Do self-diagnosers ruin it for the rest of us?
Did you mean people who aren't sincere when they say they are autistic? I noticed some parents of autistic children got quite hostile with me when I told them, at a meeting for parents of special needs kids, that I was autistic. They don't seem to like the idea that adults are autistic, I don't understand the hostility...
It is fear they are externalizing as hostility. They see that adults are also autistic and it shatters their belief that their beloved child will not be "cured" or grow out of it. It is quite poignant if you think about it.
It could be that which you described, yes, because I've heard people say only kids can be autistic, which is a lot of nonsense...
She seemed to be specifically hostile in that I wasn't autistic enough, whereas her child was very autistic, as though it were some sort of... contest? She went on to say, or rather, shout, that I was too eloquent, made eye contact, and smiled too much to be autistic.

What she didn't realize was that my manner was the result of a carefully orchestrated act, that took a lot of mental/emotional energy to perform. When she shouted at me it all vaporized and I just sat down and the counselor quickly ended the meeting. I had been specifically invited by her to tell the pother parents my story, and it ended up in a bit of a disaster. I got very resentful of this woman as a result.
I thought it would give them hope, to see someone who was learning to cope and at times maybe, possibly, passing for normal. At least being able to function enough to get by... I had drawn that conclusion because at least one other parent was happy to talk with an adult autistic to get an idea of how their kids may become. Hopefully the child of this parent will become a person with more self confidence because their parents worked to understand instead of constantly being punished for being autistic, like I was, growing up...
Ah, well. Human nature.
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Never assume you know what I'm thinking, just ask for clarification.

"Not everything that steps out of line, and thus 'abnormal', must necessarily be 'inferior'. " -- Hans Asperger (1938)
See, the problem some NTs have is that some people have social awkwardness or "odious interpersonal habits" and they see it as a deliberate thing and when someone says they have AS (either self-diagnosed or otherwise) they say, "Stop using that as an excuse" as if the people have any sort of control over it.
Where are all these self-diagnoseds that are making NTs think that AS has a bad name/reputation? Why do NTs think that they can judge a person like that, after all THEY are not experts and don't any more know what a person's problem is than the person would.
Are people REALLY just 'using AS as an excuse' and what does that mean? Does that mean AS people are doing something deliberately? Why on earth would someone who's NOT diagnosed as AS (though might be, regardless) deliberately be using odious interpersonal habits and then saying "Don't blame me I have AS"? Does that even make sense for a person to do?
Whether or not a person IS AS diagnosed, my belief is that if they can't help it, they can't help it. Why don't NTs GET that?!
There are CHARLATANS arousing hatred and spreading disinformation everywhere. I am recently self diagnosed. I'm also in the process of seeking a professional diagnosis. I've already spoken with my psychiatrist and will be seeing my psychologist April 1st, the day after tomorrow. I'm a quiet person but I'm very well liked by my neighbors. I'm a 47 years old women, I have learned how to be social and I'm not giving AS a bad name by using it as a crutch.
Shebakoby, where did you get your information from?
I'd tell you, but there's a serious conflict between myself and the other person, and I don't want it to turn into a trolling fest somewhere. But this person thinks they know stuff because they have a profoundly autistic (not merely aspie) non-offspring relative (a very young boy) who is 'terrified of the sound of weed eater motors".
In my youth, having a psychological disorder was just not considered, and I'd have loved to have seen you explaining to my father that you had AS. I expect his reaction would have been much less than favourable. Therefore, there was no possibility of getting a diagnosis of a "mental illness" (society's view, not mine), let alone one which was barely known even in the medical community, if at all.
Shebakoby, I would also challenge you to go and see my GP, who told me that adults of my mature years couldn't have possibly reached my age without being diagnosed, and that therefore there is no way I could be on the spectrum.
Having survived for this long, I see no point in trying to register with another GP or go private, to confirm what I already know. It will make sod all difference to my life, beyond giving me the satisfaction of an official confirmation.
