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HighLlama
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28 Jun 2015, 8:14 am

Great post, OliveOilMom!



iliketrees
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28 Jun 2015, 8:16 am

OliveOilMom wrote:
Also when the self dx'd want to start doing activism as a person on the spectrum. Thats not a good idea. They can do it as a person who suspects themself to be on the spectrum, but I don't like it when they sell themselves as having it when they are only guessing and never even talked to somebody about it. That would be like me going around and trying to speak for autistics who are very low functioning and say that I'm speaking for them from the same place they are coming from. Not at all. I'm not and can't. It's not truthful presentation at all. I'm nitpicking but thats what I do.

The example that comes to mind is Rudy Simone.

"I had to diagnose myself. I contacted several psychiatrists within a 500-mile radius and I couldn’t find a single doctor willing to believe me." in 2011

And then we have this where "autism is a gut issue"

She says she was diagnosed as an adult in other interviews and yet failed to mention that it was a self diagnosis. I think that's just lying.

And yet with that she is the author of 4 books about Asperger's. I dread to think what misinformation is within. :|

Here's something in that "autism is a gut issue" link which I find so hypocritical: "Worst of all, since I got started, there have been many people who may share some traits with Aspergers, but never had any of the hallmarks of autism, that claim to be on the spectrum. Some have thrown their weight around and created little empires around themselves, and frankly they make me feel ill. I want nothing to do with it."

Hope there's no more like her in autism activism.



HighLlama
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28 Jun 2015, 8:29 am

I'm reading the Rudy Simone blog. Do people really find that their depression and anxiety decrease that much due to diet? I don't doubt that a bad diet can influence mood, but I eat vegetables every day for lunch and have pretty simple meat and vegetable dinners. I still have anxiety. It's not a secret to me where my anxiety comes from, but I find it hard to see how diet itself is that powerful against other factors. Or do people here see that as a sign that she is neurotypical?



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28 Jun 2015, 8:34 am

Come to think of it, I do feel much better after having a nicely cooked tenderloin together with a salad (homemade blue cheese dressing) than having ramen noodles. I tend to be amused by simple things, like figuring out how to perfectly cook meals.



Last edited by BTDT on 28 Jun 2015, 8:37 am, edited 1 time in total.

OliveOilMom
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28 Jun 2015, 8:37 am

HighLlama wrote:
Great post, OliveOilMom!



Thank you so very much! Also, thank you for reading it! I'm up all night because I slept all day yesterday and need my sleeping back on track, so I did the only sensible thing and drank strong coffee all night long. It amps me up and I get talkative and I've typed several very long and talkative posts. Lots of people hate that and I'm sorry I'm doing it, but the coffee just made me want to say so much, so I am. You are a very patient Llama to read all that and I'm very glad you liked it. I'm always afraid I'm going all over the place in these long ones, but with the coffee tonight I tend to ramble on into posts that are about column length, which is what I used to write for the paper. They weren't like these posts though, they were organized and edited and all came together in the last paragraph. When I get on a roll I tend to talk in column length posts though, especially if it's about an issue. I revert back to having a certain space and trying to have a certain tone and you all just get what looks like a rough draft of an idea that needs to be polished and reworked to read right, and it's too much for a lot of people. I am the poster child for TLDR right now lol. At least I did give some paragraph breaks. I hate it when people don't do that and I literally cannot read it when it's like that.

Again, thank you. I wondered if I was getting my point across but I didn't reread it. I'm glad I did. Thanks!


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28 Jun 2015, 8:37 am

ASPartOfMe wrote:
Norny wrote:
Why do threads like this make people quit?


Because many of the posters here have been consistently told they are faking their problems or are attention seekers arguments against self diagnosis in general may be received as yet another person invalidating them. Similar situation with Autism/Aspergers is overdiagosed threads. This is probably particular true if a poster specifically cites attention seeking in their post which from my observation occurs more often in Asperger's threads the self diagnosis ones.


I haven't seen the attention seeking posts that you refer to. Are there any in this thread?


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28 Jun 2015, 11:01 am

HighLlama wrote:
Great post, OliveOilMom!

I don't get what it has to do with EzraS' post, though. It is a reply to it, and I've thread it through and can't see the relevance. It would make sense as a separate post though.



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28 Jun 2015, 12:01 pm

iliketrees wrote:
HighLlama wrote:
Great post, OliveOilMom!

I don't get what it has to do with EzraS' post, though. It is a reply to it, and I've thread it through and can't see the relevance. It would make sense as a separate post though.



It was in response to the thing about the man EzraS mentioned. My post was about why some older people don't act like the younger aspies.


