, finding a way that doesn't hurt me or change me, but that makes me be able to control my autistic tendencies better where it won't affect my lifestyle or anybody else around me. I'm doing it the non-biomedical way, the non-therapautic way, I'm doing it a way, I can still be me and not hurt or change me in any way.

I'm doing sign, pecs, redirecting my autistic behaviors into better ways, finding other ways of expressing the way im feeling with certian things, talking to other ppl, making autism more aware so ppl can understand who i am, and still accept me. Therefore, i can still handflap, giggling uncontrollably, spin out of excitement, and be myself, without doing stuff thats too expensive, or that might eliminate what god gave to me in the first place! The gym i go to, already knows im autistic, they talk to me in a calm voice, no loud tones, no sarcasm, understands i dont give eye contact, and treats me like an individual, and know my exact routine, I spread my awareness there. I let the world know who i am, i'm not afraid to. When i do become a mother, i'm going to do the same thing for that child, make sure as much as i can possible to make that child happy, no matter how functioning they are, and make sure everybody around that child accepts that child as well.


Yea Age 1600!

That is exactly what my NT daughter is doing for her boys. After two years of tears, counselling, learning new ways to communicate she hase two (maybe 3) sons who are proud of their asperger's brains. They are calm and self contained. Their friends know they have aspergers and two have even been to counselling with Aussie Boy! I aam so proud of the boys and how far they have come!

Way to go, Age1600! (are you 16?


Hehe thanks, I think its the best way to go, to tell ya the truth! nah ill be 23, on the 19th of february, I wish i was 16 again haha.


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07 Feb 2008, 8:31 pm

And I from long before. Our first set, had the cathod ray tube pointing up, and a mirror in the lid, for the rays coming out were dangerous. That was 1948, Howdy Doody caused my autism.

Through the fifties mothers continually told their children not to sit on the floor in fromnt of the tube, for something like six to eight foot was considered a safe viewing distance. Also, sitting on the floor was new, we had chairs and sofas. There were some warnings with early TV's.

It may be the screen, it may be the broadcast signal. People who live near big powerlines or broadcast stations do suffer more health problems.

I see a genitic base agravated by electronic pollution, a few stray electrons filp a switch, development takes a different path. Our world is an experiment run by mad men.



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07 Feb 2008, 9:02 pm

I agree with you Inventor that the worls is run by mad men (sorry, off topic)


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07 Feb 2008, 9:21 pm

zendell wrote:

Quote:
Without treatment, I will never be able to get a good job, have close friends, get a girlfriend, get married, have kids, or be part of a family. I will always be lonely and depressed without biomedical treatments. You are probably higher functioning than me and can enjoy your life but I can't.


If that's what you truly believe, then you're correct. You will never have those things. The things you do have will not satisfy, the food will be as sawdust to you and the drink will be as air....

Define "good job". I'm well paid. I don't consider it a "good" job. Although spreading pain and destruction are nice perks. No I'm not in Iraq, I repossess, I foreclose, I evict, I take away dreams and shatter lives. Actually I'm a freakin wizard at it, that "little or no empathy" thing really rocks. Find something you want to do and if you're lucky, it will pay you enough to survive. Guess what, if you were "normal" that is EXACTLY the boat you'd be in.

Have close friends. I have several. I have a LOT more people who seem to THINK I'm their friend. It's because NT's often confuse "polite co-worker" with "friend". More than 3 or 4 "good friends" is an overrated thing. NT's who have many more than that, seem to cycle through them quite quickly. Funny, if they're LUCKY, they keep 3 or 4 "good friends" for life. Wow... I feel so shortchanged.

Get a girlfriend. OK. You're on your own there. However, while I disagree with almost everything you say, you do come across as a well intentioned and sincere person. Women like that.... go figure. Try being yourself. Being someone else will only get you in trouble.

Get married... again. On your own. I will tell you this. Women LIKE men who like the "M" word. If you let it be known you're one of "those kind of guys" you might be surprised. But as Spock said to Stonn, "you may find that wanting is more satisfying than having. It is not logical, but is often true." Marry the right one, it's fine. Marry the wrong one, and you'll learn why Kipling told the soldiers, "NEVER let them give you to the women....".

Have kids... idk what they teach in schools these days, but you don't need to be married to do that. Really. Reminds me, when I was a junior in college, a very sincere freshman girl told me gravely.. "Oh, I don't BELIEVE in pre-marital sex...." I patted her hand and said, "That's OK, honey, but it exists, I can show you pictures....".

Be part of a family... many people who are married with kids are not part of a family. The closest thing I'll ever have to a REAL brother was born to different parents. I have two male siblings... Being part of a family is up to you.

I will always be lonely and depressed without biomedical treatments... Again, up to you. Many of us have used biomedical treatments over the years. I've used prescription and freelance drugs, alcohol, and sex, that's a great biomedical treatment. Really gets the endorphins going. Honestly, I'm old school, I recommend sonic treatments. Right now I'm self medicating with Evanescence at just under "hearing damage" level on my headphones.... it's f***ing GREAT.

You are probably higher functioning that me and can enjoy your life but I can't... WTF? I work with hundreds of NT's who are "higher functioning" than I am. Most of them are so miserable it rolls off them in WAVES. They don't like who they are. They don't like the WAY they are. They Are UNHAPPY PEOPLE. I'm not, at least not because of "the way I am". It's not all beer and skittles for me, but that's life. I know what I am now. I am comfortable with what I am. They are "normal". They hate what they are and what they do. They hate themselves and they hate each other. I don't hate them, I pity them. Well, with what little empathy I choose to give them, of course.

Sonny Jim, until you learn to live in your own head you will NEVER BE HAPPY, no matter what treatments you take, what "advances" you make, how you change, NONE of that will make a difference until you accept yourself as a person. You talk about treatment, have you seen a GOOD psychiatrist? For therapy I mean, not for drugs. Or a good psychologist... A counselor? You seem to have built up a lot of issues against yourself, get someone to help you work through that. You don't want to take drugs, fine, tell them that. You want to eat active bacterial cultures and scary lettuce? Fine... won't change a damned thing about who you are. Only you can do that. Peace out, but you're not going to find "help" on the internet. See a live therapist.

The rest comes with time. Sex... bfd. Got $20 in most towns and you're in... OH, you don't want SEX you want love? So does everybody else. Some even find it. The poor bastards.... well, not the 1 in 20 who gets loved BACK, yeah... but the other 19? SOL. That's the way the world works... because it's the NT way. People say "survival of the fittest". Biologists say it differently, "Mother Nature doesn't give a s**t...". She doesn't either, not really. Only other people do, but they DO get one thing right, I found it was true myself. Other people won't like you if you don't like yourself. You have to take those steps.


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I tried to get in touch with my feminine side.... but it got a restraining order.....