True there are far too many undiagnosed people IRL who bandy AS about as an excuse or even some sort of medal of honour.
Even now, I can assure you that in my family, trying to use any "mental condition" as an excuse would at best be laughed at. I therefore keep my assessment to myself or here, where I can remain anonymous.
I think you'd have got more traction if you went to a doctor that specialized in head injuries. That's how I ended up getting diagnosed. My mother thought that when I'd fallen on my head at 3 months of age, that something got damaged, so we got my GP to send me to a specialist in brain injury. This specialist, a Neuropsychiatrist, is the one that diagnosed me with AS. We hadn't even heard of it until that diagnosis, which was in 2000. We barely had the internet then.
I know some doctors are idiots though, like the one that said Adults are out of their league and they are only geared to help children.
- driving everyone away by constantly talking about obsessions, even as a 16 year old who should know better (yeah, I felt that my obsession was the only thing truly real, and anyone who disliked this subject simply didn't understand...)
- not even noticing when someone is seriously upset...yeah, I do this, I seem to see lines and geometry instead of facial expressions sometimes...
- eyes spasming shut and discharging heavily due to moderate sunlight
- Having sensory overloads while driving and nearly causing serious accidents (including going completely unresponsive and freewheeling into the path of a f***ing lorry...thankfully, SOMEONE WAS WITH ME)
Want me to go on??
Sensitivity to moderate sunlight....you might have Lyme.
I use it as an explanation too, but unfortunately there are some idiots out there who can't differentiate "explanation" from "excuse." :/

I've got the same problem. And when the medium of text is the only method by which some people communicate, the difficulties get even bigger. Especially when there are some sort of cultural differences that make people think you mean one thing when you mean something entirely different.
Aspies and NT people with volatile (bordering on psycho) tempers do not mix.
Ugh yeah, and let's not forget the people with a stick GRAFTED into their bum who enforce that. I mean sure, manners and please and thank you are great...but some of that other crap makes no logical sense.
Although it really is and there is no way that could be my fault as I could insult someone in another language and it would not mean anything to them even though it is the same word and people somehow expect me to know exactly their notions of normal and not offensive.
But I will not say something that I do not deem true (opinions only, which actually can go either way, because there is no fact checking on them) just to irk someone.
It is always the fault of the person who applies meaning to a word.
Although it really is and there is no way that could be my fault as I could insult someone in another language and it would not mean anything to them even though it is the same word and people somehow expect me to know exactly their notions of normal and not offensive.
But I will not say something that I do not deem true (opinions only, which actually can go either way, because there is no fact checking on them) just to irk someone.
It is always the fault of the person who applies meaning to a word.
Yeah, I know circumstances like that, where a person is offended because THEY interpreted something a person said wrongly. And they rant and rave and INSIST that you admit you were wrong when it wasn't you that meant it the way they perceived it and REFUSE to contemplate that THEY have the problem.
And then they get the idea that you're manipulative because of this.
Sometimes there's unambiguous offensive insults, but I'm talking about the ambiguous case.
I only really have issue with the "I have the parts which I think are ok, but none of the negative aspects of autism" type diagnosis.
Having less severe traits is one thing, I can fake socialization pretty darn well after YEARS of intensely studying my woman, who is quite a social butterfly.
I still lock up when encountering something that I can't immediately process, I still ask her constantly if I am reading/interpreting things properly, and still get stressed out at the thought of forced social interaction.
Had to explain that my biggest issue with going to church with her ISN'T about the religion, it's that I feel bad if I don't try to reciprocate the honest friendliness that I get bombarded with there.
In situations where I can withdraw and shut everything out periodically, like when we were at the DMV the other week, I was able to engage in short bouts of conversational chitchat with the other people in line, and when the noise/press of the crowd got to be too much, I could simply shut down and analyze the structure of the cinderblock wall.
Having the entire line of people trying to greet me, be friendly, giving honest interest and genuine attentiveness?
I would be hard pressed to describe it afterwards as anything but a nightmarish parade of sensations, blurred conversations, hands thrusting out here and there, unable to focus on any one person, and generating an intense urge to retreat elsewhere.
