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Aspieallien
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07 Jan 2011, 7:42 am

poopylungstuffing wrote:
I just got my own place, and I think that my landlady can tell that I am "different" :wink:
Not necc. a bad thing I guess..
I am hoping it will do a lot for my mental health..but I still need to work on positive habits.


Congrats on getting your own place,

When I first moved out on my own the best thing was it forced me to have to learn a lot of life skills real fast. I had no choice but to learn how to survive. This helped my confidence a lot as I managed to cope.

Hope it all works out well for you,


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07 Jan 2011, 8:19 am

poopylungstuffing wrote:
I just got my own place, and I think that my landlady can tell that I am "different" :wink:
Not necc. a bad thing I guess..
I am hoping it will do a lot for my mental health..but I still need to work on positive habits.

That's great news you got your own place. I think peace and quiet will do wonders for you. :)



liveandletdie
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07 Jan 2011, 1:08 pm

funding is the biggest problem for me, buying food and gas is a money pit. Then you have rent...then your car breaks down and you have to fix it......

which would all be fine and good but I have trouble holding down a job...
let alone getting one, employers are put off by my oddities
and most jobs I have worked due to the stress usually make me act erradic and irrationally. Causing me to look even stranger at work, making mistakes at home, in town, or at work that I wouldn't normally.

I find similar things to happen if I hang out with many of my friends, so I try not to hang out with anyone because I am not able to be around a lot of people for an extended period of time without losing my mind to the point where if I do make it back home I will be in a "recovery" period for two days maybe more. Just trying to bring my mind back to a point where I was better coping with the day to day without so much social interaction.


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AardvarkGoodSwimmer
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10 Jan 2011, 10:54 am

liveandletdie wrote:
. . . I find similar things to happen if I hang out with many of my friends, so I try not to hang out with anyone because I am not able to be around a lot of people for an extended period of time without losing my mind to the point where if I do make it back home I will be in a "recovery" period for two days maybe more. . .

What if you found your high enery time of the day. For example, I'm more of a morning lark, some people are more night owls, either one is perfectly fine, although I sometimes catch a second wind in the evening so it gets complicated. But if it was a time of the day when you had a pretty good energy level and you kept the social interaction more on the short side, do you think that might work better?



Woodfish
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10 Jan 2011, 12:22 pm

i don't have any kind of help with practical things so in that sense i am living independently in my own appartment. but in actuality i'm not doing it too well. pretty much any and all "normal" responsibilities i find pretty draining or almost impossible. the thing i'm learning right now is to do the things i really need to do in very very small pieces or portions. like only a very very small piece of the project at any one time.

like if i need to clean up a room. then i start with a microscopic part of it. like say just focusing on *part* of a stack of books. and putting those very few books in the right place. rather than all the stack at once. let alone all the room as one project. that's my trick. not planning ahead. keeping every project ant-size. then, only after the first micro-project is completed, i may plan another. ...

i think one service i almost desperately need (for example) would be to have sort of an ambassador for my neighbours and landlord. so if they want to tell me something they talk to my ambassador and of course also vice versa. i talk to my ambassador if i want them something. as it is i pretty much avoid contact with neighbours at all costs. which is pretty far from ideal im afraid ... :/ (not sure if this has already been brought up)


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liveandletdie
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10 Jan 2011, 12:23 pm

AardvarkGoodSwimmer wrote:
liveandletdie wrote:
. . . I find similar things to happen if I hang out with many of my friends, so I try not to hang out with anyone because I am not able to be around a lot of people for an extended period of time without losing my mind to the point where if I do make it back home I will be in a "recovery" period for two days maybe more. . .

