Why Do People Hate Self-Diagnosers?
The example that comes to mind is Rudy Simone.
"I had to diagnose myself. I contacted several psychiatrists within a 500-mile radius and I couldn’t find a single doctor willing to believe me." in 2011
And then we have this where "autism is a gut issue"
She says she was diagnosed as an adult in other interviews and yet failed to mention that it was a self diagnosis. I think that's just lying.
And yet with that she is the author of 4 books about Asperger's. I dread to think what misinformation is within.
Here's something in that "autism is a gut issue" link which I find so hypocritical: "Worst of all, since I got started, there have been many people who may share some traits with Aspergers, but never had any of the hallmarks of autism, that claim to be on the spectrum. Some have thrown their weight around and created little empires around themselves, and frankly they make me feel ill. I want nothing to do with it."
Hope there's no more like her in autism activism.
I'm reading the Rudy Simone blog. Do people really find that their depression and anxiety decrease that much due to diet? I don't doubt that a bad diet can influence mood, but I eat vegetables every day for lunch and have pretty simple meat and vegetable dinners. I still have anxiety. It's not a secret to me where my anxiety comes from, but I find it hard to see how diet itself is that powerful against other factors. Or do people here see that as a sign that she is neurotypical?
Come to think of it, I do feel much better after having a nicely cooked tenderloin together with a salad (homemade blue cheese dressing) than having ramen noodles. I tend to be amused by simple things, like figuring out how to perfectly cook meals.
Last edited by BTDT on 28 Jun 2015, 8:37 am, edited 1 time in total.
OliveOilMom
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Thank you so very much! Also, thank you for reading it! I'm up all night because I slept all day yesterday and need my sleeping back on track, so I did the only sensible thing and drank strong coffee all night long. It amps me up and I get talkative and I've typed several very long and talkative posts. Lots of people hate that and I'm sorry I'm doing it, but the coffee just made me want to say so much, so I am. You are a very patient Llama to read all that and I'm very glad you liked it. I'm always afraid I'm going all over the place in these long ones, but with the coffee tonight I tend to ramble on into posts that are about column length, which is what I used to write for the paper. They weren't like these posts though, they were organized and edited and all came together in the last paragraph. When I get on a roll I tend to talk in column length posts though, especially if it's about an issue. I revert back to having a certain space and trying to have a certain tone and you all just get what looks like a rough draft of an idea that needs to be polished and reworked to read right, and it's too much for a lot of people. I am the poster child for TLDR right now lol. At least I did give some paragraph breaks. I hate it when people don't do that and I literally cannot read it when it's like that.
Again, thank you. I wondered if I was getting my point across but I didn't reread it. I'm glad I did. Thanks!
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Because many of the posters here have been consistently told they are faking their problems or are attention seekers arguments against self diagnosis in general may be received as yet another person invalidating them. Similar situation with Autism/Aspergers is overdiagosed threads. This is probably particular true if a poster specifically cites attention seeking in their post which from my observation occurs more often in Asperger's threads the self diagnosis ones.
I haven't seen the attention seeking posts that you refer to. Are there any in this thread?
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OliveOilMom
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I don't get what it has to do with EzraS' post, though. It is a reply to it, and I've thread it through and can't see the relevance. It would make sense as a separate post though.
It was in response to the thing about the man EzraS mentioned. My post was about why some older people don't act like the younger aspies.
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I'm giving it another shot. We will see.
My forum is still there and everyone is welcome to come join as well. There is a private women only subforum there if anyone is interested. Also, there is no CAPTCHA.
The link to the forum is http://www.rightplanet.proboards.com
I am on the milder end of the spectrum, diagnosed with Asperger’s. I believe when people meet me, they just assume I am quiet and/or shy, with some obsessive tendencies along with the tendency to be annoying (by saying the wrong thing). My wife tells others, “Oh, he’s an engineer” to explain me. This seems to work.
So, my family and friends knows I am a bit different (with a different world perspective). From their vantage point, I am simply Rocket - quirks and all. To them, the diagnosis explains nothing. As my parents would say, "Everyone has issues".
OliveOilMom – Great post. Thank you.
By the way, I have an “untrained eye”. If someone on the milder end of the spectrum told me that they were introverted, shy or had social anxiety, I would believe them (i.e. not suspecting they were on the spectrum).
Last edited by Rocket123 on 28 Jun 2015, 12:31 pm, edited 1 time in total.
nerdygirl
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I also think your post was well-written, Olive Oil Mom. You were right on, talking about how "passing" becomes second nature, about how we learn to just put up with things, and how we learn to make excuses or jokes about ourselves.