I think it's possible that AS could become "fashionable" with some people, teenagers in particular. In part that's a consequence of AS becoming gradually better known (which in other ways is a good thing). But teenagers who are in fact just a bit shy or something will grow out of that when they become a little older. And any of them who see AS as a convenient excuse to get out of obligations at school or college for example (rather than just something to use to evade some social obligations amongst their friends) will quickly learn they need a diagnosis to do that. In the meantime though, maybe they'll make it a bit more "mainstream" to be autistic (though it's probably not going to be chic any time soon!) Perhaps that will make life easier for someone at their school who really does have the condition and struggles to find understanding and acceptance.
Speaking for myself I am actually a little uncomfortable at adopting the AS badge, even here, because I don't have a formal diagnosis (hence the "unsure" status in my profile). But the truth is that privately I do accept that there can't really be another explanation, certainly not after more than a year of research. I tick the criteria pretty well and looking back over the years before I'd ever heard of AS it's clear to me that I always have done, I just didn't know it. The only question to be answered I think, if I found I needed a diagnosis is whether the extent of the impairment to my daily life is deemed sufficiently significant by whichever professional is assessing it.
But AS doesn't offer me an excuse to be lazy or to explain away comfortably things I'm not very good at, because in real life I don't tell people anyway. My wife knows, and after a few months of thinking about it and finding out a bit more about autism has decided that I'm probably right. I did once tell someone I know at work who has a young son on the spectrum because she was really stressing about him, but after that conversation we haven't mentioned it.
What I HAVE got from finally learning about AS though is really great, regardless of whether I would be professionally diagnosed (and I don't rule out seeking a diagnosis in the future if I need help and have to have the necessary credentials to get it). First and best, I don't beat myself up constantly about not being able to get the hang of some things that seem straightforward to most people. In the past I've thought that I mustn't be trying hard enough at things, or must be a lot dummer than I thought, when other people seem to be able to master something and as hard as I try I cannot. So in some respects I actually do have more confidence than I did before.
On top of that I now appreciate better some things I do badly that make me hard for other people to get on with and that previously I didn't even know were a problem. Eye contact for instance. I understand these days how important it is to most people in being comfortable when they're talking to you - previously I didn't realise how little eye contact I make, or how much eye contact people generally expect if they're going to feel comfortable in a conversation. In fairness I still suck at eye contact, I know that, but at least I'm trying these days so I can't be as awkward for people to talk to as I used to be! It's the same with monologues - nowadays I know that I'm prone to do this and I consciously stop myself, or make a joke of it if I've already been going on for a while without realising it. Like I have in this post perhaps!
Speaking for myself I am actually a little uncomfortable at adopting the AS badge, even here, because I don't have a formal diagnosis (hence the "unsure" status in my profile). But the truth is that privately I do accept that there can't really be another explanation, certainly not after more than a year of research. I tick the criteria pretty well and looking back over the years before I'd ever heard of AS it's clear to me that I always have done, I just didn't know it. The only question to be answered I think, if I found I needed a diagnosis is whether the extent of the impairment to my daily life is deemed sufficiently significant by whichever professional is assessing it.
But AS doesn't offer me an excuse to be lazy or to explain away comfortably things I'm not very good at, because in real life I don't tell people anyway. My wife knows, and after a few months of thinking about it and finding out a bit more about autism has decided that I'm probably right. I did once tell someone I know at work who has a young son on the spectrum because she was really stressing about him, but after that conversation we haven't mentioned it.
What I HAVE got from finally learning about AS though is really great, regardless of whether I would be professionally diagnosed (and I don't rule out seeking a diagnosis in the future if I need help and have to have the necessary credentials to get it). First and best, I don't beat myself up constantly about not being able to get the hang of some things that seem straightforward to most people. In the past I've thought that I mustn't be trying hard enough at things, or must be a lot dummer than I thought, when other people seem to be able to master something and as hard as I try I cannot. So in some respects I actually do have more confidence than I did before.
