Diagnosed when older? The process of accepting the dx?
Also, I seem to be lower functioning than others on this thread in that I have spent most of my adult life on welfare or in poverty. I kind-of knew that I wouldn't be able to hold down a normal job and support myself ahead of time, too, though I resisted that one for a long while because of the super high price of being unemployed.
How you feel may depend on how high functioning you are in work vs personal life relative to others on the spectrum/not on the spectrum, since the loss you experience will depend on level of functioning (which is sometimes obviously very low, sometimes not). Also, it may depend on your own personal level of intrapersonal intelligence. I'm not sure about these - just speculating.
i think we are much alike here, i have never really worked much, i do manage to take on small or part time jobs for a short period, but it has never been more than that... i am however in full education, but it is a real struggle.. and i dont know if my health will allow me to complete it as i stress allot and my body is always tense and so every other day i must sleep most of the ect just to cope...for now though my stubbornness is leading me on..
i will probably get Dx in January if everything goes as i suspect it will...i dont know what will happen after that...but i have come to realize my whole life that i am different...now i just need the papers for official use ect....
i have a moment in time that i remember very well and its when i realized that no amount of money or effort could change my life from the current path that is mine to follow...
don't apologise for long posts. I love reading what you have to say.
Thank you, millie for your kind words!
nr, I think I don't even know how to exist without blaming myself for my lack of social perceptivity...
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So-called white lies are like fake jewelry. Adorn yourself with them if you must, but expect to look cheap to a connoisseur.
I seem to be at the far shore of the 'Sea of Misery' stage of post diagnosis.
Initially I was relieved mostly to know why I'm not like anyone else around me, rather than going on the sense of simply being somewhere between 'not right' and 'mad'.
The realization that it'll never change or get better then crashed in, and think I've been teetering on the edge of depression ever since, which sucks because I'd beaten that and come off antidepressants 6 months ago and I don't want to have to go back there again.
It's not even depression as such, it's just a real deep apathy that sees me do very little.
Anyway, I know I have to break out of the doldrums, so I've sent away an application to join a local AS and HFA social group. I'm hoping meeting other aspies might help.
If anything, reading the descriptions of AS and life-experience here has so far given me a lot of comfort, and self-understanding, it's weird to see your deepest quirks and secrets being so accurately described by others, and like another poster in this thread has already said, that makes me feel a lot less alone, or isolated from the whole of humanity....
I agree, actually. I also would not want to change myself and i am relieved and glad to be an AS person. I suppose the main area of grief for me has been in the area of my career.....a number of years agao i started building up a painting career - after a lifetime pf floating and chronic isolation - and getting some success. But there is this jarring problem with people and openings and networking and being misunderstood and being too verbose which is often mistaken for me being "arrogant<" and in fact i am far from that. I have such low self-esteem and fear of the world and i just cannot fathom how others do life. At least here on WP there are others who do relate to this and understand. even a lot of other artists find me to be a kind of superbrain obsessive who rattles on and does her own thing and is quite odd. i do not fit. I am a true eccentric individual and it feels lonely at times. I would never want to change who i am, but i am realising - while there have been lots of improvements in my life in the past decade and lots of peace that has come with the Aspergers realisation, there is this deep sense that how it is, is how it is. There is nothing more I can really do to try to fit in than i have not already done. I had hoped I could somehow penetrate the art world more, but it is all too exhausting and tiring and i feel as if i would do better just to climb into my little Aspergers hole and keep painting for me and stuff the world. I actually spent time with people last week - other artists - and the result of that is that i must sleep to get over the exhaustion of social exchanges which i find tiring and unfathomable. (even though i can bluff my way through these days at 46. ....Soemthing i could not do until a few years ago, after a lot of Cognitive therapy.)
thanks for your posts people.
Last edited by millie on 15 Dec 2008, 4:31 pm, edited 1 time in total.
For me it is interesting that you put emphasis on 'acceptance' of the diagnoses. I found it to be more like a 'confirmation' that made it 'okay' to be who I am and that I didn't need to hide in the shadows anymore after so many years of thinking that I probably had some significant mental disorder and was 'sick' in the head.
The fear that I would offend other people with my strangeness has held me back for decades from things I wanted to explore but was ashamed to do since it would make me more obvious to others.
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I am one of those people who your mother used to warn you about.
I think that is a normal feeling, but sometimes I feel like there are many things I COULD have done differently. I wish I acted more mature at younger stages of my life and worked on building relationships. You have to find a good balance between your inner, private person and what is reflected on the rest of the world, while always maintaining honesty and your own unique qualities.