I would also add that we learn how to hide. Until about 6 months ago, my family didn't realize that I fished around in the silverware drawer or switched the place settings when they weren't looking in order to get the fork and knife I like. The only reason they found out was because I was discussing some of my preferences, which was due to a discussion about the likelihood of my being on the spectrum.
As far as other posts about diet... The only thing I have noticed is that if I don't get enough whole grains or if I have too much caffeine intake my anxiety will increase. Magnesium also seems to help my muscle tightness but doesn't seem to have a lot of effect on my mental state.
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Because many of the posters here have been consistently told they are faking their problems or are attention seekers arguments against self diagnosis in general may be received as yet another person invalidating them. Similar situation with Autism/Aspergers is overdiagosed threads. This is probably particular true if a poster specifically cites attention seeking in their post which from my observation occurs more often in Asperger's threads the self diagnosis ones.
I haven't seen the attention seeking posts that you refer to. Are there any in this thread?
My point was that a poster may not be accusing the self diagnosers of attention seeking but the reader may read it that way or think it was implied.
Especially in 2014 there were numerous posts in the is Aspergers overdiagnosed or should the term "Aspergers" go away threads where it was directly stated that most or all those that use the term "Aspie" are doing it to be trendy, to make excuses for bad behavior, or to disassociate themselves from more severe autistics or all three. While this type of statement has come up in self diagnosis threads, it is pretty rare and in general pretty rare for that type of statement to be written at all in the last few months.
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Especially in 2014 there were numerous posts in the is Aspergers overdiagnosed or should the term "Aspergers" go away threads where it was directly stated that most or all those that use the term "Aspie" are doing it to be trendy, to make excuses for bad behavior, or to disassociate themselves from more severe autistics or all three. While this type of statement has come up in self diagnosis threads, it is pretty rare and in general pretty rare for that type of statement to be written at all in the last few months.
ASPartOfMe - But what about that makes it "attention seeking"? I always thought someone was "attention seeking" if they wore flashy clothes. Or drove a flashy car. Or something similar. Probably, I don't understand what the term means.
By the way, I try to avoid calling myself autistic, and instead use the phrase "diagnosed with Asperger's". Probably because I don't want to insult those whose challenges are more severe than my petty little challenges (which I have learned since I was young can be resolved via avoidance and/or seclusion).
ASPartOfMe
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Especially in 2014 there were numerous posts in the is Aspergers overdiagnosed or should the term "Aspergers" go away threads where it was directly stated that most or all those that use the term "Aspie" are doing it to be trendy, to make excuses for bad behavior, or to disassociate themselves from more severe autistics or all three. While this type of statement has come up in self diagnosis threads, it is pretty rare and in general pretty rare for that type of statement to be written at all in the last few months.
ASPartOfMe - But what about that makes it "attention seeking"? I always thought someone was "attention seeking" if they wore flashy clothes. Or drove a flashy car. Or something similar. Probably, I don't understand what the term means.
By the way, I try to avoid calling myself autistic, and instead use the phrase "diagnosed with Asperger's". Probably because I don't want to insult those whose challenges are more severe than my petty little challenges (which I have learned since I was young can be resolved via avoidance and/or seclusion).
A person seeking attention can do so without wearing or displaying psychical objects. It may involve constantly complaining in an effort to get people to feel sorry for them. In the context of Aspergers or self diagnosis the accusation is that a lot of people display/overdramitize Autistic traits or fake being an "Aspie" in a deliberate effort to gain attention for the purpose of being seen by others as trendy or to get others to feel sorry for them or to excuse bad behavior.
Wikipedia - Attention seeking
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Thanks for the explanation.
Personally, I have yet to notice anyone seeking attention on WP. Then again, save for a few posters, I have a hard time remembering who is who (I mix up people all the time). As a result, I would have a hard time figuring out if any one poster was engaging in the activities you described above (or not).
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Very good points - and I agree with you. Self =/= professional. I have always recognized this.
With that being said, I am thinking about going for a degree in professional counseling...and if I did, I would want to help people on the spectrum as part of my practice. Therefore, it might be a good time to scout around for a decent diagnostician...up to now, I haven't had a pressing reason, but I would NOT want to misrepresent myself.
I had no idea Rudy Simone was only self-diagnosed.
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Thanks for the explanation.
Personally, I have yet to notice anyone seeking attention on WP.
Some people think this activity is widespread. I do not believe it is.
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“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