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28 Jun 2015, 12:28 pm

EzraS wrote:
It's funny, I could take an attitude with even professionally diagnosed aspies who ask questions like "should I let my friends know?" or even "Should I let my family know?". Sometimes I think "that must be nice". I sure don't have to tell anyone I have autism, they can see it a mile away. But anyone that relates to and deals with asd related difficulties should be at home here I think.

I am on the milder end of the spectrum, diagnosed with Asperger’s. I believe when people meet me, they just assume I am quiet and/or shy, with some obsessive tendencies along with the tendency to be annoying (by saying the wrong thing). My wife tells others, “Oh, he’s an engineer” to explain me. This seems to work.

So, my family and friends knows I am a bit different (with a different world perspective). From their vantage point, I am simply Rocket - quirks and all. To them, the diagnosis explains nothing. As my parents would say, "Everyone has issues".

OliveOilMom wrote:
...Also, older aspies who were dx'd late in life and who pass don't usually come across as autistic. To the untrained eye we may be shy, or weird, or have anxiety or have some other kind of obvious mental thing going on that causes us to be certain ways at certain times, but autistic isn't what comes to mind to most people. If you have done like a lot of us have done and forced yourself to be like everybody else until it was second nature, you still have your autistic stuff going on, you just don't follow your urges or your instinct or whatever you want to call it. You put up with things or make excuses, you force yourself to talk to people smoothly and when you do get tongue tied or do spazz out and be obviously somehow not normal you make excuses and start over. Too much caffiene, nervousness, bad day, etc. You apologize, admit that you went off the rails for a second and try and pick up like you were before. So it's overlooked. You make excuses for your sensory issues. Allergies, eye trouble, headache, etc. You talk about how clumsy you are and make jokes about the way you can't do cartwheels or whatever it is you can't do like walk across a dry well lit floor stone cold sober in a flat room with no furniture without tripping over nothing (me). You don't talk about certain things with people like why you dont like this or have that "phobia" or whatever. You play off saying the wrong things with "I'm up front with people and I expect them to be with me. I may sound like I have no filter or limits to what I say but I think dancing around things is silly" while you are really wishing you hadn't said what you said. You learn to grow a very thick skin so insults or people disliking you will roll off and you miss the very things you should be upset about or you go the other direction and be a perpetually pissed off old fart that nobody can please and it just becomes part of your personality. Nobody else knows whats up with you. But the therapist gets it out of you. They ask why. They ask what would happen if. They ask do you ever, have you ever, do you want to. It's comfortable there, they don't judge and you think your answers, which you never give anybody, might help you with what you came to see them about and then after a while they say "Have you ever heard of Asperger Syndrome?" and then you go off for testing and there it is. You have it. Oh.

OliveOilMom – Great post. Thank you.

By the way, I have an “untrained eye”. If someone on the milder end of the spectrum told me that they were introverted, shy or had social anxiety, I would believe them (i.e. not suspecting they were on the spectrum).



Last edited by Rocket123 on 28 Jun 2015, 12:31 pm, edited 1 time in total.

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28 Jun 2015, 12:29 pm

I also think your post was well-written, Olive Oil Mom. You were right on, talking about how "passing" becomes second nature, about how we learn to just put up with things, and how we learn to make excuses or jokes about ourselves.

I would also add that we learn how to hide. Until about 6 months ago, my family didn't realize that I fished around in the silverware drawer or switched the place settings when they weren't looking in order to get the fork and knife I like. The only reason they found out was because I was discussing some of my preferences, which was due to a discussion about the likelihood of my being on the spectrum.


As far as other posts about diet... The only thing I have noticed is that if I don't get enough whole grains or if I have too much caffeine intake my anxiety will increase. Magnesium also seems to help my muscle tightness but doesn't seem to have a lot of effect on my mental state.



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28 Jun 2015, 12:54 pm

Norny wrote:
ASPartOfMe wrote:
Norny wrote:
Why do threads like this make people quit?


Because many of the posters here have been consistently told they are faking their problems or are attention seekers arguments against self diagnosis in general may be received as yet another person invalidating them. Similar situation with Autism/Aspergers is overdiagosed threads. This is probably particular true if a poster specifically cites attention seeking in their post which from my observation occurs more often in Asperger's threads the self diagnosis ones.


I haven't seen the attention seeking posts that you refer to. Are there any in this thread?


My point was that a poster may not be accusing the self diagnosers of attention seeking but the reader may read it that way or think it was implied.

Especially in 2014 there were numerous posts in the is Aspergers overdiagnosed or should the term "Aspergers" go away threads where it was directly stated that most or all those that use the term "Aspie" are doing it to be trendy, to make excuses for bad behavior, or to disassociate themselves from more severe autistics or all three. While this type of statement has come up in self diagnosis threads, it is pretty rare and in general pretty rare for that type of statement to be written at all in the last few months.