NOT AT ALL Greentea!! Most artists are creative of course, but creativity does not equate wtih eccentricity! at the level I am at, it is very much about "networking, career trajectory, curators, who is who," and quite frankly, the scene is exceedingly conservative and very, very strictured in terms of HOW things MUST be done to "make it!" Those who "make it" these days are often great schmoozers --- which kind of puts us auties at a slight disadvantage! i am not a good schmoozer. eg. Last year - a curator started bragging to me that he had lunch with our Prime MInister in order to try to secure funding for a new regional gallery plan. Rather than smiling and looking beautiful and stroking his ego (which afterwards i was told is what i was supposed to have done) I actually said "oh yuck. and did you tell the Prime MInister how appalling and right wing his policies are and how odious he is to be doing what he is doing to our country??" Aspie foot in mouth! the curator avoids me these days!! I am glad i said it, but it does me no good. THis is the stuff i find hard about being a talkative aspie (i am not a quiet type.)
It is actually very corrupt, and it is completley unregulated. There are no cheques and balances that safeguard against nepotism and the like. and being an AS woman with a strong social justice bent, i tend to whistle blow on the scene! In the annals of art history, often the eccentric artists who show a lot of exploration and originality, have this kind of problem where they do not fit. I am in no way placing myself on par with someone such as cezanne for example. But what i do know, is the scene these days is run like a corporate machine which is all about starmaking and money. it is ugly and i cannot cope with it. I have even been bullied in the scene by other women artists who are threatened by me or simply do not understand why i am the way i am.
So, that is more the reality. I was actually on national tv in my own country last night on an art program. Because o fmy mindlblindness as my mum said to me this morning after watching teh show - the progam editors have a feild day because i say things without realising they are contentious or inflammatory. i am just being aspie honest. I do know a bit about the scene and it is not what it is cracked up to be. ![]()
thank you gary re that tweaking regarding "acceptance" and "confirmation." i see what you are saying. There is a lot of confirmation too of course. and that is where incredible releif comes in
I have tried desperately to fit in my whole life. ANd the As dx does give me some relief in that i am aware i do not need to try anymore. I wonder if that is more in line with being a woman with AS in terms of the cultural expectations that a woman of my age and generation is expected to mould themselves a little more to what others expect of them. I could never adequately do that, but it really was unconsciusly and subliminally drummed into me. That was hard for a tomboy girl who collected branches and pieces of wood and then attached them to fishing line and hung them from her sloping bedroom ceiling. (not the stuff of normal girldom!) But teh great chasm between who i am and was and what the expectations were and have been, led to a lifetime of confusion and utter panic about how to exist with others. (perhaps my saving grace has also been i have a mother who - wthout saying she has AS - acknowledges jsut how many traits she exhibits. And she is a superbrain mother of eight who was hellish back then because of severe meltdowns and rigidity and eccentricity.she and i relate a great deal now. )
I can certainly cease trying now. and that has been happening. That is very very good. I can nail all the branches to any ceiling that i so choose!! what i am saying is that i believe some of my dreams are crumbling now too. NOt a bad thing. BUt a new and quite unfamiliar process that will no doubt have its logical conclusion at some point in the future.
Last edited by millie on 15 Dec 2008, 4:29 pm, edited 2 times in total.
Geographical relocation is my answer for almost everything that bugs people on the spectrum. Even though we love regularity and routine we also thrive on change and grow most when we have to make changes. I've found that moving a lot, from place to place, has helped me tremendously. I call it the lifelong vacation. It keeps us from falling into deep holes.
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I am one of those people who your mother used to warn you about.
Geographical relocation is my answer for almost everything that bugs people on the spectrum. Even though we love regularity and routine we also thrive on change and grow most when we have to make changes. I've found that moving a lot, from place to place, has helped me tremendously. I call it the lifelong vacation. It keeps us from falling into deep holes.
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I am one of those people who your mother used to warn you about.
when reading these stories i sometimes wish i had a big space ship and could accommodate all who fall within the AS, and then we could find another planet, but then this world would become a dark place...
i dont know how, but i am amazed at how some of you guys have been able to handle the acceptance..i hope i am as brave in my transition, from trying to be someone i am not, to becoming myself....
now i worry though, will people and family understand?
and i wonder if my guilt from things in my past will fade when i accept that i could not have acted any differently.. as now i do have allot of guilt issues, and shame about things....
Somone your are not and then yourself. This is almost what I've felt all my life. For many of us we aren't really born with a 'persona' so we have to adopt one. I developed mine in great detail over many years. I'm still not sure I actually have a personality that comes from inside myself but what I have must do. It's a 'pathfinding' type of thing, making a way through life and it can be hard. I've been on the verge of giving up many times but then I realize that I'm actually way better than most people who just trudge thru life without ever questioning. I still have about a billion questions to ask and I expect to work out the answers myself if I can't get some help.
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I am one of those people who your mother used to warn you about.
Moving a lot has helped me too! I had to do it, partly because of the nature of my gypsy-like career. At first it felt stressful, but what I began to realize is that every time I moved, it was like starting with a clean slate, which was very liberating. It also taught me how much environments can vary; there were times when I was a total outcast, or bullied (as an adult), and other times when people accepted me. I think that helped me to "lighten up" quite a lot about what other people thought of me.
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"death is the road to awe"