What if you found your high enery time of the day. For example, I'm more of a morning lark, some people are more night owls, either one is perfectly fine, although I sometimes catch a second wind in the evening so it gets complicated. But if it was a time of the day when you had a pretty good energy level and you kept the social interaction more on the short side, do you think that might work better?


yes, I totally agree- afternoon/night time is better for me but then 12pm to 6am, is bad for me. The jobs that I had in the afternoon/night were good but not when it got to being in the mid am's. My last full time job was early in the morning, I stupidly chose this schedule- 6am and that likely effected my performance/mood. Although my last job was also very social so it could have been more draining nomatter the time, but I am sure I would have done at least a little better with a time change. I had a job at an arcade that went from 11am to 8pm, that was perfect timing for me- work would go by very quickly and smoothly. Also there wasn't too much interaction to take place, the customers just want to exchange tokens, money or a machine needs fixed. I just do that, keep the place clean and then count the money at the end of the day. Pretty nice little operation but I was moved which didn't work out but didn't have a job to come back to.


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Plywood
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10 Jan 2011, 12:25 pm

Just the job.



AardvarkGoodSwimmer
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10 Jan 2011, 2:53 pm

liveandletdie wrote:
. . . I had a job at an arcade that went from 11am to 8pm, that was perfect timing for me- work would go by very quickly and smoothly. Also there wasn't too much interaction to take place, the customers just want to exchange tokens, money or a machine needs fixed. I just do that, keep the place clean and then count the money at the end of the day. Pretty nice little operation but I was moved . . .

and perhaps your boss also operated according to the reality principle. Sometimes a machine can be fixed pretty quickly, sometimes it can't. That's just the nature of it.

And maybe your boss there also appreciated that you were a good steady worker. Not every employee is.


-----------------------------


There's a great deal of luck involved in all this. A person can have a job that works out pretty well, and then the next job, for a variety of reasons, just doesn't.



richardbenson
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10 Jan 2011, 3:00 pm

cleaning, making doctor appointment, finding a place to live, eating right
(i eat too much junk food :pig: ) keeping into contact with my ghey family


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Aspieallien
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14 Jan 2011, 8:32 pm

Woodfish wrote:
i don't have any kind of help with practical things so in that sense i am living independently in my own appartment. but in actuality i'm not doing it too well. pretty much any and all "normal" responsibilities i find pretty draining or almost impossible. the thing i'm learning right now is to do the things i really need to do in very very small pieces or portions. like only a very very small piece of the project at any one time.

like if i need to clean up a room. then i start with a microscopic part of it. like say just focusing on *part* of a stack of books. and putting those very few books in the right place. rather than all the stack at once. let alone all the room as one project. that's my trick. not planning ahead. keeping every project ant-size. then, only after the first micro-project is completed, i may plan another. ...

i think one service i almost desperately need (for example) would be to have sort of an ambassador for my neighbours and landlord. so if they want to tell me something they talk to my ambassador and of course also vice versa. i talk to my ambassador if i want them something. as it is i pretty much avoid contact with neighbours at all costs. which is pretty far from ideal im afraid ... :/ (not sure if this has already been brought up)


Yes I have this same problem. I need to break tasks down into tiny component tasks otherwise I become overwhelmed and panic at the scale of the things I have to do. Ticking off these small steps makes it seem you are getting somewhere in managable bits.

I like the idea of the ambassador/advocate. I think it would be good to have someone with good interpersonal skills do the types of tasks that require a lot of people contact. I know for me having to deal with people and organisations can be totally emotional draining, and somtimes the anxiety can make it hard to achieve what you need to when dealing with people.

Is this something that others out there would also find usefull. Having someone to deal with organisations on your behalf.



just-lou
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16 Jan 2011, 5:08 am

I have problems with anything long-term, especially work. Which usually means to make it even one year in the same job for me is difficult. That hardly makes for steady income. I can't just settle into the "normal" life - it's completely wrong to me.
I've basically given up trying to meet that social benchmark that labels you a loser, a child, weird/wrong/whatever if you're considered an adult and still live with your family.



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16 Jan 2011, 5:50 am

ediself wrote:
paying my bills!! !
i have the money, the adress, the checkbook, the enveloppes, the stamps. Can't seem to send the money before they threaten to cut my gaz in 48 hours. wth...
support service needed: a secretary.


Get a personal accountant. I'm not sure about how much they cost, but I'm pretty sure it's not much. They'll help you pay your bills on time.

As for me, anything related to chores. Doing the dishes, taking out the trash, general cleaning, that sort of stuff.