On top of that I now appreciate better some things I do badly that make me hard for other people to get on with and that previously I didn't even know were a problem. Eye contact for instance. I understand these days how important it is to most people in being comfortable when they're talking to you - previously I didn't realise how little eye contact I make, or how much eye contact people generally expect if they're going to feel comfortable in a conversation. In fairness I still suck at eye contact, I know that, but at least I'm trying these days so I can't be as awkward for people to talk to as I used to be! It's the same with monologues - nowadays I know that I'm prone to do this and I consciously stop myself, or make a joke of it if I've already been going on for a while without realising it. Like I have in this post perhaps!

Pretty much my experience. I'm quite certain that AS explains my until-recently "amorphous problem" that affects just about everything I do in my life, some things only very mildly, others much more significantly. I don't really tell anyone IRL either, I just know that it explains some of the difficulties that I've had forEVER. I don't consider it "trendy" or "fashionable" and I think at this point I'd seek a diagnosis other than my own (I am a professional in the neurological field, so technically mine *is* professional) if it would benefit me in some way. I have health insurance, but the benefits for neuropsychological testing are just about nonexistent, so I'd have to have some motivation more than just curiosity to spend that kind of money.
~Kate
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Ce e amorul? E un lung
Prilej pentru durere,
Caci mii de lacrimi nu-i ajung
Si tot mai multe cere.
--Mihai Eminescu
So if one of these self-diagnosed aspies, who are apparently ruining it for the officially diagnosed people, finally get an official diagnosis from a doctor then it's okay for them to use AS as an excuse for their bad behaviour just cause a doctor says they have it?
I'm a self-diagnosed Aspie and I disagree with the idea that we're ruining...whatever it is for the officially diagnosed. There are only a few people I've told about my possibility of having AS, but they already knew I was a weirdo so it didn't really change how they treated me. I've never been a rude person intentionally and if I feel i've offended someone then I apologize immediately even if i don't understand what I said wrong. I don't blame any mistakes i've made on AS or will use it as an excuse to act calliously towards other people.
I've used my self-diagnosis to discover parts of myself that I didn't know before. I can now make sense of why I get super anxious when in the middle of a large crowd or why I can't stand the sound of a phone ringing. I can take this info and fix my environment so that I can perform to the best of my potential. The only reason that I haven't had a diagnosis yet is because of high anxiety when I go to the doctors and I struggle when trying to talk about myself. I will be pursuing a diagnosis but until then I'm perfectly fine with a self-diagnosis.
If you're going to rant about people being an idiot and using AS as an excuse for bad behavior, please don't say it's ALL self-diagnosers. You just sound like someone saying someone is less of a person because of the colour of their skin
- driving everyone away by constantly talking about obsessions, even as a 16 year old who should know better (yeah, I felt that my obsession was the only thing truly real, and anyone who disliked this subject simply didn't understand...)
- not even noticing when someone is seriously upset...yeah, I do this, I seem to see lines and geometry instead of facial expressions sometimes...
- eyes spasming shut and discharging heavily due to moderate sunlight
- Having sensory overloads while driving and nearly causing serious accidents (including going completely unresponsive and freewheeling into the path of a f***ing lorry...thankfully, SOMEONE WAS WITH ME)
Want me to go on??
Sensitivity to moderate sunlight....you might have Lyme.
I have no other Lyme symptoms.
Thanks, though, I appreciate that you made a sensible suggestion instead of just whining about how evil I am for saying I likely have it.

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'You're so cold, but you feel alive
Lay your hands on me, one last time' (Breaking Benjamin)
Did you mean people who aren't sincere when they say they are autistic? I noticed some parents of autistic children got quite hostile with me when I told them, at a meeting for parents of special needs kids, that I was autistic. They don't seem to like the idea that adults are autistic, I don't understand the hostility...
It is fear they are externalizing as hostility. They see that adults are also autistic and it shatters their belief that their beloved child will not be "cured" or grow out of it. It is quite poignant if you think about it.