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28 Jun 2015, 1:46 pm

ASPartOfMe wrote:
My point was that a poster may not be accusing the self diagnosers of attention seeking but the reader may read it that way or think it was implied.

Especially in 2014 there were numerous posts in the is Aspergers overdiagnosed or should the term "Aspergers" go away threads where it was directly stated that most or all those that use the term "Aspie" are doing it to be trendy, to make excuses for bad behavior, or to disassociate themselves from more severe autistics or all three. While this type of statement has come up in self diagnosis threads, it is pretty rare and in general pretty rare for that type of statement to be written at all in the last few months.

ASPartOfMe - But what about that makes it "attention seeking"? I always thought someone was "attention seeking" if they wore flashy clothes. Or drove a flashy car. Or something similar. Probably, I don't understand what the term means.

By the way, I try to avoid calling myself autistic, and instead use the phrase "diagnosed with Asperger's". Probably because I don't want to insult those whose challenges are more severe than my petty little challenges (which I have learned since I was young can be resolved via avoidance and/or seclusion).



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28 Jun 2015, 2:36 pm

Rocket123 wrote:
ASPartOfMe wrote:
My point was that a poster may not be accusing the self diagnosers of attention seeking but the reader may read it that way or think it was implied.

Especially in 2014 there were numerous posts in the is Aspergers overdiagnosed or should the term "Aspergers" go away threads where it was directly stated that most or all those that use the term "Aspie" are doing it to be trendy, to make excuses for bad behavior, or to disassociate themselves from more severe autistics or all three. While this type of statement has come up in self diagnosis threads, it is pretty rare and in general pretty rare for that type of statement to be written at all in the last few months.

ASPartOfMe - But what about that makes it "attention seeking"? I always thought someone was "attention seeking" if they wore flashy clothes. Or drove a flashy car. Or something similar. Probably, I don't understand what the term means.

By the way, I try to avoid calling myself autistic, and instead use the phrase "diagnosed with Asperger's". Probably because I don't want to insult those whose challenges are more severe than my petty little challenges (which I have learned since I was young can be resolved via avoidance and/or seclusion).


A person seeking attention can do so without wearing or displaying psychical objects. It may involve constantly complaining in an effort to get people to feel sorry for them. In the context of Aspergers or self diagnosis the accusation is that a lot of people display/overdramitize Autistic traits or fake being an "Aspie" in a deliberate effort to gain attention for the purpose of being seen by others as trendy or to get others to feel sorry for them or to excuse bad behavior.

Wikipedia - Attention seeking


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28 Jun 2015, 9:21 pm

ASPartOfMe wrote:
A person seeking attention can do so without wearing or displaying psychical objects. It may involve constantly complaining in an effort to get people to feel sorry for them. In the context of Aspergers or self diagnosis the accusation is that a lot of people display/overdramitize Autistic traits or fake being an "Aspie" in a deliberate effort to gain attention for the purpose of being seen by others as trendy or to get others to feel sorry for them or to excuse bad behavior.

Thanks for the explanation.

Personally, I have yet to notice anyone seeking attention on WP. Then again, save for a few posters, I have a hard time remembering who is who (I mix up people all the time). As a result, I would have a hard time figuring out if any one poster was engaging in the activities you described above (or not).



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28 Jun 2015, 11:28 pm

OliveOilMom wrote:
It's just when people start spouting off like a self dx is the same as a pro that bothers me. Also when the self dx'd want to start doing activism as a person on the spectrum. Thats not a good idea. They can do it as a person who suspects themself to be on the spectrum, but I don't like it when they sell themselves as having it when they are only guessing and never even talked to somebody about it. That would be like me going around and trying to speak for autistics who are very low functioning and say that I'm speaking for them from the same place they are coming from. Not at all. I'm not and can't. It's not truthful presentation at all. I'm nitpicking but thats what I do.


Very good points - and I agree with you. Self =/= professional. I have always recognized this.

With that being said, I am thinking about going for a degree in professional counseling...and if I did, I would want to help people on the spectrum as part of my practice. Therefore, it might be a good time to scout around for a decent diagnostician...up to now, I haven't had a pressing reason, but I would NOT want to misrepresent myself.

I had no idea Rudy Simone was only self-diagnosed. 8O


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29 Jun 2015, 1:18 pm

Rocket123 wrote:
ASPartOfMe wrote:
A person seeking attention can do so without wearing or displaying psychical objects. It may involve constantly complaining in an effort to get people to feel sorry for them. In the context of Aspergers or self diagnosis the accusation is that a lot of people display/overdramitize Autistic traits or fake being an "Aspie" in a deliberate effort to gain attention for the purpose of being seen by others as trendy or to get others to feel sorry for them or to excuse bad behavior.

Thanks for the explanation.

Personally, I have yet to notice anyone seeking attention on WP.


Some people think this activity is widespread. I do not believe it is.


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