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Asp-Z
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16 Jan 2011, 6:10 am

ediself wrote:
paying my bills!! !
i have the money, the adress, the checkbook, the enveloppes, the stamps. Can't seem to send the money before they threaten to cut my gaz in 48 hours. wth...
support service needed: a secretary.


Why not pay your bills online?



Verdandi
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16 Jan 2011, 6:23 am

Aspieallien wrote:
Hi there all,

I am interested to know how many of those of us with AS are struggling to live independently. It seems there is very little if any help out there for people struggling to live independently. What are the actual living skills you struggle with the most. Do we need more support services in this area.


I struggle with everything related to housework. I am okay with my self-help skills (like hygeine, laundry, etc) although I don't really cook anything complex, and often settle for frozen pre-prepared food, canned food, or sandwiches.

When I have bills I have an awful time getting them paid on time. I can keep it up for a period of time but eventually my obligations topple over and bury me under their weight and everything falls apart.

I've never lived "independently" as society defines it. I've always lived with relatives or had assistance from relatives, or both. I had a brief period of time where I halfway supported myself by freelancing, but that fell apart because I kept burning out and crashing and burning. Plus, to even manage it I needed to take ephedra for the stimulant effect, as it helped me control my focus enough to get things done.

I think support would be most excellent, although I'm not sure exactly what I need.



IvyMike
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16 Jan 2011, 6:55 am

I have trouble paying bills on time too. I have to be out of this apartment soon. I don't know what I'm going to do, but I'm not too worried about it.



violetchild
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16 Jan 2011, 8:36 am

I live independantly and have huge issues with this. Some areas I have trouble in is -

cooking, I tend to get distracted in whatever is taking my interest at the time so at least one third of the time will completely burn my dinner black (that highly annoys me that I go to effort and then end up with burnt food I cant eat, It annoys me so much about the wasted food etc, that I then will go hungry and miss then having a meal). Even when the house is full of smoke and Im coughing on it, I dont always realise right away and remember that I had food which is now burning on the stove. When I do remember to take my food off in time, my stove often accidently gets left on (sometimes all night).
If involved in something which interests me.. I can forget to eat meals completely.

bill paying, I forget or just dont organise myself enough to pay my bills so usually end up getting fined due to late payments or get debt collectors letters. Ive had to direct debit many things or otherwise I dont end up paying my rent in time etc.

I confuse dates and forget appointments. I forget to take my medications when Im supposed to.

phoning people, I hate telephones and talking to strangers on the phone, it gives me a huge amount of anxiety, so will put off important stuff I should of done.

Im struggling to keep my house clean (its rather dirty) as Im doing things which interest me to take my mind off of stressors rather then doing housework as I hate it, so making myself do it just makes me want to cry. Of late Ive been feeling overwhelmed with life and all the expectations life puts on me, so that makes it all the more harder for me to organise and keep my house clean.

I currently dont bother to dress, do my hair etc etc unless I know someone is going to see me... as I just otherwise have no interest in doing so and see it as pointless. (that's by my own choice but NTs would probably look at this different). I'd probably have dreadlocks right now if my boyfriend wasnt coming to visit me a couple times a week.

My social life is a shambles as I struggle to socialise without having someone with me to do the talking etc when Im meeting people and getting to know them. Right now Im kind of scared of NTs so avoiding them, even to the point where Im avoiding the ones I do sometimes chat to online.. (they dont understand me so I just end up getting hurt or having meltdowns). Im scared to meet new people as I cant judge myself who is good and who is bad.

I often hate making life decisions unless the answer is really clear to me.. and hence then not do things often for this reason.

I really need a service, helping me in the areas I need it in as right now my life is real hard (in the keeping my paperwork up to date.. its all a complete mess with medical tests I was meant to have done a while ago appointments not made etc etc, cooking etc) and I cant see it getting any easier any time soon. The more overwhelmed I get, the less Im able to do as Im like distancing myself away from life as I cant handle it. :( Unfortunatley none of the medical professions dealing with me have any idea how much I struggle as they dont live with me or see me trying to live.