It could be that which you described, yes, because I've heard people say only kids can be autistic, which is a lot of nonsense...
She seemed to be specifically hostile in that I wasn't autistic enough, whereas her child was very autistic, as though it were some sort of... contest? She went on to say, or rather, shout, that I was too eloquent, made eye contact, and smiled too much to be autistic.

What she didn't realize was that my manner was the result of a carefully orchestrated act, that took a lot of mental/emotional energy to perform. When she shouted at me it all vaporized and I just sat down and the counselor quickly ended the meeting. I had been specifically invited by her to tell the pother parents my story, and it ended up in a bit of a disaster. I got very resentful of this woman as a result.
I thought it would give them hope, to see someone who was learning to cope and at times maybe, possibly, passing for normal. At least being able to function enough to get by... I had drawn that conclusion because at least one other parent was happy to talk with an adult autistic to get an idea of how their kids may become. Hopefully the child of this parent will become a person with more self confidence because their parents worked to understand instead of constantly being punished for being autistic, like I was, growing up...
Ah, well. Human nature.
I once gave a talk for parents (was invited like you were to a small group) about how to prepare a child of any diagnosis or level of ability to advocate for themselves. Where advocacy can be anything from saying things in words to behaving in ways that will help prevent abuse. I used reference materials and barely said a thing about my own life.
One thing to understand is that I am very visibly autistic. At the time I gave the talk I was stimming, vision was almost completely shut down, and communicating entirely with a keyboard. And even when not stimming I look unusual enough for people to be surprised when I communicate. (Except now that I always use a wheelchair some people blame it on a physical impairment.). And I was there with a staff person.
So this woman that even I could tell was dripping with hostility (and my staff person said through the whole talk she was flipping her hair at me and stuff)... She asked me and my staff person, "So which one of you is supposed to be autistic again?"
Then she said "Are you talking about autism or Asperger's?". I explained how the suggestions I gave could be applied to anybody regardless of diagnosis or ability.
Then she said "So I guess you don't believe autism is heavy metal poisoning?". I told her my beliefs on that were totally irrelevant to the topic.
Then she said, or more like barked, "I have a nine year old son with autism and mental retardation." As if that meant... something more than the literal although ice never figured it out.
Eventually she just stormed out. The other parents were asking relevant questions. One father told me his boy looked just like me and that until today he would never have believed someone who looked like me could think. He decided he wanted to try alternative communication methods with his son. And then the entire room apologized for the one woman's behavior and said she was totally out of line and confused them as much as she confused me.
And the best part of all was this autistic boy who normally just ran around the room in circles, came right up to my communication device and stared with totally rapt attention.
So... That one woman might have been awful for both of us but I bet you did make a difference for the other parents. I know the other parents at my talk were not all like the one awful one.
I think some parents, probably a minority, get massively massively upset about seeing autistic adults with any means of communication at all. It's not just because their kid has no communication system. That's an excuse. If it were true then I would never have gotten such good remarks from that father and other parents. And the fact that she slipped in the mercury thing when I hadn't mentioned causation and asked which of us was autistic when it was flagrantly obvious... I think some people just have a chip in their shoulder and that's their problem not ours. Some of them get really wrapped up in the idea that the only real autism is their kids autism. Some of them are actually terrified that their kid might be thinking and respond with rage to the very idea (I know it sounds weird but people are weird sometimes). Others want it to be a constant pity party. But in any case it's them that are being out of line.
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"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams
If we look closely at the fabric of society,we see that it's ultimately held together by relationships between individuals.To me that means in order for society to function at its best we should try and treat each person as an individual on their own merits,avoiding unnecessary generalisations between races,countries,NTs and ASDs,Officially-Diagnosed or Self-Diagnosed etc.
There may well be a misguided minority who have somehow latched on to an idea that AS can be used as an excuse for certain anti-social behaviour,but it's not logical to transpose either those motives,or a general reaction to them,onto everyone else.
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I have lost the will to be apathetic